Inside the Children's Hospital – Détails, épisodes et analyse

“If anybody was to ask me what is one of my biggest strengths, I have to tell them it's resilience… You can throw almost anything at me and I can handle it. I mean, there isn't anything any bigger in this world than losing a child.”-Kathy

In this heartfelt episode, Katie Taylor sits down with Kathy, a mother who shares her journey of raising and caring for her daughter Lauren  through multiple medical challenges and eventual passing. Kathy’s story is both heart-wrenching and inspiring. Kathy reflects on the emotional, physical, and logistical challenges of managing long hospital stays, becoming a caregiver to a child with complex medical needs, and balancing self-care amid unimaginable circumstances. Her insights on resilience, self-advocacy, and the deep bond with her daughter provide comfort and inspiration. Kathy’s story is a powerful reminder of the strength it takes to navigate pediatric healthcare, turning pain into purpose, and the lasting impact of a parent's love.

"I was there when that beautiful creature wandered into my life, and I was there when she drifted out." – Kathy

Key Insights:

The Importance of Self-Care: Kathy emphasizes the need to care for oneself to better support a sick child and encourages parents to take breaks from the hospital without guilt.

Parent as Advocate: Transitioning into the role of a medical advocate for her daughter, Kathy highlights how training, learning, and persistence made a difference in Lauren’s care.

Finding Strength in Connection: Kathy discusses the vital role of family, friends, and small acts of kindness in sustaining her during Lauren’s long hospital stays.

Maintaining Normalcy: From packing business-casual clothes to involving Lauren in picking outfits, Kathy underscores the importance of preserving a sense of normalcy amid medical chaos.

Legacy of Resilience: Kathy’s advocacy didn’t end with Lauren’s passing; she continues to support others by sharing her story and working on resources for long hospital stays.

 

A HUGE thank you to our sponsors: 

BeginHealth Prebiotics: Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off. 

30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. 

Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages.

• 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇
• Applies to subscription and one-time orders
• Applies to first 1 subscription orders
• Limited to one use per customer

 

Resources and Tips:

Support Spot App: Tailored guidance for families navigating medical experiences. Learn more

Support Win Win Charity's mission of bringing smiles to children, families, and hospital staff nationwide. Join us to celebrate 12 years of inspiring performances, powerful stories, and magical moments.    For a minimum donation of just $12, you can access Win Win Charity's 2024 Telethon fundraiser show in honor of our 12 years of bringing smiles to children in hospitals nationwide!   Join the celebration featuring our 2024 "Entertainer of the Year" Tom Pesce, our 2024 "Hospital of the Year" Le Bonheur Children's Hospital, and our first-ever documented patient journey.   There are two ways to join the experience on December 2nd!    #1 Attend virtually on LeaderPass from anywhere in the world with a virtual pass.   #2 Come to our in-person watch party at The Beverly Theater in downtown Las Vegas. We have a special surprise performance at our rooftop reception following the Telethon for those attending in Las Vegas.   Simply donate $12 (or more), and we'll see you there!   Reserve your spot: https://winwintelethon.com/

 

When parents feel empowered, everyone wins – kids thrive and the care team excels!

Links and Resources:

• SupportSpot Website
• Download SupportSpot iOS or Android

• 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface.
• 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better.
• 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child.
• 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare

Learn more here.

Meet the host: 

Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.

Instagram.com/childlifeoncall

Facebook.com/childlifeoncall

linkedin.com/in/kfdonovan

 

 

 

Today's episode is dedicated to the loving memory of Dr. Meredith Hitch, a cherished pediatric gastroenterologist at Ochsner Baton Rouge.

 

“You want to make sure that you are ready to be able to prepare not only yourself but your kiddo.” - Emily Martinec, CCLS

 

In this episode host Katie Taylor chats with Emily Martinec, another experienced Child Life Specialist. These two dive into the complexities of preparing children for an upper GI procedure. They provide valuable insights and practical tips for both parents and fellow specialists, sharing lessons learned from their work in pediatric radiology and GI. From scheduling the procedure to supporting children emotionally and physically, Katie and Emily guide listeners through every step of the process for both kids and parents. Whether you're a parent or a professional, this episode is packed with advice to help create an emotionally safe and successful experience for children.

A HUGE thank you to our sponsors: 

BeginHealth Prebiotics: Nutrition support for healthy digestion. Use code “ChildLifeOnCall” to get 25 percent off. 

30% of children struggle with constipation and it can feel impossible trying to find a solution for your child. Especially if your child has food allergies or has a condition or illness, you want to feel good about the products you are selecting for your child. To me, finding a company whose products have the highest quality and natural ingredients is really important. 

Begin Health®’s flagship product, Growing Up Prebiotics, is a tasteless, textureless fine powder that easily mixes into water, juice, or smoothies. This makes it convenient for daily use without altering the flavor of your child’s favorite beverages.

• 25% off selected products: Daily Growing Up Prebiotics 28-Pack, Daily Growing Up Prebiotics Family Size, Double Subscription - Prebiotics, Families On-The-Go, Beginbaby Pre + Pro 28-Pack, Poop Tracker Gamecards and Stickers (6)🥇
• Applies to subscription and one-time orders
• Applies to first 1 subscription orders
• Limited to one use per customer

 

Key Insights

Preparation is Key: Schedule the procedure around your child’s routine (e.g., feeding and nap times) and advocate for care at a pediatric facility.

Child-Led Support: Tailor explanations based on your child’s age—toddlers need short, concrete steps, while older children benefit from a detailed walkthrough.

Creative Coping Strategies: Bring familiar items like a favorite cup or lovey, and offer simple choices (e.g., flavoring options for the barium).

Parent Emotional Regulation: Stay calm and positive, which helps children feel safe and supported during the procedure.

Teamwork with Staff: Collaborate with radiology staff and child life specialists to create a smooth experience tailored to your child’s needs.

 

Resources and Tips:

Support Spot App: Step-by-step guidance and visuals for procedures like the upper GI. Download here

Age-Appropriate Preparation Tips: This episode provides strategies tailored to each age group, offering practical and developmentally appropriate tips to help ease anxiety and ensure a smoother experience for both kids and caregivers.

 

When parents feel empowered, everyone wins – kids thrive and the care team excels!

Links and Resources:

• SupportSpot Website
• Download SupportSpot iOS or Android

• 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface.
• 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better.
• 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child.
• 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare

Learn more here.

Meet the host: 

Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.

Instagram.com/childlifeoncall

Facebook.com/childlifeoncall

linkedin.com/in/kfdonovan

 

  "I feel like I owe it to him to explore other avenues. Acceptance doesn’t mean giving up; it means continuing to learn and adapt."- Lexi 

 

In this episode of Child Life On Call, Katie Taylor speaks with Lexi, a devoted mother of two, about her family's journey with alopecia universalis. Lexi shares the emotional challenges and triumphs of supporting her three-year-old son, Penn, who was diagnosed with this rare condition. Through sharing her story, Lexi highlights the power of parental instincts, blending Western and Eastern medicine, and advocating for her child's unique needs. Her story offers valuable insights for parents and professionals alike, emphasizing the power of resilience and community in pediatric healthcare.

Key Insights:

Early Diagnosis and Gut Instincts: Lexi's intuition played a crucial role in identifying her son's alopecia early on, showcasing the importance of parental instincts, and advocating for them, in healthcare.

Navigating Emotional Challenges: Lexi discusses the emotional impact of her son's diagnosis and how her husband’s positive outlook has been a source of strength for their family.

Advocacy and Medical Care: The necessity of finding specialized dermatologists and the integration of Western and Eastern medical practices are highlighted as key components of Penn's care.

Coping with Public Reactions: Lexi shares strategies for handling public reactions and educating others about alopecia, aiming to foster empathy and understanding.

Community and Support Systems: The episode underscores the value of support systems, both within the family and from the wider community, in navigating a rare medical condition.

 

Resources and Tips:

National Alopecia Areata Foundation: Connect with support groups, explore treatment options, and find resources tailored for alopecia families. 

https://www.naaf.org/youth-mentor-program/: Support group pairing kids with mentors that Lexi mentioned.

When parents feel empowered, everyone wins – kids thrive and the care team excels!

Links and Resources:

• SupportSpot Website
• Download SupportSpot iOS or Android

• 85% of users report high satisfaction, appreciating the Child Life On Call App’s comprehensive resources and user-friendly interface.
• 92% of parent users say the Child Life On Call App helped them understand medical procedures and treatment better.
• 80% of parents believe the Child Life On Call App has contributed to better health outcomes for their child.
• 73% of parent users believe the Child Life On Call App has made them feel more empowered to advocate for their child in healthcare

Learn more here.

Meet the host: 

Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.

Instagram.com/childlifeoncall

Facebook.com/childlifeoncall

linkedin.com/in/kfdonovan

Swapnil, father of two, shares on this episode of the podcast about his daughter, Anya, who has severe food allergies.  Swapnil shares about Anya's first symptoms of a food allergy and the event that revealed the severity of her allergies. Whether you are a parent or Clinician, you will gain so much understanding and knowledge about food allergies by listening to Swapnil's story.

[2:10] Value of resources along the journey

[4:00] Introducing the family

[4:56] Eczema struggles at 6 months old

[5:30] Anya had a anaphylactic reaction to cashew butter

[6:44] Awareness is arising about food allergies

[7:46] Preparation for Anya to go to school

[9:07] Testing from a local allergist

[10:20] Keeping a variety of foods in her diet

[11:30] Keeping a spreadsheet to keep track of food and reactions

[14:50] How manufacturing changes created an issue

[16:00] How mitigating the risk is a form self care

[17:23] Sub-lingual Immunotherapy treatment (SLIT)

[19:00] Finding a team of allergists for Anya

[21:30]  The differences in a school settings and away from home

[25:13] Swapnil wrote a book to help Anya cope

[26:10] How the Allergy Community online was extremely helpful

[28:22] Practical ways to remember to take the Epi pen

[31:08] Using the epi-pen is never easy

[32:00] Sharing about Anya's character

Connect with Swapnil

Instagram

Recommended Resource

Book by Swapnil Patel

 

Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.

Parents, download our free parent starter kit.

When you download our starter kit, you’ll learn how to:

• Give medicine to your child without it becoming a wrestling match
• Prepare your child (and yourself) for a shot so they can feel less anxious
• Create and use a coping plan for any medical appointment or procedure

The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.

Child life specialists, get affordable PDUs on-demand here.

Shop for your CLOC gear here.

Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

Hannah bravely shares how her two young daughters developed febrile seizures. Although febrile seizures are common, it is something that isn't talked about enough. Hannah will shed some light for families walking through this diagnosis and provide you with ways to navigate the practicality and emotions that come along with it.

[2:47] Hannah introduces her family

[4:45] Sharing symptoms and instincts

[6:08] Finding her daughter, Hadley, unresponsive in her crib

[8:16] Hand foot and mouth was the initial culprit of the fever

[10:52] Discharge instructions after having a febrile seizure

[11:43] How prayer and a supportive husband gave Hannah the ability to cope

[12:45] Hannah shares about her second daughter, Madison

[14:40] Madison has her first febrile seizure

[16:39] The after effects of a febrile seizure

[19:09] Madison's second seizure

[20:58] Hannah shares how the week prior she had a CPR and First Aid refresher course

[23:27] Madison showed no symptoms but ended up having a UTI, ear infection and pharyngitis

[27:04] Madison's third seizure

[30:28] Back to back seizures

[32:16] Hannah shares the instructions from the dispatcher

[33:29] Bloodwork to diagnose Madison

[34:45] Hannah explains how reoccurring febrile seizures can result in a seizure disorder

[37:40] Connecting with a friend whose son has had febrile seizures

[38:33] Tips for prevention

[40:12] After effects of febrile seizures

[41:07] Being sensitive to illness

[44:24] Talking about motherly instinct

Connect with Hannah

Instagram

Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.

Parents, download our free parent starter kit.

When you download our starter kit, you’ll learn how to:

• Give medicine to your child without it becoming a wrestling match
• Prepare your child (and yourself) for a shot so they can feel less anxious
• Create and use a coping plan for any medical appointment or procedure

The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.

Child life specialists, get affordable PDUs on-demand here.

Shop for your CLOC gear here.

Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

 

 

 " It was like I was leaving home with a newborn because I had no idea what to do. We were in survival mode for those 3 days in the hospital. It was just nothing that I ever expected to be dealing with.'-Melanie Smith

Melanie shares how she learned of her daughter's diagnosis of type 1 diabetes when her daughter was 18 months old. She so vulnerably shares their journey from diagnosis to life at home. This story is packed full of great insight to families navigating a new diagnosis of type 1 diabetes.

[2:50] Melanie introduces her family

[5:33 Noticing an excessive thirst in her daughter was the first symptom of diabetes

[7:05] Malia's energy levels were depleted

[8:55] Melanie made a list of concerns to tell her doctor

[11:30] The pediatrician urges them to go the emergency room

[13:04] Melanie shares the trauma that incurred for her

[15:45] Advocating for Maliah to eat while hospitalized

[17:36] Processing the news of her daughter being diabetic

[19:17] Learning how to care for Maliah

[21:30] Melanie shares the range of emotions she felt processing the news of the diagnosis

[24:30] Using a continuous pump monitor her diabetes

[25:13] Counting the carbohydrates

[28:08] Watching her sugar levels at first was overwhelming

[30:39] Advocating for your young child

[33:00] Feeling reassured starting Maliah in Preschool as her teacher is diabetic

[36:30] Melanie shares her concerns about her newborn having diabetes

[38:16] Type 1 diabetes misconceptions and value of education

[39:26] Questioning how long Maliah had diabetes for

[40:59] Finding a community to lean on

[44:30] Celebrating Maliah's diaversary

Connect with Melanie on Facebook

Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.

Parents, download our free parent starter kit.

When you download our starter kit, you’ll learn how to:

• Give medicine to your child without it becoming a wrestling match
• Prepare your child (and yourself) for a shot so they can feel less anxious
• Create and use a coping plan for any medical appointment or procedure

The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.

Child life specialists, get affordable PDUs on-demand here.

Shop for your CLOC gear here.

Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

 

 

 

"A patient becomes so vulnerable with them because they don't even realize what they are doing. When you are in that moment petting the dog, every emotion, feeling and thought runs free because you aren't having to focus on a conversation, it is so natural."
-Shelby Bonnet, CCLS

Shelby Bonnet, a certified Child Life Specialist and Animal Assisted Therapy Coordinator, shares how facility dogs are utilized in children's hospitals. This episode is packed full of information on how facility dogs impact patient care and how to balance patient and clinician needs. If you are a parent who has ever wondered about the purpose of a facility dog in hospitals or a clinician who is wanting to have a facility dog be apart of their hospital's program, you will want to give this episode a listen!

[3:00] Shelby shares about her career being a Child Life Specialist and Facility Dog handler

[5:00] How they started the Facility Dog Program

[6:30] Child Life Specialists role with Facility Dogs

[7:12] How her workflow changed

[8:25] Balancing the needs of patients and clinicians

[10:10] Being intentional with your time

[11:18] How Pinto, the facility dog helped with a with an intervention with an oncology patient

[14:08] How Pinto altered the entire families experience, not only the patient

[17:38] Common misconceptions of having a facility dog

[19:07] Life at home with Pinto

[21:04] How to get the process started

[23:22] Splitting time amongst different units in the hospital

Connect with Shelby:

Instagram

Shelby's Recommended Resources:

Canine Companions

Canine Assistants 

Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.

Parents, download our free parent starter kit.

When you download our starter kit, you’ll learn how to:

• Give medicine to your child without it becoming a wrestling match
• Prepare your child (and yourself) for a shot so they can feel less anxious
• Create and use a coping plan for any medical appointment or procedure

The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.

Child life specialists, get affordable PDUs on-demand here.

Shop for your CLOC gear here.

Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

 

On todays episode, we will hear from Rita Ho-Bezzola, CEO and Founder of Piper + Enza: A Covid-19 inspired health and happiness company for kids. Rita shares her inspiration behind Piper + Enza and how her goal is to make common health experiences positive for children and parents. You will not want to miss this episode! 

[2:30] Sharing about her family

[6:14] How Covid-19 was her inspiration create Piper + Enza

[8:10] The moment Rita discovers her mission

[10:10] Using Literacy to help children cope with medical experiences

[14:45] Growing pains of parenting and children

[15:00] Changing our perspective on pain

[16:56] Our worldview vs our children's worldview

[17:50] Empowering parents to be their child's biggest advocate

Connect with Rita:

Instagram

Website

Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.

Parents, download our free parent starter kit.

When you download our starter kit, you’ll learn how to:

• Give medicine to your child without it becoming a wrestling match
• Prepare your child (and yourself) for a shot so they can feel less anxious
• Create and use a coping plan for any medical appointment or procedure

The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.

Child life specialists, get affordable PDUs on-demand here.

Shop for your CLOC gear here.

Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

 

On today's episode of the podcast we hear from Lauren about her son's diagnosis of Aicardi-Goutieres Syndrome (AGS.) She shares how her uneventful pregnancy followed by a NICU stay and numerous hospital visits with unanswered questions eventually resulted in a diagnosis. Lauren shares how coaching changed her life and how she is now a life coach for mothers of children with disabilities.

[4:32] How ranch living was a dream come true

[5:20] After an uneventful pregnancy, Lauren gives birth

[7:00] A nurse tells Lauren to get a second opinion

[9:15] Lauren and Katie chat about the NICU life

[11:00] How staying at the hospital added to the emotional and stressful times

[12:25]  Asking about Lauren's pregnancy history

[14:00] An MRI reveals some answers

[16:50] Living in flight or fight mode

[19:50] Leo stopped eating and had a swallow study

[21:00] The doctors grasp for answers

[26:30] Genetics appointment results

[27:30] How diagnosis day holds trauma

[29:11] Finding a specialist who has experience working with children who have AGS

[31:20] How Lauren found healing through coaching

[35:28] Lauren shares Leo's love language

[37:24] Self care is what works for your stress management

[39:22] What is driving your action and feelings?

[42:27] Our definitions of being a good mom

Connect:

Lauen's Coaching Website

Lauren's Instagram Page

Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.

Parents, download our free parent starter kit.

When you download our starter kit, you’ll learn how to:

• Give medicine to your child without it becoming a wrestling match
• Prepare your child (and yourself) for a shot so they can feel less anxious
• Create and use a coping plan for any medical appointment or procedure

The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.

Child life specialists, get affordable PDUs on-demand here.

Shop for your CLOC gear here.

Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.

 

"It's not a time to say I'm sorry, It's a time to acknowledge that, yes in fact you had something you did not plan for, a traumatic event. But also you did have a baby and to step into that joy and gratitude and not lose sight of those things.-Jamie Cline

Jamie shares how her daughter Callie has persevered with tetralogy of fallot and later on a limb loss.She learned about her daughter's tetralogy of fallot just hours after having her 7 weeks premature. When Callie turned one, she shares how they came to the decision to do a lower leg amputation. Jamie shares Callie's journey of learning to walk with a prosthetic as well as the emotional journey she embarked on as a mother.

[3:00] Jamie shares about their family and hobbies

[4:50] Close monitoring during Jamie's pregnancy due to her pre-existing type 1 diabetes

[5:37] Callie was born 7 weeks early via c-section

[6:43] Learning of Callie's heart condition, Tetralogy of fallot

[8:30] The grief and anger to follow the initial diagnosis

[10:35] Feeling cheated of hopes and dreams she had

[11:40] Sharing the emotional challenges of others saying they are sorry rather than celebration

[13:12] Callie had to be transferred to a different hospital for the surgery

[15:00] How their community rallied around supported their family

[17:18] Callie went between the NICU and PICU for close to 3 months

[20:40] The best Christmas gift- Callie got to come home for Christmas

[21:40] Noticing Callie's limb difference shortly after birth

[26:05] At 19 months old, Callie had her amputation surgery

[27:30] Decision making process

[30:08] How grief was a big part of Jamie's journey to healing

[32:00] Jamie shares how she took care of her self during this difficult time

[36:00] How Callie has changed their lives and the positive things she has gleaned from being her mother

Connect with Jaime:

 Instagram

Website

Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.

Parents, download our free parent starter kit.

When you download our starter kit, you’ll learn how to:

• Give medicine to your child without it becoming a wrestling match
• Prepare your child (and yourself) for a shot so they can feel less anxious
• Create and use a coping plan for any medical appointment or procedure

The first sign of sniffles, or worse, shouldn’t send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you’re facing.

Child life specialists, get affordable PDUs on-demand here.

Shop for your CLOC gear here.

Catch up with CLOC on Instagram, Facebook and meet Katie for a Q+A every Monday at 10 AM CST.