The Neurological Disorder Podcast – Détails, épisodes et analyse

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The Neurological Disorder Podcast

Mridula Bharathi

Sciences

Fréquence : 1 épisode/34j. Total Éps: 27

The Neurological Disorder Podcast is hosted by Yale University freshman Mridula Bharathi, a young changemaker and advocate for neurological disorders. In this podcast, she interviews people who are affected by neurological diseases, and they share their inspiring stories as a fighter of the disorder. She also talks with doctors and surgeons who are experts on these disorders, researchers who are working to find cures for them, and more! Through this podcast, she hopes to spread awareness for these neurological conditions so more people can stay informed, look out for early signs of these sometimes debilitating conditions, and be involved in creating a change, through legislative advocacy and community awareness, to improve care for everyone impacted by neurological diseases.

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Liens partagés entre épisodes et podcasts

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https://www.wakeupnarcolepsy.org/
4 partages
https://rarediseases.org/
3 partages

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Score global : 68%

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19. Here's a Warrior: Tuberous Sclerosis Complex ft. Nic, Elizabeth, & Beckett Brown

Saison 1 · Épisode 19

dimanche 11 août 2024 • Durée 25:54

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This week's episode is with Nic Brown, father of Beckett. After their 2-year-old son Beckett was diagnosed with Tuberous Sclerosis Complex, a rare genetic disorder, Nic and his wife Elizabeth became dedicated advocates for the cause.

In this episode, Nic shares their long journey to obtain a diagnosis for Beckett and their challenges in navigating the healthcare system for his condition. He then discusses the various symptoms associated with TSC and the complexities of managing them. We also explore how Nic and his wife, Elizabeth, ensure Beckett enjoys a fulfilling childhood while balancing the need for medical treatment—a challenging yet crucial balance for many families to maintain. Additionally, we delve into their advocacy efforts for TSC, their collaborations with organizations like the TSC Alliance, and the promising research currently underway to improve treatment for TSC symptoms. Nic concludes with some powerful and inspiring advice for parents of children who are just beginning to navigate a complex diagnosis.

Make sure to subscribe to The Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast
Email me at- neurologicaldisorderpodcast@gmail.com
Helpful Resources:

https://www.tscalliance.org/
Instagram: @becketts.beehive

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18. Here's an Ally: Foundation to Fight H-ABC ft. Michele Levoir Sloan

Saison 1 · Épisode 18

mardi 30 juillet 2024 • Durée 20:02

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This week's episode is with Michele Levoir Sloan, co-founder of the Foundation To Fight H-ABC. Michele and her husband started the foundation in 2015 after their daughter was diagnosed with H-ABC. Since then, they have supported families affected by this condition worldwide, collaborated with numerous nonprofits, and worked alongside biotechnology companies to support research for a cure.

In this episode, Michele and I discuss her inspiration for creating the Foundation to Fight H-ABC, its mission, and its initiatives/fundraisers. We then dive into current research focused on finding a cure for H-ABC and the ASO treatment in clinical trials. We later focus on the necessity of raising awareness for rare conditions, especially H-ABC, as there are only about 200 diagnosed cases, making this condition mainly unknown to the public. She then shares her goals for the future and an inspiring message to families affected by H-ABC.

Make sure to subscribe to The Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast
Email me at- neurologicaldisorderpodcast@gmail.com
Helpful Resources:

https://www.h-abc.org/

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9.Here's a Warrior: Neurological Perspective to Ehlers-Danlos Syndrome ft. Carter Hemion

Saison 1 · Épisode 9

dimanche 17 septembre 2023 • Durée 26:41

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This week's episode is with Carter Hemion, a public speaker, legislative advocate, and fighter of EDS. Carter shares his long journey with EDS and all the painful experiences and uncertainties he endured before and after diagnosis. We also explore the range of symptoms accompanying EDS, specifically focusing on the neurological symptoms that Carter experiences. Carter is also a dedicated legislative advocate and frequently meets with government officials to raise support and awareness for EDS--we discuss how he recently got May to be EDS and HSD awareness month in Washington state! He is currently advocating for the HELP Copays Act, and we talk about why it is necessary for this bill to be passed.

Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast
Email me at- neurologicaldisorderpodcast@gmail.com
Links Carter mentioned:

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8. Here's an Ally: Headache ft Dr. Aniket Natekar

Saison 1 · Épisode 8

dimanche 3 septembre 2023 • Durée 01:02:35

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This week's episode features board-certified neurologist and headache specialist Aniket Natekar, MD, MSc. After completing his undergraduate degree at the Western University of London, Ontario, he pursued medical school at the John A. Burns School of Medicine in Hawaii. He later completed a residency in neurology and a fellowship in headache medicine.

We all get headache, but does having a headache physically alter your brain? Does following a vegan or vegetarian diet make you more prone to headache? Does consuming alcohol recreationally intensify your headache? And the question that most of us want answered--can we prevent headache? Dr. Natekar addresses all of these questions and explains the science behind how numerous drugs and substances --caffeine, marijuana, alcohol, hallucinogens--lead to headache. We also discuss the difference between a headache and a migraine, and he clarifies common misconceptions about them both. We later talk about the importance of prioritizing health and sleep and how Dr. Natekar is able to do this in his busy life as a Neurologist. He also shares useful tips on how to put both your physical and mental health first! Get ready to learn all about headache!

As a disclaimer, we mention the names of various drugs and substances, and this episode is not meant to influence anyone's choices--it is simply to explain how different substances can affect headache.

Make sure to subscribe to The Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts.

Follow me on Instagram- @neurologicaldisorderpodcast
Email me at neurologicaldisorderpodcast@gmail.com
Resources Dr. Natekar mentioned:

https://www.milesformigraine.org/

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7. Here's a Warrior: Another Perspective on Type 1 Narcolepsy ft. Tara O'Connor

Saison 1 · Épisode 7

vendredi 18 août 2023 • Durée 28:27

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In this week's episode, I spoke with Tara O'Connor, dog mom, aunt, EMG technician, and warrior of Type 1 Narcolepsy (Narcolepsy with Cataplexy). Tara and I talk about the importance of self-advocacy--especially in the school setting--to receive proper accommodations. Unfortunately, Tara talks about how she was denied accommodations for Narcolepsy by her sleep technology teacher in college! How unbelievable is that! Tara also shares the numerous rude remarks she has received due to her condition, but we talk about how she uses these experiences as motivation to advocate for Narcolepsy and improve the experiences of others with sleep disorders--she was even on the local news for World Narcolepsy Day!

Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast
Email me at- neurologicaldisorderpodcast@gmail.com
Follow Tara on Instagram- @sleepygal_96

Links Tara mentioned to help those with Narcolepsy or any sleep disorder

https://project-sleep.com/
https://www.wakeupnarcolepsy.org/
https://www.mayoclinic.org/diseases-conditions/narcolepsy/symptoms-causes/syc-20375497

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6. Here's a Warrior: Alice in Wonderland Syndrome ft Robin Powers

Saison 1 · Épisode 6

vendredi 4 août 2023 • Durée 32:00

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This week's episode is with Robin Powers, a warrior of Alice in Wonderland Syndrome. In her free time, she also loves to write and recently published a book about her other rare condition: Ehlers-Danlos Syndrome (EDS). After experiencing multiple hardships in her childhood, Robin became a young advocate, giving a voice to others with rare conditions who cannot advocate for themselves. She truly turned her pain into motivation and continues to make a significant impact in the rare disease community.

In this episode, we talk about the bizarre symptoms that accompany this incredibly rare neurological condition, the medical paper she co-authored and presented, how she remains positive despite societal judgement, and all the legislative advocacy she is doing on Capitol Hill. She even got to speak with the Senate majority leader!

Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast
Email me at- neurologicaldisorderpodcast@gmail.com
Follow Robin on Instagram- @robinalexixpowersamb
Links to help those with Alice in Wonderland Syndrome:

https://my.clevelandclinic.org/health/diseases/24491-alice-in-wonderland-syndrome-aiws
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4302569/#:~:text=Alice%20in%20wonderland%20syndrome%20(AIWS,common%20perceptions%20are%20at%20night.

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5. Here's An Ally: Huntington's Disease ft Ashley Clarke

Saison 1 · Épisode 5

vendredi 21 juillet 2023 • Durée 01:02:22

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This week's episode is with Ashley Clarke, a devoted advocate for Huntington's Disease in Northern Ireland! After watching her father experience this terrible condition, she started to educate others about Huntington's Disease and research to create a safe and inclusive community. In this episode, she shares the numerous ways in which she advocates for Huntington's globally and continues to make a positive and supportive environment for all. She is also very involved with the HDYO (Huntington's Disease Youth Organization) and recently gave an amazing speech at the opening of the HDYO congress in the Glasgow City Chambers in front of hundreds of people!

In this episode, me and Ashley talk about drugs that are currently being developed and tested to cure Huntington's in the near future, the positive shift in awareness for Huntington's and other neurological disorders in the past 10 years, and the amazing work organizations like HDYO are doing for Huntington's to raise awareness and help diagnosed individuals and loved ones feel comfortable and supported!

Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast
Email me at- neurologicaldisorderpodcast@gmail.com
Follow Ashley on Instagram- @imnotdrunklifestyleblog

Links Ashley Mentioned

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4. Here's a Warrior: Type 1 Narcolepsy ft Matthew Horsnell

Saison 1 · Épisode 4

vendredi 23 juin 2023 • Durée 34:37

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This week's episode is with Matthew Horsnell, a dedicated advocate and father of 3 with Type 1 Narcolepsy or Narcolepsy with Cataplexy. He is also a researcher and has co-authored 3 papers and is the lead author of 1 other! During our conversation, we talk about the changes Matthew has made to accommodate Type 1 Narcolepsy, the importance of legislative advocacy, how social media is affecting the portrayal of narcolepsy, and how we all can make a difference to raise awareness for narcolepsy and help raise government funding for sleep research. We also touch on his research on narcolepsy and how interested individuals can get involved with narcolepsy research!

Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast

Email me at- neurologicaldisorderpodcast@gmail.com

Links Matthew Mentioned:

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3. Here's a Warrior: Stiff-Person Syndrome ft Jennifer Trujillo

Saison 1 · Épisode 3

samedi 10 juin 2023 • Durée 01:35:40

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This week's episode is with Jennifer Trujillo, an inspiring woman and warrior of Stiff-Person Syndrome. She loves to sing, spend time with her family, and was also featured in Céline Dion's music video! In this interview, we talk about Jennifer's long and terrible experiences with the US Medical System, the necessity of research and advocacy for Stiff-Person Syndrome, the benefits of Alternative medicine, and ways we, as a community, can help people with Stiff-Person Syndrome feel more comfortable and safe. Her story is truly heartbreaking and inspiring, as she details how neighbors and even caregivers have made her feel inadequate. However, as a trigger warning, today's episode covers some heavy topics such as suicide and mentions of specific addictive drugs.

Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast

Email me at- neurologicaldisorderpodcast@gmail.com

Follow Jennifer on Instagram- @jentru_mom6_sps_warrior

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2. Here's a Warrior: Functional Neurological Disorder ft Jess Clough

Saison 1 · Épisode 2

dimanche 26 mars 2023 • Durée 47:09

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This week's interview is with Jess Clough, from Australia! She has Functional Neurological Disorder, which affects how the nervous system sends and receives messages. In this interview, we talk about the stigma that Freudian psychology has brought to FND, the importance of modern perspectives in medicine, and a term I have never heard before--medical gaslighting.

Make sure to subscribe to the Neurological Disorder Podcast on Spotify, Apple Podcasts, or wherever you listen to your podcasts!

Follow me on Instagram- @neurologicaldisorderpodcast
Email me at- neurologicaldisorderpodcast@gmail.com
Follow Jess on Instagram- @functionallyjess
Website Jess mentioned for FND- https://neurosymptoms.org/en/

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The Neurological Disorder Podcast – Détails, épisodes et analyse

Détails du podcast

Classements récents

Apple Podcasts

Spotify

Liens partagés entre épisodes et podcasts

Other43

Qualité et score du flux RSS

Historique des publications

Derniers épisodes publiés

Podcasts et contenus similaires

Podcasts Similaires Basées sur le Contenu

Apple Podcasts

Spotify

Podcasts Similaires Basées sur le Contenu

Other43

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