Explorez tous les épisodes du podcast The Encephalitis Podcast
| Titre | Date | Durée | |
|---|---|---|---|
| Ep 77 Songbirds Keep Singing: Lisa Lauter's Journey Through Autoimmune Encephalitis | 17 Sep 2026 | 00:49:29 | |
In this episode, Prav speaks with Lisa Lauter, a retired nurse, public health advocate, support group leader, author, and survivor of LGi1 autoimmune encephalitis. Lisa shares her long and complex journey to diagnosis, from early symptoms and seizures to hospital treatment, rehabilitation, and recovery. She reflects on what it was like to move from being a nurse to becoming a patient, the importance of self-advocacy, and the many forms of support that helped her rebuild her life. Lisa also discusses her book, Songbirds Keep Singing: A Memoir of Healing from Autoimmune Brain Inflammation, and explains how hope, education, rehabilitation, mindfulness, nutrition, sleep, and community all played a role in her healing. You can find out where to buy Lisa's book on her website www.lisalauter.com ------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ----------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 76 - PTSD After Encephalitis: Symptoms, Support and Recovery with Dr Andrea Pickering | 02 Sep 2026 | 00:26:38 | |
In this episode of the Encephalitis Podcast, Prav speaks with Dr Andrea Pickering, consultant clinical psychologist specialising in paediatric clinical neuropsychology, about post-traumatic stress disorder (PTSD) after encephalitis. Dr Pickering explains what PTSD is, why it can be under-recognised after encephalitis and brain injury, and how trauma symptoms may affect survivors, family members and carers. The conversation also explores the impact of intensive care, the differences between children and adults, how PTSD can overlap with neurological symptoms, and why timely psychological support matters. The episode covers practical signs to look out for, including re-experiencing, avoidance, anxiety, nightmares, changes in behaviour and heightened alertness. Dr Pickering also discusses treatment approaches, the importance of family and community support, and the need for more joined-up psychological care after discharge. #LifeAfterEncephalitis #EncephalitisSupport #NeurologicalHealth #EncephalitisTreatment #EncephalitisInternational #EncephalitisSociety ----------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate -------------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 73 - Rasmussen's Encephalitis - diagnosis, treatment and long-term impact | 14 Aug 2026 | 00:19:12 | |
Episode 73 In this episode of the Encephalitis Podcast, Prav speaks with Eva, a paediatric trainee and PhD student at the UCL Great Ormond Street Institute of Child Health, about Rasmussen’s encephalitis - a form of brain inflammation that mainly affects one side of the brain. Eva explains the challenges of early diagnosis, current treatment options, and the long-term impact on children and families. She also shares how the REMEDI study aims to improve understanding of the condition, speed up diagnosis, and support families through the development of a dedicated UK support group in collaboration with Encephalitis International. If you have been affected by Rasmussen's encephalitis and would like to join our dedicated peer support group, please email comms@encephalitis.info to book a place. #AutoimmuneEncephalitis #EncephalitisSymptoms #EncephalitisTreatment #EncephalitisInternational #EncephalitisSociety -------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ----------------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 75 - Mother and Daughter: Life, Recovery and Advice After Encephalitis | 14 Aug 2026 | 00:56:00 | |
In this episode of The Encephalitis Podcast, Prav is joined by Yvonne and Zoe. Yvonne and her daughter Zoe as they reflect on the impact encephalitis has had on their family, from Yvonne’s sudden illness and long recovery to Zoe’s experience growing up alongside its lasting effects. Together, they share an honest mother-and-daughter perspective on invisible disability, epilepsy, school support, family resilience and learning to adapt after brain injury. Yvonne’s advice to other parents is clear: do not be afraid to speak up, explain what is happening at home, and ask schools for the support your child may need. Zoe’s advice is to look for the positives where possible, talk to people you trust, learn how the illness affects daily life, and remember that even after difficult times, things can get better. #ViralEncephalitis #LifeAfterEncephalitis #EncephalitisSymptoms #EncephalitisInternational #EncephalitisSupport ------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 74 - Paediatric Autoimmune Encephalitis with Dr Melissa Wright | 30 Jun 2026 | 00:30:28 | |
In this episode of The Encephalitis Podcast, Prav Prathapan speaks with Dr Melissa Wright, a paediatric autoimmune neurologist at the University of Utah and Director of the Paediatric Autoimmune Neurology and Neuroimmunology Program at Primary Children’s Hospital, about clinical trials in paediatric autoimmune encephalitis. Dr Wright explains why clinical trials are so important for children with autoimmune encephalitis, how treatment decisions are currently made when evidence is limited, and why children are not simply “little adults” when it comes to research, medication, recovery and long-term outcomes. The conversation also explores common concerns families may have about clinical trials, including placebo use, safety safeguards, trust between clinicians and families, and the importance of building a supportive research community for rare conditions. This episode is especially relevant to our children’s appeal, through which we are trying to raise £30,000 by July 2026 to support vital work for children and families affected by encephalitis. https://www.justgiving.com/campaign/encephalitischildrensappeal2026 ------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate -------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 72 - What Encephalitis Took and What Recovery Gave Back - Evie's Encephalitis Story | 01 Jun 2026 | 00:35:16 | |
As part of Volunteer Week, we’re sharing the powerful story of Evie, who developed autoimmune anti-NMDAR encephalitis at just 19 years old. What began with flu-like symptoms quickly became seizures, hallucinations, psychosis, memory loss, and months in hospital. In this deeply honest conversation, Evie opens up about surviving encephalitis as a teenager, losing her sense of identity, struggling to return to work and normal life, and the emotional impact the illness had on her relationships and mental health. Now a volunteer with Encephalitis International, Evie supports other survivors and families through our online peer support groups - helping people realise they are not alone. This episode navigates through recovery, identity, isolation, and life after brain injury. ---------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ----------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 71 - Returning to School After Encephalitis - A Parent’s Journey with Hina & Dian | 21 May 2026 | 00:20:32 | |
In this episode, Prav speaks with Hina about her son Dian’s journey with autoimmune encephalitis and the challenges of returning to school after a life-changing diagnosis. After Dian began experiencing seizures at just seven years old, Hina and her family faced a long and emotional journey through hospital testing, uncertainty, memory difficulties, and major changes in daily life and more recently his transition up to a new school. Hina reflects back on the past 5 years and shares how encephalitis affected Dian’s learning, confidence, friendships, and family dynamics and how communication, persistence, counselling, and school support helped them move forward. ------------------------------------------------------------------------------------ If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ---------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 70 - Inside 'Unconquered' A Powerful West Nile Survivor Story | 22 Apr 2026 | 00:47:17 | |
The Encephalitis Podcast Ep 70 In this special episode of the Encephalitis Podcast for World Immunization Week, we spotlight West Nile encephalitis through the powerful short film Unconquered: Battling Back After West Nile Virus. Host Prav is joined by Tom, a West Nile encephalitis survivor, and Shawn, filmmaker and CEO of SES Productions, who brought Tom’s story to life on screen. Tom shares his journey from sudden severe illness and hospitalization in 2024, through weeks of rehabilitation, to his ongoing recovery marked by determination, physical therapy, and personal goals. His story highlights the long-term neurological impact of the disease and the slow, non-linear path to regaining strength and mobility. Shawn discusses how a chance connection led him to Tom’s story, and why he felt compelled to document it. Drawing on his background in journalism, he explains the importance of human storytelling in raising awareness, balancing science with personal narrative, and sparking conversations about prevention, early diagnosis, and the urgent need for a human vaccine. This episode was filmed as part of World Immunization Week April 2026 ---------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety ---------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 69 - Surviving Tick-Borne Encephalitis: Bill’s Story & Why Vaccination Matters | 22 Apr 2026 | 00:46:00 | |
The Encephalitis Podcast Ep 69 In this episode of the Encephalitis Podcast, Prav speaks with Bill, an endurance athlete who shares his powerful journey through tick-borne encephalitis (TBE). From competing in swimrun events across Nordic countries to facing severe neurological symptoms and a long recovery, Bill’s story highlights how unexpected and serious this virus can be. As part of World Immunization Week, this conversation sheds light on the risks of TBE, the challenges of recovery, and the importance of vaccination for those traveling to or active in endemic regions. Bill also offers honest insights into life after encephalitis and practical advice for others affected. -------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety -------------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 68 - Complete Your Vaccination Course: A Key Step in Preventing Encephalitis - with Prof Lance Turtle | 22 Apr 2026 | 00:14:18 | |
The Encephalitis Podcast Ep 68 In this episode, we explore why completing your full vaccination schedule is essential for protecting against encephalitis. Prav is joined by Professor Lance Turtle, an expert in infectious diseases, who explains how vaccines work, why multiple doses matter, and the risks of stopping after just one shot. Learn how vaccines not only protect individuals but also help reduce the global burden of serious brain infections. This episode was filmed as part of World Immunization Week April 2026 ------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety -------------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 67 - Could dexamethasone improve HSV encephalitis outcomes - with Professor Tom Solomon CBE | 17 Apr 2026 | 00:25:20 | |
Ep 67 - In this episode of the Encephalitis Podcast, Prav speaks with Professor Tom Solomon CBE, a leading neurologist and infectious disease expert, about the groundbreaking DexEnceph study - two decades in the making. Discover how this UK-wide clinical trial explored whether dexamethasone (a corticosteroid used to treat various inflammatory conditions) could improve outcomes in herpes simplex virus (HSV) encephalitis, the challenges of running long-term research, and the powerful role patients and families play in advancing medical science. Professor Solomon CBE shares insights from the study’s findings, including why early treatment may matter, how the results could influence future care, and what it truly takes to see a complex clinical trial through to completion. ------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety --------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 66 - Global Encephalitis Training: Saving lives in low-resource settings with Dr. Aline Matos | 02 Apr 2026 | 00:17:07 | |
In this episode of the Encephalitis Podcast, Prav speaks with neurologist Dr. Aline Matos about the development of global training modules designed to help clinicians diagnose and treat encephalitis -especially in low-resource settings. They explore why encephalitis is often missed or misdiagnosed, the life-changing consequences of delayed diagnosis, and how these practical modules empower clinicians to act even with limited tools. Dr Matos says 'Encephalitis does not end when the acute phase ends. The long-term sequelae, cognitive behaviour, social are often invisible but deeply impactful. So improving and saving lives care is not only about saving lives, as we said earlier, it is about preserving lives.' The global training modules can be viewed on the BMJ website here https://new-learning.bmj.com/collection/30000415 ------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety --------------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 65 - Understanding MOG Antibody-Associated Encephalitis with Dr. Matteo Gastaldi | 27 Mar 2026 | 00:10:26 | |
What is MOG antibody-associated encephalitis, and how does it differ from other types of autoimmune brain inflammation? In this episode of The Encephalitis Podcast, Prav speaks with Dr. Matteo Gastaldi, neurologist and Head of the Neuroimmunology Research Unit in Pavia, Italy. Together, they explore MOG antibody-associated disease (MOGAD), including how it presents in children and adults, symptoms to watch for, how it can mimic viral encephalitis, and current treatment approaches. Dr. Gastaldi also discusses relapse risk, long-term treatment decisions, the challenges of antibody testing, and exciting developments in ongoing clinical trials. This episode offers hope and clarity for patients, families, and clinicians navigating this complex and evolving condition. ----------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety ------------------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 64 - Parenting after encephalitis with Dr Freddie Byrne | 14 Mar 2026 | 00:54:49 | |
The Encephalitis Podcast Ep 63 In this episode, Prav is joined by Dr. Freddie Byrne, clinical psychologist and Clinical Director of Living with ABI Limited. Together they explore the realities of parenting after encephalitis and acquired brain injury (ABI), including changes in family roles, the impact on children’s well-being, trauma, and post-injury growth. Drawing on over a decade of experience, Dr. Byrne shares practical insights into supporting families, improving communication, and keeping children’s needs at the center of recovery. An essential conversation for parents, families, and professionals affected by encephalitis and ABI. ----------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ------------------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 63 - F.L.A.M.E.S. - The Life-Saving Encephalitis Acronym with Dr Nicholas Davies | 19 Feb 2026 | 00:14:24 | |
Encephalitis Podcast Ep 63 In this episode of The Encephalitis Podcast, Prav is joined by leading neurologist Dr Nicholas Davies to introduce F.L.A.M.E.S., a new life-saving acronym designed to help the public and healthcare professionals recognise the urgent symptoms of encephalitis. ------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety ------------------------------------------------------------------------------------------- Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 62 - Contagion on Screen: Science, Storytelling, and Encephalitis with Scott Z. Burns | 30 Jan 2026 | 00:52:00 | |
Encephalitis Podcast Ep 62 In this episode of the Encephalitis Podcast, Prav is joined by award-winning screenwriter and director Scott Z. Burns to discuss the depiction of encephalitis in films and explore the science, humanity, and lasting impact of the 2011 film Contagion. Inspired by real-world viruses such as Nipah and SARS, the film gained renewed relevance during the COVID-19 pandemic for its portrayal of a global outbreak with neurological consequences. Nipah virus factsheet - https://www.encephalitis.info/types-of-encephalitis/infectious-encephalitis/nipah-virus-infection/ ------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate #EncephalitisAwareness #BrainDisorder #EncephalitisSociety ------------------------------------------------------------------------------------------ Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 61 - Emotions, pain and unspoken dreams - Denis' Encephalitis Story | 21 Jan 2026 | 00:36:52 | |
In this powerful and emotive podcast episode Denis shares his journey of living with viral encephalitis from his life as an aeronautical engineer through the sudden onset of illness, hospitalisation, and a long, complex recovery. He discusses memory loss, intense emotions, vivid and distressing 'encephalitis dreams'. Denis also explains the coping strategies, psychological support, and practical techniques that helped him regain stability, including working with a neuropsychologist and learning effective distraction tools. His story offers honesty, hope, and valuable insight for anyone affected by encephalitis or supporting a loved one through recovery. #ViralEncephalitis #EncephalitisAwareness #NeuroSymptoms #LifeAfterEncephalitis #EncephalitisSupport #UnderstandingEncephalitis #BrainHealthTips | |||
| Ep 60 - Sleep and Encephalitis with Dr David Lee | 26 Nov 2025 | 00:34:05 | |
The Encephalitis Podcast Ep 60 This podcast episode is about sleep and encephalitis. Sleep difficulties can be a symptom of encephalitis as well as a potentially long-term after-effect. Prav is joined by Dr. David Lee. Dr Lee is a chartered psychologist and chartered scientist who has been researching sleep and the psycho-behavioral treatment of insomnia for the last 20 years. He holds memberships with the World Sleep Society, the British Sleep Society, the Institute of Occupational Safety and Health, the British Association of Brain Injury Case Managers, the Vocational Rehabilitation Association, and the British Psychological Society, where he also holds an associate fellowship. ------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ------------------------------------------------------------------------------------------ Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 59 - Wady's Story of Music and Autoimmune Encephalitis | 29 Oct 2025 | 00:19:39 | |
In this episode, Prav talks to Wady a patient advocate, music educator, singer-songwriter and survivor of anti-NMDA receptor encephalitis. Here is a link to Wady's music https://youtu.be/btoaGoXLi1k -------------------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ------------------------------------------------------------------------------------------------------------------------------ Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 58 - Neurological physiotherapy and encephalitis with Kenny Thoms | 15 Oct 2025 | 00:24:59 | |
Encephalitis Podcast Episode 58 In this episode, Prav talks to Kenny Thoms the Co-Founder, Director & Specialist at NeuroPhysio in Glasgow. Kenny works with individuals recovering from neurological events or those managing long-term neurological conditions. They discuss neurological physiotherapy and rehabilitation including the specific neurological challenges that encephalitis survivors face. -------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ------------------------------------------------------------------------------------------------------ Follow Encephalitis International: 📢 Facebook: https://www.facebook.com/EncephalitisInternational 📢 Instagram: https://www.instagram.com/encephalitisinternational 📢 LinkedIn: https://uk.linkedin.com/company/encephalitisinternational | |||
| Ep 57 - Milkshakes for Marleigh - Kate Fisher | 17 Sep 2025 | 00:34:26 | |
In this episode, Prav is joined by a mother who is changing the world! Not just for her own child, but for so many others. Kate Fisher, the founder of Milkshakes for Marleigh - a blood donation initiative in Australia - talks about her daughter's experience of encephalitis and how she now commits her life to blood donor advocacy. Kate founded Milkshakes for Marleigh after her daughter was diagnosed with seronegative paediatric autoimmune encephalitis and relied on blood donors for her treatment. You can find out more about her work on her website - https://milkshakesformarleigh.org ------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ------------------------------------------------------------------------------------------- Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 56 - Genetics in Autoimmune Encephalitis with Dr Sophie Binks | 04 Sep 2025 | 00:22:05 | |
In this episode, Prav talks to Dr Sophie Binks about genetics and DNA in relation to autoimmune encephalitis. Asking the question 'can genetics play a part in the prevalence of encephalitis?' Sophie is a Clinical Lecturer and Honorary Neurology SpR at Nuffield Department of Clinical Neurosciences, University of Oxford. She is also on the Scientific Advisory Panel for Encephalitis International. Her research focuses on clinical and genetic aspects of autoimmune encephalitis.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 55 - Relationships after encephalitis with Dr Giles Yeats | 21 Jul 2025 | 00:30:53 | |
The Encephalitis Podcast Ep 55 - Relationships after encephalitis with Dr Giles Yeats In this episode, Prav talks about relationships after encephalitis with Doctor Giles Yeates. Relationships sit at the intersection of our personal and professional lives, shaping our identity, providing support during times of isolation, and often significantly transformed after encephalitis. Dr Yeates is a consultant clinical neuropsychologist with over 20 years of experience in neuro rehabilitation. He has worked in internationally renowned NHS services in the UK, that's National Health Services such as the Community Head Injury Service, Aylesbury and the Oliver Zangwill Centre, Cambridgeshire. With an additional background in Chinese martial arts, Doctor Yeates applies these practises to address physical and psychological needs. Currently, he partners with charities on web-based resources, chairs the Thames Valley UK acquired Brain Injury Form, and serves as an active academic at Oxford Brookes University's Centre of Movement, Occupational and Rehabilitation Services. --------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ----------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 54 - LGi1 Autoimmune Encephalitis Pauline's Story | 09 Jul 2025 | 00:47:20 | |
In this lived experience episode of the Encephalitis Podcast, Prav talks to Pauline - a volunteer for Encephalitis International. Pauline shares her own story of LGi1 encephalitis, life as a nurse and about being a support volunteer for the online peer groups.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 53 - Discussing autoimmune encephalitis with Professor Sarosh Irani | 24 Jun 2025 | 00:22:14 | |
It this episode of The Encephalitis Podcast, Prav is asking Professor Sarosh Irani the question 'What's new in autoimmune encephalitis?' Professor Irani is Professor of Neurology and Neurosciences at the Mayo Clinic, Florida, former professor of Autoimmune Neurology at the University of Oxford, and adjunct professor at the University of Southern Denmark. He was part of the team that discovered LGI1 and CASPR2 antibodies and has cared for many patients with LGI1, CASPR2 NMDA, and other forms of autoimmune encephalitis. Professor Irani is one of the world's most experienced clinicians in this area and has published over 200 scientific papers about autoimmune neurological diseases. He's also a member of Encephalitis International's Scientific Advisory Panel, providing expert professional guidance which informs our research strategy, information, resources and guidance. Find out more about autoimmune encephalitis here - https://www.encephalitis.info/types-of-encephalitis/autoimmune-encephalitis/ ------------------------------------------------------------------------------------------------------------------- If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate ----------------------------------------------------------------------------------------------------------------------- Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 52 - Trevor: Lived Experience of HSV encephalitis | 28 May 2025 | 00:31:28 | |
In this episode, Prav talks to Trevor and his mum, Lois from Sydney. Trevor shares his lived experience of herpes simplex virus encephalitis.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 51 - Travel Health and Encephalitis with Katy Peters | 14 May 2025 | 00:33:21 | |
In this episode, Prav talks to Katy Peters about travel health and encephalitis. Katy is an immunisation and travel health specialist nurse who founded 360 Health Limited, a London vaccination clinic in 2013. A member of the Faculty of Travel Medicine at the Royal College of Physicians and Surgeons in Glasgow, where she qualified with with distinction and was awarded the Cameron Lockie Prize for Academic Excellence. Katy was previously chairwoman of the British Global Travel Health Association. And her career has taken her overseas with Médecins sans frontières following qualifying with distinction from the London School of Hygiene and Tropical Medicine. Katy is also Director of Riva Training Limited, an immunisation and travel health specialist training company, teaching for the Ministry of Defence and the NHS or the National Health Service.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational
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| Ep 50 - Sue Ann: Lived Experience West Nile Virus Encephalitis | 26 Apr 2025 | 00:24:35 | |
In this episode, Prav talks to Sue Ann who was diagnosed with West Nile Virus encephalitis in 2023. She shares her lived experience story.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 49 - Leaving a Legacy: Wunmi's support for Encephalitis International | 22 Apr 2025 | 00:32:46 | |
In this special Legacy episode of the Encephalitis Podcast, Prav talks to our lived experience and community member Wunmi. Wunmi had encephalitis in 2017. Here, she shares her story and talks about legacies and leaving a gift in her will. To learn more about wills or leaving a legacy gift to Encephalitis International visit: https://www.encephalitis.info/gift-in-will/. This page also contains information about how UK residents can write their will for free, with our partners at Farewill. https://www.encephalitis.info/news/the-what-why-when-and-where-of-will-writing/
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 48 - Clinical Trials with Stacey Clardy | 19 Mar 2025 | 00:56:31 | |
In this episode, Prav - Senior Medical Writer for Encephalitis International - talks to Dr Stacy Clardy about clinical trials to to find out more about this important aspect of developing treatments for encephalitis. Doctor Clardy is both clinical and research faculty in the Division of Neuroimmunology and Autoimmune Neurology within the Department of Neurology at the University of Utah and the Salt Lake City Veterans Affairs Hospital. Her clinical specialisation and research focus is in the field of autoimmune neurology. Dr Clardy is the Principal Investigator, PI of the ExTINGUISH trial, a randomised clinical trial for NMDA receptor encephalitis at 37 sites, including two European sites, with enrolment having begun in early 2022.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 47 - Brain Infectious Global (BIG) Outcomes with Dr Bhagteshwar Singh | 12 Mar 2025 | 00:40:17 | |
In this episode Dr Ava Easton is joined by Dr Bhagteshwar Singh talking about improving the diagnosis and treatment of encephalitis in low to middle income countries. Dr Bhagteshwar Singh is back in the UK, having been based at Christian Medical College in Vallor, India, and Queen Elizabeth Central Hospital in Blantyre, Malawi in the last year. He's also a clinical research fellow and specialty registrar in infectious diseases and general internal medicine at the University of Liverpool in the UK. Please see below the links mentioned in the podcast. https://www.liverpool.ac.uk/people/bhagteshwar-singh https://braininfectionsglobal.tghn.org/the-programme/scientific-background/ https://braininfectionsglobal.tghn.org/resources/brain-infections-global-tools/
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 46 - Patient and Public Involvement in low to middle income countries | 10 Mar 2025 | 00:23:22 | |
In this episode, Emma Collins, Patient and Public Involvement Manager at Encephalitis International, talks to Dr Ava Easton, CEO at Encephalitis International and Chair of the PPI panel, about improving the work of patient and public involvement (PPI) driven by Encephalitis International in a study that looked at improving diagnosis and treatment of encephalitis in low-to-middle income countries.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 45 - Diane: Lived Experience of Autoimmune Encephalitis | 05 Mar 2025 | 00:18:18 | |
In this community story episode of The Encephalitis Podcast, Prav, Senior Medical Writer, meets with Team Encephalitis Volunteer, Diane. Diane, 22, from London. is a final year Psychology with Cognitive Neuroscience undergraduate student, aspiring clinical neuropsychologist, speaker, social entrepreneur, encephalitis overcomer and volunteer. Diane had auto-immune encephalitis in 2018, when she was 15 which encompassed months in a semi-coma state where she couldn’t talk, walk, eat or see due to complete vision loss from high intracranial pressure. Diane discusses her lived experience, reintegration into education and the importance of empowerment when going through recovery after encephalitis.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 44 - Dr Lipunga: Challenges in low and middle income countries | 26 Feb 2025 | 00:21:50 | |
In this podcast, Prav Prathapan from Encephalitis International is joined by Dr Gareth Lipunga, from Malawi. They will be talking about the challenges that low to middle income countries (LMIC) face when it comes to encephalitis. Dr Lipunga is a medical doctor trained at the University of Malawi's College of Medicine with a postgraduate MSC in Integrated Immunology from the University of Oxford.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 43 - WHO technical brief and 'Why Encephalitis Matters' - Dr Tarun Dua | 19 Feb 2025 | 00:18:58 | |
In this World Encephalitis Day special, Dr Ava Easton is joined by Doctor Tarun Dua, head of the Brain Health Unit at the World Health Organization (WHO). In exciting news for World Encephalitis Day 2025, the World Health Organization are releasing a technical brief on encephalitis. Dr Dua is here to discuss this and a bit more on the work of the World Health Organization. Useful Link - the WHO Intersectoral Global Action Plan (IGAP) on epilepsy and other neurological disorders - https://www.who.int/publications/i/item/9789240076624
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 42 - Updates on COVID- CNS study: Bethany Facer and Dr. Brenden Sargent | 06 Feb 2025 | 00:25:54 | |
We are delighted to welcome Bethany Facer and Dr Brendan Sargent to The Encephalitis Podcast. Beth and Brendan talk to host Prav Prathapan about recent research on the neurological effects of Covid-19, including cognitive deficits and long-term effects, and the potential implications for other diseases. Beth and Brendan also discussed the Covid-19 Clinical Neuroscience Study – a £2.3 million research study looking at the acute neurological and neuropsychiatric complications of Covid-19. This podcast also discusses the future of the Covid-19 Clinical Neuroscience Study, the potential of its data to contribute to understanding cognitive disturbances, and the importance of individualised care and support for those affected by the neurological effects of COVID-19. Links to papers: Posthospitalization COVID-19 cognitive deficits at 1 year are global and associated with elevated brain injury markers and gray matter volume reduction | Nature Medicine Cognitive domains affected post‐COVID‐19; a systematic review and meta‐analysis - Fanshawe - 2025 - European Journal of Neurology - Wiley Online Library Bethany Facer is a neuroimaging PhD student at the University of Liverpool, focusing on people with newly diagnosed Parkinson’s disease. Bethany is part of the neuroimaging working group for the COVID-Clinical Neuroscience Study and has previously worked on the DexEnceph trial assessing imaging changes in HSV encephalitis. An avid science communicator, she has presented at the Cheltenham Science Festival and has hosted and organised the annual Liverpool Neuroscience Conference. Brendan Sargent is a junior doctor and clinical research fellow with the Autoimmune Psychosis Group at the University of Oxford. He is part of the neuroimaging working group for the COVID-Clinical Neuroscience Study consortium and has worked with the Infection Neuroscience Lab in Liverpool on the cognitive impacts of COVID-19 illness. He is interested in cognition, neuroimaging and neuroinflammation. For more information about the COVID-CNS study, visit https://www.liverpool.ac.uk/covid-cli... f you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you would like to stay up to date with our news and events please sign up to our mailing list here: https://www.encephalitis.info/keep-in-touch Support our work providing help and assistance to families affected by encephalitis by visiting: https://www.encephalitis.info/donate Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 41 - Climate change and encephalitis with Dr Jim Sejvar | 22 Jan 2025 | 00:26:21 | |
Please note that this episode was recorded in November 2023. In this episode of The Encephalitis Podcast, Dr Ava Easton is joined by Dr James Sejvar for a discussion around climate change, and how it's affecting our risk for deadly infectious diseases, such as West Nile encephalitis or Japanese encephalitis. Dr Sejvar is a Neuroepidemiologist at the University of Pittsburgh and, University of Pittsburgh Medical Center, USA. At the time of the podcast, he led the Neuroepidemiology Unit at CDC’s Divisions of High-Consequence Pathogens and Pathology where his work focused on epidemiology, pathogenesis, clinical features, and outcomes of infections of the nervous system work which took him all over the world. He investigated the West Nile virus in the United States, Ebola in Central Africa, Zika in South America, and of course, COVID-19. Dr Sejvar is also a member of the Encephalitis International Scientific Advisory Panel. This podcast was recorded November 2023 - we have updated information and insights on these infectious diseases to come in April 2025. WATCH this space!
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational TikTok: https://www.tiktok.com/@encephalitisint | |||
| Ep 40 - Anti DPPX encephalitis lived experience | 19 Dec 2024 | 00:21:21 | |
One of our Team Encephalitis volunteers, Nicole, talks to Senior Medical Writer, Praveen, about her lived experience of encephalitis. Nicole was diagnosed with Anti-DPPX receptor encephalitis when she was 20 years old while she was at University. This lead to her needing to abandon her studies to recover. Luckily, Nicole is recovering well and is about to start the final semester of her course just two years later.
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational | |||
| Ep 39 - Prof Jon Evans - Memory and its relationship with encephalitis | 07 Nov 2024 | 00:43:01 | |
In this episode, Dr Ava Easton (CEO of Encephalitis International) is joined by Professor Jonathan Evans - a distinguished expert in clinical neuropsychology at the university of Glasgow. Professor Jon Evans discusses the world of memory and its intersection with encephalitis including the difference between long term, short term memory and false memory, how it's referred to in the medical world and any available support aids.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/ Our support groups are listed here https://www.encephalitis.info/online-support-meetings If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ
Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational/ LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational/ | |||
| Ep 38 - Scott Hamilton Kennedy: Shot in the Arm | 03 Sep 2024 | 00:38:23 | |
Dr Ava Easton, CEO of Encephalitis International interviews the director of the documentary Shot in the Arm, Scott Hamilton Kennedy . Talking about vaccine hesitancy and misinformation. Find more about the film here www.shotinthearm.com and for more information about vaccine preventable forms of encephalitis please visit www.encephalitis.info/vaccine-preventable-encephalitis.
If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/ Our support groups are listed here https://www.encephalitis.info/online-support-meetings If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational/ X: https://twitter.com/encephalitis LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational/ | |||
| Ep 37 - Professor Michael Wilson: Metagenomics and encephalitis | 14 Aug 2024 | 00:32:49 | |
Dr Ava Easton was joined by Professor Michael Wilson from the Centre of Encephalitis and Meningitis at UCSF to talk about metagenomics and encephalitis. For more information about Professor Wilson's work please visit https://encephalitis.ucsf.edu/ If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/ Our support groups are listed here https://www.encephalitis.info/online-support-meetings If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ Follow Encephalitis International: Facebook: https://www.facebook.com/encephalitisinternational/ X: https://twitter.com/encephalitis LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational/ | |||
| Ep 36 - Prof Arun Venkatesan: Death from encephalitis | 14 Aug 2024 | 00:23:15 | |
TRIGGER WARNING: In this podcast episode, Dr Ava Easton CEO Encephalitis International, talks with Prof Arun Venkatesan about the difficult topic of death from encephalitis. This is something which will be sadly and unfortunately familiar to many families and friends who's loved ones have fallen ill from this condition. If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/ Our support groups are listed here https://www.encephalitis.info/online-support-meetings Read more information about death from encephalitis on our website https://www.encephalitis.info/effects-of-encephalitis/death-from-encephalitis If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ Follow Encephalitis International Facebook: https://www.facebook.com/encephalitisinternational/ X: https://twitter.com/encephalitis LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational/ | |||
| Ep 35 - Encephalitis International: Our new global vision 2024 | 14 Dec 2023 | 00:42:00 | |
In our final episode of 2023, Dr Ava Easton, host of the Encephalitis Podcast, talks to Phillippa Chapman, Deputy Chief Executive of Encephalitis international, and Bella Bardswell, co-founder of Stellafai. The trio talk about the monumental decision to change the name of the Encephalitis Society to Encephalitis International, the reasons and thinking behind the strategic evolution, and what comes next as we celebrate our 30th anniversary in 2024. For more information about Encephalitis International, https://www.encephalitis.info/ If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/contact-our-helpline/ If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/become-a-member/ If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://app.donorfy.com/form/L9J9FR7NZ5/00YAZ Follow Encephalitis International Facebook: https://www.facebook.com/encephalitisinternational/ X: https://twitter.com/encephalitis LinkedIn: https://www.linkedin.com/company/encephalitisinternational Instagram: https://www.instagram.com/encephalitisinternational/ YouTube: https://www.youtube.com/@encephalitisinternational TikTok: https://www.tiktok.com/@encephalitisint Threads: https://www.threads.net/@encephalitisinternational
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| Ep 33- Dr Lance Turtle: Japanese encephalitis in Australia | 23 Mar 2023 | 00:32:17 | |
Dr Lance Turtle joins The Encephalitis Podcast to talk about the Japanese encephalitis virus and its impact on Australia over the past 12 months. Lance is a Reader and Honorary Consultant Physician in Infectious Diseases at the University of Liverpool. As always, the questions are asked by our host, Dr Ava Easton, Chief Executive of the Encephalitis Society. The Encephalitis Podcast is available on all podcast channels and on our YouTube channel. For more information about Dr Lance Turtle: https://www.liverpool.ac.uk/infection-veterinary-and-ecological-sciences/staff/lance-turtle/ If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support For more information about Japanese encephalitis, visit https://www.encephalitis.info/japaneseencephalitis If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/ Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/ Twitter: https://twitter.com/encephalitis Instagram: https://www.instagram.com/the_encephalitis_society_/ LinkedIn: https://www.linkedin.com/company/the-encephalitis-society
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| Ep 32 - Mental Health and Encephalitis | 22 Feb 2023 | 00:41:20 | |
Welcome to a special World Encephalitis Day edition of the Encephalitis Podcast. Dr Ava Easton, Chief Executive of the Encephalitis Society, is joined by Dr Thomas Pollak, from Kings College London, and Dr Jesus Ramirez-Bermudez, of the National Institute of Neurology and Neurosurgery of Mexico, to talk about some two new important research papers around mental health and encephalitis. An important note for our viewers and listeners: this podcast will be touching on some difficult areas, including more broad mental health issues and difficult topics such as self-harm and suicide. If this is something which may lead to difficult emotions for you or for someone you know, please know that our support team are here to help and can be reached on support@encephalitis.info or by calling +44(0)1653 699599. Also, in the links to this episode, you will find some resources which we have put together around mental health which we believe will be helpful to anyone affected by encephalitis and also their family and friends. This includes links to useful organisations around the world, a factsheet on mental health and lots of sources of support and information. For more information about World Encephalitis Day on Wednesday, 22nd February, please visit www.worldencephalitisday.org For information about mental health and encephalitis, visit https://www.encephalitis.info/pages/category/mental-health-and-encephalitis If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/ Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/ Twitter: https://twitter.com/encephalitis Instagram: https://www.instagram.com/the_encephalitis_society_/ LinkedIn: https://www.linkedin.com/company/the-encephalitis-society
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| Ep 31- Brain on Fire: A 10th anniversary interview with Susannah Cahalan | 16 Feb 2023 | 00:30:02 | |
Best-selling author Susannah Cahalan joins host Dr Ava Easton for a special World Encephalitis Day edition of The Encephalitis Podcast. Ten years ago, Susannah published Brain on Fire: My Month of Madness, the award-winning memoir and New York Times bestseller, which quickly become a Bible for members of the encephalitis community and many more people around the world. Brain on Fire follows Susannah’s struggle with encephalitis and, in particular, her diagnosis and recovery. It was later developed into a Hollywood film by Charlize Theron and starred Chloe Grace Moretz. Susannah chats to Ava about the 10th anniversary, why the book resonated with so many people, its legacy, how she reacted when Hollywood came calling, and the impact it has had on the encephalitis community. The 10th anniversary edition of Brain on Fire is available from all good booksellers, including UK readers (Kindle and Paperback) https://www.amazon.co.uk/Brain-Fire-My-Month-Madness/dp/1451621388 For more information about World Encephalitis Day on Wednesday, 22nd February, please visit www.worldencephalitisday.org If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/ Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/ Twitter: https://twitter.com/encephalitis Instagram: https://www.instagram.com/the_encephalitis_society_/ LinkedIn: https://www.linkedin.com/company/the-encephalitis-society
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| Ep 30 - Jackie Stebbins: Sharing my encephalitis journey | 13 Jan 2023 | 00:31:37 | |
In this episode, Dr Ava Easton talks to author and motivational speaker Jackie Stebbins. In 2017, the former trial lawyer from Bismarck, North Dakota, became ill with encephalitis and experienced a host of difficulties, such as insomnia, paranoia, hallucinations and memory loss. In the summer of 2018, after being voluntarily hospitalized in the psychiatric ward, she was finally diagnosed with seronegative autoimmune encephalitis. To help her recovery, she began writing and speaking about her journey with encephalitis. Today, Jackie hosts the podcast, Brain Fever and is also the author of the JM Stebbins blog. In 2022, her memoir, Unwillable: A Journey to Reclaim My Brain, was published by Wisdom Editions. We hope you enjoy this conversation with the articulate and passionate encephalitis awareness advocate! For more information about Jackie and her book, blog and podcast, please visit https://www.jmstebbins.com/ If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10 Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/ Twitter: https://twitter.com/encephalitis Instagram: https://www.instagram.com/the_encephalitis_society_/ LinkedIn: https://www.linkedin.com/company/the-encephalitis-society
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| Ep 29 - Dr Greta Wood: Seizures and encephalitis | 12 Dec 2022 | 00:24:31 | |
In this edition of The Encephalitis Podcast, Dr Ava Easton is joined by Dr Greta Wood for a discussion around seizures and encephalitis. In this wide-ranging conversation, they discuss an important new research paper before answering some questions around seizures and encephalitis. Greta is an Academic Clinical Fellow in Infectious Diseases at the University of Liverpool and has a wide range of research interests, including the socio-economic impact of infectious diseases and multi-morbidity. She is also a member of the COVID-19 Clinical Neuroscience Study which is investigating the neurological and neuropsychiatric complications of COVID-19. The Encephalitis Podcast is also available on podcast channels, such as Apple, Google Play, Podbean and Spotify. Find out more about seizures and encephalitis by viewing our factsheet: https://www.encephalitis.info/seizures-and-encephalitis For more information about Greta, visit https://www.liverpool.ac.uk/infection-veterinary-and-ecological-sciences/staff/greta-wood/ The research paper, Acute seizure risk in patients with encephalitis, can be found here: https://neurologyopen.bmj.com/content/4/2/e000323 If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10 Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/ Twitter: https://twitter.com/encephalitis Instagram: https://www.instagram.com/the_encephalitis_society_/ LinkedIn: https://www.linkedin.com/company/the-encephalitis-society
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| Ep 28 - The COVID-19 Clinical Neuroscience Study | 21 Nov 2022 | 00:36:34 | |
We are delighted to welcome back Professor Benedict Michael to The Encephalitis Podcast. Ben talks to host Dr Ava Easton about the COVID-19 Clinical Neuroscience Study – a £2.3 million research study looking in the acute neurological and neuropsychiatric complications of COVID-19. He also shares his thoughts on being a front-line medic during the pandemic, the NHS in general and the upcoming Encephalitis Conference. Ben is a Professor of Neuroscience at the University of Liverpool, a Medical Research Council Clinician Scientist and Honorary Consultant Neurologist at the Walton Centre, also in Liverpool. Ben is also Vice President of our Scientific Advisory Panel and helps to drive forward our research agenda and organise the Encephalitis Conference, among many other important areas of our work. For more about the COVID-CNS study or to take part, visit https://www.liverpool.ac.uk/covid-clinical-neuroscience-study/ Follow the COVID-CNS study on Twitter: https://twitter.com/covidcns Follow Ben on Twitter: https://twitter.com/BenedictNeuro If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10 Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/ Twitter: https://twitter.com/encephalitis Instagram: https://www.instagram.com/the_encephalitis_society_/ LinkedIn: https://www.linkedin.com/company/the-encephalitis-society
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| Ep 26 - Suzie Miller: Prima Facie playwright and Ambassador | 26 Sep 2022 | 00:37:32 | |
Suzie Miller - the author of Prima Facie - joins The Encephalitis Podcast to talk about her career, personal experiences of encephalitis which she contracted in her early 30s, becoming an Ambassador with the Encephalitis Podcast and much more. Born in Melbourne, Suzie is an award-winning playwright and screenwriter who has a background in law and science, working as a human rights lawyer and children's rights lawyer before leaving the law to pursue a theatre writing career full-time. Prima Facie debuted in Australia in 2019, winning several awards, before moving to London's West End starring Jodie Comer. It will be heading to Broadway in 2023. We hope you enjoy Suzie's conversation with Dr Ava Easton, the host of The Encephalitis Podcast. For more about Suzie and her work, visit her website http://www.suziemillerwriter.com/ If you would like to find out more about Prima Facie, visit their official website https://primafacieplay.com/ If you have been affected by encephalitis and are in need of some support, please visit https://www.encephalitis.info/support If you have been affected by encephalitis and would like to become a member of the society, you can sign up here (membership is free and global): https://www.encephalitis.info/Pages/Category/membership If you would like to donate to help fund research, information and support for those affected by encephalitis, please follow this link: https://www.encephalitis.info/donate/donate/10 Follow the Encephalitis Society: Facebook: https://www.facebook.com/EncephalitisSociety/ Twitter: https://twitter.com/encephalitis Instagram: https://www.instagram.com/the_encephalitis_society_/ LinkedIn: https://www.linkedin.com/company/the-encephalitis-society
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