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Explorez tous les épisodes du podcast Tubie Talks

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TitreDateDurée
The tube-feeding TikTok star: Steph's story13 Apr 202400:31:13

She's got a G-tube, J-tube, TPN and half a million social media followers. Meet Steph Kelly,  a Sydney nurse who's built a colossal community by candidly sharing what it's like to live with feeding tubes, frequent hospital stays and a lengthy list of conditions – including hyper-mobile Ehlers Danlos syndrome, POTS, and serious heart issues – all while leading a full, and often very fun life.

Come behind the scenes of Steph’s viral posts as I spend a morning with this incredible advocate. And that's a wrap for season one of Tubie Talks! 
 
You can read an interview with Steph in Issue Three of THE BLEND magazine: theblendmag.com/issue-2-1-1

Follow Steph's TikTok account here: tiktok.com/@stephkkelly

Follow Steph's instagram account here: instagram.com/stephkkelly

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com

Going (and growing) with the flow: Riley's story01 Apr 202400:27:06

This is a story about a girl called Riley. One of four sisters who, along with mum, Grecian, and dad, Justin, enjoys drawing, outdoor adventures and ice-cream treats in her sunny home of Perth, tube-feeding all the way.

Join me as I chat with this charming six-year-old and her family, along with her school principal, who has personally mastered the art of schooltime tube-feeds, and her new support worker, who also happens to have a feeding tube.

You can read an interview with Grecian in Issue Three of THE BLEND magazine: theblendmag.com/issue-2-1-1

Follow Grecian’s instagram account here: instagram.com/growing_our_tribe

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com

Coffee, cake and crafting: Kym's story16 Mar 202400:24:01

She blends up cheese platters with wine, pours espressos down her feeding-tube and calls Spotlight "the mothership".  Meet Kym Adams, a Brisbane local with a wicked sense of humour and, as her friend Skubi puts it, "mad crafting skills".

In this episode, Kym and I spend a day at the Wholesome Blends office (is that a cameo from founder Sarah Thomas, we hear?) and chat about how she found her way back to a full and fun life after her cancer treatment resulted in the need for a feeding tube.     

Find the cookbook that Kym helped put together, Sarah Thomas’ Blended: wholesomeblends.com.au/products/blended-sharing-recipes-for-love-stories-for-life

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com

It takes a tubie village: Luke’s story02 Mar 202400:27:29

Let’s visit Sydney’s sunny suburb of Gymea and spend a day with a charming almost-three-year-old and his family, shall we? Luke Joseph has been tube-feeding since the day he was born and while he kept his parents, Eliana and Michael, and many medical professionals guessing for 16 months, a super-rare genetic condition turned out to be why.

In this episode I encounter a dreamy tube-feeding supplies storage system (watch out Marie Kondo), a grandparent who has learned how to tube-feed (hi Kerry!) and an early learning centre where the educators are tube-feeding experts. You’ve gotta hear this to believe it.

Follow Luke’s mum, Eliana on Instagram: instagram.com/thetubiemum, instagram.com/thehandmadebabyboutique

You can read an interview with Eliana in Issue Two of THE BLEND magazine: theblendmag.com/issue-2-1

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com

He did tube-feeding his way: Pedro’s story17 Feb 202400:25:37

He’s got the body of '80s-era Arnold Schwarzenegger, making him the polar opposite of what most people expect when they think of a tube-feeder. Meet Pedro Relvas, a former professional bodybuilder and personal trainer who faced enormous health challenges with a mindset as strong as his muscles.

Tag along as I chat with Pedro and his family at their gym and home in Brisbane. You’re gonna love this guy – and can follow his story @wolfpepe on Instagram and @pedrorelvas on TikTok.

You can read an interview with Pedro in Issue Two of THE BLEND magazine: theblendmag.com/issue-2-1

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com

How we found our happy (bl)ending: Arlo’s story03 Feb 202400:23:48

Welcome to Tubie Talks, a podcast series celebrating the lives of people and families who tube-feed. I’m your host, author, journalist and tube-feeding parent, Melanie Dimmitt, and in this series I’ll be chatting with a vibrant mix of guests about how they go about this little-known, but no less worthy way of eating.

I’m starting  Tubie Talks close to home – quite literally – with my own family’s story. A few years ago my young son, Arlo, had a gastrostomy (G) tube inserted, was prescribed a diet of commercial formula and embarked on the worst few weeks of his life. Thankfully, the tube-feeding community came to our rescue with blended real food, the hero of Arlo’s story. 

Listen in to hear how Arlo and his family, friends and supporters found their tubie groove.

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com

Tubie Talks Trailer28 Dec 202300:01:56

Welcome to Tubie Talks, a podcast series celebrating the lives of people and families who tube-feed.  Listen in as author, journalist and tube-feeding parent Melanie Dimmitt chats with a vibrant mix of guests about how they go about this little-known, but no less worthy way of eating. 

Tubie Talks is brought to you by the team at InterMed Medical, who supply an extensive range of very useful Medicina products: amslmedical.com.au

It's produced, edited and hosted by Melanie Dimmitt: melaniedimmitt.com.au

Sound engineering by Ash Ball at PEOPLEwho: thesepeoplewho.com

The Tubie Talks podcast cover art is designed by Kathryn Lean: etsy.com/shop/KathrynLean

Want more tubie stories? Read THE BLEND tube-feeding magazine: theblendmag.com

Haley Stewart: A million-plus followers and a whole lot of hope04 Aug 202600:43:46

Haley Stewart was a teenager, tube-fed and living in a tiny town in Montana when her grandma convinced her to post a video. It changed everything.

In the final episode of Tubie Talks: Hooked Up, Steph chats with Haley about growing up while her body fell apart, finding a community online that finally understood her, and the grief of losing a close friend. Haley also shares the hope and faith that's carried her through it all – and what she wants anyone struggling right now to know.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices.

CONTENT NOTE: This episode includes open discussion of chronic illness and medical procedures.

Follow Haley on Instagram and TikTok
Follow Steph on Instagram and TikTok
Visit Haley's Etsy store
Visit The Blend magazine

Lily-Rose Burnell: Meeting Billie Eilish between ICU stays28 Jul 202600:43:09

Lily-Rose "Rosie" Burnell has been septic 17 times and in ICU six times – and she's not afraid to talk about what that's done to her mental health.

In this episode of Tubie Talks: Hooked Up, Steph sits down with her dear friend Rosie, recording just days after she came home from a month-long hospital admission. They talk about complex PTSD, the trauma of repeated ICU stays, and the very real cost of being seriously unwell while everyone around you keeps living their life. Rosie also shares the simple strategy that keeps her going: always having something to look forward to.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices. 

CONTENT NOTE: This episode includes open discussion of chronic illness and medical trauma.

Freya Steindl: TPN, Taylor Swift and travelling the world21 Jul 202600:50:38

Freya Steindl has been on TPN since she was a baby – and it hasn't stopped her running half marathons, rock climbing or road-tripping across the US-Canada border for the Eras Tour.

In this episode of Tubie Talks: Hooked Up, Steph chats with the 24-year-old paediatric nurse from Brisbane about growing up not wanting to be "the sick kid", working alongside colleagues who just get it, and what it's really like to not eat orally at all.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices.

You can follow Freya on Instagram.

CONTENT NOTE: This episode includes open discussion of chronic illness and medical trauma.

Lilly Downs: Cheerios and coming off tubes14 Jul 202600:43:59

Missed prom, met her people online, and came off every tube she had.

In this episode of Tubie Talks: Hooked Up, Steph sits down with 21-year-old Lilly Downs to talk life after a COVID diagnosis turned everything upside down. They cover feeding tubes in high school, finding friendship through illness, dating with medical baggage, and waking up one morning to a video with a million views.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices.

You can follow Lilly on TikTok and Instagram.

CONTENT NOTE: This episode includes open discussion of chronic illness and medical trauma.

Amelia Tang: Let's talk body image07 Jul 202600:46:04

Misbehaving feeding tubes, changing bodies and moving cities to breathe.

In this episode of Tubie Talks: Hooked Up, Steph sits down with disability advocate Amelia Tang to talk ME/CFS, mast cell disease, Cushing syndrome, body image, dating within the disability community and what social isolation really does to a natural extrovert.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices.

You can follow Amelia on Instagram.

CONTENT NOTE: This episode includes open discussion of chronic illness and disordered eating.

Coady Gillis: Self-advocating queen30 Jun 202600:51:46

Besties, feeding tubes, hospital drama and a bit of rule-breaking.

In the first episode of Tubie Talks: Hooked Up, Steph sits down with her friend Coady Gillis to talk friendship, chronic illness, self-advocacy and the people who show up when things get hard.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices. 

CONTENT NOTE: This episode includes open discussion of chronic illness and medical trauma.

Tubie Talks is back. And Steph Kelly has the mic 🎙️23 Jun 202600:01:40

Steph Kelly is your host for season two of Tubie Talks: Hooked Up. She's about to hook you up with a cast of people who, like her, are living life – working, playing, travelling, dating and doing it all – with chronic illness, disability and feeding tubes.

Tune in for weekly episodes from July 1.

Tubie Talks: Hooked Up is a Heart Out Media podcast proudly supported by Medicina, supplier of the GFit Low Profile Gastrostomy Button and a range of enteral feeding devices. 

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