Explorez tous les épisodes du podcast Epilepsy Sparks Insights
| Titre | Date | Durée | |
|---|---|---|---|
| Reasons To Have Epilepsy Surgery - Prof. Sarat Chandra | 03 sept. 2026 | 00:19:24 | |
Lots of people are very scared of epilepsy surgery. What are the risks of having it? What are the risks of not having it? Potential benefits? The processes beforehand? Hear all about it from epilepsy surgeon Prof. Sarat Chandra!. Chapters 📖 🔗 Episode page and transcript epilepsy-sparks-insights/neurosurgery-risks-benefits-memory 🌐 More about Sarat epilepsysparks.com/guests/sarat-chandra 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! | |||
| Still Having Seizures? Don't Just Accept It - Dr. Manjari Tripathi | 30 juil. 2026 | 00:19:08 | |
With neurologist Dr. Manjari Tripathi we hear about the complex world of epilepsy management, focusing on how treatments go beyond medications - including lifestyle changes and innovative surgical options! Join Manjari as she demystifies epilepsy treatments, preventative measures, quality of life, and looking at epilepsy surgery. Chapters 📖 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/diagnosis-treatment-mental-health-surgery-yoga 🌐 More about Manjari epilepsysparks.com/guests/manjari-tripathi 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! | |||
| Why Don't Antiseizure Medications Work for Everyone? - Graeme Sills, PhD | 23 juil. 2026 | 00:18:30 | |
Why do around 30% of people with epilepsy still have uncontrolled seizures despite decades of new antiseizure medications? Graeme Sills, PhD, explains the leading theories behind drug resistance - and how a better understanding of the brain could transform future epilepsy treatments. Chapters 📖 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/pharmacology-past-present-future 🌐 More about Graeme epilepsysparks.com/guests/graeme-sills 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! | |||
| The Brain Implant That May Do More Than Reduce Seizures: RNS - Dr. Vikram Rao | 16 juil. 2026 | 00:19:04 | |
Could a brain implant do more than reduce seizures? Dr. Vikram Rao explains how responsive neurostimulation (RNS) is changing the treatment of epilepsy, why researchers think it may work differently than first imagined, and how the technology is helping us learn more about the brain than ever before. Could it even help treat conditions beyond epilepsy in the future? Chapters 📖 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/rns-responsive-neurostimulation 🌐 More about Vikrkam epilepsysparks.com/guests/vikram-rao 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! | |||
| Just a Few Brain Cells Can Cause Epilepsy: Mosaicism - Dr. Stéphanie Baulac | 09 juil. 2026 | 00:15:57 | |
Most people think every cell in their body contains exactly the same DNA. It turns out that's not always true. Epilepsy genetics researcher Dr. Stéphanie Baulac explains mosaicism, how tiny genetic mutations can exist in just a small number of brain cells, and why they can cause a type of epilepsy called focal cortical dysplasia (FCD). These discoveries are transforming our understanding of epilepsy and could pave the way for highly targeted treatments in the future. Chapters 📖 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/fcd-mosaicism-somatic 🌐 More about Stéphanie epilepsysparks.com/guests/stephanie-baulac 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! | |||
| Is A Blood Brain Barrier Leak Causing Seizures? - Dr. Colin Doherty | 02 juil. 2026 | 00:16:27 | |
Could inflammation and the blood-brain barrier help explain why some seizures remain uncontrolled? Prof. Colin Doherty discusses emerging research into immune activity in epilepsy, how steroids may temporarily improve seizure control, and why future immunotherapies could help some people whose seizures do not respond to current treatments. Chapters 📖 🔗 Episode page and transcript epilepsy-sparks-insights/autoimmune-therapy-blood-brain-barrier 🌐 More about Colin epilepsysparks.com/guests/colin-doherty 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! | |||
| Could Immunotherapy Could Control Seizures? - Prof. Colin Doherty | 25 juin 2026 | 00:15:54 | |
Could the immune system play a bigger role in epilepsy than many of us realise? Prof. Colin Doherty explains how autoimmune epilepsies challenged the traditional view of epilepsy as purely an electrical disorder. He also discusses antibody-negative autoimmune epilepsy, early immunotherapy studies, and why some people with highly refractory epilepsy may respond to steroid treatment. Chapters 📖 🔗 Episode page and transcript epilepsy-sparks-insights/autoimmune-therapy 🌐 More about Colin epilepsysparks.com/guests/colin-doherty Episode mentioned: 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! | |||
| Can Ketogenic Therapy Help More Than Seizures? - Dr. Manny Bagary | 18 juin 2026 | 00:24:20 | |
Could medical ketogenic therapy improve more than seizures?! Like anxiety and depression? Dr. Manny Bagary shares how clinciains assess whether ketogenic therapy is working, including its potential effects on anxiety, mood, cognition and quality of life. He also talks about common misconceptions, cholesterol worries, potential pregnancies, and why so many adults with epilepsy still struggle to access specialist ketogenic therapy services. This is episode 2 of 2 with Manny. This episode is sponsored by Kanso, a brand by Dr. Schär, who had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/en Chapters 📖 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/efficacy-safety-mood-availability 🌐 More about Manny epilepsysparks.com/guests/manny-bagary 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! | |||
| Ketones Are Changing Your Brain - Epilepsy! - Dr. Manny Bagary | 15 juin 2026 | 00:23:37 | |
Medical Ketogenic Therapy can reduce seizures in some people - but how does it actually work?! Dr. Manny Bagary explains the nitty gritty of ketones, interactions, how they might affect brain excitability, what’s going on with neurotransmitters, mitochondria, inflammation, and even the gut microbiome! He also shares how ketogenic therapy might improve cognition, when a person should be offered it, and how it can help with status epilepticus! This is episode 1 of 2 with Manny. This episode is sponsored by Kanso, a brand by Dr. Schär, who had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/en Chapters 📖 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/ketones-anxiety-depression-status-epilepticus 🌐 More about Manny epilepsysparks.com/guests/manny-bagary 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! | |||
| The Epilepsy Diet Most People Get Wrong - Keto - Dr. Neha Kaul | 04 juin 2026 | 00:33:53 | |
Medical ketogenic therapy has more than 100 years of evidence behind it - so why is it still often treated as a last resort?! Ketogenic dietitian Neha Kaul explains how success can go beyond potential seizure reduction, and how the diet may affect cognition, mood and overall quality of life. Neha also covers common misconceptions, safety concerns, and what it really takes to make the diet work in everyday life. This episode is sponsored by Kanso, a brand by Dr. Schär and had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/en Chapters 📖 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/ketogenic-diet-support 📖 Jasper's Basics of Epilepsies: academic.oup.com/book/57972/chapter/476213922 🌐 More about Neha epilepsysparks.com/guests/neha-kaul 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary Click here to view the episode transcript. | |||
| Focal Epilepsy Onset Later In Life - With Origins In Childhood - Dr. Jacob Pellinen | 28 mai 2026 | 00:14:27 | |
Signs of focal epilepsy before the seizures start: hear all about it from neurologist and epileptologist Dr. Jacob Pellinen, who shares with us his research and results proving that people can experience things like depression or learning difficulties at school or work before seizure onset. Chapters 📖 🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/unrecognised-focal-onset-childhood 🌐 More about Jacob epilepsysparks.com/guests/jacob-pellinen 🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights 🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights 🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary 📲 Join us on social media! | |||
| Can You Improve Memory In Epilepsy? - Dr. Laurie Miller | 21 mai 2026 | 00:17:52 | |
Memory problems are one of the most common and frustrating symptoms experienced by people with an epilepsy - but what actually causes them? And how can we "treat" them? Dr. Laurie Miller explains how different types of memory work, why memory difficulties are often linked to the underlying brain pathology rather than just seizures, and what evidence-based strategies and techniquest may help improve everyday functioning.
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| Inside One Of The World’s Busiest Epilepsy Clinics - Prof. Mamta Singh | 14 mai 2026 | 00:20:05 | |
What does epilepsy care look like when a clinician has to see so many people each day?! Prof. Mamta Singh shares what high-volume epilepsy care really looks like in New Delhi - from specialist epilepsy clinics to outreach services across rural regions. We discuss why seizure freedom doesn't automatically equate to good quality of life, how experienced clinicians detect mental health and functional symptoms through observation and communication, cultural aspects, and why listening carefully to patients can sometimes be just as important as EEGs, MRIs, and other investigations!
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| Can Exercise Improve Memory In Epilepsy?! - Dr. Jane Allendorfer | 30 avr. 2026 | 00:19:52 | |
Can exercise improve memory in people with an epilepsy? Dr. Jane Allendorfer explores how physical activity may drive measurable changes in verbal learning, memory function, and hippocampal connectivity! Building on a 6-week pilot study showing improved memory performance, we hear about her newly completed randomised clinical trial investigating exercise for memory rehabilitation in epilepsy, aiming to determine whether changes in brain networks can explain cognitive improvement and help predict who will benefit from intervention.
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| Improving Seizure Localisation With MEG, High-Density EEG & AI - Dr. Christos Papadelis | 23 avr. 2026 | 00:18:31 | |
Can’t find where seizures start in drug-resistant epilepsy? Christos Papadelis, Ph.D, biomedical engineer and researcher, explains how ultra-high-resolution brain mapping and AI are improving seizure localisation and surgical decision-making in children. This episode explores how combining advanced neurophysiology with AI can identify seizure origins and networks, predict surgical outcomes, and move care beyond traditional limitations. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
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| Seizure Free… But Still Struggling? Rethinking Epilepsy Care - Dr. Lucretia Long | 16 avr. 2026 | 00:20:11 | |
Is seizure freedom enough in epilepsy care? Dr. Lucretia Long, epilepsy specialist nurse practitioner, shares why care must go beyond seizure control - with psychiatric symptoms, medication side effects, and cognitive challenges shaping quality of life just as much as seizures. This episode explores how to individualise care, why patient priorities must lead decisions, and how small, realistic changes can improve wellbeing. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
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| Why Children Are Not Referred For Epilepsy Surgery - Asst. Prof. Juan Pérez | 09 avr. 2026 | 00:13:21 | |
Delays in epilepsy surgery referral are not just about access and are not limited to one region. Epileptologist Asst. Prof. Juan Perez discusses paediatric epilepsy surgery across Latin America, where services exist but remain underutilised, and how misconceptions, training gaps, and system-level barriers continue to prevent eligible children from being referred for surgical evaluation, as well as what needs to change to improve access and outcomes. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
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| When Epilepsy Medication Fails - Where Neuromodulation Fits - Prof. John Duncan | 02 avr. 2026 | 00:54:30 | |
What happens when epilepsy medication doesn’t work? Prof. John Duncan explains how treatment decisions evolve beyond medication, from resective surgery to neuromodulation, and how patients and clinicians weigh these options together. The conversation covers real-world outcomes, risks, and the balance between seizure control, cognitive function, and quality of life. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
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| Why Epilepsy Is Still Being Ignored - Jay Price, Intellectual Disability Nurse | 26 mars 2026 | 00:18:11 | |
Why does epilepsy still receive so little funding, attention and public understanding compared to other diseases? Intellectual disability nurse Jay Price discusses why epilepsy remains underfunded and badly marketed, alongside misdiagnosis, quality of life, and how co-produced training could improve epilepsy care! This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/epilepsy-ignored
🌐 More about Jay 👇🏻 https://www.epilepsysparks.com/guests/jay-price
📃 Paper "Epilepsy, it's just not sexy, is it?’: A qualitative exploration into health and social care professionals' perspectives of people with intellectual disabilities and epilepsy, in social care" 👇🏻 https://www.epilepsybehavior.com/article/S1525-5050(25)00437-8/fulltext
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| MRIs Miss Brain Lesions Causing Epilepsy - AI Can Find Them - Dr. Konrad Wagstyl | 19 mars 2026 | 00:15:27 | |
Many epilepsy lesions that cause seizures are missed on routine MRI scans, delay diagnosis and surgery. Dr. Konrad Wagstyl discusses his research using AI and large MRI datasets to detect subtle abnormalities such as focal cortical dysplasia and hippocampal sclerosis. The conversation explores how these tools help identify surgical candidates earlier and improve outcomes in epilepsy! This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/mri-lesion-detection-ai
🌐 More about Konrad 👇🏻 https://www.epilepsysparks.com/guests/konrad-wagstyl
📃 Paper "Automated and Interpretable Detection of Hippocampal Sclerosis in Temporal Lobe Epilepsy: AID-HS" 👇🏻 https://onlinelibrary.wiley.com/doi/full/10.1002/ana.27089
🎞️ MELD project guide 👇🏻 https://www.youtube.com/@MELDproject
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| Rethinking Generalised Epilepsy Networks and Deep Brain Stimulation - Dr. Frederic Schaper | 12 mars 2026 | 00:16:57 | |
Generalised epilepsy is often described as involving the whole brain at once. But does it start all at once? Dr. Frederic Schaper discusses research mapping subtle brain abnormalities to shared brain networks in generalised epilepsy, and how these networks overlap with targets used for deep brain stimulation. The conversation explores what this may reveal about seizure mechanisms and future neuromodulation research. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/generalised-epilepsy-network-dbs
🌐 More about Frederic 👇🏻 https://www.epilepsysparks.com/guests/frederic-schaper
📃 Paper "A generalized epilepsy network derived from brain abnormalities and deep brain stimulation" 👇🏻 https://www.nature.com/articles/s41467-025-57392-7
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| Epilepsy: The Mental Health Symptoms We Overlook - Dr. Andres M. Kanner | 05 mars 2026 | 00:19:51 | |
Psychiatric symptoms are common in the epilepsies, yet they are often overlooked in clinical care. Dr. Andres M. Kanner, epileptologist and Professor of Clinical Neurology at the University of Miami, explains why mental health symptoms are central to epilepsy outcomes - not peripheral! Topics include depression, anxiety, psychosis, ADHD, suicide risk, family psychiatric history, and how these factors influence antiseizure medication choices and quality of life. This episode is sponsored by EASEE® by Precisis GmbH and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/mental-health-epilepsy
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| Reassessing The Prescription of Levetiracetam/Keppra for Epilepsy - Dr. Ángel Aledo-Serrano | 26 févr. 2026 | 00:29:21 | |
Flash-back to our most popular episode*! Epileptologist & neurologist Dr. Ángel Aledo-Serrano talks of his review and opinion on a former paper regarding the antiseizure medication Levetiracetam/Keppra, its effectiveness in controlling seizures, but also the importance of precision medicine. He also speaks of the need to improve prescribing and avoid polypharmacy for people with an epilepsy, the need for further qualitative research into treatment and care, and convincing clinicians that epilepsy is far more than seizures alone. This episode is sponsored by EASEE® by This episode is sponsored by EASEE® by Precisis GmbH, who had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/keppra-levetiracetam-quality-of-life
🌐 More about Ángel 👇🏻 https://www.epilepsysparks.com/guests/angel-aledo-serrano
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*2023 | |||
| Genetic Testing in Epilepsy Isn’t Definitive - Here's Why - Dr. Christian Bosselmann | 19 févr. 2026 | 00:13:35 | |
Who should receive genetic testing in epilepsy, and how should results really be interpreted? Epileptologist and scientist Dr. Christian Bosselmann explores genome sequencing, diagnostic yield, variants of uncertain significance, and why results are rarely black and white. The discussion highlights how quickly things are changing in epilepsy genetics and how re-analysis and improved interpretation can meaningfully influence clinical decision-making. This episode is sponsored by EASEE® by Precisis GmbH, who had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/genetic-testing-variant-interpretation
🌐 More about Christian 👇🏻 https://www.epilepsysparks.com/guests/christian-bosselmann
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| AI in Health Care - What the Evidence Shows So Far - Charlotte Blease, PhD | 12 févr. 2026 | 00:16:47 | |
Who is already using generative AI in health care, and what does the evidence actually show? Researcher Charlotte Blease, PhD, examines the positives, patient and clinician uptake, emerging risks, and where major gaps in training, policy, and research remain. The discussion explores mental health use, long-term conditions, empathy, and why regulation is struggling to keep pace with real-world practice. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
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| Accelerated Brain Ageing and Neurodegeneration in Epilepsy - Dr. Marian Galovic | 05 févr. 2026 | 00:15:06 | |
Accelerated brain ageing is a key feature of epilepsy that cannot be explained by seizures alone. Drawing on longitudinal imaging and biomarker research, Dr. Marian Galovic discusses neurodegeneration beyond seizure activity and the clinical importance of early intervention. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
🔗 More about episode (inc. transcription) 👇🏻
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| When Seizures Aren’t the Only Problem in Childhood Epilepsies - Prof. Kette Valente | 29 janv. 2026 | 00:14:16 | |
Seizures are often the focus in childhood epilepsies, but they certainly are not the only symptoms affecting outcomes and quality of life. This episode with Prof. Kette Valente looks at the non-seizure features that matter personally and clinically, why they can be missed, and why identifying them early can change care and long-term impact. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en 🔗 More about episode (inc. transcription) 👇🏻 🌐 More about Kette 👇🏻 👕 Join the Epilepsy Sparks community with our merch 👇🏻 🌐 More Epilepsy Sparks Insights 👇🏻 🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider! 🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 📲 Join us on social media! | |||
| Implantable EEG and Long-Term Monitoring - Prof. Norman Delanty | 22 janv. 2026 | 00:17:19 | |
Routine EEG provides a brief snapshot of brain activity and may not capture seizures or epileptiform activity. In this conversation, neurologist Prof. Norman Delanty explains how extended and implantable EEG monitoring can improve assessment of seizure burden, support treatment decisions, and clarify diagnosis and management when short recordings are insufficient. This episode is sponsored by EASEE® by Precisis and had no influence over the editorial content or discussion. Learn more about EASEE® here: https://precisis.de/en
🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/long-term-eeg-monitoring
🌐 More about Norman 👇🏻 https://www.epilepsysparks.com/guests/norman-delanty
📃 Related paper 👇🏻 "Unilateral ultra long-term subcutaneous EEG monitoring in drug-refractory idiopathic generalized epilepsy" https://onlinelibrary.wiley.com/doi/10.1111/epi.18644
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| Obesity in Epilepsy - Practical Clinical Approaches - Dr. Ching Soong Khoo | 15 janv. 2026 | 00:13:54 | |
In part two of this conversation, Dr. Ching Soong Khoo discusses practical approaches to managing obesity in epilepsy, including exercise safety, diet, and multidisciplinary care. The episode highlights why weight and physical health are often overlooked in routine practice, and how simple clinical changes can support better quality of life and overall outcomes in people with an epilepsy.
🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/obesity-quality-of-life
🌐 More about Ching Soong 👇🏻 https://www.epilepsysparks.com/guests/ching-soong-khoo
📜 Related publications - “High prevalence of obesity and reduced physical activity among people with epilepsy: A single-centre cross-sectional study” https://www.sciencedirect.com/science/article/pii/S1525505025004755 - “Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task Force on Sports and Epilepsy” https://pubmed.ncbi.nlm.nih.gov/26662920 - “Stop stigma, start exercising: How clinicians can encourage people with epilepsy to engage in physical activity” https://www.ilae.org/journals/epigraph/epigraph-vol-25-issue-1-winter-2023/stop-stigma-start-exercising-how-clinicians-can-encourage-people-with-epilepsy-to-engage-in-physical-activity
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| Obesity in Epilepsy - An Overlooked Problem - Dr. Ching Soong Khoo | 08 janv. 2026 | 00:10:34 | |
Why is obesity so common in people with epilepsy - and why is it often overlooked in clinical care? Dr. Ching Soong Khoo shares new research findings on obesity prevalence, physical activity, and mobility, and discusses how fear, diet, and behaviour intersect with epilepsy management. The episode highlights why addressing weight alongside seizure control matters for long-term health and quality of life.
🔗 More about episode (inc. transcription) 👇🏻 https://www.epilepsysparks.com/epilepsy-sparks-insights/obesity-health-fitness
🌐 More about Ching Soong 👇🏻 https://www.epilepsysparks.com/guests/ching-soong-khoo
📜 Related publications - “High prevalence of obesity and reduced physical activity among people with epilepsy: A single-centre cross-sectional study” https://www.sciencedirect.com/science/article/pii/S1525505025004755 - “Epilepsy, seizures, physical exercise, and sports: A report from the ILAE Task Force on Sports and Epilepsy” https://pubmed.ncbi.nlm.nih.gov/26662920 - “Stop stigma, start exercising: How clinicians can encourage people with epilepsy to engage in physical activity” https://www.ilae.org/journals/epigraph/epigraph-vol-25-issue-1-winter-2023/stop-stigma-start-exercising-how-clinicians-can-encourage-people-with-epilepsy-to-engage-in-physical-activity
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🎧 Listen to the Epilepsy Sparks Insights podcast on Apple, Spotify, or your favourite provider!
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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| What Life Is Really Like for Families Affected by Dravet Syndrome - Rébecca Hubert | 18 déc. 2025 | 00:33:07 | |
| Why Clinicians Must Listen to Families Living With Dravet Syndrome - Prof. Rima Nabbout | 18 déc. 2025 | 00:34:31 | |
| Understanding the New Focal Consciousness Classifier - Prof. Sándor Beniczky | 04 déc. 2025 | 00:17:39 | |
The updated seizure terminology aims to make life easier for everyone both affected by focal seizures and those involved in epilepsy care. In this episode, Prof. Sándor Beniczky breaks down why "consciousness" is now the key term used to describe focal seizures, and how it imporves clarity, consistency, and global usability - benefiting those with with an epilepsy, carers, GPs/physicians, nurses, and specialists alike. We discuss…
🔗 More about episode (inc. transcription) 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/focal-consciousness-seizures-explained
🌐 More about Sándor 👇🏻 https://www.torierobinson.com/guests/sandor-beniczky
📖 Paper spoken of 👇🏻 https://onlinelibrary.wiley.com/doi/10.1111/epi.18338
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| Can We Transform Global Epilepsy Care? - Prof. Nicola Specchio | 27 nov. 2025 | 00:16:33 | |
Prof. Nicola Specchio shares insights into how regional and global collaboration can strengthen epilepsy care, highlighting the need for coordinated systems, improved pathways and fairer access to expertise. The episode also examines the impact of emerging scientific developments and how shared standards across countries could support better long-term outcomes for people living with an epilepsy. We discuss: Check out: 🔗 More about episode (inc. transcription) 👇🏻
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| Epilepsy: A New Way to Understand Lived Experience - Cheryl Tveit & Dr. Charbel El Kosseifi | 20 nov. 2025 | 00:25:09 | |
The epilepsies are a complex neurological disease, and patients, families, and clinicians all deserve clear, empowering information! Torie Robinson sits down with nurse, writer Cheryl Tveit and paediatric neurologist/epileptologist writer Dr. Charbel El Kosseifi. from Gillette Children’s Hospital to discuss their new Mac Keith Press book: “Epilepsy”. They explain how they simplified the science for everyone, highlighting crucial topics often ignored in clinic-like morbidities, driving, and the vital need for reassurance. An empowering publication! We discuss:
🔗 More about episode 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/epilepsy-book-full-life-guide
👤👤 More about Cheryl & Charbel 👇🏻 Cheryl https://www.torierobinson.com/guests/cheryl-tveit Charbel https://www.torierobinson.com/guests/charbel-el-kosseifi
📘 Get the book "Epilepsy" (Mac Keith Press) with 20% off 👇🏻 https://www.mackeith.co.uk/book/epilepsy - code: epilepsysparks20
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📒 Glossary 👇🏻 https://www.epilepsysparks.com/glossary
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| The Blood-Brain Barrier and Epilepsy! - Dr. Claire Behan & Dr. Chris Greene | 13 nov. 2025 | 00:15:55 | |
This chat delves into the intricate relationship between the blood-brain barrier and epilepsy - particularly temporal lobe epilepsy! Claire, Chris, and Torie highlight the dysfunction of the blood-brain barrier in people with an epilepsy, the role of imaging techniques in assessing this dysfunction, and the outcomes of surgical interventions. Excitingly, Claire and Chris also explore future research directions aimed at targeting the blood-brain barrier to improve treatment outcomes! 🌐 More about the episode 👇🏻
🌐 More about Claire https://www.torierobinson.com/guests/claire-behan
🌐 More about Chris https://www.torierobinson.com/guests/chris-greene
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🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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| Understanding the Epilepsy Surgery Journey - Dr. Ricardo Morcos | 06 nov. 2025 | 00:24:29 | |
Around 20–30% of people with an epilepsy don’t respond well to anti-seizure medications - so what happens next? Dr. Ricardo Morcos (UCLH) joins host Torie Robinson to explain the epilepsy surgery journey: how people are assessed, what tests are involved, and how teams make decisions together. We discuss:
This empowering conversation is for anyone affected by the epilepsies - patients, carers, and clinicians alike! Check out: 🔗 More about episode (inc. transcription) 👇🏻 🌐 More about Ricardo 👇🏻 👕 Join the Epilepsy Sparks community with our merch 👇🏻 🌐 More Epilepsy Sparks Insights 👇🏻 🎞️ Watch the Epilepsy Sparks Insights podcast on YouTube 👇🏻
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| Why Epilepsy Is So Common in UK Prisons - Epilepsy Nurse: Karen McLeod | 23 oct. 2025 | 00:11:32 | |
We discuss:
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📲 Connect with us | |||
| ILAE Academy: Global Training for Epilepsy Clinicians - Prof. Gagandeep Singh | 16 oct. 2025 | 00:18:35 | |
The ILAE Academy is changing how clinicians and researchers learn about the epilepsies! Prof. Gagandeep Singh, Chair of the ILAE Education Council, joins Torie to explain how this innovative, self-paced, and structured platform is helping to shape the next generation of epilepsy specialists! We discuss:
🔗 More about episode (inc. transcription) 👇🏻
🤩 More about Gagandeep 👇🏻
🎓 The ILAE Academy https://ilae-academy.totaratalent.com
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🔤 Learn key terms related to the epilepsies and neuroscience here 👇🏻 https://www.epilepsysparks.com/glossary
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| Carers in Epilepsy: Quality of Life, Hidden Costs & Research - Dr. Florien Boele | 09 oct. 2025 | 00:13:32 | |
How much do carers really contribute to epilepsy care, & why are their struggles so often invisible? 💜 Dr. Florien Boele, a researcher in psychosocial oncology & caregiving, talks about the essential but often overlooked role of unpaid carers for adults with epilepsy. Florien talks with Torie about:
👉🏻 Tune in to hear how research is beginning to highlight carers’ voices & why supporting them means supporting people with epilepsy too.
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🤩 More about Florien 👇🏻
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📲 Connect with us! 👇🏻
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| Improving Seizure Diaries in LGS, Dravet & DEEs – Dr. Ewan Nurse | 02 oct. 2025 | 00:13:46 | |
Did you know seizure diaries in LGS & Dravet often capture less than half of seizures?! Today we hear from Dr. Ewan Nurse, an engineer & epilepsy researcher in Melbourne, who shares research into seizure reporting in developmental & epileptic encephalopathies (DEEs). We explore why seizure diaries miss so many seizures, how carers sometimes log non-seizure events, and what that means for families and clinicians. Ewan also talks about the promise & limits of wearable devices, EEG headbands & implants, and why collaboration between engineers, clinicians, carers & families is essential for the future of epilepsy care. 🌐 More about Ewan👇🏻
🌐 More Epilepsy Sparks Insights 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights
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🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com
📖 Chapters 00:00 Intro 14:30 Understanding Developmental and Epileptic Encephalopathies 17:57 Future of Seizure Tracking Technology 21:01 Collaboration Between Clinicians and Engineers 23:52 The Broader Impact of Epilepsy Beyond Seizures 00:00 Conclusion & Thanks
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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| The Silent Witness: Why Most Seizures Go Unrecorded (Part 1) - Dr. Ewan Nurse | 25 sept. 2025 | 00:15:09 | |
In this first half of our chat with Dr. Ewan Nurse, we explore why seizure reporting matters so much in epilepsy care. From forgotten focal seizures to the challenges of eyewitness accounts, Ewan explains why accurate seizure diaries are vital yet so difficult to achieve. We discuss research findings showing that most minor seizures go unreported(!), why some go over-reported(!), the role of memory, stigma, and psychology in diary-keeping, and the importance of involving carers in the process.
🌐 More about Ewan👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ewan-nurse-seizure-diaries-silent-witness
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🎧 Watch on YouTube to the podcast 👇🏻
📖 Chapters 00:00 Intro – How reliable are seizure diaries really? 01:09 Meet Dr. Ewan Nurse - Engineer & epilepsy researcher from Melbourne 02:05 Why seizure reporting is fundamental for diagnosis & treatment 03:46 Landmark study: only 1 in 3 seizures recorded during video EEG 04:55 Overreporting - when non-seizure events make it into diaries 07:37 Why subtle seizures are the hardest to track 09:28 Psychology, identity & why some people don’t record their seizures 10:12 The role of witnesses in reporting & why so many seizures are missed 11:26 Cool paper on the topic “The Silent Witness, the unseen gaps in eyewitness recognition of seizures" 13:50 Education, collaboration & improving seizure reporting for better care 14:10 Closing thoughts + what’s coming in Part 2
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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| Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl | 18 sept. 2025 | 00:13:26 | |
In this second episode with Dr Phillip Pearl, we explore the human side of rare epilepsies: what drives him as a paediatric neurologist, how advocacy transforms progress, and why research in ultra-rare conditions can change the lives of people with common disorders. We also tackle difficult but vital topics - SUDEP, depression, and suicide in epilepsy - and end on a hopeful note with music and the brain!
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🎧 Watch the chat on YouTube 👇🏻
📖 Chapters 00:00 – Intro 00:56 – Meet Dr Phillip Pearl 01:17 – What keeps you going, as a paediatric neurologist 03:19 – Choosing paediatric neurology 05:06 – Falling in love with neurology 06:25 – Future of metabolic epilepsies 07:30 – Gene therapy breakthroughs 09:44 – SUDEP & risk awareness 11:18 – Depression, mortality, & suicide in epilepsy 11:55 – The intersection of music and epilepsy 12:28 – Conclusion & thanks
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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| Metabolic Epilepsies & Gene Therapy – Phillip Pearl | 11 sept. 2025 | 00:15:11 | |
Neurologist Dr Phillip Pearl (Boston Children’s Hospital / Harvard Medical School), joins Torie to explore inherited metabolic epilepsies. He explains why include far more than seizures, shares powerful stories (including vitamin B6-responsive epilepsy), and traces the progress from mid-20th century discoveries to today’s targeted therapies - including research into gene therapy!
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📖 Chapters 00:00 Intro 00:00 Meet Philip 02:52 Understanding Inherited Metabolic Epilepsies 06:08 The Role of Genetics in Epilepsy 08:58 Transformational Treatments in Epilepsy 12:05 The Future of Epilepsy Treatment 00:00 Conclusion & Thanks
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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| Magnetic Brain Stimulation in Epilepsy: Genetics, Research & Future Care - Simona Balestrini | 04 sept. 2025 | 00:15:43 | |
Asst. Prof. Simona Balestrini, an adult and paediatric neurologist, shares her epilepsy research into the use of transcranial magnetic stimulation (TMS) as a tool for understanding genetic forms of epilepsy! She explains the methodology of TMS, its applications in clinical and research settings, and the importance of safety in its use for people with an epilepsy. The chat also explores future directions for TMS, including its potential as a treatment option! 📖 Chapters 00:00 Intro
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🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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| Neurologist Diagnosed with Epilepsy - You’ll Love His Positivity - Dr. Jim Morrow | 28 août 2025 | 00:13:09 | |
An epilepsy specialist neurologist develops an epilepsy! In this fascinating episode, we delve into the extraordinary journey of Dr. Jim Morrow, a retired consultant neurologist who ends up developing the disease himself! Jim shares his unique perspective on the challenges and ironies of navigating life with an epilepsy; from his initial diagnosis of Autoimmune Limbic Encephalitis due to a Voltage-Gated Potassium Channel Antibody, to the impact on his professional and personal life. Tune in also to learn about Jim’s fun, fictional books (with a medical twist) - out now! 🎧 Listen to the podcast 👇🏻 https://epilepsysparksinsights.podbean.com
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📖 Chapters 00:00 Intro 00:00 Meet XXX
00:00 Conclusion & Thanks
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks | |||
| Epilepsy Care, Cultural Beliefs & Telemedicine in Mexico Dr. Yanin Rivera | 21 août 2025 | 00:12:24 | |
Paediatric Neurologist Dr Yanin Rivera shares how cultural beliefs, limited access to healthcare, education, and innovative telemedicine solutions are shaping the landscape of epilepsy treatment, care, and prevention in Mexico!
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📖 Chapters 00:00 Intro 00:00 Meet Brad & Lucas
00:00 Conclusion & Thanks
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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| Sexual Health & Epilepsy: Building CONFIDENCE for Patients & Clinicians | Drs Kamitaki & Orellana | 14 août 2025 | 00:14:53 | |
Sexual health in epilepsy is vital - but many clinicians and patients hesitate to address it. 💜 Epileptologists Dr. Brad Kamitaki and Dr. Lucas Orellana join Torie Robinson for a warm, giggly, and open conversation on:
🎧 Listen now to break barriers with us - and maybe share a laugh along the way.
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🌐 More about the conference 👇🏻 https://www.ilae.org/congresses/36th-international-epilepsy-congress/section/sectionid/1
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📖 Chapters - Intro - Meet Brad & Lucas - Challenges in Discussing Sexual Health - Patient Perspectives on Sexual Health - Cultural Influences on Conversations about Sex - Experiences in Discussing Sexual Health with Patients - Evolving Medical Education and Open-Mindedness - Interactive Learning and Role Play at the Conference - Conclusion & Thanks
🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary
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| Epilepsy & Suicide: Breaking the Silence - Milena Gandy & Heidi Munger Clary | 07 août 2025 | 00:18:03 | |
Milena Gandy (Clinical Psychologist) and Heidi Munger Clary (Epileptologist) chat with Torie about the intersection of epilepsy and suicide, emphasising the importance of welcoming talking about addressing mental health issues in patients with an epilepsy. They go into the stigma surrounding suicidal thoughts, the need for open conversations between patients and clinicians, and strategies for improving patient care and quality of life. The chat also highlights the upcoming, fun(!) IEC workshop in Lisbon, aimed at enhancing patient-centered communication in epilepsy care. ------------------------------------------ Suicide crisis lines 👇🏻 https://en.wikipedia.org/wiki/List_of_suicide_crisis_lines ------------------------------------------ 🔗 Website & more about Milena Gandy & Heidi Munger Clary 👇🏻 ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks
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| They Aren’t FAKE! Dissociative Seizures/Non-Epileptic Events - Dr. Parthvi Ravat | 31 juil. 2025 | 00:14:35 | |
Neurologist Dr Parthvi Ravat shares the relationship between epilepsy and Non-Epileptic Events* (also known as dissociative Seizures and PNES), symptoms of the latter, treatment options, and the importance of research and awareness in improving patient outcomes. Parthvi highlights the complexities of diagnosing and managing FND and Dissociative Seizures/PNES/Non-Epileptic Events, the need for a multidisciplinary approach, and the shared experiences of patients experiencing both an epilepsy and NEEs! *A type of Functional Neurological Disorder (FND) ------------------------------------------ 🔗 Website & more about Parthvi: 👇🏻 ----------------------------------------- Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary ------------------------------------------ 📲 Join us on social media! - LinkedIn https://www.linkedin.com/company/epilepsy-sparks - Bluesky https://bsky.app/profile/epilepsysparks.bsky.social - Instagram https://www.instagram.com/epilepsysparks - Facebook https://www.facebook.com/epilepsysparks - TikTok https://www.tiktok.com/@epilepsysparks | |||