Uniquely Human: The Podcast – Détails, épisodes et analyse

Emotional regulation is being embraced by parents, neurodivergent individuals educators and therapists as an important concept underlying respectful and developmentally informed practices for supporting autistic and neurodivergent individuals. As founder and Director of Children's Autism Services of Edmonton (Alberta, Canada), Terri Duncan, CCC-SLP has prioritized emotional regulation as foundational to services provided to children and families. From these experiences, she has recently published a book focused on implementing services with emotional regulation as a priority. Terri discusses with Barry and Dave how emotional regulation has become so central to her practice, and to her center.

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Neurodivergent children and their caregivers face a unique set of challenges in ensuring that they have access to appropriate services supporting dental and oral health. Unfortunately, due to some of these challenges, many children grow up without appropriate supports, and experience long-term negative physical and mental health repercussions. Barry and Dave do a deep dive into these issues with Dr. Rose-Marie Daly, who has a high level of expertise and experience in working with neurodivergent children and supporting their caregivers, and who understands how critical dental and oral health is for each child and the family.

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Creating Connection in Drumming and Rhythm-based Activities: A Discussion with "Master Teaching Artist" Bob Bloom.

As a “Master Teaching Artist”, Bob Bloom uses drumming, rhythm and singing to create fun and engaging experiences for children and their families, and adults. Specifically, he provides programs to help all children, neurotypical and neurodivergent, become connected to others and their own internal rhythms in activities in schools, community settings and in a variety of venues. In this episode, Bob, Barry and David, all of whom are drummers and musicians discuss the various uses of percussion and rhythm in supporting engagement and learning, with particular consideration for children and individuals who may need extra support.

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Autistic advocacy is one of the most dramatic changes we are witnessing for autistic people and those with other neurodevelopmental differences. Julia Bascom, the Executive Director of The Autistic Self-Advocacy Network (ASAN), discusses the history of disability self-advocacy, ASAN’s mission and current priorities, and what needs to be done to change society’s inaccurate perceptions of autistic and disabled individuals. We also shift to a fascinating discussion of echolalia and language.

The language used in autism culture has a profound impact on perceptions of autistic people and family members. It can communicate respect, or cause mistrust. We discuss the importance of scrutinizing the language we use, and then recommend actions to make the language culture of autism more accurate and respectful, rather than judgmental.

One of the least understood, and most marginalized groups of autistic people are those who are non-speaking, or who have minimal or unreliable speech due to neurologically-based motor speech disorders. With advances in AAC (Augmentative and Alternative Communication), involving both low and high tech approaches, nonspeakers voices are now being heard, and what they have to say is shattering erroneous stereotypes about those for whom speech is not their primary mode of communication. Harmful beliefs about how speech and behavior are accurate reflections of a person’s intelligence and social awareness are being dismantled. We are joined by Ian Nordling, a young autistic man who is a multi-modal communicator who shares his perspectives about how he has benefitted from Spelling to Communicate (S2C), and Elizabeth Vosseller, who developed (S2C), an approach being used increasingly by non- speakers.

In the complex process of developing relationships, things can go so right in some situations and so wrong in others—right, when time spent together engenders trust and builds positive and collaborative relationships; wrong, when encounters create mistrust, suspicion, and even anger (typically for the parents, but sometimes for professionals as well). Autism is a passionate affair for all involved, and in this episode, Barry and Dave discuss some of the challenges as well as solutions for building trusting parent-professional relationships. 

In this episode, we will explore the multi-dimensional nature of the autistic experience in individuals who also may have identity differences related to race, gender identity and ethnicity. Our guest, Dr. Morenikè Giwa-Onaiwu shares her expertise and knowledge as an educator, prolific author, and tireless advocate, as well as her personal experiences as an African American mother of autistic children.

Carol Gray is one of the most respected and creative educators with decades of experience in supporting autistic individuals. Barry and Dave chat with Carol about her influential career and her philosophy about educating students on the autism spectrum. The purposes and the appropriate use of Social Stories, as well as how Social Stories have been misused are reviewed in a lively discussion.

There remains a great deal of controversy and divisiveness around how autism is viewed. This has a direct impact on the stigma that historically has become associated with the word autism or ASD. Is autism a "disease" that needs to be cured, or is it a human condition, characterized by strengths and challenges, that is as much a part of a person as is their gender and racial identity? Is it something that a person has, or is it more about who a person is?