Rett Syndrome patient registry – Détails, épisodes et analyse

Rett Syndrome is rare - and in rare diseases, every person counts. Introducing rettX, the European Rett syndrome registry led by families and coordinated by Rett Syndrome Europe. We explain why reliable data matters, how the registry works, and how families can participate in a simple, secure, and transparent way. A space to understand how individual action can create collective impact for the Rett community across Europe.