Explorez tous les épisodes du podcast The MS Gym Podcast
| Titre | Date | Durée | |
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| Finding the Still in Mindfulness | 07 avr. 2026 | 00:31:46 | |
In today's podcast, we delve into the topic of mindfulness with our guest Stephen Schettini. Stephen, AKA the inner monk, shares his experiences as a mindfulness coach and as a former Tibetan monk. In our episode, he shares how mindfulness:
Visit schettini.com to learn more about Stephen Schettini and his work.
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| When Restriction Rules The Plate | 30 sept. 2025 | 00:46:15 | |
Today's topic uncovers an emotional aspect of my healing journey and I'm grateful to share my experiences with gut health coach, William Dickinson. William will help unpack disordered eating, restrictive diets and why your gut health may be the issue, not the food you're eating. In today's episode, we will also discuss:
Podcast Links for William Dickinson Book a 1:1 consult Take the Gut Health quiz Website YouTube Get connected with The MS Gym
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| The Brains Behind the Business | 03 juin 2025 | 00:40:55 | |
Join us for a special podcast episode with the CEO of The MS Gym, Ken Allen. In today’s interview we’ll learn about:
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| FALL-OSOPHY, My Trip through Life with MS - Our interview with author/MS advocate, Ardra Shephard | 13 mai 2025 | 01:15:42 | |
In today's episode, Jodi and I get to check in with Ardra Shephard about the engaging complexities of her intriguing new book, aptly titled, Fall-osophy, My Trip through Life with MS. You may think you already know Ardra from her award-winning blog, Tripping on Air, her social media content, or her popular podcast, but, trust us, if you REALLY want to know her, you need to place this revealing page-turner of a memoir on your shopping list. Until then Jodi, Ardra and I are going to give you a glimpse of what you can expect. EPISODE NOTES:
LINKS: Video version of this interview on YouTube Ardra's new book - FALL-OSOPHY, My Trip through Life with MS The Tripping on Air Podcast on YouTube
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| The Unseen Weight of Chronic Illness | 23 avr. 2025 | 00:29:13 | |
Take a journey overseas as we address the rarely discussed topic of mental health in the chronic illness community. Join our podcast guest Lynn as she shares about her:
MS GYM LINKS: | |||
| The Balancing Act of Good Health | 02 avr. 2025 | 00:23:43 | |
Today's podcast guest, Danielle, shares about the challenges of balancing family, work and chronic illness. Danielle shares with us her:
MS GYM LINKS: | |||
| Serving Under the Umbrella of Advocacy | 05 mars 2025 | 00:20:23 | |
In today's podcast, we meet Michelle and explore her passion for advocacy, while she navigates her own health challenges. Michelle will share about her:
THE MS GYM LINKS: | |||
| Re-Routing the Road Map | 19 févr. 2025 | 00:35:49 | |
Today's podcast guest, Missy, will inspire you, as she shares about her:
MS GYM LINKS: Motivation Monday - Chemistry, butterflies and a rock Motivation Monday - Overcoming your Crisis of belief - "I Won't" | |||
| Fine-Tuning Your Focus | 05 févr. 2025 | 00:35:12 | |
Let's travel down under to chat with Australian MS Gym member Kerry. Learn about her rare disease and journey of:
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| Get Out There... AND LIVE | 08 janv. 2025 | 00:24:59 | |
Join us as we travel to the rainy lands of the UK to chat with our latest podcast guest, Sarah. We'll learn more about Sarah's journey with MS as she shares about her:
The MS Gym Links
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| Finding Calm In The Chaos | 12 déc. 2024 | 00:28:25 | |
In today's podcast we delve into the chaos with MS Gym veteran Julie. Join us as we travel down the winding path as Julie shares her:
MS Gym Links Confident In Crisis - Motivation Monday Overcoming Your Crisis of Belief - Motivation Monday
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| Befriend Your Body - Embracing a positive dialogue | 19 nov. 2024 | 00:28:09 | |
It's time to travel across the oceans to talk with today's podcast guest, Cathrin. We'll learn of her journey with MS from her homeland of Sweden. She'll share her story about her:
The MS Gym Links How Full Is Your Threat Bucket? - Episode | |||
| Don't let your diagnosis stop you - KEEP GOING! | 29 oct. 2024 | 00:24:50 | |
Be encouraged by today's podcast as we talk with long time MS Gym member Joann. Journey with us as we unpack Joann's:
MS GYM LINKS: | |||
| Living In The Here & Now | 09 oct. 2024 | 00:28:36 | |
In today's episode, we'll be chatting with MS Gym newcomer, Heather. Gain new insights as we explore Heather's:
MS Gym Links Reconnecting with your WHY- Motivational talk with Trevor Wicken
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| Harnessing Healthy Habits & Healing | 10 sept. 2024 | 00:38:51 | |
Join us for our first episode of the fall season as we talk with MS Gym veteran, Yulia, and learn about the many tools she's found and used in her healing journey with MS. We'll talk about her:
MS Gym Links
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| The Power of Habit Stacking | 15 mai 2024 | 00:02:25 | |
In today's podcast episode, Jodi Feltham shares from the book, "Habit Stacking" by author James Clear. She highlights some of the tips and tricks she uses in her own life to create sustainable habits. | |||
| Do not Despise Humble Beginnings | 26 avr. 2024 | 00:01:44 | |
In today's message Jodi Feltham shares about her own humble beginnings and healing journey from a broken rib injury. She also recounts the early beginnings of The MS Gym. | |||
| Navigating Your MS Journey with Dr. Samantha Roman (thatmsdoc) | 24 janv. 2024 | 00:42:49 | |
I have the privilege today to interview our latest guest Dr. Samantha Roman, better known on TikTok as Dr. Sam. You'll learn valuable insights from our guest, who's not only a John Hopkins MS-trained neurologist, but a fellow MS warrior. In today's podcast, we'll discuss Dr. Sam's:
Links | |||
| Globe Trekker - Exploring the world 1 step at a time | 13 déc. 2023 | 00:20:57 | |
Join us for our podcast as we learn more about Brenda, one of the Original Gymmers (OG) in The MS Gym. Today, she'll talk about her:
MS Gym Links | |||
| Turning Trials Into TikTok Trends with Julie Brazeau | 22 nov. 2023 | 00:25:07 | |
Life can change so quickly when diagnosed with a chronic illness. Things we once held tightly to like our jobs, hobbies, abilities, family and friends can disappear in the blink of an eye. We can find ourselves lost and isolated from the world around us. Today’s podcast guest tells us how she channelled her own struggles, fear and uncertainty into her TikTok videos and created a safe space and community for others who are struggling with chronic illness. What started out as a wobbly dance turned into 41,000 engaged followers, and a whole world of purpose. Join me as we get social with Julie and learn about:
Links: Connect with Julie on TikTok Connect with Jodi on TikTok , Facebook | |||
| Getting Social With Your Story featuring Christina Andaya | 08 nov. 2023 | 00:20:20 | |
Social media is all around us and is a valuable tool for spreading knowledge, influencing others, and creating awareness. Today, we will learn from Toronto-born Christina Andaya as she shares about how she uses social media to:
Learn more about Christina Andaya. Christina Andaya - Social Media Marketing Specialist
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| EVERYTHING YOU EVER WANTED TO KNOW ABOUT THE MS GYM - WHAT IT IS, WHAT IT ISN’T, AND HOW MUCH IT COSTS: with Founder, Coach Trevor Wicken | 19 oct. 2023 | 00:38:26 | |
Today's episode is a super special one because I get to reintroduce and/or introduce the MS Gym to the masses. The MS Gym has been around for almost 6 years and has thousands of followers, but there are upwards of 3 million people worldwide who have MS, so there's always someone newly diagnosed out there or just discovering us who may want to know more about exactly who we are. Who's the founder? Where's it located? What's it all about? How can I benefit from it? And, what does it cost? Our audience is going to get all of that information and more in today's episode as I had the unique opportunity to have an in-depth conversation with the creator and founder of the MS Gym, Coach Trevor Wicken. Let's goooo! EPISODE NOTES: - Its founder, programs, and pricing - Reintroducing The MS Gym - What is it? - What is neuroplasticity? - The role of the central nervous system. - The brain is plastic - The truth about neural pathways - Trevor's credentials - His own neurologic events - Defending MS practitioners who don't have MS - Fighting for people's lives - The free online resources and where you can access them - The difference between the free MS Gym information and the paid for program - When you want more structure - Details on the paid-for products and programs - The Members Only Corner (MOC) - The value of community and connection - Mindset training - A healing lifestyle - Can you continue your regular exercise while using The MS Gym programs? - Where to start - Two of the most popular free programs - Programs for people who use wheelchairs and/or mobility aids - Full program pricing: semi-annual, annual, monthly - Link to a promotional discount for podcast listeners - Are the programs self-paced? - The MS Gym app - Consistently up-leveling the programs - What the MS Gym isn't - A fun random question about food LINKS: THE MS GYM: The MS Gym Programs and Products with Pricing: Membership Program including Members Only Community (MOC) SPECIAL PROMOTION PRICING! (mentioned in this podcast episode) BROOKE SLICK:
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| SCOOTER LIFE with Jodi Johnson: How to Take Control of Your Independence Using a Scooter | 08 juin 2023 | 00:22:50 | |
With summer, vacation months upon us, at least here in the U.S., for those of us living with mobility issues, it adds on an extra layer of complexity and consideration into planning a trip. Things like...Is your vacation rental gonna have steps? Is it going to have an elevator? Are you going to be able to get to your connecting flight fast enough through the airport? Are you going to hold everybody back because you're slow? Are you even going to be able to enjoy yourself on the trip? You know what I'm talking about. Today's guest is going to tell you how you can conquer all of your fears with ease...on a scooter. That's right. It's the mobility device you didn't know you needed. Maybe the mere thought of using one makes you want to stop listening. Maybe you think you're not ready or bad enough yet to use a scooter. Well, you can keep wasting your time and your physical energy trying to get all of your daily tasks completed. You can struggle through trying to keep up with the crowd. You can continue to rely on others to get you where you need or want to go. Or, you can listen to today's guest debunk all of your misgivings and tell you how it's done. Join me in welcoming Jodi Johnson, one of our fellow MS Gymmers, to the podcast. EPISODE NOTES: - Rapid decline - Most symptoms -related - Persistent foot drop - Tripping - Enter mobility aids - From strolling to rolling - Starting with canes - The joy and frustration that came with deciding to use a mobility aid - Embarrassment - Traveling with aids - Discovering a workaround for walking longer distances - Renting a wheelchair even though she wasn't "ready" - Feeling small - Being an ambulatory wheelchair user - Trying out a walker/wheelchair combo…even in Portugal and Costa Rica - Getting unapologetically used to using a mobility aid - Mobility aids in the home - Getting her first scooter - Shocked at the freedom and portability of a scooter - Going to the mall again! - Getting her independence back - Using multiple mobility aids depending on how she was feeling on any given day - Canes/walker/wheelchair/scooter - Acquiring her bumblebee scooter - Flying with a foldable scooter - The Transformer by Solax - Getting a lift for her car - Bruno Scooter Lifts for vehicles - Opening up doors for travel - Been on over 40+ flights - Being aware of potential airline damage LINKS: Solax Transformer Automatic Folding Scooter Bruno Scooter Lifts for vehicles THE MS GYM: BROOKE SLICK:
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| Small Steps To Set Your Mind Free | 17 mai 2023 | 00:31:27 | |
In today's MS Gym podcast episode, we'll chat with MS Gym member Kim as she shares about her:
MS Gym Links: The MS Gym Join host Jodes Feltham, on Instagram, TikTok, or Facebook Reels to learn more about disability awareness and inclusion.
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| DR. RICHARD BURT REVISITED: His reasoning for not treating PPMS & Non-active SPMS with HSCT, Misdiagnoses, Epstein Barr Virus & MORE! | 06 avr. 2023 | 00:39:42 | |
Welcome back to our 3rd and initially unplanned episode with Dr. Richard Burt, author of the recently released book, Everyday Miracles and the OG provider of HSCT here in the US. Let me explain why we thought it would be useful for our listeners, as well as Dr. Burt to come back and re-hash some of Dr. Burt's touch points from the first two episodes. In particular his stance on NOT treating PPMS and non-active SPMS with HSCT. You see, after the first two episodes, I witnessed rumblings of concern and discontent within the online HSCT community. I belong to multiple HSCT groups and most had at least one or two conversations going on addressing Dr. Burt's most recent interviews, including ours on this podcast. So, who was most concerned? Well, primarily PPMS patients, and non-active SPMS patients who are either considering HSCT, are already booked to have HSCT or those who've recently had HSCT. I 100% understand how Dr. Burt's stance on the efficacy of HSCT on their types of MS would have been reason for pause. Knowing that, I felt a responsibility to revisit the topic with him and drill down on the details. It would also give us a chance to ask him a couple of questions we missed on the first interview, like dietary restrictions before and after HSCT as well as questions on second transplants. We feel so fortunate that Dr. Burt graciously agreed to come on again and address a lot of these pressing issues. Also, if you hold on until the end, Jodi and I have a short chat about what we took away from today's interview and recap our thoughts on our entire experience with Dr. Burt. Because she and I have had HSCT, and each in different facilities, Russia and Mexico, we have a unique perspective and are able to relate to the concerns of an HSCT patient no matter what stage they're at in their HSCT journey. EPISODE NOTES: - 2nd transplants - Were you misdiagnosed? - Do you even have MS? - Many diseases mimic MS - The average percentage of patients who relapse post HSCT - Explaining in detail his thoughts on treating PPMS and non-active SPMS patients - What is RPMS (relapsing progressive MS) and would he offer HSCT to RPMS patients? - The type of regimen he would recommend If progressive MS is treated with HSCT - If not HSCT, what types of treatments does he recommend for PPMS and non-active SPMS patients? - Does he have any dietary recommendations for HSCT patients either before or after HSCT? - His thoughts on carbohydrates - The Epstein Barr virus (EBV) connection to MS - Following EBV titers after transplant LINKS: Episode #1 on YouTube: https://youtu.be/ezjhqHtYA8Y This episode, #2 of 2, on YouTube: https://youtu.be/40dqLdIeZlc Dr. Burt's book, EVERYDAY MIRACLES: https://www.amazon.com/Everyday-Miracles-Scleroderma-Autoimmune-Hematopoietic/dp/1637631251 Dr. Burt's website: https://astemcelljourney.com/about/drrichardburt/ Email to apply for HSCT with Dr. Burt: BURTRRMSTrial@scrippshealth.org THE MS GYM: BROOKE SLICK: JODI FELTHAM: | |||
| Traveling On The Path Of Positivity | 22 mars 2023 | 00:25:22 | |
Today, we'll chat with one of our Original Gymmers, Jan J, and learn about her:
The MS Gym Links:
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| What Makes You Tik? | 01 mars 2023 | 00:04:13 | |
Join me today to uncover what purposes and desires reside in your heart that you want to share with the world. Are you passionate about a specific hobby, diet, activity or cause? Today, I'll talk about my own desire to become an advocate for disability and also my favorite clothing line lululemon. It's my desire that disability be part of the "diversity" movement in word and in action. Links Join me on my advocacy journey: | |||
| DR. RICHARD BURT on HSCT for MS & his book EVERYDAY MIRACLES - Part 2 of 2 | 16 févr. 2023 | 00:37:27 | |
Welcome to part two of two of our interview with Dr. Richard Burt. I can't tell you how many people have reached out to me after listening to part one and how anxious they are to see what awaits in part two. I even had one listener message me to say the interview with Dr, Burt should be required watching for everyone with MS, and I'm not going to disagree with that deduction. If you have PPMS, whether you're considering HSCT or not, you should definitely listen to this episode. Dr. Burt completely reframes the type of disease PPMS is or isn't. If you want to hear about the future of organ and tissue repair including but not exclusive to remyelination, you should listen to this episode. Those topics are just scratching the surface of what this medical innovator brings to the table for the future of the treatment of chronic illnesses, debilitating injuries, and to the exciting new world of neuroregeneration. I feel certain that what he's working on today is laying the groundwork for treatments that will be considered commonplace over the next 30 years. Before we jump into this next episode, I wanted to let you know that this episode will be available to view on the MS Gym’s YouTube page, and there will be links in the episode notes to that YouTube page. There will also be links to part one of this interview as well as links to Dr. Burt’s book, and his website, as well as an email, where you can contact Dr. Burt’s team if you're considering HSCT. EPISODE NOTES: - His thoughts on PPMS and why he doesn't treat it - How disease labels can evolve over time - How HSCT drug protocols vary per autoimmune disease - What can trigger a relapse post HSCT - IPS stem cells and neuroregeneration - Starting a new biotech company - The future of HSCT in Chicago - How IPS could help patients with SPMS and PPMS - Where patients can receive non-myeloablative HSCT in the US now - Neurodegenerative treatment for non-active SPMS and PPMS - Pseudo flares post HSCT and what can cause them…don't panic! - Tweaking the healthcare system to make the patient first - Medicine is a profession, healthcare is a business LINKS: Episode #1 on YouTube: https://youtu.be/ezjhqHtYA8Y This episode, #2 of 2, on YouTube: https://youtu.be/40dqLdIeZlc Dr. Burt's book, EVERYDAY MIRACLES: https://www.amazon.com/Everyday-Miracles-Scleroderma-Autoimmune-Hematopoietic/dp/1637631251 Dr. Burt's website: https://astemcelljourney.com/about/drrichardburt/ Email to apply for HSCT with Dr. Burt: BURTRRMSTrial@scrippshealth.org THE MS GYM: BROOKE SLICK: | |||
| DR. RICHARD BURT on HSCT for MS & his book EVERYDAY MIRACLES - Part 1 of 2 | 09 févr. 2023 | 00:55:29 | |
I'm super excited about these next two episodes! Of course, any episode that has to do with HSCT (hematopoietic stem cell transplant) is super important to me. For the last 10 years, I've been a vocal advocate for HSCT. Screaming about it from the top of my lungs through social media, blogging, and to anyone who would listen or inquired. As you may or may not know, my co-host, Jodi, and I have both received HSCT for our MS. I had mine in Russia 10 years ago, and Jodi in Mexico in 2018. So when Dr. Richard Burt's team reached out to us to discuss all things HSCT, as well as his recently released book, Everyday Miracles, that puts forth, in lay terms, his long road to accomplishing his goals, we were beyond open to having the opportunity to ask all the questions we ever wanted to know. Those questions include the reasoning behind his choices for inclusion and exclusion of certain patients for this treatment...in particular, MS patients. Questions like…Which MS patients does this treatment work for? Who doesn't it work for? and why? So who is Dr Richard Burt? He's the determined and innovative physician who pioneered the use of HSCT in the US. Within the HSCT community, he's considered the Godfather of HSCT, and yes, in case you're wondering, he IS the Dr. who treated actress Selma Blair. For the last 35 years, with laser focus and blinders on to block out any peripheral static from naysayers, Dr. Burt has been quietly and methodically raging against the machine that is today's medical system. Armed with the knowledge he gained while treating patients with leukemia with HSCT, he felt certain it could potentially halt the progression of certain autoimmune diseases and in many cases, reverse symptoms. So he plowed forward with a mission to prove his hypothesis. But it wouldn't happen overnight. There were randomized trials, hundreds of patients, many diseases and, in the end, life-changing success stories. Dr. Burt was the first doctor in the US to give hope to patients with MS, Lupus, Crohn's, Stiff Person Syndrome and CIDP, when in the past they'd grappled with a life filled with a long list of ineffective drugs and certain disease progression. To be clear, just because he was butting up against systemic red tape here in the US, doesn't mean he wasn't becoming a highly decorated peer by the international medical community and beyond. His list of awards granted by esteemed medical organizations is lengthy and impressive. I mean seriously, how many doctors do you know who've been presented with the "keys to the Vatican" in Vatican City, Rome? He was even recognized by Science illustrated for accomplishing one of the top 10 medical breakthroughs for the next 10 years. And, the forward for his book was written by the Dalai Lama! Yes! Dr. Burt has got the juice! So much so that we had to squeeze it out in two full episodes. Both of which are packed with answers from pointed questions that you won't find anywhere else. Asked by HSCT veterans who, for over a decade, have been privy to all the insider speculation regarding Dr. Burt's methodology. Like why he will or won't treat certain MS patients, why he uses certain drugs in his protocol, and what he considers a successful HSCT. It's time to dig in and peel back the curtain on HSCT with Dr. Richard Burt. EPISODE NOTES: - Dr. Burt's book, Everyday Miracles - Making HSCT easy to understand - 54 patient stories - Being a patient-oriented physician - Insurance coverage - How HSCT works - The mistake of thinking that the stem cells are what resets your immune system - Whose stem cells are used? - Myeloablative or non-myeloablative HSCT…which one does Dr. Burt prefer for AI disease - HSCT for cancer vs. an autoimmune disease - Stronger protocols don't always mean better - A one-time treatment - How long will it last? - The important role of measuring brain atrophy in MS progression - The colonialistic attitude of doctors toward patients - The risks associated with a myeloablative protocol - What is the definition of a successful HSCT - The difference between active and non-active SPMS - Neurodegeneration…it's tricky - Ocrevus, neurodegeneration and progression to SPMS - Your immune system is your ally - MS drugs are toxins - Why he used ATG as part of his HSCT protocol
LINKS: This episode on YouTube: https://youtu.be/ezjhqHtYA8Y Dr. Burt's book, EVERYDAY MIRACLES: https://www.amazon.com/Everyday-Miracles-Scleroderma-Autoimmune-Hematopoietic/dp/1637631251 Dr. Burt's website: https://astemcelljourney.com/about/drrichardburt/ Email to apply for HSCT with Dr. Burt: BURTRRMSTrial@scrippshealth.org THE MS GYM: BROOKE SLICK: | |||
| Finding The Courage to Fulfill Your Convictions | 25 janv. 2023 | 00:23:54 | |
Let's travel the globe to chat with one of our international gym Member, Birgit. We'll unpack her:
The MS Gym Links | |||
| INTEGRATIVE & FUNCTIONAL MEDICINE for MS: When Drugs Aren’t Enough, with Dr. Susan Payrovi | 12 janv. 2023 | 00:48:25 | |
Today we're going to be talking about integrative and functional medicine and how you can use them in tandem for your best and healthiest outcome while living with MS. No matter where you are in the trajectory of your disease. Whether you've just been diagnosed or you've had it for 30 years, you may have asked yourself, "What can I be doing for myself above and beyond the drugs I'm taking, or the infusions I'm getting? There has to be something else." That's where our next guest, Dr. Susan Payrovi, comes into play. Dr. Payrovi is the co-founder of True Medicine which you'll hear more about in this episode. She's board certified in integrative and functional medicine and has dedicated her practice to a whole-person approach to treatment that goes beyond simply throwing drugs at a patient to see what sticks. Over and above her degrees that hang on her wall, Dr. Payrovi is even more uniquely qualified to provide advice to her patients because she herself lives with MS. Please join Jodi and I in welcoming Dr. Susan Payrovi as she educates us on the power of lifestyle habits that can lead to lifelong wellness. EPISODE NOTES
LINKS THE MS GYM: BROOKE SLICK:
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| Listen To Your Gut with William Dickinson Part 2 | 16 nov. 2022 | 00:28:08 | |
Welcome to part two of our podcast about the gut and microbiome with coach William Dickinson. In today's episode, we'll learn more about:
Links: | |||
| Listen To Your Gut with William Dickinson Part 1 | 02 nov. 2022 | 00:23:35 | |
We’ve all heard so much information about the importance of good gut health. But what does that really mean? Today’s guest, coach William Dickinson, will help us unravel some of the mystery around autoimmune disease and the gut. In part one of this podcast, we will learn about William and his own health journey through chronic fatigue syndrome. He’ll share his:
Links: | |||
| Part 2 of 2 with actress JAMIE-LYNN SIGLER on Motherhood, Travel, The MS Gym, Cannabis and MORE! | 19 oct. 2022 | 00:28:23 | |
Welcome back to the second episode of our interview with actress Jamie-Lynn Sigler. In this episode, we pick up where we left off when I asked Jamie if she'd experienced a postpartum relapse of her MS. We also discuss Jamie's MS mom guilt, and how she makes vacationing with young children and MS easier. Also in this episode, she shares her experience with Coach Trevor and the hope that his advice has given her. We finish out this intriguing interview by touching on Jamie's diet choices as well as what and how she uses cannabis for spasticity. EPISODE NOTES: -Raising young children with MS -Remission of symptoms during pregnancy -Postpartum depression -What she can and can't do with her children -The guilt of having others do things with her kids -"Other moms can run" -Focusing on what she CAN do -Would I have been a better mom without MS -When your spouse and children become your cheerleader -Raising children with a conscious -Julie Stamm's book, Some Days -Bringing value despite MS -The value of therapy -Finding solace in friendships -Vacationing with young children and MS -Not slowing anybody down -Choosing smaller hotels -Making vacation easier with accessibility -Jamie's experience with Trevor and the MS Gym -Feeling so much hope -The handbook for living -Blown away by Trevor's compassion -Infectious and genuine -Diet -She's tried ALL the diets -Being kind to herself -Nothing strict -Everything in moderation -Whatever makes her feel normal and not restrictive -Sugar is the enemy -Restricting water intake -Avoiding stimulants -Cannabis for spasticity LINKS THE MS GYM: BROOKE SLICK: | |||
| A CANDID INTERVIEW with actress JAMIE-LYNN SIGLER on LIFE WITH MS - 1 of 2 | 05 oct. 2022 | 00:31:12 | |
Welcome back to another season of The MS Gym Podcast. Jodi and I had planned on taking the summer off as we typically do, but opportunities kept presenting themselves that we simply couldn't turn down. We've been absolutely humbled and honored that potential guests have been coming to us, instead of the other way around. That's right. Word continues to spread about The MS Gym. continues to spread about Coach Trevor, his 100% commitment to and extensive knowledge of how the MS body responds to movement, and his well-informed grasp on how neuroplasticity can restore functionality that was perceived as being impossible. With that kind of reputation, word gets around fast and far, and that's exactly how it happened with this episode's guest. A friend of hers told her about The MS Gym, she took a look at some of Trevor's videos and was intrigued, so she decided to contact The MS Gym to see how she could work with Trevor, only to find out that we had been trying to contact her to be on the podcast. You see, this was no random guest we were reaching out to. This was a Hollywood actress, famous for her role as Meadow Soprano on the long running HBO series The Sopranos, and now appearing in the ABC series Big Sky, who, after keeping her MS diagnosis under wraps for around 16 years, decided to go public. Little did she know, the MS world was cheering her on, anxious to see how she could use her far-reaching platform to shine a light on MS. If you haven't figured it out by now, our guest on today's episode, as well as an upcoming episode, is Jamie-Lynn Sigler, a 42-year-old mother of two young boys, and wife to an incredibly supportive husband. Over the next two episodes, Jamie opens up about a wide range of topics, from how she handled being diagnosed at a young age, making the decision to go public, the gift of workplace accommodation, raising young children, how she uses cannabis for relief, to, most importantly, her own experience with Trevor and The MS Gym. EPISODE NOTES: -Being diagnosed with Lyme disease -MS at 20 when Sopranos was peaking -Avonex -Not being a good patient -The stress of divorce -Keeping her MS a secret -Wanting to get rid of MS -Finding a partner who was "in it" with her was a turning point -The emotional side of MS -Figuring out how to thrive with MS -Dating with MS -Being pleasantly surprised by the acceptance of others -The tipping point for revealing her diagnosis to the public -Making excuses for her visible symptoms -Taking time off after having her son -Coming clean about her MS -The People magazine article that changed everything -Her celebrity status doesn't make MS any easier -Feeling a great sense of responsibility as a celebrity with MS -Accommodating her MS symptoms when filming -Not wanting to feel like a burden on the set -Masking her gait issues -Using a stunt double -Inclusivity in Hollywood -Dreaming of a role that incorporates her MS -Feeling guilt and shame about her limitations LINKS THE MS GYM: BROOKE SLICK: | |||
| An inside peek into Dr. Terry Wahls’ upcoming study examining the affect of diet in the MS population | 03 août 2022 | 00:23:06 | |
Tune in for the second part of our discussion with world-renowned Dr. Terry Wahls, creator of The Wahls Protocol. In today's discussion, we'll learn more about Dr. Wahls' role as a researcher. She shares about her upcoming randomized study, Efficacy of Diet on Quality of Life in Multiple Sclerosis. Diet is often heralded as the key ingredient to managing MS symptoms. But, with over a dozen "MS diets" out there that are often contradictory to each other, how do we really know which one is best? Or is there even one diet that works for everyone? Everyone shares their opinions about the "proper" MS diet, from fellow MSers to complete strangers. But is the only evidence available anecdotal? What makes this study so exciting is that it's the largest, longest, randomized study about diet and MS. Study outcomes will be measured both with physical measures, such as MRI findings and changes in walking ability, and patient-reported outcomes in regards to fatigue and mood. We're all looking forward to the proof in that "gluten and dairy free" pudding. So grab those spoons and let's dig in. In this episode, we'll learn more about the study.
Dr. Wahls also discusses:
For more information about Dr. Wahls upcoming study check out these links: Additional links: DR. TERRY WAHLS: Book - The Wahls Protocol - with access to BONUS content THE MS GYM:
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| HOW THE FOOD WE EAT BECOMES THE BRAIN & BODY WE LIVE IN: A Deep Dive with Dr. Terry Wahls | 27 juil. 2022 | 00:35:55 | |
Hello everyone and welcome to a very special 2-part episode of the MS Gym podcast. At the moment, Jodi and I are currently on our usual summer podcast hiatus, but when author Dr. Terry Wahls, the creator of The Wahls Protocol, reached out to us to help share information about a new study she's working on, we were honored and MORE than happy to oblige. We both thought it would be a perfect opportunity to host an episode together and, of course, we couldn't wait to share the episodes with our listeners. So, you might be thinking, who is Dr. Terry Wahls? What's the Wahls Protocol? Dr. Wahls is currently a clinical professor of medicine at the University of Iowa Carver College of Medicine in Iowa City, Iowa, U.S.A., where she teaches internal medicine residents in their primary care clinics. She also does clinical research and has published over 60 peer-reviewed scientific abstracts, and papers. What gives Dr. Wahls a unique perspective in her field, is the fact that in. 2003 she was diagnosed with RRMS and quickly transitioned to SPMS a few short years later. At that time, she put her researched-oriented brain to work and discovered that most MS treatments centered around drugs that were years away from approval. Given that, she diverted her attention to the role of vitamins and supplements, which were readily available, in helping brain disorders, as part of a treatment plan. She added to her research repertoire functional medicine, a biology–based approach that focuses on identifying and addressing the root cause of disease and from there started compiling a list of supplemental nutrients that would assist in brain health. Her ah ha moment came when she asked herself, what if she created a diet that would include those important brain nutrients, not from supplements, but from the foods she ate...and the rest is Wahls Protocol history! In this episode one of two, we'll get a closer look at Dr. Wahls own physical decline and how she ate her way back to health and onto creating the now infamous Wahls Protocol. We'll also ask her about the new study she's working on. EPISODE NOTES:
LINKS: DR. TERRY WAHLS: Book - The Wahls Protocol - with access to BONUS content THE MS GYM: BROOKE SLICK: | |||
| The Necessity of Nana’s Nurture | 22 juin 2022 | 00:29:23 | |
Travel with us overseas today as we chat with Julie Wake and explore her:
The MS Gym Links | |||
| How Anni Got Her Groove Back | 08 juin 2022 | 00:32:16 | |
What an encouraging podcast episode we've got for you today from one of our superstar gymmers, Annika. Join us as we learn about her:
"My advice to other disabled people would be, concentrate on things your disability doesn't prevent you doing well, and don't regret the things it interferes with. Don't be disabled in spirit, as well as physically.” - Stephen Hawkin The MS Gym Links | |||
| WHY SEEKING COUNSELING IS WISE, NOT WEAK: My Personal Struggle with Trigeminal Neuralgia & Fear | 25 mai 2022 | 00:27:33 | |
This episode is up close and personal for me. It explains why I've been off grid for the last few months, my continued battle with trigeminal neuralgia, and, even more disturbing (at least to me), my mental struggle with fear. I will share how even the most strong-willed, strong-minded person you know, may need to seek counseling to get over the mental hurdles of living with a chronic illness. Most importantly, I want you all to know that seeking counseling is for the wise, not the weak. It can set you free from your time-wasting, joy-sucking struggle with fear and mental angst. EPISODE NOTES: -Flu, shingles and a trigeminal neuralgia (TN) attack -How pain can make your life very small -Surgery, surgery and more surgery over the years -My next move -Weighing options -My choice to have gamma knife (radiation) treatment -The patience required for recovery -The disappointment of attacks after surgery -Being offered pain meds as a stopgap -Waiting for the healing to happen -A long history of medical mishaps -A stroke at age 35 -An unexpected autoimmune clotting disorder -Finally, an MS diagnosis -A pile of failed MS drugs -Suck it up buttercup mentality -Constantly revisiting painful medical trauma -Getting stuck in a loop -Reliving past traumas -The difference in past trauma and trauma now -The unpredictability of TN -The fear that led me to counseling -Having your fear validated -Simple tools to reprogram your thoughts -Shutting down the stigma -Seeking counseling does not mean you're weak. It means you're wise -Stop letting fear waste your time and destroy your joy LINKS: The MS Gym Instagram - @themsgym YouTube - https://www.youtube.com/c/TheMSGym Website - www.themsgym.com Facebook - https://www.facebook.com/groups/TheMSGym/?ref=share Brooke Slick Instagram - @brooke.slick Website - www.brookeslick.com | |||
| Celebrating in Sacred Spaces | 12 mai 2022 | 00:29:20 | |
Today, we chat with Susan and learn about her two-decade journey with MS. Join us as she talks about her:
The MS Gym Links | |||
| Build Your Mindset Muscle | 23 mars 2022 | 00:39:21 | |
Feel refreshed today as we chat with MS Gymmer Jennifer Laymon and hear about her:
MS Gym Links Motivation Monday: How To Live a Life By DESIGN..NOT by Diagnosis Motivation Monday: You are NOT Alone Anymore | |||
| Embracing our Inabilities | 07 mars 2022 | 00:07:54 | |
Are you fighting for control? It can be so tiring to make the "right" choices. So exhausting to do everything perfectly. What happens when we think we're on the right path but it doesn't lead to the destination we were hoping for? What then? What would it look like for you to embrace your inability to control everything? | |||
| Walking Wonderlands | 09 févr. 2022 | 00:23:03 | |
Today, we venture overseas to chat with Susannah to learn more about her:
MS GYM LINKS | |||
| CANES VS. TREKKING POLES: What’s Right for You and When with Trevor Wicken | 25 janv. 2022 | 00:45:28 | |
Welcome to the episode I've been dying to bring to you! It's all about the use of canes and trekking poles, and, most importantly, the advantages or disadvantages of using one or the other; and, yes, believe it or not, there are HUGE differences in these two modes of assistance. Luckily for us, today we have access to wisdom and professional insight of Trevor Wicken, founder of the MS Gym, to break it all down for us. I think it's important to point out that though many of you may know him as Coach Trevor, I'd be remiss if I didn't mention that Trevor holds a Bachelor’s Degree in Sports Medicine and Master’s Degree in Exercise Physiology & Biomechanics. His education AND his 21+ years of professional experience are steeped in biomechanical analysis, neurologic strength training and neuroplasticity in addition to his other specialties. I can think of no better resource to give us advice on how, when, and which assistive device we should be using. EPISODE NOTES:
LINKS: The MS Gym Instagram - @themsgym Website - www.themsgym.com Facebook - https://www.facebook.com/groups/TheMSGym/?ref=share Brooke Slick Instagram - @brooke.slick Website - www.brookeslick.com | |||
| Shifting from Sadness to Smiles | 12 janv. 2022 | 00:16:01 | |
Today's journey takes us to Quebec, Ontario to chat with one of our members, Mae. Join us as we learn more about her:
The MS Gym Links The MS Gym | |||
| Dancing to a NEW Rhythm | 22 déc. 2021 | 00:27:38 | |
Be encouraged and entertained as we chat with Charla about her:
The MS Gym Links
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| RAISING YOUNG CHILDREN WHEN YOU HAVE MS: with Julie Stamm, Author, MS Advocate, Mother | 08 déc. 2021 | 00:35:44 | |
This episode welcomes Julie Stamm, author, MS advocate, and proud mom of Jack to the podcast. Julie, who wrote the recently-released book, Some Days, A Tale of Love, Ice Cream and My Mom's Chronic Illness, shares with us her insight on raising a young child while having MS. Her thought-provoking book, written from a child's perspective, proves that through a child's eyes, things may not be exactly as they seem, and the pressure you may be putting on yourself to perform for your child is likely an unrealistic, self-imposed expectation. We hope you walk away from this episode with an enlightened feeling of relief, knowing that in the end, all your child needs is your time and your love. EPISODE NOTES - About Julie's book, Some Days - The fears that come with pregnancy when you have MS - How she and her son view "bad days" differently - Turning obstacles into games - Teaching your child resilience - How the book is uniquely from a child's perspective - Teaching your child that "everyone has something" - Explaining MS to your child - Incorporating your disability into fun - Adapting how you play with your child based on your current symptoms - The importance of talking to your child - The things your child will and won't remember - Whether to disclose your disease from your child or not - Teaching about disability/chronic illness and empathy in the classroom - Customizing the cover of her book - Book #2 coming out next Fall...Book #3 the following Fall. - Julie's advice to pregnant moms and women considering having children LINKS: Some Days, A Tale of Love, Ice Cream and My Mom's Chronic Illness The MS Gym Instagram - @themsgym Website - www.themsgym.com Facebook - https://www.facebook.com/groups/TheMSGym/?ref=share Brooke Slick Instagram - @brooke.slick Website - www.brookeslick.com | |||
| Finding Victory in Vulnerability | 17 nov. 2021 | 00:22:41 | |
In today’s episode, we journey to England to chat with Ann about her:
Acrostic poem to Trevor Wicken and The MS Gym Thousands of strangers are connected by hope. Redefining their abilities and expectations. Evolving in their bodies and minds. Virtually family. Ordinary people experiencing extraordinary miracles. Results speak for themselves.
Wisdom and passion fuel our journeys. Individuals feel valued. Compassion is contagious. Kisses and hearts festoon the house you created. Endurance is easy. Now that you have brought us together.
The MS Gym Links Motivation Monday: Threat bucket
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| COVID 19 & MS - The Latest Guidance on the Vaccine, the Booster and What to Expect with Dr. Marwa Kaisey | 27 oct. 2021 | 00:45:30 | |
SUMMARY: In this episode, I welcome board certified neurologist, Dr. Marwa Kaisey, to the podcast where we discuss the most up-to-date information on COVID vaccines and COVID boosters. In particular, we discuss how all of that information relates to people living with MS. Dr. Kaisey, an assistant professor in the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles focuses her practice on caring for people with MS and other neuroimmune conditions. She teaches Cedars-Sinai neurology residents in both inpatient and outpatient settings and assists with the MS fellowship. She's won multiple teaching awards including the AB Baker teacher recognition award from the American Academy of Neurology. Dr. Kaisey is active in research and has several publications on the diagnosis and misdiagnosis of multiple sclerosis. Her work includes developing novel tools to more quickly and accurately diagnose MS. She can be found on Instagram @themsmd and YouTube where she provides, in a quick and concise way, all the latest in MS research as well as tips for living well with MS. Links to both of those can be found in the Episode Notes. In this episode, Dr. Kaisey and I cover not only the most commonly asked questions regarding COVID and MS, but also the questions that we might be curious about but aren't often discussed. EPISODE NOTES: - Is MS alone considered an underlying condition? - Which MS treatments put you at higher risk? - What about the timing of a vaccine and your infusion? - Which MS drug puts you at 4x higher risk of being hospitalized from Covid? - Tysabri and the blood brain barrier. - The sweet spot for timing your vaccine and your infusion for best vaccine efficacy. - Vaccine response and antibody testing. - Will the vaccine evolve as new variants emerge? - How the vaccine was designed. - What to do if you want to get a Covid vaccine and a flu vaccine and when? Can you get them at the same time? - Typical side effects of first and second doses of the COVID vaccine. - Dr. Kaisey's Conquer MS project. Link below. - Should an MS patient get a vaccine booster? - A third dose or a booster? Which one? Is there a difference? Are you eligible? - How long does your natural immunity last if you've had COVID? - Mixing brands of vaccines. Is it safe? - How were they able to bring the COVID vaccine to market so quickly? Did they cut corners? Were safety measures sidestepped? - How long until we'll have some sense of normalcy? - Masks. Are they still important? LINKS: Where to find Dr. Marwa Kaisey: Instagram - @themsmd YouTube - https://youtube.com/c/drmarwakaisey The MS Gym Instagram - @themsgym Website - www.themsgym.com Facebook - https://www.facebook.com/groups/TheMSGym/?ref=share Brooke Slick Instagram - @brooke.slick Website - www.brookeslick.com | |||