RealTalk MS – Détails, épisodes et analyse

Welcome to a RealTalk MS special series on MS clinical trials. This special series is made possible through a generous grant from Sanofi.

In today's episode, you'll meet two participants from the TEAMS Study, a research study at the University of Illinois Chicago's UI Health, in conjunction with the University of Alabama Birmingham School of Public Health.

TEAAMS is an acronym for Targeted Exercise for African-Americans with Multiple Sclerosis. And the study's research team analyzed the effects of a remotely delivered, racially tailored exercise training program among African Americans with MS living in low-income areas of the Southeastern United States, including Alabama, Georgia, Mississippi, North Carolina, South Carolina, Louisiana, Arkansas, and Tennessee. This is a part of the country that doesn't have many primary care or MS clinics that provide full exercise and rehabilitation services for patients with MS.

The TEAMMS study consists of two 16-week exercise programs, completed 3 days per week at home. One exercise program combines aerobic and resistance training, while the other focuses on stretching and flexibility. Study participants were randomly assigned to one of the two programs, and all of the materials to complete each program, like yoga mats, resistance bands, and training manuals, were provided. And every study participant receives a $90 gift card in compensation for completing the program.

The study's research team hypothesizes that completing the TEAAMS program would improve walking, reduce symptoms of fatigue, anxiety, depression, and pain, and enhance quality of life.

This special episode of RealTalk MS is made possible by a generous grant from Sanofi. Sanofi has two ongoing Phase 3 clinical trials in MS studying Frexalimab, an investigational second-generation anti-CD40 ligand monoclonal antibody. If you are interested in learning more about these clinical trials, please visit SanofiStudies.com

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Being a caregiver for a loved one with MS isn't an easy job. And, while it may consume hours of your time, often, it's not your only job. Many caregivers are the only family members bringing in an income. So, in addition to their caregiving responsibilities, they may also be facing the responsibilities that go along with holding down a full-time job. 

This week, Diana Grazio joins me to discuss how she balances her roles and responsibilities as her partner's caregiver while holding down a full-time job. 

You have online opportunities tomorrow! Participate in the National MS Society's Hispanic LatinX MS Experience Summit, or catch the International Progressive MS Alliance's global webcast, How Existing Drugs Could Transform MS Treatment. We have all the info for you to register for either or both!  

If you purchase your health insurance through the ACA Healthcare Marketplace, you've probably already been notified that your premiums will skyrocket in 2026. MS Activist, Sarah Quezada, shares how those premium increases will affect her family.

Roche has announced the outcomes of Phase 3 clinical trials for Fenebrutinib and Relapsing MS, and Primary Progressive MS. It's positive news, and we have the details!

Could nanoparticles penetrate the blood-brain barrier and deliver anti-inflammatory medication directly to the central nervous system?  University of Illinois researchers say yes! We're sharing the details.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: It's National Family Caregiver Month  :22

The MS Care Partner Connection  :34

The National MS Society is hosting the Hispanic LatinX MS Experience Summit TOMORROW!  2:20

The International Progressive MS Alliance Global Webcast is TOMORROW!  2:51

Sarah Quezada shares how astronomical increases in ACA health insurance premiums will affect her family  3:46

Roche announces outcomes for Phase 3 clinical trials for Fenebrutinib and Relapsing MS, and Primary Progressive MS  11:59

Could nanoparticles penetrate the blood-brain barrier and deliver anti-inflammatory medication directly to the central nervous system?  13:43

Diana Grazio discusses how she manages her role as a caregiver while holding down a full-time job  16:07

Share this episode  29:10

Next week's episode  29:30

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

PARTICIPATE: Take the Shaping Tomorrow Together Online Survey
https://s.alchemer.com/s3/Perspectives-on-MS

SIGN UP: Become an MS Activist
https://nationalmssociety.org/advocacy

REGISTER: The Hispanic LatinX MS Experience Summit
https://nationalmssociety.org/resources/get-support/education-programs-and-library/hispanic-latinx-ms-experience

REGISTER: International Progressive MS Alliance Global Webcast
https://msif.org/news/2025/11/03/alliance-webcast

VISIT: The MS Care Partner Connection
https://mscarepartnerconnection.com

STUDY: Nanoparticle-Boosted Myeloid-Derived Suppressor Cell Therapy for Immune Reprogramming in Multiple Sclerosis
https://www.science.org/doi/10.1126/sciadv.ady4135

JOIN: The RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

REVIEW: Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 429
Guests: Sarah Quezada, Diana Grazio

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Happy birthday to us! RealTalk MS is 8 years old today! It's hard for me to believe that the podcast I launched in 2017, with the goal of one day reaching 300 listeners, today reaches thousands of people living with MS, their care partners, MS researchers, and clinicians in more than 100 countries.

So, let me start this week's show notes with a profound thank you to each of you for being an important part of the RealTalk MS listener community. Your ongoing engagement is a constant reminder that our podcast is a two-way conversation. And I'm looking forward to continuing the conversation until we can talk about MS in the past tense.

MS can affect memory, attention, and processing speed. But proactive strategies can help preserve your cognitive function and quality of life. 

Erin Wilkinson, a nurse practitioner in the Multiple Sclerosis Department of the Cleveland Clinic Lou Ruvo Center for Brain Health, is joining me to help us better understand the relationship between MS and brain health and to share strategies for preserving and even improving brain health.

You'll also meet Jan Bonville, a consultant, speaker, writer, and advocate for inclusive travel and patient empowerment. Jan has lived with MS for twenty years, and our conversation focused on resilience, empowerment, and self-advocacy. As you will hear, these are things that Jan lives every day. 

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Happy birthday to us and greetings from ECTRIMS!  :22

MS advocate Jan Bonville discusses resilience, empowerment, and self-advocacy  4:40

Nurse Practitioner Erin Wilkinson shares strategies for optimizing your brain health  23:03

Share this episode  41:01

Next week's episode   41:21

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

PARTICIPATE: Take the Shaping Tomorrow Together Survey
https://s.alchemer.com/s3/Perspectives-on-MS

REGISTER: Attend the virtual Shaping Tomorrow Together meeting with the FDA
https://nmss.quorum.us/event/25463

SIGN UP: Become an MS Activist
https://nationalmssociety.org/advocacy

LISTEN: RealTalk MS Episode 416: The Updated McDonald Diagnostic Criteria for MS with Dr. Andrew Solomon
https://realtalkms.com/416

VIDEO: Dr. Robert Fox explains the results of the Phase 3 clinical trial for Tolebrutinib and Non-relapsing secondary progressive MS
https://youtube.com/watch?v=tJQ93qdlXrU

JOIN: The RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

DOWNLOAD: The RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

DOWNLOAD: The RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

REVIEW: Give RealTalk MS a rating and review
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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 421
Guests: Jan Bonville and NP Erin Wilkinson

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As people age, their immune systems change. Their level of physical and cognitive reserve changes. They often develop additional health issues. They frequently experience changes in their mobility. And these are people who aren't living with MS.

When you combine the health issues related to aging with the health issues that are related to MS, you end up with a sum that is exponentially larger than its parts. And when you consider that there are more people living with MS who are over the age of 65 than there are people living with MS under the age of 45, it's not surprising that the subject of aging with MS has become an area of increasing interest among researchers, clinicians, and people affected by MS.

That's why, last week, the International Advisory Committee for Clinical Trials in Multiple Sclerosis invited a select group of 100 MS researchers and clinical specialists from around the world to participate in a three-day deep dive exploring aging and MS.

In Part 1 of our coverage, we're taking you inside this meeting, where you'll hear from some of the expert presenters who were in attendance.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: From the Aging & MS Workshop  :22

Dr. Tim Coetzee shares some of the issues the meeting presenters and attendees will be focusing on  1:35

Dr. Jennifer Graves discusses the difference between chronological aging and biological aging, and how that difference impacts MS  9:29

Dr. Wallace Brownless talks about some of the challenges related to diagnosing and treating late-onset MS  14:33

Dr. Amit Bar-Or explains how the immune system changes over time, and how those changes can affect living with MS  21:36

Share this episode  28:04

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Join the RealTalk MS Facebook Group
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Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 348
Guests: Dr. Tim Coetzee, Dr. Jennifer Graves, Dr. Wallace Brownlee, Dr. Amit Bar-Or

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Lower levels of Vitamin D have been associated with a higher risk of developing MS and an increase in MS disease activity. And, for years, scientists have worked to better understand the relationship between Vitamin D and MS.

Joining me to talk about the role that Vitamin D plays in MS is Dr. Ellen Mowry. Dr. Mowry is a Professor of Neurology and Epidemiology, and the Co-Director of the Multiple Sclerosis Precision Medicine Center of Excellence at Johns Hopkins University. Dr. Mowry is also one of the leading experts on Vitamin D and MS in the world.

The National MS Society's virtual MS Activist Rally is happening in just two days, on April 25th! We're sharing registration details. 

We'll tell you about a scientific breakthrough that has identified a specific autoantibody signature that can accurately predict MS years before someone experiences any MS symptoms.

We're sharing details of a clinical trial that focused on the efficacy of Ocrevus in treating Black and Hispanic people living with MS. We'll also share the details of this trial's novel design that can serve as a blueprint for successfully engaging members of minority communities in future clinical research.

We'll explain one reason why we aren't hearing as much news about the benefits of using cannabis to treat MS symptoms, and why cannabis use may actually be creating a new set of problems for people living with MS.

And we're sharing study results that show that an artificial intelligence program may have a better bedside manner than your neurologist.

We have a lot to talk about! Are you ready for RealTalk MS??!

Don't miss it! The MS Activist Rally is happening on 4/25!  :22

This Week: The relationship between Vitamin D and MS  2:50

Autoantibody signature predicts MS years before symtoms develop  3:45

Clinical trial results show that Black and Hispanic people with MS respond well to Ocrevus  7:58

Is cannabis working for people with MS?  11:13

Study results show that ChatGPT answers questions about MS with more empathy than neurologists  14:28

Dr. Ellen Mowry updates us on what the latest research is revealing about Vitamin D and MS  18:31

Share this episode  32:06

Have you downloaded the free RealTalk MS app?  32:26

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/347

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

REGISTER for the MS Activist Rally
https://events.zoom.us/ev/Ame2jWSuHmriG94cyQmlWHr45mgnzxkDv8oMZRGsrS3ZxiSj5rro~Anqb3dHg3ewiz4KNHn2Ena4bgli_WXlza_zcygZN3GinnleB6rO15OCzGQ

STUDY: An Autoantibody Signature Predictive of Multiple Sclerosis
https://www.nature.com/articles/s41591-024-02938-3

RealTalk MS Episode 346: Why Members of Minority Communities May Face a More Severe MS Disease Course with Dr. Annette Langer-Gould
https://realtalkms.com/346

STUDY: ChatGPT vs Neurologists: A Cross-Sectional Study Investigating Preference, Satisfaction Ratings, and Perceived Empathy in Responses Among People Living with Multiple Sclerosis
https://link.springer.com/article/10.1007/s00415-024-12328-x

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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RealTalk MS Episode 347
Guest: Dr. Ellen Mowry

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In past episodes of this podcast, we've discussed disparities in healthcare. We've looked at evidence that shows members of historically underserved communities who are living with MS can face a more severe disease course. We've looked at studies that have shown some members of these racial and ethnic minority groups don't do as well on disease-modifying therapies, and their MS progresses more quickly.

It's often been speculated that the reason behind these disparities is based on genetics -- that members of minority communities who are living with MS are genetically predisposed to experiencing a more severe disease course. 

My guest in this episode is Dr. Annette Langer-Gould, and Dr. Langer-Gould comes armed with evidence that points to a completely different set of answers for the cause of racial and ethnic disparities in MS disease severity and progression.

We're also sharing registration details for the National MS Society's MS Activist Rally on April 25th!

We'll tell you about an inverse vaccine that prevents the mouse model of MS (and we'll explain what an inverse vaccine is!)

You'll find out where you can find the just-released video progress report from the International Progressive MS Alliance.

We'll explain just-published results from an analysis that shows why anti-diabetic and weight-loss drugs like Ozempic, Jardiance, and Trulicity may be repurposed as MS therapies.

And we're sharing study results with both good news and not so great news when it comes to being diagnosed and treated for MS in a timely manner.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: We're exploring the reason that members of underserved minority populations who are living with MS often experience a more severe disease course  :22

The MS Activist Rally is happening on 4/25!  1:28

An inverse vaccine prevents the mouse model of MS  3:49

The International Progressive MS Alliance has released their 2024 progress report  6:13

Can weight-loss drugs be repurposed as MS therapies?  7:33

A study shows that getting diagnosed and treated for MS is dependent upon your country's healthcare system  10:26

Dr. Annette Langer-Gould has a sobering answer as to why some members of minority communities who are living with MS experience a more severe disease course  14:48

Share this episode  31:31

Have you downloaded the free RealTalk MS app?  31:51

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/346

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

REGISTER for the MS Activist Rally
https://events.zoom.us/ev/Ame2jWSuHmriG94cyQmlWHr45mgnzxkDv8oMZRGsrS3ZxiSj5rro~Anqb3dHg3ewiz4KNHn2Ena4bgli_WXlza_zcygZN3GinnleB6rO15OCzGQ

VIDEO: International Progressive MS Alliance 2024 Progress Report
https://www.youtube.com/watch?v=4ojRaLp_J1w

STUDY: Exploring the Association Between Weight Loss-Inducing Medications and Multiple Sclerosis: Insights from the FDA Adverse Event Reporting System Database
https://journals.sagepub.com/doi/10.1177/17562864241241383

STUDY: Disease-Modifying Therapy Initiation Patterns in Multiple Sclerosis in Three Large Populations
https://journals.sagepub.com/doi/10.1177/17562864241233044

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 346
Guest: Dr. Annette Langer-Gould

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MS affects women almost 3 times more frequently than it affects men, which makes understanding how MS may impact other women's health issues a priority.

Dr. Rhonda Voskuhl and Dr. Anna Shah join me as we take a deep dive into both the research and clinical side of how MS affects women's health and how those other health issues may affect MS.

Dr. Shah is an Associate Professor of Neurology and Associate Clinic Director of Outpatient Neurology at the University of Colorado School of Medicine.

Dr. Voskuhl is the Director of the UCLA Multiple Sclerosis Program, she holds the Jack H. Skirball Chair in MS, she's a Professor in the UCLA Department of Neurology, and Dr. Voskuhl also serves as Faculty Neurologist of the UCLA Comprehensive Menopause Care Program.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: We're taking a deep dive into women's health and MS  :22

Dr. Rhonda Voskuhl named the recipient of the 2024 John Dystel Prize for Multiple Sclerosis Research  :52

Dr. Rhonda Voskuhl discusses her research looking at why MS affects men and women differently   2:32

Dr. Anna Shah discusses how MS can affect women's health issues and how those health issues can affect MS  13:21

Share this episode  32:40

Have you downloaded the free RealTalk MS app?  33:00

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/345

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
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RealTalk MS Episode 345
Guests: Dr. Rhonda Voskuhl and Dr. Anna Shah

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If you're a regular listener, you've probably heard me say that the pace of scientific discovery is moving faster than ever before. Or you may have heard the National MS Society remind us that we've seen as many advances in MS research in the past 5 years as we have in the previous 70 years. Have you ever wondered why?

A major driver of this acceleration of discovery is the technology that allows scientists to analyze massive amounts of information looking for relationships or identifying characteristics that, without this technology, would be impossible to see. 

This category of tech is commonly referred to as big data. And we're closer than we've ever been to understanding the biological complexities of multiple sclerosis because we've learned to harness the computing power that allows scientists to discover those very small needles among those very large haystacks.

My guest in this episode is Professor Sergio Baranzini. Professor Baranzini is this year's recipient of the Barancik Prize for Innovation in MS Research and he's someone who has successfully leveraged big data to drive big, game-changing discoveries in multiple sclerosis.

We'll also share some good news about MS research funding from the federal government. 

We'll review newly published results from a study that has identified 3 subtypes of MS, each with a different disease trajectory.

We'll share evidence from a study that focused on whether people over the age of 50 with nonactive MS should discontinue their disease-modifying therapy.

And we'll tell you about the Canadian regulatory approval of a software-based medical device that can monitor MS disease activity by tracking eye movement -- all from an iPad that people with MS can use at home.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: We're saluting Professor Sergio Baranzini, this year's winner of the Barancik Prize  :22

Congress provides $20 million in FY2024 funding for the MS Research Program  1:57

A German research team has identified 3 subtypes of MS based on their unique immune cell signature found in a blood sample  4:10

A French research team focused their study on whether people over the age of 50 with nonactive MS should discontinue their DMT. Here's what they discovered  8:58

Health Canada has approved ETNA-MS. A software-based medical device that can monitor MS disease activity by tracking eye movement  12:48

Professor Sergio Baranzini discusses how big data has fundamentally changed scientific research, and how he's using it to find cures for MS  16:44

Share this episode  32:03

Have you downloaded the free RealTalk MS app?  32:24

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/344

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

REGISTER for the MS Activist Rally
https://events.zoom.us/ev/Ame2jWSuHmriG94cyQmlWHr45mgnzxkDv8oMZRGsrS3ZxiSj5rro~Anqb3dHg3ewiz4KNHn2Ena4bgli_WXlza_zcygZN3GinnleB6rO15OCzGQ

STUDY: Multiple Sclerosis Endophenotypes Identified by High-Dimensional Blood Signatures are Associated with Distinct Disease Trajectories
https://science.org/doi/10.1126/scitranslmed.ade8560

STUDY: High-Efficacy Therapy Discontinuation vs Continuation in Patients 50 Years and Older with Nonactive MS
https://jamanetwork.com/journals/jamaneurology/article-abstract/2816799

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 344
Guest: Professor Sergio Baranzini

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March 28th is Progressive MS Day, a day that offers an opportunity for people affected by MS, patient advocates, healthcare providers, governments, and industry to share stories online and show their support for people living with progressive forms of MS. 

My wife, Jeanne, lived with progressive MS for 23 years, so this day holds a special significance for me. Joining me to talk about what Progressive MS Day is all about is my friend, Kevin Reid. Kevin was diagnosed with MS in 2002 and, for the past 10 years, he's been on a mission to crush MS.

As MS Awareness Month draws to a close, we're sharing a series of short videos featuring conversations I had with MS experts at the ECTRIMS congress. What makes this video series unique is that iConquer MS invited people living with MS to watch these videos. Then, I interviewed them to get their perspective on the topics the experts were discussing. It's the first time you'll not only hear from the experts, but you'll also get the thoughts and reactions of people who are living with MS.

We'll tell you about the neurostimulator that was just designated as a Breakthrough Device for promoting myelin repair.

We'll share the details of a newly announced Phase 2 clinical trial for a T-cell therapy for MS.

You'll hear about the study that identified a biomarker that reliably predicted the likelihood of future disease activity in people with MS.

And we'll tell you where you can catch the video replay of the 2024 ACTRIMS Forum Patient-Centered Webinars.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: March 28th is Progressive MS Day  :22

Have you seen the series of short videos featuring my conversations with MS experts at ECTRIMS along with the thoughts and reactions from people living with MS?  1:00

Catch the video replay of the 2024 ACTRIMS Forum Patient-Centered Webinars  1:57

FDA designates neurostimulator as a breakthrough device for promoting myelin repair in people living with relapsing-remitting MS  2:46

Biotech company PolTREG announces Phase 2 clinical trials to test their Tregs treatment for MS  5:28

Study shows neurofilament light chain levels can reliably predict future disease activity  7:10

Kevin Reid discusses the importance of Progressive MS Day and gives us a preview of CRUSH MS  10:35

Share this episode  28:09

Have you downloaded the free RealTalk MS app?  28:29

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/343

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

VIDEO: Dr. Jiwon Oh shares encouraging results from an extension study of Tolebrutinib, an investigational disease-modifying therapy. Then, two people living with MS share their thoughts about clinical trials and a precision medicine approach to treating MS
https://youtu.be/eWoZLF4bZmo

VIDEO: Dr. Anthony Feinstein discusses the outcome of the CogEx study, Then, two people living with MS share their thoughts about the impact of this study
https://www.youtube.com/watch?v=UtGtCnNkYOY

VIDEO: Dr. Annette Langer-Gould discusses the impact of other health conditions on people living with MS. Then, two people living with MS share their thoughts and experiences of  managing their MS along with additional health conditions
https://www.youtube.com/watch?v=J83jlqMbsZo

VIDEO: Dr. Daniel Ontaneda discusses how artificial intelligence will impact MS treatment. Then, two people living with MS share their thoughts on the potential impact of AI on MS treatment and the future patient experience
https://www.youtube.com/watch?v=_fRLW69Xc1A

VIDEO: Dr. Robert Motl discusses the benefits of exercise for people living with MS. Then, two people living with MS share their thoughts on how exercise has impacted their MS journey
https://www.youtube.com/watch?v=oZDdp8JumFg

VIDEO: ACTRIMS Forum 2024 Webcast Replays
https://actrims.memberclicks.net/forum-patient-centered-webinars

STUDY: Prognostic Value of Serum Neurofilament Light Chain for Disease Activity and Worsening in Patients with Relapsing Remitting Multiple Sclerosis: Results from the Phase 3 ASCLEPIOS I and II Trials
https://pubmed.ncbi.nlm.nih.gov/35432382

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 343
Guest: Kevin Reid

Privacy Policy

We often discuss the results of MS research studies on this podcast. In order to get to those results, people living with MS have to step up and volunteer to participate. This week, you'll meet Chiquita Shepard-Knight and Earl Sneed, two participants in the TEAAMS study.

Chiquita and Earl will discuss how they discovered the TEAAMS study, what motivated them to get involved, what their experience as study participants was like, and what the results of the study were for them.

We'll also take you to Capitol Hill as we share conversations that we had during Hill Day at the National MS Society's Public Policy Conference. 

It's MS Awareness Month, and we're sharing new videos that feature interviews with leading MS experts along with the thoughts and reactions of people living with MS.

And we'll tell you where you can catch the video replay of the International Progressive MS Alliance's webcast on emerging treatments for progressive MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Tomorrow! The ACTRIMS Post-Forum Patient-Centered Webinar  :22

This Week: The patient perspective on participating in an MS research study  1:38

Live! From the Natinal MS Society's Public Policy Conference  2:28

People with MS weign in on the impact of several ECTRIMS presentations  10:17

Catch the video replay of the International Progressive MS Alliance webcast  11:35

Chiquita Shepard-Knight and Earl Sneed discuss their experience participating in the TEAAMS study   12:11

Share this episode  27:18

Have you downloaded the free RealTalk MS app?  27:38

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/342

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

REGISTER: ACTRIMS Post-Forum Patient-Centered Webinar
https://fs2.formsite.com/1FItkk/tgx8tu3xg0/index

VIDEO: Dr. Jiwon Oh shares encouraging results from an extension study of Tolebrutinib, an investigational disease-modifying therapy. Then, two people living with MS share their thoughts about clinical trials and a precision medicine approach to treating MS
https://youtu.be/eWoZLF4bZmo

VIDEO: Dr. Anthony Feinstein discusses the outcome of the CogEx study, Then, two people living with MS share their thoughts about the impact of this study
https://www.youtube.com/watch?v=UtGtCnNkYOY

VIDEO: Dr. Annette Langer-Gould discusses the impact of other health conditions on people living with MS. Then, two people living with MS share their thoughts and experiences of  managing their MS along with additional health conditions
https://www.youtube.com/watch?v=J83jlqMbsZo

VIDEO: Dr. Daniel Ontaneda discusses how artificial intelligence will impact MS treatment. Then, two people living with MS share their thoughts on the potential impact of AI on MS treatment and the future patient experience
https://www.youtube.com/watch?v=_fRLW69Xc1A

VIDEO: Dr. Robert Motl discusses the benefits of exercise for people living with MS. Then, two people living with MS share their thoughts on how exercise has impacted their MS journey
https://www.youtube.com/watch?v=oZDdp8JumFg

VIDEO: International Progressive MS Alliance Webcast Replay: Emerging Treatments for Progressive MS
https://www.youtube.com/watch?v=W4hxtl38MBQ

The TEAAMS Study
https://projectteaams.ahs.uic.edu

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 342
Guests: Chiquita Shepard-Knight and Earl Sneed

Privacy Policy