Wesley and Samantha Rogers will be hosting regular podcasts in hopes to keep all those in the CERT1 community up to date regarding happenings at Lotties Light Foundation. We hope that together, we will illuminate a cure for all those affected by CERT1 or CerTra Syndrome. This is our newsletter to you. Please feel free to reach out to us if you have questions regarding this information or want to add your input. Thank you!
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September 21, 2025
We are back with a new episode, and lots of updates! Episode 4 covers volunteer and fundraiser highlights, a recap of our CERT1 Splash success, spotlight of our 1st annual CERT1 consortium, and information/resources on research and registration efforts. Featured links below!
>> To register: https://lottieslight.org/register
>> To get in touch with the researchers and enroll in their study, we will connect you! Email us at hello@lottieslight.org
>> To volunteer: https://lottieslight.org/volunteer
>> Read Brantley's story: https://www.facebook.com/share/16rqWCntjt/?mibextid=wwXIfr
>> CERT1 SPLASH 2025 (give to our existing fundraiser, or create your own page to host your own event!) : https://givebutter.com/CERT1Splash2025
The Cure CERT1 Podcast: Episode 3
mardi 29 avril 2025 • Durée 13:04
April 23, 2025 – Podcast 3 REGISTER WITH OUR FOUNDATION (CERT1 FAMILY, FRIENDS, & SUPPORTERS): https://lottieslight.org/register/ VOLUNTEER YOUR TIME AND TALENTS: https://lottieslight.org/volunteer/ CONSORTIUM Hear from the lead CerTra Syndrome (CERT1) researchers SUMMER FUNDRAISER Cert1 Splash Dates and Details coming soon NEWLY DIAGNOSED? Resources for families here: https://lottieslight.org/newly-diagnosed/ Episode 3 of #TheCureCert1Podcast #CureCERT1 #CERT1 #CerTraSyndrome #CureCerTra #LottiesLight #IlluminateACure #RareTogether #epilepsy #autism # intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #LottiesLightFoundation #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #COL4A3BP
The CureCERT1 Podcast: Episode 2
Saison 1 · Épisode 2
mercredi 26 mars 2025 • Durée 09:49
Wednesday, March 6, 2025 – Podcast 2
RARE DISEASE MONTH CERT1 STORIES – Thank you Javier, Willy T, Harris, Andrew, Emily Norah, Emily, Gideon.
See their stories on Facebook: https://www.facebook.com/lottieslight
See their stories on Instagram: https://www.instagram.com/lottieslightfoundation/
SHARE YOUR STORY: https://lottieslight.org/share/
REGISTER WITH OUR FOUNDATION (CERT1 FAMILY, FRIENDS, & SUPPORTERS): https://lottieslight.org/register/
VOLUNTEER YOUR TIME AND TALENTS: https://lottieslight.org/volunteer/
PODCAST PRODUCTION: Thank you Keylon Almond and Dana Wander
CONDOLENCES to the loved ones of Mary Lou Bobey, a great grandmother of one of our CERT1 kids. Thank you to those who donated to Lottie’s Light Foundation in her honor.
CONSORTIUM coming soon either My 2 or 3- Hear from the lead CerTra Syndrome (CERT1) researchers
SUMMER FUNDRAISER Cert1 Splash Dates and Details coming soon
NEWLY DIAGNOSED?
Resources for families here: https://lottieslight.org/newly-diagnosed/
Episode 2 of #TheCureCert1Podcast
#CureCERT1 #CERT1 #CerTraSyndrome #CureCerTra #LottiesLight #IlluminateACure #RareTogether #epilepsy #autism # intellectualdisability #id #anxiety #raredisease #epilepsyawareness #autismawareness #rarediseaseresearch #LottiesLightFoundation #CareAboutRare #PatientAdvocacy #GCchat #Neurology #GeneChat #COL4A3BP
The CureCERT1 Podcast: Episode 1
Saison 1 · Épisode 1
lundi 24 mars 2025 • Durée 15:06
Wesley and Samantha Rogers will be hosting regular podcasts in hopes to keep all those in the CERT1 community up to date regarding happenings at Lotties Light Foundation. We hope that together, we will illuminate a cure for all those affected by CERT1 or CerTra Syndrome. This is our newsletter to you. Please feel free to reach out to us if you have questions regarding this information or want to add your input. Thank you!