RealTalk MS – Détails, épisodes et analyse

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RealTalk MS

RealTalk MS

Jon Strum

Forme & Santé

Fréquence : 1 épisode/6j. Total Éps: 509

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Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you're dealing with multiple sclerosis in your life -- as a patient, caregiver, family member, or friend -- join us each week for RealTalk MS.
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  • 🇨🇦 Canada - medicine

    22/05/2026
    #93
  • 🇨🇦 Canada - medicine

    15/04/2026
    #87
  • 🇨🇦 Canada - medicine

    08/04/2026
    #98
  • 🇬🇧 Grande Bretagne - medicine

    02/03/2026
    #95
  • 🇬🇧 Grande Bretagne - medicine

    22/11/2025
    #84
  • 🇬🇧 Grande Bretagne - medicine

    03/10/2025
    #95
  • 🇬🇧 Grande Bretagne - medicine

    02/10/2025
    #62
  • 🇬🇧 Grande Bretagne - medicine

    01/10/2025
    #73
  • 🇨🇦 Canada - medicine

    19/09/2025
    #98
  • 🇨🇦 Canada - medicine

    01/09/2025
    #97

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Episode 366: Medicare and MS -- Getting Your Ducks In a Row with Laquel Thomas

Saison 7 · Épisode 366

lundi 2 septembre 2024Durée 35:13

Most of us know Medicare as health insurance for Americans who are 65 or older, but when they qualify for Social Security disability benefits, people younger than 65 automatically qualify for Medicare. Today, between 25 and 30% of the people living with MS are Medicare beneficiaries.

Whether you already have Medicare or you'll be signing up for Medicare in the future, getting the right coverage requires making some important choices. 

Licensed Medicare Advisor Laquel Thomas joins me with tips, strategies, and explanations for successfully navigating Medicare and getting the coverage you need.

We’re explaining the good news in the results from a Phase 3 clinical trial for Tolebrutinib, Sanofi’s experimental oral BTK inhibitor. The trial showed that, compared to placebo, Tolebrutinib met the primary endpoint, delaying the onset of confirmed disability progression in people with non-relapsing secondary progressive MS.

Take My Hand is an Australian film based on the true story of Claire Jensz, a mother of three living in London who is diagnosed with MS at the peak of her high-powered career. Be sure to catch my conversation with Claire, Radha Mitchell, the film's star, and John Raftopoulos, the film's director.

We're sharing the details of a study that may have uncovered an underlying cause of MS and, perhaps, all autoimmune diseases.

We'll tell you about the results of a stem cell study that show MS may involve more than just immune cells. 

And we'll give you what may be surprising details of a study that focused on how MS impacts the quality of life of fully ambulatory people living with mild MS symptoms.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Making the right Medicare choices  :22

There's good news about the results of the Phase 3 clinical trial for Tolebrutinib  1:41

My conversation with the director, star, and woman whose story about living with MS is the real-life basis for the new film, Take My Hand    4:28

Have researchers at Yale discovered an underlying cause of MS?  14:11

Newly published results of a stem cell study show that MS may also be driven by brain cells  17:19

Study results show how MS impacts the quality of life among fully ambulatory people with mild MS symptoms  19:15

Licensed Medicare Advisor, Laquel Thomas, explains all the variables you want to consider in making choices about your Medicare coverage  22:12

Share this episode  33:40

Have you downloaded the free RealTalk MS app?  34:01

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/366

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

TRAILER: Take My Hand
https://youtu.be/PdNMb7-AeEs

STUDY: An Autoimmune Transcriptional Circuit Drives FOXP3+ Regulatory T-Cell Dysfunction
https://www.science.org/doi/10.1126/scitranslmed.adp1720

STUDY: Patient iPSC Models Reveal Glia-Intrinsic Phenotypes in Multiple Sclerosis
https://www.sciencedirect.com/science/article/abs/pii/S1934590924002881

STUDY: Determinants of Self-Perceived Quality of Life in Mildly Disabled Multiple Sclerosis Patients: A Cross-Sectional Study
https://pubmed.ncbi.nlm.nih.gov/38526763

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 366
Guest: Claire Jensz, John Raftopolous, Radha Mitchell, Laquel Thomas

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Episode 365: It's the Episode Where I Get Interviewed with Jon Strum

Saison 7 · Épisode 365

lundi 26 août 2024Durée 41:35

If you're a regular listener, you know that I rely on the RealTalk MS listener community to let me know which topics you'd like to hear about on this podcast. A few years ago, in episode 264, listener Dawnia Baynes did a podcast takeover, and interviewed me. Since then, I've heard from a bunch of you who, for some reason, want to hear more about me. So, when listener Kyra Millich asked if she could interview me, it felt like it was time. 

In today's episode, you'll find out what I like to do when I'm not doing this podcast, I'll share some of the most memorable moments in my life, you'll hear how and why I started RealTalk MS, and I hope you'll get to know me a little better.

You'll also hear about results from a study that show people with MS are far less likely to be diagnosed with Alzheimer's disease compared to people who don't have MS.

We'll tell you about a Phase 1 clinical trial for a CAR-T cell therapy for MS.

And you'll learn the details of a different Phase 1 clinical trial for a different CAR-T cell therapy for MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Jon gets interviewed  :22

Study results show people with MS are less likely to get Alzheimer's disease than people who don't have MS  1:23

TG Therapeutics announces Phase 1 clinical trial of CAR-T cell therapy for MS  3:44

FDA clears Immpact Bio for Phase 1 clinical trial of CAR-T cell therapy for hard-to-treat MS  7:13

Listener Kyra Millich interviews Jon  8:48

Share this episode  40:03

Have you downloaded the free RealTalk MS app?  40:23

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/365

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Unexpected Low Rate of Amyloid-β Pathology in Multiple Sclerosis Patients
https://onlinelibrary.wiley.com/doi/10.1002/ana.27027

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 365

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Episode 356: A Final Conversation with National MS Society President and CEO, Cyndi Zagieboylo

Saison 7 · Épisode 356

lundi 24 juin 2024Durée 33:04

Over the course of her 39-year career with the National MS Society, including the past 13 years as its President and CEO, Cyndi Zagieboylo has been a driving force behind major initiatives that have fundamentally changed the MS treatment and research landscape. Creating a world where cures for MS are now within reach, Cyndi has led the work to make living with MS better today than it's ever been.

On July 1, Cyndi is retiring from her remarkable career at the National MS Society. I had an opportunity to talk with Cyndi about the progress she's witnessed and the progress she has driven in leading the MS Society. It's been a career filled with so many moments that are worthy of celebration, I am devoting this entire episode of RealTalk MS to one last conversation with Cyndi Zagieboylo.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: A final conversation with the National MS Society's President and CEO, Cyndi Zagieboylo  :22

A look back at some of the most impactful initiatives that were led by Cyndi  1:43

Share this episode  30:39

Next Week: Lifestyle medicine physician Dr. Linda Doggett shares tips and strategies for making healthy lifestyle choices that will improve your quality of life   31:00

Have you downloaded the free RealTalk MS app?  31:50

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/356

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 356
Guest: Cyndi Zagieboylo

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Bonus Episode: MS in the 21st Century -- Are We Nearly There Yet? Achieving Freedom from Disease

Saison 6

jeudi 15 décembre 2022Durée 38:04

This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.

In this special episode of RealTalk MS, I'm joined by Professor Peter Rieckmann, Stanca Potra, and Maria Paz Giambastiani. We're taking a look back at the advances that have been made in treating MS and focusing our eyes ahead to determine the work that still needs to be done. 

Professor Rieckmann is the Chief Physician of Neurology and Clinical Neuroplasticity at the Medical Park Loipl, Germany. Professor Rieckmann has also served as the Chair of the MS in the 21st Century initiative since its inception in 2011.

Maria Paz Giambastiani has been living with MS for the past 17 years. She's a columnist, writing about disability and inclusion for More Than Words magazine. Maria has also authored several books and publications focused on MS.

Stanca Potra is the founder of the Smile Center, a support and counseling center for people living with MS in Romania. Stanca has been living with MS for the past 9 years.

Professor Rieckmann, Stanca, and Maria are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

Episode 276: ECTRIMS Research Update Part 2 with Dr. Bruce Bebo

Saison 6 · Épisode 276

lundi 12 décembre 2022Durée 36:56

Some of you might remember that at the end of October, I was in Amsterdam, attending the 2022 ECTRIMS Congress. ECTRIMS is an acronym for the European Committee for Treatment and Research in Multiple Sclerosis, and their annual scientific congress is the largest MS research conference in the world. As the conference ended, I sat on some steps outside the conference center alongside the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo. And Dr. Bebo shared his initial impressions of some of the research that had been presented over the 3-day conference.  If you missed that episode of the podcast, you may want to listen to episode number 270 of RealTalk MS

After having had a few weeks to consider all of the research that was presented at the ECTRIMS Congress, Dr. Bebo is back to share his final ECTRIMS research update, and talk about the rest of the research that caught his attention at the 2022 ECTRIMS Congress.

You'll also meet the Co-Chair of the MS Society Southern California chapter's Emerging Leaders Board and this year's recipient of the Dorothy Corwin Spirit of Life Award, Kristen Karasek. Kristen was diagnosed with MS at the age of 24, but, as will become clear to you, she hasn't let MS get in her way. I think you'll find Kristen's positivity to be infectious.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Part Two of our 2022 ECTRIMS research roundup with Dr. Bruce Bebo  :22

My conversation with the Co-Chair of the MS Society Southern California Chapter's Emerging Leaders Board and Dorothy Corwin Spirit of Life recipient, Kristen Karasek  1:37

The National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, discusses the research that caught his attention at the largest MS research conference in the world  16:20

Share this episode  35:21

Download the free RealTalk MS app  35:41

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/276

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS Episode 270: From the 2022 ECTRIMS Congress with Dr. Bruce Bebo
https://realtalkms.com/270

Take the iConquer MS Caregiver Survey
https://realtalkms.com/caregiver

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 276
Guests: Dr. Bruce Bebo, Kristen Karasek

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Episode 275: Choosing the Right Disease-Modifying Therapy with Ross Tingen, PharmD, BCPS, MSCS

Saison 6

lundi 5 décembre 2022Durée 28:20

The first step in living well with MS is establishing a treatment plan with your neurologist or MS specialist. And a disease-modifying therapy, or DMT, should be the foundation of that plan. Joining me to talk about what disease-modifying therapies can and can't do, and how to work with your doctor to find the best MS medication for you is the Clinical Pharmacy Specialist in Multiple Sclerosis and Neuroimmunology at VCU Health in Richmond Virginia, Ross Tingen.

Why are we talking about global warming on a podcast about MS? Because we're talking about the results of a study that show how climate change has a negative impact on people living with multiple sclerosis and other neurological conditions.

We're also sharing the results of a study that demonstrate the sobering reality of the association between socioeconomic status and death among people living with MS.

If you're on Tecfidera, you'll want to hear about a study that focused on how alcohol may change the efficacy of your DMT.  

And we'll tell you about a study that revealed significant differences in how the prodromal phase of MS affects men and women at different ages. (And we'll also tell you why understanding the MS prodrome is important!)

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: How to find the best MS medication for you  :22

Study shows climate change impacts people living with MS  1:08

Study examines the impact of socioeconomic status on death among people with MS  3:28

Study shows alcohol dulls the metabolism of Tecfidera  7:01

Study analyzes differences due to sex and age in the MS prodrome  8:35

Ross Tingen discusses how to work with your doctor to find the best disease-modifying therapy for you  18:40

Share this episode  27:19

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/275

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Impacts of Climate Change and Air Pollution on Neurologic Health, Disease, and Practice: A Scoping Review
https://n.neurology.org/content/early/2022/11/16/WNL.0000000000201630

Tremlett's MS Research Explained: Low Socioeconomic Status Was Associated with a Higher Mortality Risk in Multiple Sclerosis Explained
https://tremlettsmsresearchexplained.wordpress.com/category/ms-socioeconomic-status-research

STUDY: Low Socioeconomic Status Was Associated with a Higher Mortality Risk in Multiple Sclerosis
https://journals.sagepub.com/doi/full/10.1177/13524585221129963

STUDY: Alcohol Inhibits the Metabolism of Dimethyl Fumarate to the Active Metabolite Responsible for Decreasing Relapse Frequency in the Treatment of Multiple Sclerosis
https://journals.plos.org/plsuone/article?id=10.1371/journal. pone.0278111

Tremlett's Research Explained: Sex and Age Differences in the Multiple Sclerosis Prodrome Explained
https://tremlettsresearchexplained.wordpress.com/2022/11/03/sex-and-age-differences-in-the-multiple-sclerosis-prodrome-explained

STUDY: Sex and Age Differences in the Multiple Sclerosis Prodrome Explained
https://pubmed.ncbi.nlm.nih.gov/36408518

Take the iConquer MS Caregiver Survey
https://realtalkms.com/caregiver

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 275
Guest: Ross Tingen, PharmD, BCPS, MSCS

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

Bonus Episode: MS in the 21st Century -- The Impact of Cognitive Symptoms on Employment

Saison 6

mercredi 30 novembre 2022Durée 25:22

This special episode of RealTalk MS is sponsored by EMD Serono and MS in the 21st Century.

In this special episode of RealTalk MS, we're talking with Professor Dawn Langdon and David Yeandle about the impact of MS-related cognitive issues on employment. 

Professor Langdon is a Professor of Neuropsychology with a special interest in cognition at the Royal Holloway University of London, in the United Kingdom. Professor Langdon is also a Trustee of the MS Trust in the U.K. 

David Yeandle was diagnosed with MS in 2010. David was a Head of Employment for a major organization in the U.K., and he's a passionate advocate for helping people living with MS stay employed. 

Both Professor Langdon and David are active members of the MS in the 21st Century initiative. To learn more about MS in the 21st Century, please visit www.msinthe21stcentury.com.

Episode 274: Disaster Preparedness for People Living with MS with Mary Casey-Lockyer

Saison 6 · Épisode 274

lundi 28 novembre 2022Durée 32:25

A quick scan of the news on any given day should remind all of us that natural disasters can strike anywhere at any time. Whether it's massive snowstorms, earthquakes, wildfires, hurricanes or floods, no one is immune when Mother Nature chooses to act up. That's why being prepared for a natural disaster is important for everyone. And if you're living with MS, it's especially important for you to have your family's emergency preparedness plan in place.

Senior Medical Advisor to National Disaster Operations at the American Red Cross, Mary Casey-Lockyer, joins me to talk about the things that people living with MS should include in their emergency preparedness plan.

We're also talking with Dr. Aaron Kesselheim, a researcher at Harvard's Brigham and Women's Hospital. And if you're on Lemtrada, Dr. Kesselheim could use your help.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Disaster Preparedness  :22

If you're on Lemtrada, Dr. Aaron Kesselheim could use your help  1:43

Mary Casey-Lockery discusses disaster preparedness for people living with MS  10:49

Share this episode  31:22

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/274

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the iConquer MS Caregiver Survey
https://realtalkms.com/caregiver

Join the RealTalk MS Facebook Group
https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Devices
https://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review
http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 274
Guest: Dr. Aaron Kesselheim and Mary Casey-Lockyer

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

Episode 273: Spasticity and MS with Dr. Michelle Cameron

Saison 6 · Épisode 273

lundi 21 novembre 2022Durée 35:00

Spasticity is one of the most common symptoms of MS, impacting up to 80% of the people living with MS. It can feel like mild muscle tightness that you wish would just go away or it can be so painful and debilitating that it keeps you from moving. Dr. Michelle Cameron joins me in this episode to discuss what spasticity is and how to best manage it.

Dr. Cameron is a neurologist and physical therapist, a professor in the Department of Neurology at Oregon Health & Science University, Interim Chief of Neurology at the VA Portland Healthcare System, and Co-Director of the VA MS Center of Excellence West.

We're also talking about a new framework for thinking and talking about MS that's been proposed by an international panel of MS experts.

We'll tell you about a study that looked at polypharmacy and MS (Of course, we'll also tell you what polypharmacy is and why you should be aware of it!)

We'll share the details around the discovery of human antibodies that have been shown to prevent Epstein-Barr infection (And we'll explain why this could be incredibly important)

If you're an MS caregiver, or you know one, I'm asking for just 5 minutes of your time.

We're celebrating National Caregivers Month by breaking down the details of the National Family Caregiving Strategy that was recently submitted to Congress.

And we're celebrating the indomitable quality of the human spirit by sharing the story of Eric Domingo Roldan and his mom, Sylvia.

We have a lot to talk about! Are you ready for RealTalk MS??!

Thanksgiving is two days away!  :22

This Week: Managing Spasticity  1:02

Experts propose a new framework for thinking about and talking about MS  2:07

Polypharmacy and MS  5:55

Researchers identify antibodies that prevent Epstein-Barr Virus infection  9:02

If you're an MS caregiver, or you know one, can I have 5 minutes of your time?  11:30

The 2022 National Family Caregivig Strategy   13:55

Eric Domingo Roldan and his mom, Sylvia, make it into the Guinness Book of World Records  16:34

Dr. Michelle Cameron discusses spasticity and MS 18:40

Share this episode  33:55

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/273

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com
Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Multiple Sclerosis Progression: Time for a New Mechanism-Driven Framework
https://www.thelancet.com/journals/laneur/article/PIIS1474-4422(22)00289-7/fulltext

Tremlett's MS Research Explained: Polypharmacy and Multiple Sclerosis: A Population-Based Study
https://tremlettsmsresearchexplained.wordpress.com/2022/10/27/polypharmacy-and-multiple-sclerosis-a-population-based-study/

STUDY: Polypharmacy and Multiple Sclerosis: A Population-Based Study
https://journals.sagepub.com/doi/full/10.1177/13524585221122207

RealTalk MS Episode 229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi
https://realtalkms.com/229

RealTalk MS Episode 231: Evidence Shows EBV Triggers MS: Understanding the Impact of this Breakthrough Research with Dr. Bruce Bebo
https://realtalkms.com/231

STUDY: Epstein-Barr Virus gH/gL Has Multiple Sites of Vulnerability for Virus Neutralization and Fusion Inhibition
https://cell.com/immunity/fulltext/S1074-7613(22)00544-1

Take the iConquer MS Caregiver Survey
https://realtalkms.com/caregiver

2022 National Strategy to Support Family Caregivers
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RealTalk MS Episode 273
Guest: Dr. Michelle Cameron

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

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Episode 272: Live from the National MS Society Leadership Conference with Lori Turley and Dr. Brad Zuchero

Saison 6 · Épisode 272

lundi 14 novembre 2022Durée 34:51

This week's episode of RealTalk MS was recorded in front of a LIVE audience at the National MS Society's 2022 Leadership Conference. 

Joining me in this special episode are Lori Turley, who was diagnosed with MS in 2021, and whose commitment to fundraising and advocacy is already producing dividends, and Dr. Bradley Zuchero, an MS Society-funded research fellow whose lab has discovered the biological mechanism that produces myelin in our central nervous system.

In addition to my questions, our audience has questions for my guests, as well!

We have a lot to talk about! Are you ready for RealTalk MS??!

We're LIVE from the National MS Society's 2022 Leadership Conference in Dallas, Texas  :23

MS Society volunteer Lori Turley talks about her fundraising and advocacy efforts, and why they're important  1:38

MS Society-funded research fellow, Dr. Bradley Zuchero, talks about his lab's discovery of the mechanism that brain cells use to produce myelin   13:20

Our live audience has questions for Dr. Zuchero and Lori  22:11

 

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Take the iConquer MS Caregiver Survey
https://realtalkms.com/caregiver

Join the RealTalk MS Facebook Group
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Download the RealTalk MS App for iOS Devices
https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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Give RealTalk MS a rating and review
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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 272
Guest: Lori Turley and Dr. Bradley Zuchero

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Privacy Policy

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