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112 Maintaining Hope When You Have MS28 Dec 202300:37:08

But let's be real, MS presents difficulties. Having hope that things will get better, that there is love and kindness in the world, and that hope is in each of us makes a difference for the good. We can not hope blindly. We have to choose a course of action and stick to it. Despite the delays and setbacks along the journey hope carries us along while ersisting with an adventurous course of action. I call it a gritty hope.

These are the words of Justine Calcagno who was diagnosed with MS in 2016. She is an ultrarunning non-profit researcher with a Ph.D. in psychology. She is passionate about trail running, outdoor pursuits, yoga, cycling, and supporting and empowering others, particularly women and feminine-identified people.

Her approach to living with MS is a combination of embodiment and evidence. She hopes that she can inspire others to identify their challenges to overcome and become more joyful and confident through the process of achieving their goals. She also an advocate through the MS Society. Since having MS, Justine has experimented on herself as an "N of 1". She is committed to a plant-based (vegan) and alcohol-free diet.

Let's chat it up with Justine! 

Instagram: RunwithMS 

runwithms@gmail.com

Instagram: thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

111 Choosing Self Over Fear When Wanting To Get Pregnant With Multiple Sclerosis21 Nov 202300:29:49

What is your greatest fear? Before MS, mine was probably superficial. Fear is an unpleasant emotion caused by the belief that something or someone is dangerous and likely to cause pain (physical, emotional, etc.). Fear can be intense and sometimes overpower us if we don't have the tools to work through the emotions it brings. Mary Virgi does not let fear hold her back! She leans into her core values of family and faith to climb out of negative spaces. At the time we recorded this, Mary was 14 weeks pregnant. And releasing this episode she is now about to have her baby. She is surely thriving! Let's chat it up with Mary!

Instagram: @dontmswithmindfulmary

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

 

102 It's A Marathon, Not A Sprint With Multiple Sclerosis05 Sep 202300:30:32

What is one change in your life you would like to make? Just one change that would improve the quality of your life. One change that would make you proud of yourself. Maybe this episode with Gillian Crooks will inspire you to do just that. Or maybe you have already made a change and you can relate. Once wheelchair-bound, this marathon runner has a lot to share about having high expectations and focusing on things within our control. Let's chat it up with Gillian! 

Instagram: @gillian.eattobeatms

www.mygroovewellness.com

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

 

Ep 18: Getting Your Mind Right With Dr. Samantha Benson16 Sep 202100:08:07

Dr. Samantha Benson joins me for the second time in a three-part series. This physical therapist and soon-to-be author is a sucker for Harry Potter. But more importantly, she is in tune with the needs of our community as she specializes in patients with Multiple Sclerosis. 

Join us as she shares strategies to get us in the right state of mind. 

Dr. Benson's Instagram: @rehabforyourbrain

Dr. Benson's Website: www.brainhabpt.com

Instagram: @thrivingoversurvivingpodcast

Website: www.thrivingoversurvivingpodcast.com

 

Ep 17: Accepting Your Diagnosis & Thriving in Spite of it14 Sep 202100:28:03

Julie Stamm, like most of us, has encountered many ups and downs on her journey with Multiple Sclerosis. She was told that children were not an option, so don't tell that to her son. Julie's book, Some Days, is a story that depicts her relationship with her son and the adventures they enjoy together even on her most challenging days. And that's not all! This warrior is actually participating in a clinical trial for stem cell therapy. Join me as I chat it up with Julie.

Julie's Instagram: @Iamstam

TOS Instagram: @thrivingoversurvivingpodcast

TOS Website: www.thrivingoversurvivingpodcast.com

Visit the website for more info about the show, check out the merch store, and more!

Ep 16: What to Do When Newly Diagnosed with Dr. Samantha Benson09 Sep 202100:12:45

Dr. Samantha Benson joins me for the first of a three-part series. This physical therapist and soon-to-be author is from the city of Philadelphia. She is in tune with the needs of the MS community as she specializes in patients with Multiple Sclerosis. 

Join us as she outlines some specific strategies to support newly diagnosed MS Warriors. 

Dr. Benson's Instagram: @rehabforyourbrain

Dr. Benson's Website: www.brainhabpt.com

Instagram: @thrivingoversurvivingpodcast

Website: www.thrivingoversurvivingpodcast.com

 

 

15 From Tragedy to Triumph, How September 11 Impacted the Journey of This MS Warrior07 Sep 202100:33:54
Kerri lost her brother, FDNY Firefighter Michael Kiefer, on 9/11/2001. But her story does not end there. Although this was a significant loss to her family, the FDNY, and so many more, Kerri finds strength in her brother's memory and uses this to battle her multiple sclerosis.  

Contact Kerri on Instagram: @fd132ny

Contribute to the Michael Kiefer fund: paypal.me/fdnyffmichaelkiefer

Contact Edie:

website: www.thrivingoversurvivingpodcast.com

email: edie.sohigian@thrivingoversurvivingpodcast.com

Instagram: @thrivingoversurvivngpodcast

12 Finding Balance on MS Legs26 Aug 202100:16:00

Dr. Gretchen Part 3: When you have Multiple Sclerosis, balance takes on so many more meanings. Dr. Gretchen Hawley explores how making a few small adjustments may make a big difference with balance & alignment.

Instagram: @doctor.gretchen

www.doctorgretchenhawley.com

Instagram: @thrivingoversurvivingpodcast

www.thrivingoversurvivingpodcast.com

 

11 First Year After Diagnosis24 Aug 202100:41:27

Ashley Ratcliff, the author of Jesus Year, shares her journey as a newly diagnosed MS patient. This compelling story chronicles the ups and downs of Ashley's first year as an autoimmune warrior & how she leaned on God to get her through.

 

Instagram: @ashleyadores

Instagram: @thrivingoversurvivingpodcast.com

www.thrivingoversurvivingpodcast.com

 

10 Tackling Fatigue With Multiple Sclerosis & Other Autoimmune Diseases19 Aug 202100:14:25

For people with Multiple Sclerosis getting tired is no joke. It is not the regular type of tiredness that most people feel. I am talking complete exhaustion without cause. MS warriors call this fatigue. In this companion episode, Dr. Gretchen Hawley shares with us some information and tips on how to battle fatigue.

Instagram: @doctor.gretchen

www.doctorgretchenhawley.com

Instagram: @thrivingoversurvivngpodcast

www.thrivingoversurvivingpodcast.com

9 The Body of an MS Warrior, the Mindset of a Thriver17 Aug 202100:54:23

Angie Gensler has battled through so much in her life, but her warrior tendencies always shine through. This Multiple Sclerosis thriver shares her story of how she has overcome obstacles to be the healthy and inspirational person she is today.

Instagram: @angie_msstrength

www.thrivingoversurvivingpodcast.com

Instagram: @thrivingoversurvivingpodcast 

8 Tackling Vertigo With Multiple Sclerosis & Other Autoimmune Diseases12 Aug 202100:12:38

Do you ever get super dizzy? Does it last for days on end? In this  episode Multiple Sclerosis Physical Therapist Dr. Gretchen Hawley shares with us some tips to overcome bouts of vertigo.

Instagram: @doctor.gretchen

www.doctorgretchenhawley.com

Instagram: @thrivingoversurvivingpodcast

www.thrivingoversurvivingpodcast.com

 

6 The Main Mama of Multiple Sclerosis03 Aug 202100:40:43

Clarissa Hidalgo has worn many hats. As an MS warrior, student, yoga instructor, and wife she shines. But her favorite role is being a mother. In this episode, we chat it up with the Main Mama of Multiple Sclerosis.

Instagram: @multiplesclerosismamas

www.thrivingoversurvivingpodcast.com

Instagram: @thrivingoversurvivingpodcast

101 Being Kind To Yourself When You Have Multiple Sclerosis29 Aug 202300:37:00

Being kind to yourself even if you don't have MS is a struggle for many people. I am super hard on myself. But it is so important to treat yourself with kindness when diagnosed with a chronic illness. We can not blame ourselves! Joanna Bolouri is a bestselling rom-com author. Her cat Twitch reluctantly allows her and her daughter to live with him in Glasgow, Scotland. She advocates for kindness. Let's chat it up with Joanna. 

Twitter: @scribbles78

Facebook page: jbolouri

Instagram: @joannabolouri

Instagram: @thrivingoversurvivingpodcast

http://thrivingoversurvivingpodcast.com

 

4 Overcoming Multiple Sclerosis Naturally27 Jul 202101:01:13

Eve shares her journey with Multiple Sclerosis for the first time here on our show. And what a journey it has been! This sweet soul explains the lifestyle choices she has made to live her best life. If you want some seriously helpful tips on how to manage your MS without medication, this is the show you must listen to.

3 A Deep Dive Into the Process of Stem Cell Treatment for Multiple Sclerosis22 Jul 202100:14:31

Cassidy & Julie Companion: In this companion episode, we examine STEM Cell therapy from Julie's first-hand account of the process. I had no idea there was so much to it, and these MS warriors say they would do it all again if they needed to.

2 HSCT Warriors Growing Community One Stem Cell at a Time20 Jul 202100:56:24

Cassidy & Julie share their stories with multiple sclerosis. They both also had stem cell transplants, HSCT. These two women took charge of their health and rose like true MS warriors to change their futures.

Bio The Journey of 1000 Steps With MS10 Jul 202100:46:49

Welcome to the Thriving Over Surviving Podcast. I am the host, Edie Sohigian. In this episode, I shared my story with Multiple Sclerosis and how I got to where I am today, which is still a work in progress. Those of us on this road with autoimmune diseases all experience different physical symptoms, but we are all trying to live our best lives. Please visit the website at www.thrivingoversurvivingpodcast.com for more information about the show, my guests, and more. 

Instagram: @thrivingoversurvivingpodcast

1 Navigating My New Normal Multiple Sclerosis Life10 Jul 202100:39:06

Welcome to the Thriving Over Surviving Podcast. In this episode, I am with a fellow educator, my longtime friend, Melissa Gordon. During this episode, Melissa and I talked about her story when she was diagnosed with multiple sclerosis and discuss what inspired her to start doing marathon training. Listen to her as she talks about how she's navigating her new normal Multiple Sclerosis life. I hope you enjoy and get inspired by her journey.

Thriving Over Surviving10 Jul 202100:01:13

The Thriving Over Surviving Podcast brings autoimmune warriors together to build community and grow with one another. Diseases such as Multiple Sclerosis (MS) can impact our lives in ways that may become overwhelming. We are here to support and encourage one another along our journeys. By listening to each other’s stories, our goal is to inspire fellow warriors to thrive in spite of a specific diagnosis.

100 Researchers Are Making Breakthroughs in the MS Field22 Aug 202300:27:37

Episode 100! And who better to talk to than Dr. Terry Wahls! A board certified internal medicine physician who conducts clinical trials testing the efficacy of diet lifestyle to treat multiple sclerosis. She is the author of The Wahls Protocol: A Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles. 

Sign up for Dr. Wahls newsletter and get the one page summary of the diet that is used in her clinics and clinical trials to restore cellular health. Great for the refrigerator.

www.terrywahls.com/diet

https://www.facebook.com/TerryWahls

https://www.instagram.com/drterrywahls/

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

99 Adopting Children When You Have Multiple Sclerosis22 Aug 202300:25:26

There are many opportunities to have children when you have multiple sclersosis. For many, natural childbirth is definitely an option. For those who it is not, adoption is another viable option. Melissa joins us for an update on her MS journey. She is still raising awareness and donations through Bike MS, but she also has some personal news to share with us as well. Let's chat it up with Melissa. 

Instagram: thrivingoversurvivingpodcast

http://thrivingoversurvivingpodcast.com

 

98 The Golden Rule of Multiple Sclerosis15 Aug 202300:38:46

Is the outcome of our multiple sclerosis diagnosis all about luck? It is difficult to think that we have no control over whether or not our disease progresses. Dominic "Dom" Shadbolt believes just that though. Whatever he believes about the progression of his own MS, he lives his life by a particular rule; Treat others the way you want to be treated, period. Can't we all just be good people and be kind to one another? At least how we treat others is within our control. Let's also treat ourselves well too, please. 

Check out Dom's website and YouTube page. He has some very helpful resources there that might get you thinking. 

YouTube: www.themsguide.com

Twitter: @theMSguide

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

 

97 Everyone With MS Deserves A Hero08 Aug 202300:29:46

Julie Stamm first joined us in Episode 17, almost two years ago. I thank Julie for her vulnerability as she shared her updates in Episode 98. Julie advocates for all of us to talk about our difficulties. Don't hold back. Julie also shares a new project she co-developed. 52 Essential Inclusion Skills - A to Z Guide to Kindness, Compassion, Respect for Diversity and Disabilities is available on Amazon by Clicking the link below. This collaboration with Harvard Educator and Health Advocate Dr. Jenny Woo, offers strategies to teach both kids and adults empathy. Let's chat it up with Julie!

http://iamstamm.com/

52 Essential Inclusion Skills

 https://thrivingoversurvivingpodcast.com

96 Meeting Friends In The Multiple Sclerosis Community08 Aug 202300:26:01

Alexis Martinez first appeared on TOSP in Episode 71. She shared what it was like for her to manage her own MS and care for her mother who has early onset Alzheimers. This time we discussed her new job and how taking on something new has impacted her daily life and self-worth. Now that I've gotten to meet Alexis in person, it no longer felt like an interview. It was more like catching up with my friend. 

 

Instagram: @itsallinmyhead

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

95 MS Challenges Are An Opportunity To Learn About Yourself29 Nov 202200:46:02

Ah, the optimist's perspective is one many strive to achieve. When dealing with challenges brought on by MS, it is a lot more work to stay optimistic. But the work is well worth it! Matt Knaggs possesses all the qualities of an optimist. He is self-motivated, always around the most motivated people, he believes in possibilities, he is full of joy and finds ways to express gratitude in all things. Yup, we can all learn a thing or two from Matt. 

Instagram: @runningwithms_official

FB group: Running with MS

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

94 Vitality Over Vanity When Living With An MS Diagnosis22 Nov 202200:30:55

Sleep, nutrition, exercise, mindset, stress management... oh my! We cover all the things in this episode, but most importantly we discuss vitality and gratitude. Vitality is a word we use sparingly in everyday conversation because it sometimes seems unattainable. Laura Leigh may have the secret to gaining this perspective. Let's chat it up!

Instagram: @wellnesswithLL

FB: Wellness with LL

www.wellnesswithLL.com

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com/

 

 

93 Feeling Grateful As A Single Mom Living With MS08 Nov 202200:38:49

The love from a child is special and the bond between mother and daughter is one of a kind. Roni shares how her daughter Grey makes it easy for her to lean into her core value of family with ease. Let's chat it up!

https://www.youtube.com/baestationtv

Instagram: @ronigraham

https://thrivingoversurvivingpodcast.com

Instagram: @thrivingoversurvivingpodcast

110 Finding A Safe Space When Multiple Sclerosis Causes Depression14 Nov 202300:34:52

Did you know that approximately 50% of people diagnosed with multiple sclerosis are also diagnosed with depression? This is 3X more likely than in the general population. Managing mental health can be complicated especially when you also have an unpredictable autoimmune disease. Alyssa Gonzalez bravely shares her journey with MS and mental health. She was diagnosed with pediatric Multiple Sclerosis and just that process alone was overwhelming. There is so much to chat about with this gorgeous and positive Instagram Influencer. Let's chat it up with Aly Katelyn!

Instagram: @aly_katelyn

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

92 Living An Adventurous Life With Multiple Sclerosis01 Nov 202200:47:38

What is the biggest risk you have ever taken? Was it one that led you on a grand adventure to far-off places you never dared to go before? For many, that is a bit extreme. For some, life would be boring without an unexpected twist or turn. For Melissa Cook, the author of The Call of the Last Frontier, blogger, and YouTube star there is never a dull moment. It is not an option for MS to put her down, even after over 20 years of living with the disease. 

www.MelissaCook.us

blog: Alaska Bush Life

youtube channel: Wyoming Jeepers

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

 

91 Owning The Diagnosis Of Multiple Sclerosis With The MS Stage18 Oct 202200:38:40

Getting a diagnosis is one thing. Owning a diagnosis is another. With Relapsing Remitting Multiple Sclerosis, for some, it is easy to ignore it. But when it creeps back in and reminds us that MS is still there, that's when we begin to pay attention. Megan from The MS Stage chats with Edie about owning her diagnosis and taking action to improve her own life and the lives of others. Let's chat it up! 

www.themsstage.com

Instagram: @themsstage

Email Megan: info@themsstage.com

https://thrivingoversurvivingpodcast.com

Instagram: @thrivingoversurvivingpodcast

 

90 Writing Your Own Definition of Health With MS11 Oct 202200:38:08

How have you grown since your diagnosis of multiple sclerosis? We all have, whether we like it or not. Maybe in the knowledge of the disease, maybe spiritually, or could it be that you have grown your knowledge and understanding of what a healthy lifestyle means to you? Growth as a core value can be somewhat daunting. I know from experience. It is like I can never get enough knowledge and experience. Chatting with Amy, she has grown in her life with MS to understand her journey is to SOLVE the problems she can and DISSOLVE the problems she can't. 

email: amy@amybehimercoaching.com

website: www.amybehimercoaching.com

free resource: https://amybehimercoaching.click/guide-1

Instagram: @thrivingoversurvivingpodcast.com

https://thrivingoversurvivingpodcast.com

89 Dating And Multiple Sclerosis With MS Girl Gang04 Oct 202200:48:14

For some, finding love seems like an endless search. Now let's add some MS to the mix. No matter what age you are diagnosed, the question raised is, How do I tell this person about my diagnosis? Elana chats it up about her experience on the dating scene with MS, and how she empowers herself through online social platforms. Have you checked out the MS Girl Gang? If you like to laugh, it might be a resource for you. 

Instagram: @msgirlgang

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

88 Multiple Sclerosis Friends United27 Sep 202200:36:16

Have you ever joined a Facebook Group with other people diagnosed with MS? MS Friends United has over 300 very active members. Twice a week they get together on Zoom to chat about whatever is on their mind, MS or otherwise. There are people from all over but each has multiple sclerosis in common. How do they make this happen every week? Teamwork. Join me as I chat it up with Lily and Darren. 

Info@msfriendsunited.org

www.msfriendsunited.org

Facebook: MS Friends United

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

87 Thoughts Of An MS Warrior; Beneath The Tracksuit20 Sep 202200:37:57

Have you ever kept a journal or a diary? Turning pain into something incredible is not something Robbie set out to do when he began putting pen to paper. Journaling helped him process how multiple sclerosis was impacting his life. Today, he has turned those thoughts into a collection of poetry that explores all the emotions. Check out Thoughts of a Warrior; Beneath the Tracksuit by Robert Gillett. 

Instagram: @beneath_the_tracksuit

Facebook & Twitter: Beneath the Tracksuit

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

86 How MS Hope And The Best Bet Diet Changed One Man's Perspective On Living Well13 Sep 202200:42:01

Matthew Embry and his father, Dr. Ashton Embry, created MS Hope for people who have been newly diagnosed or currently living with MS. Their goal is to provide the science-based strategies that have enabled Matthew and many others with multiple sclerosis to live a drug-free, healthy life. Lee joins Edie to chat it up about how following the Best Bet Diet has enhanced his life since his MS diagnosis.

https://mshope.com/

Instagram: @lee_whittys

Instagram: @thrivingoversurvivingpodcast

Website: https://thrivingoversurvivingpodcast.com

 

85 Being Your Authentic Self With Multiple Sclerosis06 Sep 202200:36:43

Authenticity is so darn rare. What does it look like, sound like, and feel like when you find it? When I discovered Samantha Salvaggio I realized this was the real deal. She trusts her gut and embraces whatever she is feeling in the moment. Recognizing that nothing is perfect and that it's ok to have less than ideal moments throughout this journey is one thing. Embracing it is another and that is Sam 100%. Let's chat it up!

Website: www.samanthasalvaggio.com

TikTok: @slsalvaggio

Instagram: @slsalvaggio

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

Bonus Episode: Dr. Terry Wahls With New Multiple Sclerosis Study And You Can Participate01 Sep 202200:20:59

Clinical Trial: Efficacy of Diet on Quality of Life in Multiple Sclerosis (EDQ:MS)

ClinicalTrials.gov Identifier: NCT05007483

Type of MS: relapsing-remitting multiple sclerosis (RRMS)

Treatment mode of action: dietary intervention

Number of Participants: 156

Medication: Participants may continue disease-modifying treatments if they are on them

Institution: University of Iowa

Address: 200 Hawkins Drive, Iowa City, Iowa 52242

Contact Name: Mary Ehlinger

Phone: 319-384-5002

Email: MSDietStudy@healthcare.uiowa.edu

Funding: Gift from the Carter Chapman Shreve Family Foundation to the Therapeutic Lifestyle Fund at the University of Iowa

Brief Description

This is a research study comparing the effects of three diets — a Modified Paleolithic Diet (elimination of gluten, dairy, and eggs), a Time Restricted Olive Oil-based Ketogenic diet, and usual diet with information about the USDA Dietary Guidelines for Americans — to determine whether these diets improve quality of life and reduce fatigue, a disabling symptom that can significantly interfere with the ability to function in daily life. Participants in the usual diet group will be encouraged but not required to follow the Dietary Guidelines for Americans diet. The study will also measure the impact of the study diets on walking function, hand function, vision, serum neurofilament (blood biomarker), and brain imaging (presence of enhancing lesions and changes in brain volume). 

The study will be held at the University of Iowa Hospitals & Clinics over two years. It will consist of three visits to Iowa City, Iowa. The first visit occurs at month 0. The second visit is at month 3, and third and final visit is at month 24. The first visit may last 4-6 hours. The second visit will last about 2-3 hour. The third visit may last approximately 4-6 hours.

Participants will be randomly assigned to follow one of the three study diets. Participants will continue to take their current medications, including any disease-modifying treatments for multiple sclerosis. Participants may take recommended supplements, eat more non-starchy vegetables, complete daily food logs (3 questions) on a free smartphone application, complete online surveys every three months, watch videos to learn about the study diet to which they are assigned, meet with the study dietitian to learn about the study diet to which they are assigned, and attend optional online support meetings. If a participant is assigned to the ketogenic diet, they will be asked to take a blood ketone measurement using a drop of blood daily for the first month, then twice per week. They will have a device that pricks the finger to conduct the blood ketone measurement.

Participants will have a fasting blood draw at each of the study visits and may bring a snack after the blood draw. They will complete assessments of walking, hand, and vision function at each visit. They will have a NON-CONTRAST MRI of the brain at the first and last visits.

Key requirements to participate in the study include the following: 1) be willing to share medical records with the study team, 2) do not have clinically significant heart disease, liver disease, kidney disease or type 1 diabetes, 3) do not have a serious psychiatric disease that would make adopting a study diet more difficult (for example schizophrenia or disabling depression), 4) are not taking insulin, coumadin, or weight loss medications, 5) have a smart phone or tablet to download a free app, and 6) have access to high-speed internet and a computer, tablet or smart phone to complete surveys and participate in video conferences via the Zoom platform.

A screening survey for eligibility to participate in this study is available here: https://redcap.icts.uiowa.edu/redcap/surveys/?s=JX73EYRJNPF9MHRR

 

Dr. Terry Wahls is an Institute for Functional Medicine Certified Practitioner and a clinical professor of medicine at the University of Iowa where she conducts clinical trials in the setting of Multiple Sclerosis.  In 2018 she was awarded the Institute for Functional Medicine’s Linus Pauling Award for her contributions in research, clinical care and patient advocacy. She is the author of The Wahls Protocol: A Radical New Way to Treat All Chronic Autoimmune Conditions Using Paleo Principles, and the cookbook, The Wahls Protocol Cooking for Life.  Learn more about her MS clinical trials https://wahls.lab.uiowa.edu/. Pick up a one-page handout for the Wahls™ Diet at https://terrywahls.com/diet/

Wahls Research Lab - to learn about current clinical research studies that Dr.  Wahls is conducting

https://wahls.lab.uiowa.edu/

Social Media Links

https://www.facebook.com/TerryWahls/

https://www.instagram.com/drterrywahls/

https://twitter.com/terrywahls

https://youtube.com/c/terrywahlsmd

84 Living Life With Multiple Sclerosis Out Loud!30 Aug 202200:46:41

Don't put yourself in a box. We all have unlimited potential. Yes, even if you have MS. In this episode, Edie and Linda discuss what it means to be healthy. It really depends on how YOU definite it for yourself. That means you have to know yourself pretty well to determine what healthy looks and feels like. How well do you know yourself? Let's find out. 

Instagram: @lindamrhyne or @lindarhyneconsulting

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

109 The Crap Gap With Multiple Sclerosis Treatments07 Nov 202300:30:43

Have you ever experienced Crap Gap? You may know it as the end of dosing interval or the weaning-off effect. This refers to the period of time between Ocrevus infusions when you might feel a worsening of MS symptoms. This may include things such as Fatigue, cognitive fog, motor function or balance problems. You know... all the things! Kellie Batts, who has had MS since 2016 shares her experience with Crap Gap as well as her experience over the last seven years with Relapsing-Remitting Multiple Sclerosis. Let's chat it up with Kellie! 

Instagram: @_livinglikek

https://www.joinuplift.co/ UpLift accepts most insurances and copays start at $25.    Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

83 Discrimination Within The MS Healthcare System23 Aug 202200:54:37

Healthcare discrimination, underrepresentation of minority populations in decision-making, bias in the medical profession, and mistrust of the healthcare system are all topics that came up in my chat with Roxy. The Multiple Sclerosis Fashionista's insight and first-hand knowledge of these topics brought new issues to light for me. If you are in the UK, please check out the ADAMS study. 

Instagram: @multiplesclerosisfashionista

https://app.mantal.co.uk/adams

https://podcasts.apple.com/gb/podcast/sick-and-sickening/id1531518575

Instagram: @thrivingoversurvivingpodcast

http://thrivingoversurvivingpodcast.com

 

82 Libido, Breast Implants, And All Things Sex & MS16 Aug 202200:46:04

Has your doctor ever discussed sexual dysfunction with you? Have you ever had any issues with libido in the past? There is actually a high rate of dissatisfaction in the sex department among people with MS. This happens for a variety of reasons. In this episode, Edie explores these topics and much more with Brittany Quiroz, AKA "A Hot MS".  Let's chat it up!

Instagram, Facebook, Tik Tok: @ahotms

www.ahotms.com

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

81 It's Okay To Be Vulnerable Even If You Have Multiple Sclerosis09 Aug 202200:41:24

Yes, it can be scary to show your vulnerable side. Some consider it a weakness. But vulnerability can be a powerful asset when you own it, share your story, and know your limits. Along with vulnerability comes trust. if we don't have trusting relationships, especially those of us who deal with autoimmune diseases like MS, we can feel unsupported and alone. In this episode, LaRoyia shares how her core value of vulnerability provides her with the ability to face her chronic illness head-on. She also shares what it means to her to be "strong-ish". Let's chat it up!

Instagram: @queensmitherman

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

80 Recognizing Your Purpose After Being Diagnosed With Multiple Sclerosis02 Aug 202200:33:45

After Emily was diagnosed with multiple sclerosis, she realized her life's purpose. She loves to move-it, move-it! And she loves to get other people moving and shaking it too. She does it because she loves it, and she wants to help others who deal with chronic illnesses.

Check out her YouTube Channel!

https://www.youtube.com/results?search_query=keep+moving+with+emily

Instagram: @keepmovingwithemily

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

Bonus Episode: Ketogenic Diet For Multiple Sclerosis, Is It Right For Us? With Dr. Taylor Krick28 Jul 202200:12:54

Have you adjusted your diet at all after your diagnosis? There are a lot of different recommendations out there. Well, I was surprised with Dr. Krick recommended Keto for MS because of all the dairy I associate with that. Boy did he set me straight. He even had some research on hand to back up his thoughts. Chatting it up for the second time with Dr. Taylor Krick. 

https://www.washwellnesscenter.com/

https://www.youtube.com/c/WashingtonWellnessCenter

Instagram: @autoimmunedoc

https://thrivingoversurvivingpodcast.com

Instagram: @thrivingoversurvivingpodcast

 

 

79 Setting Goals and Achieving Them With Must Stop MS26 Jul 202200:38:24

Setting goals and achieving them is easier said than done. When you reach them, do you celebrate? You gotta celebrate your success! Please don't miss out on celebrating the wins, even the smallest ones. Randy Patrick, creator of Must Stop MS and #ChatMS shares how his involvement with the MS community helps him achieve his goals. 

Twitter: @MustStopMS

TikTok: @muststopms

Instagram: @must_stop_ms

https://www.meatfight.com/

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

 

78 Living Life In Gratitude With Melissa and Brandy21 Jul 202200:38:38

Melissa was the very first guest on TOSP. One year later on the season 3 premiere, we welcome her back. This time she brought her twin sister Brandy to discuss how they use gratitude to lift themselves up. Their lives are not all peaches and roses, Melissa has MS and Brandy has had some serious turmoil the last couple of years. But with the love and support of their family, gratitude helps them to focus on all the great things in their lives. Let's chat it up with Melissa and Brandy. 

Instagram: @melissa_gordan95

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

Bonus Episode: Season 2 Recap19 Jul 202200:26:26

Before we move into Season 3, I wanted to do a little rewind. When I think back on all the thrivers I've had the privilege to chat with, I feel honored they allowed us to share their journey with them. Thank you to all who listen and feel connected to this community. 

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

Bonus Episode: Dr. Taylor Krick On Leaky Gut And Autoimmune Disease06 Jul 202200:12:10

This week while I am on vacation, I am sharing some bonus content I recorded with Dr. Taylor Krick. He is an expert in autoimmune disease and had some interesting tid bits to share about leaky gut. Let's chat it up with the Autoimmune Doc!

https://www.washwellnesscenter.com/

Instagram: @autoimmuneDoc

https://podcasts.apple.com/us/podcast/the-autoimmune-doc-podcast-w-dr-taylor-krick/id1562522498

https://www.youtube.com/channel/UCSAKgeiblE8CFUVrmd58dWw

Instagram: @thrivingoversurvivingpodcast

https://thrivingoversurvivingpodcast.com

 

 

77 Damian Washington On Being Present, Prompt, & Prepared With Multiple Sclerosis28 Jun 202200:34:32

We all see Damian Washington on TV commercials and MS Views & News. Maybe you have perused his YouTube Channel or Website. Wherever you have absorbed his fantastic energy, it was bound to be entertaining and full of great information about multiple sclerosis. Do you try to be present in the current moment and in your given circumstance? Damian and Edie chat it up about how he makes it all work for him. 

Instagram: @damianwashington

website: https://www.damianwashington.com/

YouTube: https://www.youtube.com/c/NoStressMS

Instagram: @thrivingoversurvivingpodcast

website: https://thrivingoversurvivingpodcast.com

 

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