4th Virtual Sjogren's Summit 2025 – Détails, épisodes et analyse

Détails du podcast

Informations techniques et générales issues du flux RSS du podcast.

4th Virtual Sjogren's Summit 2025

Kara Wada, MD

Forme & Santé

Fréquence : 1 épisode/0j. Total Éps: 25

The Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Lire plusRéduire

Site

RSS

Apple

Classements récents

Dernières positions dans les classements Apple Podcasts et Spotify.

Apple Podcasts

🇨🇦 Canada - alternativeHealth
10/07/2026
#99
🇨🇦 Canada - alternativeHealth
09/07/2026
#48
🇬🇧 Grande Bretagne - alternativeHealth
19/06/2026
#99
🇫🇷 France - alternativeHealth
23/04/2026
#86
🇫🇷 France - alternativeHealth
22/04/2026
#57

Spotify

Aucun classement récent disponible

Liens partagés entre épisodes et podcasts

Liens présents dans les descriptions d'épisodes et autres podcasts les utilisant également.

https://www.drkarawada.com/
9 partages
https://www.chronicbosscollective.com/
4 partages
https://littleenginepatientadvocacy.com/
4 partages

https://www.instagram.com/immuneconfidentmd
9 partages
https://www.instagram.com/chronicbossco
4 partages
https://www.instagram.com/lillystairs
4 partages

https://www.linkedin.com/in/karawadamd/
9 partages
https://www.linkedin.com/in/lilly-stairs/
4 partages
https://www.linkedin.com/in/deliachiaramonte/
2 partages

Qualité et score du flux RSS

Évaluation technique de la qualité et de la structure du flux RSS.

Qualité du flux RSS

À améliorer

Score global : 48%

Historique des publications

Répartition mensuelle des publications d'épisodes au fil des années.

Year

Derniers épisodes publiés

Liste des épisodes récents, avec titres, durées et descriptions.

Day 3 - Kara Wada, MD - Beyond Medication: The 3-Visit Immune Reset

samedi 19 juillet 2025 • Durée 33:40

What if you could achieve the results of 3-5 years of traditional allergy shots in just three visits over two months? For Sjogren's patients stuck in a cycle of inflammation, where allergies fuel autoimmune flares, this isn't just a question of convenience—it's a paradigm shift.

In this exclusive presentation, Dr. Kara Wada unveils the Accelerated Immune Reset-ILIT™ (AIR-ILIT) program for the first time publicly. She pulls back the curtain on this revolutionary approach, explaining the science of using ultrasound-guided intralymphatic immunotherapy to reprogram the immune system with unprecedented precision. Dr. Wada details the science, the patient experience, the expected results, and the investment required for this cutting-edge, concierge-level treatment.

Watch now to discover the future of allergy treatment for autoimmune patients and learn how you can explore if this breakthrough program is the right fit to help you rebel against chronic inflammation and rise to a new state of health.

AIR-ILIT™ Screening Form → https://links.drkarawada.com/widget/survey/igTqA2XSnbGbBkWbKXf8

SESSION IN A GLANCE

00:00 Intro

06:01 What is AIR-ILIT™? The Future of Allergy Treatment

09:22 The Science Deep Dive: How ILIT Reprograms Your Immune System

12:44 The Patient Experience: A 5-Step Concierge Journey

15:29 Real-World Results & Transformational Stories

20:30 The Investment: A Transparent Look at the Program Cost

23:58 Who is a Candidate for AIR-ILIT™?

26:52 An Exclusive Opportunity & Giveaway for Summit Attendees

ABOUT DR. KARA WADA

Dr. Kara Wada is a 4x board certified pediatric and adult allergy immunology, functional, and lifestyle medicine physician. She is also a Midwest mom of 3 kids and an elder millennial who loves a bit of pop punk music and has a rebel energy that is looking for ways to come out to play along with her very kind, loving, and compassionate nature. She uses a 4 R framework in her work: Recognize, Reclaim, Rebel, and Rise, which echoes throughout her work. She opened a direct care practice, The Immune Confident Institute, which allows her to practice medicine on her terms and is passionate about making this ideal type of care accessible to all.

CONNECT WITH DR. KARA WADA

Website → https://www.drkarawada.com/

LinkedIn → https://www.linkedin.com/in/karawadamd/

Instagram → https://www.instagram.com/immuneconfidentmd/

Facebook → https://www.facebook.com/KaraWadaMD

Twitter → https://twitter.com/CrunchyAllergy

TikTok → https://www.tiktok.com/@immuneconfidentmd

ABOUT THE VIRTUAL SJOGREN'S SUMMIT

Lire plusRéduire

Day 3 - Kara Wada, MD & Janet Steins - Roundtable: "The Clinical Trial Journey: Patient Perspectives & Insights"

samedi 19 juillet 2025 • Durée 54:14

What is it really like to be in a clinical trial for a new Sjogren's medication? What are the tests like? What's the time commitment? And is it worth it?In this unique and candid roundtable discussion, Dr. Kara Wada is joined by fellow community member and Sjogren's patient Janet Steins to share their personal, lived experiences as participants in the same clinical trial. They pull back the curtain on the entire process—from the initial decision and the intensive screening process to the day-to-day realities of infusions, side effects, and daily surveys.Watch this session to get a rare, firsthand look into the world of clinical trials, hear honest advice for anyone considering this path, and discover the profound hope that comes from contributing to the future of Sjogren's treatment.SESSION IN A GLANCE00:00 Intro00:42 Janet's Background and Diagnosis01:36 Getting into the Clinical Trial03:02 Experiences and Challenges in the Trial06:54 Screening and Enrollment Process11:51 Trial Medications and Phases18:38 Personal Impact and Reflections27:57 Family History and Medical Advances30:48 The Challenge of Diagnosing Seronegative Patients32:07 Personal Experiences with Sjogren's Syndrome34:45 Considering Clinical Trials: Advice and Insights36:32 Navigating Clinical Trials: Expectations and Realities44:40 The Importance of Networks in Managing Chronic Conditions49:46 Concluding Thoughts and EncouragementABOUT JANET STEINSJanet Steins is a Sjogren's patient from Northwest Missouri who was diagnosed in 2021. After finding a supportive rheumatologist who recommended she join a clinical trial, Janet embarked on a journey to not only improve her own health but to contribute to a better future for all Sjogren's patients. A passionate advocate and valued member of our community, this entire session was inspired by her wonderful idea to share the real, lived experience of being in a clinical trial.ABOUT DR. KARA WADADr. Kara Wada is a 4x board certified pediatric and adult allergy immunology, functional, and lifestyle medicine physician. She is also a Midwest mom of 3 kids and an elder millennial who loves a bit of pop punk music and has a rebel energy that is looking for ways to come out to play along with her very kind, loving, and compassionate nature. She uses a 4 R framework in her work: Recognize, Reclaim, Rebel, and Rise, which echoes throughout her work.CONNECT WITH DR. KARA WADAWebsite → https://www.drkarawada.com/LinkedIn → https://www.linkedin.com/in/karawadamd/Instagram → Facebook → Twitter → TikTok → ABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Day 2 - Nishi Bhopal, MD - Integrative Approaches to Sleep

vendredi 18 juillet 2025 • Durée 22:51

If you're living with Sjogren's, you know that profound and debilitating fatigue is one of the most common complaints. But what if the key to better energy isn't just about managing your condition, but radically improving your sleep?In this comprehensive session, board-certified sleep medicine specialist Dr. Nishi Bhopal walks you through "Sleep 101." She explains why sleep is the foundation for good health, the common sleep issues seen in Sjogren's (like insomnia and sleep apnea), and introduces her "Three Pillars of Sleep" framework.Watch now to learn actionable, integrative strategies—from nutrition and supplements to behavioral therapies like CBT-i—that can help you calm your nervous system, optimize your body clock, and finally get the restorative sleep you need.SESSION IN A GLANCE00:00 Introduction to Integrative Sleep Medicine01:21 Sleep 101: Why Sleep is the Foundation of Health04:59 What Are Your Baseline Sleep Needs?08:24 Common Sleep Issues in Sjogren's10:43 The Three Pillars of Sleep: CSH Framework15:02 Conventional vs. Integrative Sleep Strategies17:34 How Food and Nutrition Impact Sleep Quality19:30 Herbs and Botanicals for Sleep Support20:31 Your Next Step: Where Do You Want to Start?ABOUT NISHI BHOPAL, MDDr. Nishi Bhopal is a Board Certified Physician specializing in Sleep Medicine, Psychiatry, and Integrative Medicine. She has a private practice called Pacific Integrative Psychiatry, where she helps adults with anxiety, depression, and sleep issues. She also founded IntraBalance, an educational platform and YouTube channel that makes clinical sleep medicine easy to understand and accessible to all.CONNECT WITH NISHI BHOPAL, MDLinkedIn → https://www.linkedin.com/in/nishibhopal/Instagram → https://www.instagram.com/intrabalanceYouTube → https://www.youtube.com/c/intrabalanceSleep Coaching Waitlist → https://members.intrabalance.com/insomnia-waitlistABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Day 2 - Cheryl Crow, OTR/L - The Acceptance Paradox: How I Stopped Fighting Chronic Illness & Started Thriving WITH it

vendredi 18 juillet 2025 • Durée 25:13

When living with a chronic autoimmune condition, we are often told to "fight" it or "conquer" it to live a full life. But what if, instead, we learned to truly thrive with our conditions by riding the waves of uncertainty with more grace?In this transformative session, occupational therapist and rheumatoid arthritis patient Cheryl Crow introduces "The Acceptance Paradox." She explains how Acceptance and Commitment Therapy (ACT) helped her stop fighting the unsolvable parts of chronic illness and start thriving alongside them. You'll learn the difference between "acceptance" and "resignation," explore powerful metaphors like the "passengers on the bus," and discover how allowing for the present moment—even when it's uncomfortable—can free up your energy to live a more meaningful life.Tune in to change your relationship with the idea of acceptance and discover what's still possible in your life, even with Sjogren's.SESSION IN A GLANCE00:00 The Challenge of Acceptance03:11 The Hero's Journey vs. The Reality of Chronic Illness06:31 The "Fixing" vs. "Thriving" Methods08:09 The Truth Will Set You Free (But First...)11:20 The Acceptance Paradox: Feeling Better by Allowing Unhappiness13:42 Correcting Myths About Acceptance15:35 Metaphors for ACT: The Finger Trap & The Passengers on the Bus19:07 The Final Boss: Accepting Uncertainty21:57 Feeling Better vs. "Feeling" BetterABOUT CHERYL CROW, OTR/LCheryl Crow is a passionate advocate for addressing the full spectrum of needs for people with rheumatic diseases—far beyond just joint pain. Having lived with rheumatoid arthritis for over two decades, she became an occupational therapist and founded Arthritis Life to educate, empower, and support others navigating life with arthritis. Known for her engaging content, she is the host of the Arthritis Life Podcast and leads Rheum to THRIVE, an online self-management course and support group where she helps people build meaningful, fulfilling lives.CONNECT WITH CHERYL CROWYouTube → https://www.youtube.com/channel/UCDEZnSHMkC5FJ6enOwHsRKgInstagram → https://www.instagram.com/arthritis_life_cheryl/TikTok → https://www.tiktok.com/@arthritislifeSLIDES -> https://drive.google.com/file/d/1HLuxiwErS5NUQ2zA6NuK20idra0tIrM5/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Day 2 - Jacqueline Marks, MA, RYT-200 - Who Deserves Your Magic?: Cultivating Your Sense of Agency to Build a Network that Nourishes

vendredi 18 juillet 2025 • Durée 20:21

This session offers an introduction to yoga therapy—what it is, how it differs from a typical yoga class, and why it can be especially supportive for individuals living with Sjögren’s Syndrome. Rooted in accessible, therapeutic practices, this approach blends gentle movement, breathwork, and mindfulness to address common symptoms like fatigue, joint pain, dryness, and emotional stress.

When you're living with an Energy-Limiting Chronic Illness (ELCI) like Sjogren's, who truly deserves your "magic"—your precious energy, presence, and focus? In this empowering session, wellness educator and Sjogren's patient Jacqueline Marks introduces the concept of personal agency as the key to answering that question. She reframes the challenge from one of time management to energy management, offering a powerful toolkit for setting boundaries, taking ownership of your well-being, and building a network that truly nourishes you.

Watch now to learn how cultivating your sense of agency can make you a stronger self-advocate, bolster your resilience, and help you thrive with authentic meaning and purpose.

SESSION IN A GLANCE

01:59 Sjogren's as an Energy Limiting Illness

03:42 Managing Energy Not Time

06:05 The Definition of Personal Agency

07:31 What You Can and Cannot Control

08:48 Nurturing Your Social Wellness

11:28 Practicing Discernment in Relationships

13:15 Using Radical Acceptance and Boundaries

15:29 7 Building Blocks to Restore Your Agency

18:18 Thriving with Meaning and Purpose

ABOUT JACQUELINE MARKS, MA, RYT-200

Day 3 - Lilly Stairs - The Power of Patient Communities & Network Advocacy

vendredi 18 juillet 2025 • Durée 25:49

What does ambition look like when you're living with a chronic condition? How do you build a vibrant life and career when your body requires you to work smarter, not harder?In this candid and inspiring fireside chat, Dr. Kara Wada sits down with internationally recognized patient advocate and entrepreneur, Lilly Stairs. Lilly shares her personal story of being diagnosed with three autoimmune diseases at age 19 and the "identity quake" that followed. She discusses how she redefined ambition, the crucial difference between support from family and support from peers, and the power of setting boundaries to say "yes" to yourself and your dreams.Tune in to this powerful conversation to learn how to navigate your career with chronic illness, find a community that truly "gets it," and hear the simple, reassuring message you might need to hear most: you're still going to live a beautiful, vibrant life.SESSION IN A GLANCE00:00 Introduction02:44 The 'Identity Quake' of a Diagnosis at 1906:43 Redefining Ambition with a Chronic Condition09:19 Finding Your People: The Importance of Peer Support14:00 The Power of Boundaries in Your Work and Life16:30 How to Advocate for Accommodations in the Workplace20:29 The One Thing I Wish Someone Had Told Me23:03 Where to Find and Connect with LillyABOUT LILLY STAIRSLilly Stairs is an internationally recognized patient advocate, serial entrepreneur, and sought-after speaker. Diagnosed with multiple autoimmune diseases, she is the Founder of the Chronic Boss Collective, a networking membership for ambitious business women with chronic conditions, and Patient Authentic, a consultancy that helps healthcare organizations build meaningful experiences for patient advocates. Lilly serves as the Board Chair of the Autoimmune Association, dedicating her life to empowering the autoimmune community.CONNECT WITH LILLY STAIRSWebsite → https://www.chronicbosscollective.com/LinkedIn → https://www.linkedin.com/in/lilly-stairs/Instagram → https://www.instagram.com/lillystairs/?hl=enInstagram → https://www.instagram.com/chronicbosscoABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Day 2 - Dympna Weil - Tapping Into Your Healing Powers: Emotional Freedom Technique for Everyday Well-Being

vendredi 18 juillet 2025 • Durée 28:12

What if you could carry a tool with you, anytime and anywhere, that could calm your nervous system, lower stress, and help you manage the overwhelm of chronic illness?In this experiential and evidence-based session, physician and Master Coach Dr. Dympna Weil introduces you to the Emotional Freedom Technique (EFT), also known as "tapping." She explains the simple yet powerful science of how combining gentle tapping on acupressure points with focused attention can interrupt the body's fight-or-flight response, lower cortisol levels, and create a sense of calm.Watch now to learn the foundational principles of EFT, discover how it can help with real-life challenges like anxiety before appointments and pain management, and participate in a guided tapping session to feel the effects in your own body in real time.SESSION IN A GLANCE00:00 Introduction to EFT for Everyday Wellbeing03:34 What is EFT (Tapping)?06:21 The Science Behind Tapping08:36 The History of EFT10:14 A Personal Story: Tapping as a Lifeline13:34 The 9 Tapping Points18:17 Guided Tapping Session for Health Overwhelm21:07 How to Apply EFT to Chronic Illness Challenges23:52 Your Action Plan to Start Tapping Today26:18 Trusted Resources to Continue Your PracticeABOUT DR. DYMPNA WEIL, MD, FACOGDr. Dympna Weil is a board-certified OB-GYN and a Martha Beck-certified Master Coach. After her own clinical career was paused by the onset of chronic medical conditions, she immersed herself in self-development and self-care, founding Prescribing Possibility™, a coaching and consulting practice. Through her work and her podcast of the same name, she helps physicians and other high-achieving professionals find tools for wellness and self-regulation.CONNECT WITH DR. DYMPNA WEILFacebook → https://www.facebook.com/dympna.weilInstagram → https://www.instagram.com/dympnaweil/LinkedIn → https://www.linkedin.com/in/dympnaweil/The Tapping Solution App (Recommended Resource) → https://www.thetappingsolution.com/blog/tapping-solution-app/SLIDES → https://drive.google.com/file/d/115w4XLikXk386BQkq886V3TP69SSMAWt/view?usp=drive_linkABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Day 2 - Diane Hilal-Campo - Sjogrens Disease and Dry Eyes - How can I get back into Eye makeup?

vendredi 18 juillet 2025 • Durée 17:33

For many with Sjogren's, severe dry eye can make wearing eye makeup feel impossible, leading to irritation, inflammation, and pain. But does it have to be this way?In this informative and practical session, board-certified ophthalmologist and dry eye specialist Dr. Diane Hilal-Campo breaks down the science behind Sjogren's-related dry eye disease. She explains the difference between aqueous deficient and evaporative dry eye, outlines the most effective medical treatments available, and reveals how common makeup ingredients can exacerbate your symptoms.Watch now to understand your dry eye treatment options and learn how, with the right products and hygiene, you can safely and comfortably get back into wearing the eye makeup you love.SESSION IN A GLANCE00:00 Introduction to Sjogren's and Dry Eye01:57 Two Major Types of Dry Eye Disease04:00 Modern Treatments for Aqueous Deficient Dry Eye08:31 How Eye Makeup Exacerbates Dry Eye Disease10:00 The Solution: How to Get Back into Eye Makeup11:58 Better Ingredients for Healthier Eyes14:30 Why Mascara and Eyeshadow Matter16:35 Final Thoughts and EncouragementABOUT DR. DIANE HILAL-CAMPODr. Diane Hilal-Campo is a Columbia-trained, board-certified ophthalmologist in private practice where she has been treating eye diseases for over 25 years. After spending decades treating patients struggling with dry eye and other painful conditions caused by makeup, she developed her own brand of ophthalmologist-formulated, eye-friendly formulas, twenty/twenty beauty. Dr. Hilal-Campo created twenty/twenty beauty to help promote and preserve the long-term eye health of makeup wearers around the world by designing products that support, rather than disrupt, the delicate ecosystem of the eye.CONNECT WITH DR. DIANE HILAL-CAMPOInstagram → @trytwentytwentyABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Lire plusRéduire

Day 2 - James Barlow - Use of complementary and alternative medicine (CAM) among people living with Sjögren's

vendredi 18 juillet 2025 • Durée 31:37

An astonishing 84% of people living with Sjogren's reported using some form of Complementary and Alternative Medicine (CAM) in the past year. But what exactly are they using, why are they using it, and is it safe?In this research-focused presentation, pharmacist and Senior Lecturer James Barlow shares the results of a comprehensive survey on CAM usage among Sjogren's patients. He defines what "integrative" medicine truly means, breaks down the most popular CAM practices (from supplements like turmeric and Omega-3s to practices like acupuncture and yoga), and discusses the evidence—or lack thereof—for their effectiveness in managing Sjogren's symptoms.Watch this session to get an evidence-based perspective on CAM and learn why open communication with your healthcare team is crucial when integrating these approaches into your care plan.SESSION IN A GLANCE01:31 Understanding 'Integrative Medicine'03:55 Who Uses CAM? Patterns of Use07:04 The I-CAM Research Project and Survey Results09:54 Most Common CAM Practitioners and Treatments14:57 Deep Dive: Vitamins and Minerals16:59 Food Supplements and Omega Oils21:41 The Complexity of Herbal Medicines24:06 Turmeric: Food or Medicine?25:17 Reported Adverse Effects of CAM vs. Conventional Medicine26:45 Traditional Chinese Medicine (TCM) and Acupuncture29:21 Key Takeaways and the Importance of CommunicationABOUT JAMES BARLOWJames Barlow is a Senior Lecturer in the Department of Chemistry at RCSI University of Medicine and Health Sciences in Dublin, Ireland. He trained as a pharmacist and has a particular interest in natural products, including evidence-based complementary medicines. With 20 years of experience teaching students in courses on Pharmacognosy, CAM, and chemistry, he is an advocate of the evidence-based use of CAM approaches in an integrative context.CONNECT WITH JAMES BARLOWWebsite → https://people.rcsi.com/jambarlowSjögren's Ireland → https://sjogrensireland.ieSjögren's Synergie → https://sjogrens-synergie.euResearch Paper → https://link.springer.com/article/10.1007/s00296-025-05802-wABOUT THE VIRTUAL SJOGREN'S SUMMITThe Virtual Sjögren's Summit is an annual patient-led online event dedicated to providing accessible, high-quality education and fostering a supportive global community for everyone touched by Sjögren's. Our mission is to build networks of support, knowledge, and hope.

Day 2 - Melanie McNally - Movement, Mindfulness & Moisture: A Holistic Yoga Therapy Approach to Sjögren’s

vendredi 18 juillet 2025 • Durée 22:01

Join Certified Yoga Therapist and Sjogren's patient Melanie McNally as she shares her personal story of turning to yoga to manage her own symptoms. You'll learn how gentle movement can ease stiffness, how breathwork can calm an overactive nervous system, and experience a simple but powerful "12-Point Hand" breathing exercise you can use anytime, anywhere.

Watch now to discover a path to feeling more in tune with your body and learn take-home practices you can use daily to support your whole-person well-being.

SESSION IN A GLANCE

00:00 Introduction and Personal Healing Journey

03:38 How Yoga Therapy Helps

05:07 Understanding Yoga Therapy vs. Yoga

09:02 Guided Breathing Practice

12:14 How Movement Eases Dryness & Stiffness

13:28 Guided Gentle Movement Practice

19:52 Final Takeaways for Daily Practice

ABOUT MELANIE MCNALLY, C-IAYT

Melanie is a certified Yoga Therapist specializing in chronic illness, autoimmune conditions, and mental health support. Diagnosed with Sjögren’s Syndrome at age 25, she turned to yoga as a way to manage her symptoms and reclaim a sense of control, comfort, and connection. With over a decade of experience, she is certified in Yoga for Arthritis and holds a 1000-hour yoga therapy certification. Her compassionate approach helps others living with Sjögren’s feel seen, supported, and empowered to care for themselves from the inside out.

Podcasts Similaires Basées sur le Contenu

Découvrez des podcasts liées à 4th Virtual Sjogren's Summit 2025. Explorez des podcasts avec des thèmes, sujets, et formats similaires. Ces similarités sont calculées grâce à des données tangibles, pas d'extrapolations !