Living With SMA – Détails, épisodes et analyse

Join host Steven on this special Pride episode of *Pride and Possibility*, where we celebrate the vibrant intersection of the LGBTQIA+ community and disability pride. Steven is joined by three incredible guests: Shelby, Emily, and Jordanne, who each bring unique perspectives and experiences as individuals living with disabilities and proudly identifying as part of the LGBTQIA+ community.

In this heartfelt and empowering episode, Shelby, Emily, and Jordanne share their personal journeys, discussing the challenges and triumphs they have faced in navigating their identities. They delve into the importance of representation, the power of community, and the ways in which their disabilities and LGBTQIA+ identities have shaped their lives.

Listeners will hear inspiring stories of resilience, advocacy, and joy as our guests talk about what Pride means to them. This episode is a celebration of diversity, inclusion, and the strength found in embracing all aspects of one's identity. Tune in to *Pride and Possibility* for an uplifting conversation that highlights the beauty of living authentically and the importance of solidarity within the LGBTQIA+ and disability communities.

Celebrate Pride with us and discover the incredible stories of Shelby, Emily, and Jordanne as they inspire us all to live with pride and possibility.

#PrideAndPossibility #DisabilityPride #LGBTQIA+ #Intersectionality #celebratediversity 

HIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️ 
You can contact SMA UK on the following social media platforms ⬇️⬇️ 
▶ | INSTAGRAM: https://www.instagram.com/sma_uk 
▶ | TWITTER: https://twitter.com/SMA_UK_ 
▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul... 

If you would like to participate in any of our podcasts please email [email protected]
 
Living With SMA Disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Get ready to roll into the beat of festival vibes with our latest podcast episode, where we explore the world of festivals and gigs through the eyes of wheelchair users Jordanne, Mollie, and Ross, all living with SMA! 🎶✨

Join us as we navigate the highs and lows of festival accessibility, from the thrill of inclusive experiences to the challenges faced by wheelchair users. Jordanne, Molly, and Ross will share their firsthand accounts of navigating festival grounds, accessing venues, and interacting with fellow event organisers.

While the journey may have its bumps along the way, our guests will also shine a spotlight on the positive moments that have lit up their event experiences. From unique and special experiences to the triumph of overcoming accessibility barriers, these stories remind us that every obstacle is an opportunity for growth and empowerment.

So grab your gear, tune into the rhythm of inclusivity, and join us for an insightful exploration of festivals and gigs from a wheelchair user's perspective. This episode promises to be a celebration of resilience, community, and the power of music to unite us all! 💃🕺🎉

#LivingWithSMA #AccessibleEvents #WheelchairAdventures #InclusiveMusic

Welcome back to the highly anticipated second part of our podcast episode on the profound connection between mental health and living with a long-term condition. Building upon the captivating story we shared in Part 1, this episode delves deeper into the transformative power of finding support and the results that can come from it.
In this continuation, we explore the pivotal role of support for people living with a long-term condition. We shine a light on the paths they can take to find the support the needed and the incredible outcomes that unfolded as a result.
Join us as we uncover the strategies, resources, and networks that are available. From discovering supportive communities to accessing professional assistance, we delve into the practical aspects of seeking and receiving the support necessary to navigate the challenges of a long-term condition.
Through powerful anecdotes and insightful discussions, we'll share first hand accounts of the triumphs and breakthroughs that were made possible through unwavering support. We'll explore the ways in which support systems can empower individuals, promote resilience, and unlock their full potential.
This episode not only showcases the importance of finding support but also highlights the incredible achievements that can be realized when individuals are equipped with the tools and resources they need to thrive.
Whether you're personally impacted by a long-term condition, searching for guidance on finding support, or simply seeking inspiration and hope, this episode promises to captivate and enlighten you.
Tune in now and join us on this empowering and transformative exploration of mental health and living with a long-term condition. Discover the incredible possibilities that lie within the reach of those who bravely seek support and witness the remarkable achievements that can be attained along the way.
 
 #MentalHealthJourney #LongTermConditionSupport #thrivingthroughsupport

THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️ 
You can contact SMA UK on the following social media platforms ⬇️⬇️ 
▶ | INSTAGRAM: https://www.instagram.com/sma_uk 
▶ | TWITTER: https://twitter.com/SMA_UK_ 
▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul... 
 
If you do have any questions for Becca or Ellie and the team or would like to participate in any of our podcasts please email [email protected]
 
Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Welcome to a truly inspiring and heartfelt episode of our podcast, where we embark on a deeply personal journey exploring the powerful connection between mental health and living with a long-term condition. In this first part, we delve into the extraordinary story of how an individual with Spinal Muscular Atrophy found solace and support through an unexpected bond with a Mental Health Professional during their time in university.

Join us as we unravel this remarkable tale of resilience, compassion, and mutual growth. We'll hear first hand accounts from Becca and Ellie, sharing their lived experiences of navigating the challenges of Spinal Muscular Atrophy while simultaneously facing the complexities of mental health.

Through their story, we witness the transformative power of genuine human connection and the incredible impact that compassionate support can have on one's mental well-being. Together, they formed a unique alliance, where their shared experiences and unwavering support became a lifeline in the face of adversity.

In this episode, we'll explore the nuances of their relationship, the challenges they overcame, and the invaluable lessons they learned along the way. We'll also delve into the broader implications for the intersection of mental health and long-term conditions, highlighting the importance of accessible mental health support for all individuals facing similar circumstances.

This episode is an emotional and thought-provoking testament to the profound impact that genuine connection and understanding can have on one's mental health journey. It serves as a reminder that no one should face the challenges of a long-term condition alone.

So, whether you're personally touched by a long-term condition, passionate about mental health advocacy, or simply seeking inspiration and hope, this episode is a must-listen.

Tune in now and join us as we embark on a transformative exploration of mental health and living with a long-term condition, through the remarkable journey of our guests and their connection during their university years.

 #MentalHealthJourney #LongTermConditionSupport #InspiringConnections

THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA This content is not solely for the SMA Community. We hope this discussion will be helpful to everyone. ❤️ 

You can contact SMA UK on the following social media platforms ⬇️⬇️ 
▶ | INSTAGRAM: https://www.instagram.com/sma_uk 
▶ | TWITTER: https://twitter.com/SMA_UK_ 
▶ | FACEBOOK: https://www.facebook.com/SpinalMuscul... 

If you do have any questions for Becca or Ellie and the team or would like to participate in any of our podcasts please email [email protected]

Living With SMA disclaimer: The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees. All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK. The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Welcome back to our podcast, where we continue to explore the fascinating journey of transitioning into school. In this special episode, we shift our focus to the next stage: transitioning from primary to secondary school.

Join us as we dive deeper into this significant milestone in a child's educational journey. We'll hear from Grace McManus (mum of Sonny who lives with SMA) and our host Ross Lannon who share their insights and experiences on the social, emotional, and academic aspects of transitioning to secondary school.

Building upon our previous discussion on nursery to primary transition, we'll tackle new challenges and opportunities that arise during this period. From navigating a larger school environment to adapting to new subjects and routines, we'll explore the practical considerations and offer strategies to help ease the transition.

Additionally, we'll delve into the emotional dynamics that both students and parents may encounter during this pivotal time. With the right guidance and support, we can empower our children to embrace this new chapter and thrive in their secondary school experience.

So whether you're a parent, educator, or simply curious about the transitional journey, this episode is packed with valuable insights and practical advice. Join us as we continue to uncover the keys to a successful transition from primary to secondary school.

Tune in now and let's embark on this exciting exploration of transitioning into school.

Welcome to our next episode, where we explore the exciting and sometimes challenging journey of transitioning into school, from nursery to primary.

In this episode, we'll be diving deep into the many aspects of this significant milestone in a child's life with SMA. We'll hear from Portia Thorman and Charlotte Lavelle, as we explore the social, emotional, and academic dimensions of transitioning to primary school.

We'll discuss the practical considerations of preparing for school, from selecting the right school to managing the logistics. We'll also explore the emotional challenges that children and parents may face during the transition, and offer strategies for coping and thriving during this time of change.

Through it all, we'll seek to build a deeper understanding of the importance of this transition for a child's growth and development, and how we can work together to support children and families during this exciting and sometimes daunting time.

So if you're a parent or caregiver navigating the transition to primary school, or a teacher or professional working with children during this critical phase, then join us for this engaging and informative episode.

Tune in now and let's explore the many dimensions of transitioning into school from nursery to primary.

#TransitioningToSchool #StartingPrimary #ChildDevelopment #LivingWithSMA 

THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA
This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️

You can contact SMA UK on the following social media platforms ⬇️⬇️
▶ | INSTAGRAM:  https://www.instagram.com/sma_uk
▶ | TWITTER:  https://twitter.com/SMA_UK_
▶ | FACEBOOK:  https://www.facebook.com/SpinalMuscul...

If you do have any questions for Portia, Charlotte, and the team or would like to participate in any of our podcasts please email [email protected]

Living With SMA disclaimer:
The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Welcome to the latest episode of our podcast, where we take an unflinching look at the state of care in the UK today.

As one of the wealthiest countries in the world, the UK has a moral obligation to provide high-quality care for all its citizens, particularly those who are vulnerable or in need. But as we'll discover in this episode, the reality is far from ideal.

We'll be delving deep into the complex web of challenges facing the care system, from chronic underfunding to understaffing and inadequate training. We'll hear from Ross Lannon, Luis Canto E Castro, Michaela Hollywood, and Katy Etherington who are directly impacted by the system, as we explore the causes and consequences of the current state of care in the UK.

But we'll also be shining a light on the inspiring efforts of individuals and organizations who are working tirelessly to improve care for all. From innovative new technologies to community-based initiatives, there are glimmers of hope and progress amidst the challenges.

So if you're ready to confront the harsh realities of the state of care in the UK, while also discovering the promising developments and solutions emerging, then join us for this crucial and thought-provoking episode.

Tune in now and let's start a conversation about how we can work together to ensure that every person in the UK receives the care they deserve.

*THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA*
This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️

You can contact SMA UK on the following social media platforms ⬇️⬇️

▶ | INSTAGRAM:  https://www.instagram.com/sma_uk
▶ | TWITTER:  https://twitter.com/SMA_UK_
▶ | FACEBOOK:  https://www.facebook.com/SpinalMuscularAtrophyUK/

If you do have any questions for Ross, Michaela, Katy, Luis, and the team or would like to participate in any of our podcasts please email [email protected]

*Living With SMA Disclaimer*
The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or its employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such. 

Welcome to a brand new episode of our podcast, where we explore the incredible power of sport to transform lives and unleash human potential!

In this episode, we'll be diving deep into the many ways in which sport can inspire, challenge, and elevate us to new heights. From the thrill of competition to the camaraderie of team spirit, sport has the unique ability to bring out the best in us, both as individuals and as a community.

We'll be hearing from Cath McNicol and Jack Humphries. They'll be sharing their personal stories and insights, and discussing the many ways in which sport can help us achieve our goals, overcome obstacles, and live our best lives.

So if you're ready to be inspired, motivated, and energized by the incredible potential of sport, then this is the episode for you!

*THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA*
This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️

You can contact SMA UK on the following social media platforms ⬇️⬇️

▶ | INSTAGRAM:  https://www.instagram.com/sma_uk
▶ | TWITTER:  https://twitter.com/SMA_UK_
▶ | FACEBOOK:  https://www.facebook.com/SpinalMuscularAtrophyUK/

If you do have any questions for Jack, Luis, Cath and the team or would like to participate in any of our podcasts please email [email protected]

*Living With SMA Disclaimer*
The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such. 

Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE)

SMA UK host Ross Lannon chats to guests Luis Canto E Castro and Cath McNicol about festivities and how we can surprise our loved ones with gifts this Christmas when you have a disability.

*THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA*
This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️

You can contact SMA UK on the following social media platforms ⬇️⬇️

▶ | INSTAGRAM:  https://www.instagram.com/sma_uk
▶ | TWITTER:  https://twitter.com/SMA_UK_
▶ | FACEBOOK:  https://www.facebook.com/SpinalMuscularAtrophyUK/

If you do have any questions for Ross, Luis, Cath and the team or would like to participate in any of our podcasts please email [email protected]

*Living With SMA - 'How to surprise your family at Christmas' disclaimer:*
The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.

Welcome to the Living With SMA Podcast (Also available on ▶ | YOUTUBE)

SMA UK host Ross Lannon chats to guests Sandie Roberts and Maxwell Mcknight about social media. Exploring the pros and cons and looking at how it can offer a great job opportunity for people and even lead to a career!

*THIS PODCAST IS NOT JUST FOR PEOPLE WITH SMA*
This content is not solely for the SMA Community.  We hope this discussion will be helpful to everyone. ❤️

You can contact SMA UK on the following social media platforms ⬇️⬇️

▶ | INSTAGRAM:  https://www.instagram.com/sma_uk
▶ | TWITTER:  https://twitter.com/SMA_UK_
▶ | FACEBOOK:  https://www.facebook.com/SpinalMuscularAtrophyUK/

If you do have any questions for Ross, Sandie, Maxwell and the team or would like to participate in any of our podcasts please email [email protected]

*Living With SMA - 'Social Media' disclaimer:*
The views expressed in this episode belong to the Podcast Participants and not the charity SMA UK, its partners, or employees.  All opinions expressed by the Podcast Participants are solely their current opinions and do not reflect the opinions of SMA UK.  The Podcast Participants' opinions are based upon information they consider reliable, but neither SMA UK, nor the companies with which such participants are affiliated, warrant its completeness or accuracy, and it should not be relied upon as such.