One of our Team Encephalitis volunteers, Nicole, talks to Senior Medical Writer, Praveen, about her lived experience of encephalitis. Nicole was diagnosed with Anti-DPPX receptor encephalitis when she was 20 years old while she was at University. This lead to her needing to abandon her studies to recover. Luckily, Nicole is recovering well and is about to start the final semester of her course just two years later.

Follow Encephalitis International:

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LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational

TikTok: https://www.tiktok.com/@encephalitisint 

In this episode, Dr Ava Easton (CEO of Encephalitis International) is joined by Professor Jonathan Evans - a distinguished expert in clinical neuropsychology at the university of Glasgow. Professor Jon Evans discusses the world of memory and its intersection with encephalitis including the difference between long term, short term memory and false memory, how it's referred to in the medical world and any available support aids.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/

Our support groups are listed here https://www.encephalitis.info/online-support-meetings

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational/

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational/

TikTok: https://www.tiktok.com/@encephalitisint 

In this edition of The Encephalitis Podcast, Dr Ava Easton is joined by Dr Greta Wood for a discussion around seizures and encephalitis.

In this wide-ranging conversation, they discuss an important new research paper before answering some questions around seizures and encephalitis.

Greta is an Academic Clinical Fellow in Infectious Diseases at the University of Liverpool and has a wide range of research interests, including the socio-economic impact of infectious diseases and multi-morbidity.

She is also a member of the COVID-19 Clinical Neuroscience Study which is investigating the neurological and neuropsychiatric complications of COVID-19.

The Encephalitis Podcast is also available on podcast channels, such as Apple, Google Play, Podbean and Spotify.

Find out more about seizures and encephalitis by viewing our factsheet: https://www.encephalitis.info/seizures-and-encephalitis

For more information about Greta, visit https://www.liverpool.ac.uk/infection-veterinary-and-ecological-sciences/staff/greta-wood/

The research paper, Acute seizure risk in patients with encephalitis, can be found here: https://neurologyopen.bmj.com/content/4/2/e000323 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

We are delighted to welcome back Professor Benedict Michael to The Encephalitis Podcast.

Ben talks to host Dr Ava Easton about the COVID-19 Clinical Neuroscience Study – a £2.3 million research study looking in the acute neurological and neuropsychiatric complications of COVID-19.

He also shares his thoughts on being a front-line medic during the pandemic, the NHS in general and the upcoming Encephalitis Conference.

Ben is a Professor of Neuroscience at the University of Liverpool, a Medical Research Council Clinician Scientist and Honorary Consultant Neurologist at the Walton Centre, also in Liverpool. Ben is also Vice President of our Scientific Advisory Panel and helps to drive forward our research agenda and organise the Encephalitis Conference, among many other important areas of our work.

For more about the COVID-CNS study or to take part, visit https://www.liverpool.ac.uk/covid-clinical-neuroscience-study/

Follow the COVID-CNS study on Twitter: https://twitter.com/covidcns

Follow Ben on Twitter: https://twitter.com/BenedictNeuro

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

Suzie Miller - the author of Prima Facie - joins The Encephalitis Podcast to talk about her career, personal experiences of encephalitis which she contracted in her early 30s, becoming an Ambassador with the Encephalitis Podcast and much more.

Born in Melbourne, Suzie is an award-winning playwright and screenwriter who has a background in law and science, working as a human rights lawyer and children's rights lawyer before leaving the law to pursue a theatre writing career full-time.

Prima Facie debuted in Australia in 2019, winning several awards, before moving to London's West End starring Jodie Comer. It will be heading to Broadway in 2023.

We hope you enjoy Suzie's conversation with Dr Ava Easton, the host of The Encephalitis Podcast.

For more about Suzie and her work, visit her website http://www.suziemillerwriter.com/

If you would like to find out more about Prima Facie, visit their official website https://primafacieplay.com/

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

Award-winning playwright and screenwriter Abi Morgan joins Dr Ava Easton in this edition of the Encephalitis Podcast.

Abi, who is perhaps best known for the films Suffragette, The Iron Lady and Shame, is now an author, having recently published, This is Not a Pity Memoir.

The book tells the story of her husband when he develops Anti-NMDAR encephalitis, the impact his illness had on their family, and also Abi’s own illness.

Ava said: “I devoured this book. It’s incredibly written, profoundly insightful and, at times, brutally authentic. But also, as Abi says, not a pity memoir, but a love story.”

We hope you enjoy this wonderful conversation!

This is Not a Pity Memoir is available from all online good bookshops.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

In this episode of The Encephalitis Podcast, Dr Ava Easton talks to Dr Gavin Francis, a GP and author, about his book, Recovery: The Lost Art of Convalescence.

This is a fascinating interview about how - and why - we get better, revealing the many shapes recovery takes, its shifting history and the frequent failure of our modern lives to make adequate space for it.

For more about Gavin, his work and books, visit http://www.gavinfrancis.com/

To order a copy of Recovery: The Lost Art of Convalescence, visit https://www.amazon.co.uk/gp/product/B099BVT2VH/ref=dbs_a_def_rwt_hsch_vapi_tkin_p1_i0

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

We decided to keep things in-house for this episode of The Encephalitis Podcast.

Dr Ava Easton interviews Phillippa Chapman, Deputy CEO of the Encephalitis Society, for a cosy chat which covers her ten years with the Encephalitis Society, becoming a new mum during the COVID-19 pandemic, and what the future holds for us a charity.

Sit back, pour yourself a cup of tea, and enjoy this cosy chat between Ava and Phillippa.

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/join-us

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society:

Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

In this special World Encephalitis Day edition of The Encephalitis Podcast, Dr Ava Easton talks to Dr Julia Granerod about our ground-breaking new report which looks at the global impact of encephalitis and could change millions of lives for the better.

The report - Encephalitis: an in-depth review and gap analysis of key variables affecting global disease burden - has identified a range of difficulties surrounding encephalitis around the world. Crucially, however, it proposes a range of solutions which could save lives and improve the treatment and after-care of millions of people today and into the future.

The report has been launched by six eminent scientists in the field of encephalitis, including Dr Julia Granerod, Alina Ellerington, Dr Nicholas Davies, Dr Benedict Michael, Professor Tom Solomon, and Dr Ava Easton.

For more information about the Global Impact Report, visit https://www.encephalitis.info/global-impact-report

If you would like to know more about World Encephalitis Day, visit www.worldencephalitisday.org

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/join-us

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

In this episode of the Encephalitis Podcast, Dr Ava Easton is joined by author Sam Goodwin

Sam is a self-published crime writer from Leeds whose debut novel, Murder at Macbeth, was published just over two years ago. She has also collaborated on a new non-fiction book with some of her fellow writers called Indie Writing Wisdom which offers advice and insights on writing and self-publishing.

Indie Writing Wisdom is dedicated to her dad who sadly passed away as a result of encephalitis in 2017 with proceeds going to the Encephalitis Society.

In this episode, Sam discusses her dad, her writing experiences and shares her advice for aspiring authors - a topic which will really resonate with many of our listeners who are interested in sharing their experiences of encephalitis.

Indie Writing Wisdom is available from Amazon at https://amzn.to/3ytkeIp

Murder at Macbeth by Samatha Goodwin is available from Amazon at https://amzn.to/3DU9GmI

The Encephalitis Podcast is available on You Tube, Google Play, Spotify, Apply and Podbean.

For previous episodes, visit https://www.encephalitis.info/Listing/Category/our-podcasts

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

In this edition of the Encephalitis Podcast, Dr Ava Easton chats to Gagun Gahir, our Chair of Trustees, about why she became a Trustee, the difficulties that the Encephalitis Society faced during the pandemic, the new vision and mission of the Encephalitis Society and why they are so important to a charity such as ours. Finally, we put her on the spot with a few hard-hitting Christmas questions such as "what part of Christmas Dinner DOESN'T she like?" A great behind the scenes insight into the Encephalitis Society.

The Encephalitis Podcast is available on You Tube, Google Play, Spotify, Apply and Podbean. For previous episodes, visit https://www.encephalitis.info/Listing/Category/our-podcasts

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

Juliana Ortiz, a volunteer with the Encephalitis Society, shares her experiences and advice for people who have been affected by encephalitis.

Juliana, who is a Psychology and Neuroscience student at the University of Florida, was speaking during Encephalitis Information Week.

To read more about Juliana's story, visit https://www.encephalitis.info/julianas-story

For more information about Encephalitis Information Week, visit www.encephalitis.info/informationweek

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

Dr Ava Easton, CEO of Encephalitis International interviews the director of the documentary Shot in the Arm, Scott Hamilton Kennedy . Talking about vaccine hesitancy and misinformation. Find more about the film here www.shotinthearm.com and for more information about vaccine preventable forms of encephalitis please visit www.encephalitis.info/vaccine-preventable-encephalitis.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/

Our support groups are listed here https://www.encephalitis.info/online-support-meetings

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational/

X: https://twitter.com/encephalitis

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational/

TikTok: https://www.tiktok.com/@encephalitisint 

In this edition of the Encephalitis Podcast for Encephalitis Information Week, Dr Ava Easton talks to James Pratt about clinical negligence and why it can be important to changing policy and practice among healthcare organisations. James talks about falling ill with encephalitis and his experiences of pursuing a medical negligence case and his relationship with his solicitor.

If you have a legal question around encephalitis, or want to download our Neuro-Legal handbook, visit https://www.encephalitis.info/legal-advice

For more information on Encephalitis Information Week, visit www.encephalitis.info/informationweek

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society:

Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

Author Catherine Jessop joins Dr Ava Easton to talk about her brilliant new book Pulling Through: Help for Families Navigating Life-Changing Illness.

On Boxing Day 2016, Catherine's husband, Alan, had his first devastating seizure as a result of encephalitis, thrusting the Jessop family into an unknown world.

In her book, Catherine shares advice and inspiration on everything she has learned, with chapters clarifying medical terms and explaining tests and scans as well as explaining some of the financial and legal issues around illness.

Catherine also focuses on the emotional side of having a relative with a brain injury and how it affects the whole family, sharing her own thoughts on how to look after the mental health of both patient and carer and the power of nature, humour, music and optimism.

This is an excellent chat about an excellent book - enjoy! Pulling Through: Help for Families Navigating Life-Changing illness by Catherine Jessop is available from https://www.amazon.co.uk/Pulling-Through-Families-Navigating-Life-Changing/dp/1787753727

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

Rebecca Adlington, the four-time Olympic medallist and Ambassador of the Encephalitis Society, joins Dr Ava Easton for our latest episode of the Encephalitis Podcast.

Motherhood, Pandemics and the Olympics delves into Rebecca's outstanding swimming career, the new addition to her family and what life was like for her during the COVID-19 lockdowns.

She also talks about the Tokyo Olympics and what Team GM swimmers we should be looking out for!

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

This edition of the Encephalitis Podcast looks at fatigue which is one of the more common outcomes for people who are recovering from encephalitis and other neurological illnesses or trauma which cause injury to the brain.

Dr Ava Easton, our Chief Executive, talks to Donna Malley, an an Occupational Therapy Clinical Specialist at the Oliver Zangwill Centre.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

For more information about the Oliver Zangwill Centre, visit https://www.cambscommunityservices.nhs.uk/what-we-do/all-other-services/oliver-zangwill-centre-(ozc)/ 

Dr Ava Easton talks to Professor Jon Stone and Dr Tim Nicholson about Functional Neurological Disorder (FND).

Professor Stone is Professor of Neurology at the University of Edinburgh, and Dr Nicholson, is Honorary Consultant Neuropsychiatrist at Institute of Psychiatry, Psychology & Neuroscience (IoPPN), Kings College London.

We cover everything from presentations of FND, encephalitis and FND, advice for someone who believes they have the condition, advice for medical professionals, and overcoming stigma associated with FND and much more.

We hope you enjoy this informative discussion with Tim and Jon!

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

In this edition of the Encephalitis Podcast, Dr Ava Easton is joined by director and cinematographer Mike Day.

In 2011, as he was finishing his first film, The Guga Hunters of Ness, Mike became ill with encephalitis. He lost the ability to walk and was even told that he would not be able to work again.

However, during his recovery, Mike threw himself into his next film, The Islands and the Whales, a true labour of love which was filmed over five years in the Faroe Islands.

This is a great interview with Mike which touches on his illness and recovery, his work as a documentary film maker and what lies in store for him in the coming year.

Our latest podcast - Lockdowns, Art, Cooking and Sin! - features our amazing Ambassador Mathew Bose.

Mathew is an actor, an artist, nutritionist, life coach and an excellent cook! He has also been an Ambassador with the Encephalitis Society for around 14 years – his arrival and support was one of the catalysts for us really beginning to kick on as a global organisation. As always, our podcast is hosted by Dr Ava Easton, our Chief Executive.

We enjoyed this podcast - and we hope you do too!  

In this edition of the Encephalitis Podcast, Dr Ava Easton is joined by director John Hay and producer Donall McCusker whose latest production is the new Sky Original film, To Olivia, starring Hugh Bonneville and Keeley Hawes.

Synopsis: It’s 1962 and burgeoning children's author Roald Dahl and Patricia Neal, a glamourous Hollywood movie star, have retreated to the English countryside to bring up their expanding young family. Tragically, their lives are turned upside down by the devastating death of their daughter Olivia from measles encephalitis and as the couple struggle through the unimaginable loss, their shared grief becomes a source of redemption and strength which changes their lives forever.

Professor Tom Solomon and Dr Ava Easton, Chief Executive of the Encephalitis Society, answer your questions about the COVID-19 vaccinations and encephalitis. 

Professor Solomon is Chair of Neurology and Director of the National Institute for Health Research's Health Protection Research Unit in Emerging and Zoonotic Infections.

Recorded 28th January, 2021.

For more information about COVID-19 vaccines and encephalitis, please visit https://www.encephalitis.info/covid-19-vaccination-statement

Title: Living and working in India during COVID-19 and the impact of the pandemic on black and ethnic minority communities.

In our latest podcast, Dr Ava Easton chats to Dr Bhagteshwar Singh, Clinical Research Fellow, Institute of Infection, Veterinary & Ecological Sciences, University of Liverpool.

Dr Ava Easton was joined by Professor Michael Wilson from the Centre of Encephalitis and Meningitis at UCSF to talk about metagenomics and encephalitis.

For more information about Professor Wilson's work please visit https://encephalitis.ucsf.edu/

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/

Our support groups are listed here https://www.encephalitis.info/online-support-meetings

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational/

X: https://twitter.com/encephalitis

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational/

TikTok: https://www.tiktok.com/@encephalitisint 

Dr Jake Suett, an intensive care doctor, became ill with symptoms of COVID-19 early on in the pandemic.

He talks to Dr Ava Easton about his illness and the lasting effects of the infection that he is experiencing today, a term which has become known as 'Long Covid'.

Dr Ava Easton speaks to Anne Cassidy, a partner at Moore Barlow LLP, about her career as a medical doctor and lawyer, and the law and its role for encephalitis patients and how it operates in a pandemic world.

The shoe is on the other foot for Dr Ava Easton - the CEO of the Encephalitis Society - in this edition of our podcast. Our Ambassador Simon Hattenstone quizzes her on life before the charity, her career and also asks her some Desert Island Discs-style questions.

Dr Nicholas Davies, consultant neurologist and Chair of the Encephalitis Society's Scientific Advisory Panel, talks to Dr Ava Easton about his day-to-day life during the Covid-19 pandemic.

Dr Ava Easton speaks to Professor Peter Hotez about Covid-19 and the search for a vaccine.

Professor Peter Hotez is Dean for the National School of Tropical Medicine and a Professor at the Departments of Paediatrics and Molecular Virology and Microbiology, at the Baylor College of Medicine in Houston, which have been at the forefront of both research and treatment of the Covid-19 infection.

Dr Ava Easton speaks to psychologists Dr Bonnie-Kate Dewar and Dr Jessica Fish about mental health and well being following the Covid19 outbreak.  (Recorded on April 28).

Neurologist Dr Benedict Michael talks to Dr Ava Easton about the newly created National Surveillance Programme on Neurological Complications of COVID19, CoroNerve.

A podcast looking at the potential neurological impact of Covid-19 with experts Dr Ava Easton and neurologist Dr Mark Ellul.

This podcast was recorded on April 14, 2020.

Professor Tom Solomon, Dr Lance Turtle and Dr Ava Easton answer your questions about Covid-19 and encephalitis.

Recorded: March 20, 2020.

TRIGGER WARNING: In this podcast episode, Dr Ava Easton CEO Encephalitis International, talks with Prof Arun Venkatesan about the difficult topic of death from encephalitis. This is something which will be sadly and unfortunately familiar to many families and friends who's loved ones have fallen ill from this condition.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/

Our support groups are listed here https://www.encephalitis.info/online-support-meetings

Read more information about death from encephalitis on our website https://www.encephalitis.info/effects-of-encephalitis/death-from-encephalitis

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ

Follow Encephalitis International

Facebook: https://www.facebook.com/encephalitisinternational/

X: https://twitter.com/encephalitis

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational/

TikTok: https://www.tiktok.com/@encephalitisint 

In our final episode of 2023, Dr Ava Easton, host of the Encephalitis Podcast, talks to Phillippa Chapman, Deputy Chief Executive of Encephalitis international, and Bella Bardswell, co-founder of Stellafai.

The trio talk about the monumental decision to change the name of the Encephalitis Society to Encephalitis International, the reasons and thinking behind the strategic evolution, and what comes next as we celebrate our 30th anniversary in 2024.

For more information about Encephalitis International, https://www.encephalitis.info/ 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/become-a-member/

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ

Follow Encephalitis International Facebook: https://www.facebook.com/encephalitisinternational/

X: https://twitter.com/encephalitis

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

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Dr Lance Turtle joins The Encephalitis Podcast to talk about the Japanese encephalitis virus and its impact on Australia over the past 12 months.

Lance is a Reader and Honorary Consultant Physician in Infectious Diseases at the University of Liverpool.

As always, the questions are asked by our host, Dr Ava Easton, Chief Executive of the Encephalitis Society.

The Encephalitis Podcast is available on all podcast channels and on our YouTube channel.

For more information about Dr Lance Turtle: https://www.liverpool.ac.uk/infection-veterinary-and-ecological-sciences/staff/lance-turtle/ 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

For more information about Japanese encephalitis, visit https://www.encephalitis.info/japaneseencephalitis 

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/

Follow the Encephalitis Society:

Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

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Welcome to a special World Encephalitis Day edition of the Encephalitis Podcast.

Dr Ava Easton, Chief Executive of the Encephalitis Society, is joined by Dr Thomas Pollak, from Kings College London, and Dr Jesus Ramirez-Bermudez, of the National Institute of Neurology and Neurosurgery of Mexico, to talk about some two new important research papers around mental health and encephalitis.

An important note for our viewers and listeners: this podcast will be touching on some difficult areas, including more broad mental health issues and difficult topics such as self-harm and suicide.

If this is something which may lead to difficult emotions for you or for someone you know, please know that our support team are here to help and can be reached on support@encephalitis.info or by calling +44(0)1653 699599.

Also, in the links to this episode, you will find some resources which we have put together around mental health which we believe will be helpful to anyone affected by encephalitis and also their family and friends. This includes links to useful organisations around the world, a factsheet on mental health and lots of sources of support and information.

For more information about World Encephalitis Day on Wednesday, 22nd February, please visit www.worldencephalitisday.org

For information about mental health and encephalitis, visit https://www.encephalitis.info/pages/category/mental-health-and-encephalitis

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

Best-selling author Susannah Cahalan joins host Dr Ava Easton for a special World Encephalitis Day edition of The Encephalitis Podcast.

Ten years ago, Susannah published Brain on Fire: My Month of Madness, the award-winning memoir and New York Times bestseller, which quickly become a Bible for members of the encephalitis community and many more people around the world.

Brain on Fire follows Susannah’s struggle with encephalitis and, in particular, her diagnosis and recovery.

It was later developed into a Hollywood film by Charlize Theron and starred Chloe Grace Moretz.

Susannah chats to Ava about the 10th anniversary, why the book resonated with so many people, its legacy, how she reacted when Hollywood came calling, and the impact it has had on the encephalitis community.

The 10th anniversary edition of Brain on Fire is available from all good booksellers, including

UK readers (Kindle and Paperback) https://www.amazon.co.uk/Brain-Fire-My-Month-Madness/dp/1451621388

USA - https://www.simonandschuster.com/books/Brain-on-Fire-(10th-Anniversary-Edition)/Susannah-Cahalan/9781451621389

For more information about World Encephalitis Day on Wednesday, 22nd February, please visit www.worldencephalitisday.org

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/

Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

In this episode, Dr Ava Easton talks to author and motivational speaker Jackie Stebbins.

In 2017, the former trial lawyer from Bismarck, North Dakota, became ill with encephalitis and experienced a host of difficulties, such as insomnia, paranoia, hallucinations and memory loss.

In the summer of 2018, after being voluntarily hospitalized in the psychiatric ward, she was finally diagnosed with seronegative autoimmune encephalitis.

To help her recovery, she began writing and speaking about her journey with encephalitis.

Today, Jackie hosts the podcast, Brain Fever and is also the author of the JM Stebbins blog. In 2022, her memoir, Unwillable: A Journey to Reclaim My Brain, was published by Wisdom Editions.

We hope you enjoy this conversation with the articulate and passionate encephalitis awareness advocate!

For more information about Jackie and her book, blog and podcast, please visit https://www.jmstebbins.com/

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership

If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10

Follow the Encephalitis Society:

Facebook: https://www.facebook.com/EncephalitisSociety/

Twitter: https://twitter.com/encephalitis

Instagram: https://www.instagram.com/the_encephalitis_society_/

LinkedIn: https://www.linkedin.com/company/the-encephalitis-society

The Encephalitis Podcast Ep 55 - Relationships after encephalitis with Dr Giles Yeats

In this episode, Prav talks about relationships after encephalitis with Doctor Giles Yeates.

Relationships sit at the intersection of our personal and professional lives, shaping our identity, providing support during times of isolation, and often significantly transformed after encephalitis.

Dr Yeates is a consultant clinical neuropsychologist with over 20 years of experience in neuro rehabilitation. He has worked in internationally renowned NHS services in the UK, that's National Health Services such as the Community Head Injury Service, Aylesbury and the Oliver Zangwill Centre, Cambridgeshire.

With an additional background in Chinese martial arts, Doctor Yeates applies these practises to address physical and psychological needs.

Currently, he partners with charities on web-based resources, chairs the Thames Valley UK acquired Brain Injury Form, and serves as an active academic at Oxford Brookes University's Centre of Movement, Occupational and Rehabilitation Services.

--------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

----------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International:

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In this lived experience episode of the Encephalitis Podcast, Prav talks to Pauline - a volunteer for Encephalitis International.

Pauline shares her own story of LGi1 encephalitis, life as a nurse and about being a support volunteer for the online peer groups.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational

In this community story episode of The Encephalitis Podcast, Prav, Senior Medical Writer, meets with Team Encephalitis Volunteer, Diane.

Diane, 22, from London. is a final year Psychology with Cognitive Neuroscience undergraduate student, aspiring clinical neuropsychologist, speaker, social entrepreneur, encephalitis overcomer and volunteer. Diane had auto-immune encephalitis in 2018, when she was 15 which encompassed months in a semi-coma state where she couldn’t talk, walk, eat or see due to complete vision loss from high intracranial pressure.

Diane discusses her lived experience, reintegration into education and the importance of empowerment when going through recovery after encephalitis. 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate 

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

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Instagram: https://www.instagram.com/encephalitisinternational 

In this podcast, Prav Prathapan from Encephalitis International is joined by Dr Gareth Lipunga, from Malawi. They will be talking about the challenges that low to middle income countries (LMIC) face when it comes to encephalitis. Dr Lipunga is a medical doctor trained at the University of Malawi's College of Medicine with a postgraduate MSC in Integrated Immunology from the University of Oxford.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational

In this World Encephalitis Day special, Dr Ava Easton is joined by Doctor Tarun Dua, head of the Brain Health Unit at the World Health Organization (WHO). In exciting news for World Encephalitis Day 2025, the World Health Organization are releasing a technical brief on encephalitis. Dr Dua is here to discuss this and a bit more on the work of the World Health Organization. Useful Link - the WHO Intersectoral Global Action Plan (IGAP) on epilepsy and other neurological disorders - https://www.who.int/publications/i/item/9789240076624

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational 

We are delighted to welcome Bethany Facer and Dr Brendan Sargent to The Encephalitis Podcast. Beth and Brendan talk to host Prav Prathapan about recent research on the neurological effects of Covid-19, including cognitive deficits and long-term effects, and the potential implications for other diseases.

Beth and Brendan also discussed the Covid-19 Clinical Neuroscience Study – a £2.3 million research study looking at the acute neurological and neuropsychiatric complications of Covid-19. This podcast also discusses the future of the Covid-19 Clinical Neuroscience Study, the potential of its data to contribute to understanding cognitive disturbances, and the importance of individualised care and support for those affected by the neurological effects of COVID-19. Links to papers: Posthospitalization COVID-19 cognitive deficits at 1 year are global and associated with elevated brain injury markers and gray matter volume reduction | Nature Medicine Cognitive domains affected post‐COVID‐19; a systematic review and meta‐analysis - Fanshawe - 2025 - European Journal of Neurology - Wiley Online Library

Bethany Facer is a neuroimaging PhD student at the University of Liverpool, focusing on people with newly diagnosed Parkinson’s disease. Bethany is part of the neuroimaging working group for the COVID-Clinical Neuroscience Study and has previously worked on the DexEnceph trial assessing imaging changes in HSV encephalitis. An avid science communicator, she has presented at the Cheltenham Science Festival and has hosted and organised the annual Liverpool Neuroscience Conference.

Brendan Sargent is a junior doctor and clinical research fellow with the Autoimmune Psychosis Group at the University of Oxford. He is part of the neuroimaging working group for the COVID-Clinical Neuroscience Study consortium and has worked with the Infection Neuroscience Lab in Liverpool on the cognitive impacts of COVID-19 illness. He is interested in cognition, neuroimaging and neuroinflammation. For more information about the COVID-CNS study, visit https://www.liverpool.ac.uk/covid-cli...

f you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

Follow Encephalitis International:

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Instagram: https://www.instagram.com/encephalitisinternational

Please note that this episode was recorded in November 2023.

In this episode of The Encephalitis Podcast, Dr Ava Easton is joined by Dr James Sejvar for a discussion around climate change, and how it's affecting our risk for deadly infectious diseases, such as West Nile encephalitis or Japanese encephalitis.

Dr Sejvar is a Neuroepidemiologist at the University of Pittsburgh and, University of Pittsburgh Medical Center, USA. At the time of the podcast, he led the Neuroepidemiology Unit at CDC’s Divisions of High-Consequence Pathogens and Pathology where his work focused on epidemiology, pathogenesis, clinical features, and outcomes of infections of the nervous system work which took him all over the world.

He investigated the West Nile virus in the United States, Ebola in Central Africa, Zika in South America, and of course, COVID-19. Dr Sejvar is also a member of the Encephalitis International Scientific Advisory Panel.

This podcast was recorded November 2023 - we have updated information and insights on these infectious diseases to come in April 2025. WATCH this space!

Follow Encephalitis International:

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It this episode of The Encephalitis Podcast, Prav is asking Professor Sarosh Irani the question 'What's new in autoimmune encephalitis?'

Professor Irani is Professor of Neurology and Neurosciences at the Mayo Clinic, Florida, former professor of Autoimmune Neurology at the University of Oxford, and adjunct professor at the University of Southern Denmark.

He was part of the team that discovered LGI1 and CASPR2 antibodies and has cared for many patients with LGI1, CASPR2 NMDA, and other forms of autoimmune encephalitis.

Professor Irani is one of the world's most experienced clinicians in this area and has published over 200 scientific papers about autoimmune neurological diseases.

He's also a member of Encephalitis International's Scientific Advisory Panel, providing expert professional guidance which informs our research strategy, information, resources and guidance.

Find out more about autoimmune encephalitis here  - https://www.encephalitis.info/types-of-encephalitis/autoimmune-encephalitis/

------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support 

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch 

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

----------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational

In this episode, Prav talks to Trevor and his mum, Lois from Sydney. Trevor shares his lived experience of herpes simplex virus encephalitis. 

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational 

In this episode, Prav talks to Katy Peters about travel health and encephalitis. Katy is an immunisation and travel health specialist nurse who founded 360 Health Limited, a London vaccination clinic in 2013. A member of the Faculty of Travel Medicine at the Royal College of Physicians and Surgeons in Glasgow, where she qualified with with distinction and was awarded the Cameron Lockie Prize for Academic Excellence. Katy was previously chairwoman of the British Global Travel Health Association. And her career has taken her overseas with Médecins sans frontières following qualifying with distinction from the London School of Hygiene and Tropical Medicine. Katy is also Director of Riva Training Limited, an immunisation and travel health specialist training company, teaching for the Ministry of Defence and the NHS or the National Health Service.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational

In this episode, Prav talks to Sue Ann who was diagnosed with West Nile Virus encephalitis in 2023. She shares her lived experience story.

If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support

If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch

Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate

Follow Encephalitis International:

Facebook: https://www.facebook.com/encephalitisinternational

LinkedIn: https://www.linkedin.com/company/encephalitisinternational

Instagram: https://www.instagram.com/encephalitisinternational