Sarc Fighter: Living with Sarcoidosis and other rare diseases – Détails, épisodes et analyse

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Sarc Fighter: Living with Sarcoidosis and other rare diseases

John Carlin

Forme & Santé

Fréquence : 1 épisode/14j. Total Éps: 175

Fighting sarcoidosis as well as other rare diseases.

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Dernières positions dans les classements Apple Podcasts et Spotify.

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🇬🇧 Grande Bretagne - medicine
02/08/2026
#77
🇬🇧 Grande Bretagne - medicine
26/07/2026
#84
🇨🇦 Canada - medicine
17/04/2026
#77
🇨🇦 Canada - medicine
05/02/2026
#100

Liens partagés entre épisodes et podcasts

Liens présents dans les descriptions d'épisodes et autres podcasts les utilisant également.

https://www.stopsarcoidosis.org/
348 partages
http://carlinthecyclist.com/category/cycling-with-sarcoidosis/
344 partages
https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E
340 partages

https://youtu.be/dNwbcBIyQhE
84 partages
https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o
50 partages
https://youtu.be/fXXTdVo90Zg
8 partages

https://www.facebook.com/SarcFighter/
88 partages
https://www.facebook.com/Sarcoidawarenessfilm/
4 partages
https://www.facebook.com/groups/2028388207424165/
2 partages

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Score global : 47%

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Derniers épisodes publiés

Liste des épisodes récents, avec titres, durées et descriptions.

Episode 121 | Wade Tomlinson needed a lung transplant

Épisode 132

lundi 9 septembre 2024 • Durée 01:17:38

The combination of Sarcoidosis and Covid proved too much for Wade Tomlinson. His lungs were wracked with damage from sarcoidosis. So when he got covid it was the punch his body couldn't handle and he needed to take drastic action. Wade got on several waiting lists for a lung transplant and then waited for the call. In episode 121 of the FSr Sarc Fighter Podcast, Wade recounts the moment the call came in and the series of events that led to him becoming a recipient. Let's just say it wasn't clear-cut. Listen in as Wade tell his story and brings up to date on how he is feeling six months after his surgery.

Also in this podcast -- FSR's Stephanie Mizell joins me for a quick explanation of the Foundation's most recent fundraiser!

Show Notes:

Wade's Go Fund Me: https://www.gofundme.com/f/support-wade-allie-medical-life-expenses?attribution_id=sl:1bcda970-9100-46d6-884b-82c1a3ee4239&utm_campaign=man_sharesheet_dash&utm_medium=customer&utm_source=copy_link

Support Mark Steier's wife, Caeleigh: https://stopsarcoidosis.rallybound.org/2024-team-rally-for-sarc/Team/View/193889/Team-Sarc-Mark

Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser! If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

email me carlinagency@gmail.com

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Episode 120 | Dr. Kamal Bharucha is a researcher who found himself a heartbeat away from real trouble

Épisode 131

lundi 26 août 2024 • Durée 01:09:19

Dr. Kamal Bharucha is a Pediatrician-Scientist, Clinical Development Leader and Biotech Startup Advisor in the rare disease space. And suddenly he found himself dealing with a rare disease - sarcoidosis. He says he was feeling fine and went for a routine check-up and discovered everything was far from fine. Dr. Bharucha describes his journey through diagnosis and discovery as he fights back against the disease. But what does a researcher do when presented with something like this? They present a poster to colleagues urging them to consider pushing the use of heart rate monitors in more people -- so heart issues become apparent much sooner!

Below is the poster he present to the American Thoracic Society entitled Multisystemic Sarcoidosis Culminating in Asymptomatic Complete Heart Block.

SHOW NOTES

Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq

More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/

Kamal's Papers on Sarcoidosis:

https://link.springer.com/article/10.1007/s11606-021-07310-6

https://www.kevinmd.com/2023/08/heart-disease-in-the-shadows-a-closer-look-at-cardiac-sarcoidosis.html

Episode 111 | Mathew Hall hits the wall with sarcoidosis. And it's Sarcoidosis Awareness Month!

Épisode 122

lundi 8 avril 2024 • Durée 01:03:20

Episode 111 is a special episode of the FSR Sarc Fighter podcast. It's sarcoidosis awareness month -- and the folks who are fighting for us at FSR want to get the word out. So Angela O'Malley and Cathi Davis join me for the show to talk about how they are working behind the scenes to get people to "Say Sarcoidosis." But also on the show is fellow sarc fighter Mathew Hall, who is an Ironman triathlete, who found himself in a hospital bed -- unable even to take a walk down the hall. He joins the show as well to share his story and to talk about his plans to bounce back to the extent he can -- and to use it to raise awareness and some funding for FSR.

Show Notes

Support Mathew https://stopsarcoidosis.rallybound.org/steps-for-sarc-2023/Member/MyPage/6333308/Mathew-Hall

Sarcoidosis awareness Month 2024 https://www.stopsarcoidosis.org/saysarcoidosis/

Participate in the aTyr Clinical Trial: https://bit.ly/3EUOxNq

More on the Efzofitimod study: https://sarcoidosisnews.com/news/benefits-seen-efzofitimod-pulmonary-sarcoidosis-treatment-trial/

Donate to Royce and Cycle4sarc: https://stopsarcoidosis.rallybound.org/Team/View/172803/Cycle4Sarc

Help FSR further its mission by becoming an Alliance Volunteer: www.stopsarcoidosis.org/gsca-leaders/

Become a community outreach leader:

Episode 26 Amy Cobb is a Nurse Practitioner treating COVID Patients - And Fighting Sarcoidosis in Her Own Body.

Épisode 31

lundi 18 janvier 2021 • Durée 01:05:07

In Episode 26 of the Sarc Fighter Podcast, Amy Cobb Describes how sarcoidosis is slowly taking over her body and to a certain extent - her life. Amy is a mother of three who works full time as a nurse practitioner. Now -- almost a year into the pandemic, she has been living with sarc, while treating patients fighting COVID-19. In this episode, Amy talks about how she's been able to handle Sarc and a cabinet full of medication while trying to continue as a soccer mom and medical professional.

More on the Sarcoidosis Documentary from Mission Purple. https://www.facebook.com/Sarcoidawarenessfilm/

Atyr Pharma News Release https://investors.atyrpharma.com/news-releases/news-release-details/atyr-pharma-announces-completion-enrollment-phase-1b2a-clinical

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!

If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation. https://stopsarcoidosis.rallybound.org/MarkSteier

You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o

The Foundation for Sarcoidosis Research

Episode 25 Tracy Bawtinheimer was a world traveling executive until...

Épisode 30

lundi 4 janvier 2021 • Durée 01:16:07

In Episode 25 of the Sarc Fighter podcast, patient Tracy Bawtinheimer tells the story of how sarc slowly damaged her heart until she had to make serious life changes. At one point doctors told her she had a one percent chance of survival. Yet she has found a way to prevail, even though the difficult learning curve of how to live a life after sarcoidosis.

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!

You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

FSR Summits 2020 https://www.stopsarcoidosis.org/patient-summits/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

My story on Television https://www.stopsarcoidosis.org/news-anchor-sarcoidosis/

Episode 24 Sarc Fighter Frank Rivera fights long Covid-19

Épisode 29

lundi 28 décembre 2020 • Durée 01:09:08

Frank Rivera is one of the loudest voices in the Sarcoidosis community. But COVID-19 didn't care. It hit him with a vengeance, then it came back.

In Episode 24 of the Sarc Fighter Podcast, Frank talks about what doctors are calling "Long COVID" because it just doesn't go away.

Despite his condition, Frank continues to work as a volunteer, helping other sarc patients. In fact, he recently formed a new outreach group called strongerthansarcoidosis.org to help make it easier for people to get answers about doctors, medications and navigating the tangles mess that is too often between sarc patients and the care they need and deserve.

Stronger than Sarcoidosis https://strongerthansarcoidosis.org/

Frank's Blog https://lifeasararepatient.blog/?fbclid=IwAR0YpnPmGOgXX6GKxG9SHwetjuye8G4cJCbErhV1yxHSBPf7cLukJSg4k2o

Frank on Facebook https://www.facebook.com/fjr311

Looking for previous episodes? https://www.stopsarcoidosis.org/sarc-fighter-podcast/

The Sarc Fighter Podcast is presented in part by a grant from aTyr Pharma.

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!

If you would like to donate in honor of Mark Steier and the song, Zombie, Here is a link to his KISS account. (Kick In to Stop Sarcoidosis) 100-percent of the money goes to the Foundation.

Episode 23 Even doctors can get sarcoidosis. Taufiq Ahmad shares the story of his decline.

Épisode 28

lundi 7 décembre 2020 • Durée 01:06:16

Dr. Taufiq Ahmad lives a quiet life in the UK. But slowly he felt that normal activities were wearing him out.

In Episode 23 of the Sarc Fighter podcast, Dr. Ahmad tells the story of how he went from active cyclist, recreational soccer player and general outdoors enthusiast, to a man who spends a lot of time on couch. Even though he is a physician -- Sarcoidosis was not one of the causes on his radar.

Ultimately, however it was determined that #sarcoidosis had badly damaged his heart.

Looking for previous episodes? https://www.stopsarcoidosis.org/sarc-fighter-podcast/

The Sarc Fighter Podcast is presented in part by a grant from aTyr Pharma.

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!

You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

Episode 22 Meet Mary McGowan the new CEO of the Foundation for Sarcoidosis Research

Épisode 27

lundi 16 novembre 2020 • Durée 01:03:15

In this episode of the Sarc Fighter Podcast, Mary McGowan stops by to share more about herself, her extensive background in leadership for healthcare organizations, and her vision for the Foundation for Sarcoidosis Research.

More about Mary and the rest of the staff at FSR https://www.stopsarcoidosis.org/about/staff/

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!

You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o

The Foundation for Sarcoidosis Research https://www.stopsarcoidosis.org/

FSR Summits 2020 https://www.stopsarcoidosis.org/patient-summits/

Donate to my KISS (Kick In to Stop Sarcoidosis) fund for FSR https://stopsarcoidosis.rallybound.org/JohnCarlinVsSarcoidosis?fbclid=IwAR1g2ap1i1NCp6bQOYEFwOELdNEeclFmmLLcQQOQX_Awub1oe9bcEjK9P1E

Episode 21 Why Sarc is more prevalent in women with Ozioma Chioma PhD

Épisode 26

lundi 9 novembre 2020 • Durée 54:53

Ozioma Chioma is a postdoctoral fellow at Vanderbilt University. A microbiologist, she is putting her skills to work thanks to a grant from the Foundation for Sarcoidosis Research. Ozi - as she is often called, is looking specifically for a link between hormones in women and sarcoidosis. Her preliminary findings indicate there is such a link. This could lead to a cure or at least a better treatment down the road.

Dr. Chioma will talk about her research, how far they have come and what's next.

More on Dr. Chioma https://medicine.vumc.org/person/ozioma-chioma-phd

https://www.linkedin.com/in/oziomachioma/

Also in this podcast, I give you the rundown for the November FSR Summit that will be held virtually this year on November 14. I will be moderating a patient panel discussion that day! Hope to see you there. Whether it's self care, dealing with COVID fears, or trying to eat better -- or meeting other Sarc Fighters there are many reasons to attend.

Check out the summit agenda here: https://www.eventbrite.com/e/november-virtual-sarcoidosis-patient-education-summit-tickets-109038432888

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!

Episode 20 Mark Landiak was hiking the Grand Canyon, when ...

Épisode 25

lundi 26 octobre 2020 • Durée 01:16:00

Cardiac Sarc Fighter Mark Landiak has had a tough run of it. One day he is feeling great, getting some fresh air with his daughter on a hike most people would never undertake. The next, he isn't sure what's wrong -- but it's not good. In Episode 20 of the Sarc Fighter Podcast, Mark talks about his struggles to get through that day and how it cot worse after that. But not to be held down, Mark has written a book on how he fought sarcoidosis and how you can too. He's also a mega-fundraiser for the Foundation for Sarcoidosis Research.

Mark's Website: https://gettingbetterwithmark.com/

A quick look at Mark's story: https://gettingbetterwithmark.com/story/

Mark's Blog: https://gettingbetterwithmark.com/coping-with-sarcoidosis/

More on aTyr Pharma: https://www.atyrpharma.com/

Do you like the official song for the Sarc Fighter podcast? It's also an FSR fundraiser!

You can listen on You Tube as well. https://www.youtube.com/watch?v=MCbA3EDJ6Ak&list=OLAK5uy_ktdC7Pn7_ezhy4ZJzV_u7o76bqIv6cC6o

The Foundation for Sarcoidosis Research

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