Epilepsy Sparks Insights – Détails, épisodes et analyse

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Epilepsy Sparks Insights

Torie Robinson

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Fréquence : 1 épisode/8j. Total Éps: 279

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson. **NOT FOR CLINICAL OR PATIENT DECISION-MAKING* Visit www.torierobinson.com & www.epilepsysparks.com.

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https://www.epilepsysparks.com/glossary
404 partages
https://epilepsy-sparks.creator-spring.com
139 partages
https://www.torierobinson.com
139 partages

https://www.linkedin.com/torierobinson
344 partages
https://www.linkedin.com/company/epilepsy-sparks
111 partages
https://www.linkedin.com/in/s%C3%A1ndor-beniczky-2a6a4a11
4 partages

https://www.facebook.com/TorieRobinsonSpeaker
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https://www.facebook.com/epilepsysparks
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Reasons To Have Epilepsy Surgery - Prof. Sarat Chandra

Épisode 272

jeudi 3 septembre 2026 • Durée 19:24

Lots of people are very scared of epilepsy surgery. What are the risks of having it? What are the risks of not having it? Potential benefits? The processes beforehand? Hear all about it from epilepsy surgeon Prof. Sarat Chandra!.

Chapters 📖
00:00 Trailer & intro
01:02 Meet Sarat Chandra
01:55 Reasons to get epilepsy surgery
05:03 Different types of epilepsy surgery
08:19 Fear, full investigations, and consent for epilepsy surgery
11:38 Example: Stereoelectroencephalography
14:15 Measuring success of an epilepsy surgery and “The burden of normality”
16:18 Considering memory
18:49 Closing thoughts & thanks

🔗 Episode page and transcript epilepsy-sparks-insights/neurosurgery-risks-benefits-memory

🌐 More about Sarat epilepsysparks.com/guests/sarat-chandra

🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights

🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights

🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary

📲 Join us on social media!
〰️ LinkedIn epilepsy-sparks
〰️ Instagram epilepsysparks
〰️ Facebook epilepsysparks
〰️ TikTok epilepsysparks
〰️ Bluesky epilepsysparks

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Still Having Seizures? Don't Just Accept It - Dr. Manjari Tripathi

Épisode 271

jeudi 30 juillet 2026 • Durée 19:08

With neurologist Dr. Manjari Tripathi we hear about the complex world of epilepsy management, focusing on how treatments go beyond medications - including lifestyle changes and innovative surgical options! Join Manjari as she demystifies epilepsy treatments, preventative measures, quality of life, and looking at epilepsy surgery.

Chapters 📖
00:00 Trailer & intro
01:03 Meet Manjari Tripathi
01:39 Epilepsy Is More Than Seizure Control: Daily Life, Stigma, and Mental Health
03:38 Diagnosing Epilepsy: Clinical History, EEG, Imaging, and Finding the Cause
05:27 Before Calling Epilepsy Drug-Resistant: Medication Adherence, Lifestyle, and Assessment
08:20 Why Early Referral Matters and How Patients Reach Epilepsy Surgery
11:01 Who Can Have Surgery? Ketogenic Therapy, Yoga, and Other Options When Surgery Isn’t Suitable
14:40 Improving Quality of Life: Exercise, Mental Health, Emotional Support, Family Communication, and Community Inclusion
18:25 Closing thoughts & thanks

🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/diagnosis-treatment-mental-health-surgery-yoga

🌐 More about Manjari epilepsysparks.com/guests/manjari-tripathi

🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights

🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights

🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary

📲 Join us on social media!〰️ LinkedIn 〰️ Instagram 〰️ Facebook 〰️ TikTok 〰️ Bluesky

Why Don't Antiseizure Medications Work for Everyone? - Graeme Sills, PhD

Épisode 270

jeudi 23 juillet 2026 • Durée 18:30

Why do around 30% of people with epilepsy still have uncontrolled seizures despite decades of new antiseizure medications? Graeme Sills, PhD, explains the leading theories behind drug resistance - and how a better understanding of the brain could transform future epilepsy treatments.

Chapters 📖
00:00 Trailer & intro
00:45 Meet Graeme Sills
01:29 Introduction to pharmacology and epilepsy
02:17 Challenges in epilepsy reatment
06:30 Why the drugs don’t work: the drug-transporter hypothesis
08:38 Why the drugs don’t work: the network hypothesis
09:31 Why the drugs don’t work: the severity and genetic hypothesis
10:06 Future directions in epilepsy research
13:08 Innovative approaches to research and treatment?
17:58 Closing thoughts & thanks

🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/pharmacology-past-present-future

🌐 More about Graeme epilepsysparks.com/guests/graeme-sills

🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights

🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights

🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary

📲 Join us on social media!
〰️ LinkedIn epilepsy-sparks
〰️ Instagram epilepsysparks〰️ Facebook 〰️ TikTok 〰️ Bluesky

The Brain Implant That May Do More Than Reduce Seizures: RNS - Dr. Vikram Rao

Épisode 269

jeudi 16 juillet 2026 • Durée 19:04

Could a brain implant do more than reduce seizures? Dr. Vikram Rao explains how responsive neurostimulation (RNS) is changing the treatment of epilepsy, why researchers think it may work differently than first imagined, and how the technology is helping us learn more about the brain than ever before. Could it even help treat conditions beyond epilepsy in the future?

Chapters 📖
00:00 Trailer & intro
01:07 Meet Dr. Vikram Rao
02:01 What is RNS (Responsive Neurostimulation)?
03:38 Surgery length and battery replacement
04:21 Who’s suitable for RNS?
05:12 Where RNS wires are placed
06:53 RNS: a preventative approach?
09:50 RNS data recording benefits
12:11 Suitable for focal or generalised epilepsy?
12:59 Benefits for DEEs, treatment resistant depression, and OCD?
15:15 More information
15:55 Safety and further development of RNS
18:19 Closing thoughts & thanks

🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/rns-responsive-neurostimulation

🌐 More about Vikrkam epilepsysparks.com/guests/vikram-rao

🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights

🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights

🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary

📲 Join us on social media!
〰️ LinkedIn epilepsy-sparks〰️ Instagram 〰️ Facebook 〰️ TikTok 〰️ Bluesky

Just a Few Brain Cells Can Cause Epilepsy: Mosaicism - Dr. Stéphanie Baulac

Épisode 268

jeudi 9 juillet 2026 • Durée 15:57

Most people think every cell in their body contains exactly the same DNA. It turns out that's not always true. Epilepsy genetics researcher Dr. Stéphanie Baulac explains mosaicism, how tiny genetic mutations can exist in just a small number of brain cells, and why they can cause a type of epilepsy called focal cortical dysplasia (FCD). These discoveries are transforming our understanding of epilepsy and could pave the way for highly targeted treatments in the future.

Chapters 📖
00:00 Trailer & intro
00:55 Meet Dr. Stéphanie Baulac
01:12 What is focal cortical dysplasia?
02:33 Are these genetic mutations inherited?
04:17 How can so few cells cause seizures?
07:12 What is mosaicism?
09:26 What does this mean for families?
10:03 What is precision medicine?
10:04 Can treatments target only the affected brain cells?
12:49 Why were these mutations only discovered recently?
14:23 How are these mutations detected?
15:09 Closing thoughts & thanks

🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/fcd-mosaicism-somatic

🌐 More about Stéphanie epilepsysparks.com/guests/stephanie-baulac

🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights

🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights

🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary

📲 Join us on social media!〰️ LinkedIn 〰️ Instagram 〰️ Facebook 〰️ TikTok 〰️ Bluesky

Is A Blood Brain Barrier Leak Causing Seizures? - Dr. Colin Doherty

Épisode 267

jeudi 2 juillet 2026 • Durée 16:27

Could inflammation and the blood-brain barrier help explain why some seizures remain uncontrolled? Prof. Colin Doherty discusses emerging research into immune activity in epilepsy, how steroids may temporarily improve seizure control, and why future immunotherapies could help some people whose seizures do not respond to current treatments.

Chapters 📖
00:00 Trailer & intro
00:31 Precision therapy for autoimmune diseases
01:27 Hypothesis: could steroids prevent seizures through mending the leakage of the Blood Brain Barrier?
03:53 Neurologists and researchers need to think about autoimmune
04:57 Blood Brain Barrier, steroids and genetics - current study
07:01 History: why haven’t we done this research already?
08:13 Immunologists: work with us!
09:48 Comparison: cancer and immunology
12:08 Clinicians and scientists: work with us!
13:51 People with an epilepsy and carers: work with us!
15:27 Closing thoughts & thanks

🔗 Episode page and transcript epilepsy-sparks-insights/autoimmune-therapy-blood-brain-barrier

🌐 More about Colin epilepsysparks.com/guests/colin-doherty

🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights

🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights

🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary

📲 Join us on social media!
〰️ LinkedIn epilepsy-sparks〰️ Instagram 〰️ Facebook 〰️ TikTok 〰️ Bluesky

Could Immunotherapy Could Control Seizures? - Prof. Colin Doherty

Épisode 266

jeudi 25 juin 2026 • Durée 15:54

Could the immune system play a bigger role in epilepsy than many of us realise? Prof. Colin Doherty explains how autoimmune epilepsies challenged the traditional view of epilepsy as purely an electrical disorder. He also discusses antibody-negative autoimmune epilepsy, early immunotherapy studies, and why some people with highly refractory epilepsy may respond to steroid treatment.

Chapters 📖
00:00 Trailer & intro
00:44 Not just an “electrical disorder”
02:19 30% still don’t have seizure control
03:06 Epilepsy surgery
04:54 Immunotherapy for epilepsy
06:28 Immunotherapy cases
10:20 Needing an immunotherapy program
12:10 Steroids and profit
13:16 Impacts of steroids - safety
14:55 Closing thoughts & thanks

🔗 Episode page and transcript epilepsy-sparks-insights/autoimmune-therapy

🌐 More about Colin epilepsysparks.com/guests/colin-doherty

Episode mentioned:
🌐 Neurologist Diagnosed With Epilepsy - You'll Love His Positivity - Dr Jim Morrow

🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights

🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights

🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary epilepsysparks.com/glossary

📲 Join us on social media!
〰️ LinkedIn epilepsy-sparks〰️ Instagram 〰️ Facebook 〰️ TikTok 〰️ Bluesky

Can Ketogenic Therapy Help More Than Seizures? - Dr. Manny Bagary

Épisode 265

jeudi 18 juin 2026 • Durée 24:20

Could medical ketogenic therapy improve more than seizures?! Like anxiety and depression? Dr. Manny Bagary shares how clinciains assess whether ketogenic therapy is working, including its potential effects on anxiety, mood, cognition and quality of life. He also talks about common misconceptions, cholesterol worries, potential pregnancies, and why so many adults with epilepsy still struggle to access specialist ketogenic therapy services. This is episode 2 of 2 with Manny.

This episode is sponsored by Kanso, a brand by Dr. Schär, who had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/en

Chapters 📖
00:00 Trailer & intro
01:50 When do you know if the ketogenic diet isn’t working?
03:40 Impact on quality of life - anxiety, depression, cognition
05:45 Misinformation regarding medical ketogenic therapy
08:44 Feeling full
09:55 When the diet isn’t safe
12:20 Secondary benefits of keto diet
14:08 Bipolar disorder and the diet
14:53 Cholesterol - the elephant in the room
18:28 Lack of adult ketogenic diet treatment centres
23:19 Closing thoughts & thanks

🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/efficacy-safety-mood-availability

🌐 More about Manny epilepsysparks.com/guests/manny-bagary

🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights

🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights

🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary

Ketones Are Changing Your Brain - Epilepsy! - Dr. Manny Bagary

Épisode 264

lundi 15 juin 2026 • Durée 23:37

Medical Ketogenic Therapy can reduce seizures in some people - but how does it actually work?! Dr. Manny Bagary explains the nitty gritty of ketones, interactions, how they might affect brain excitability, what’s going on with neurotransmitters, mitochondria, inflammation, and even the gut microbiome! He also shares how ketogenic therapy might improve cognition, when a person should be offered it, and how it can help with status epilepticus! This is episode 1 of 2 with Manny.

This episode is sponsored by Kanso, a brand by Dr. Schär, who had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/en

Chapters 📖
00:00 Trailer & intro
01:29 Meet Manny
02:03 What are ketogenesis, ketosis, ketone bodies, etc.?
04:17 What makes ketosis stop seizures (in some people)?
08:00 Impacts on anxiety, depression, cognition and more
09:42 Different types of ketogenic diet
13:17 Ketogenic therapy for status epilepticus
16:31 Ketogenic diet in adults
19:10 Forms of treatment - when does the ketogenic diet come in?
22:28 Closing thoughts & thanks

🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/ketones-anxiety-depression-status-epilepticus

🌐 More about Manny epilepsysparks.com/guests/manny-bagary

🌐 More Epilepsy Sparks Insights epilepsysparks.com/epilepsy-sparks-insights

🎥 Watch on YouTube youtube.com/@EpilepsySparksInsights

🔤 Don’t understand terms used? Check out the Epilepsy Sparks Glossary

The Epilepsy Diet Most People Get Wrong - Keto - Dr. Neha Kaul

Épisode 263

jeudi 4 juin 2026 • Durée 33:53

Medical ketogenic therapy has more than 100 years of evidence behind it - so why is it still often treated as a last resort?! Ketogenic dietitian Neha Kaul explains how success can go beyond potential seizure reduction, and how the diet may affect cognition, mood and overall quality of life. Neha also covers common misconceptions, safety concerns, and what it really takes to make the diet work in everyday life.

This episode is sponsored by Kanso, a brand by Dr. Schär and had no influence over the editorial content or discussion. Learn more about Kanso here: kanso.com/en

Chapters 📖
00:00 Trailer & intro
01:38 Why is the ketogenic diet not widely used?
04:02 Research: supporting people trying the ketogenic diet
04:48 What is ketosis?
07:15 Other benefits of ketogenic diet
08:58 Ketogenic diet for adults - research
09:34 Who’s suitable for the diet?
12:37 Confusion re the diet
14:01 Who responds well to the diet?
15:32 Mistakes with the diet are normal
18:38 Safety concerns - cholesterol and nutrient deficiencies?
22:37 How much fat, protein, and carbs should be consumed?
23:39 Interactions with medications
25:32 Benefits vs trade-offs
27:47 Understanding personal barriers, support needed
29:36 Neurologists & those with an epilepsy: know this
32:34 Closing thoughts & thanks

🔗 Episode page and transcript epilepsysparks.com/epilepsy-sparks-insights/ketogenic-diet-support

📖 Jasper's Basics of Epilepsies: academic.oup.com/book/57972/chapter/476213922

🌐 More about Neha epilepsysparks.com/guests/neha-kaul

🌐 More Epilepsy Sparks Insights

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Epilepsy Sparks Insights – Détails, épisodes et analyse

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