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TitreDateDurée
The Phenomenon of Grief with Rachael Martinez, MA, Grief Support Specialist17 Dec 202400:50:57

Anticipatory Grief, Complicated Grief, Disenfranchised Grief... we cover it all + Rachael's explanation for her fascination with grief and all things *bittersweet*

We're nearing the end of season 9! Thank you for all of your support this season + beyond! Please don't forget to check out our Patreon for bonus episodes + more! And follow us on Instagram.


Please check out the amazing sponsors mentioned in this episode:

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Diana | Part 210 Dec 202400:44:44

In Part 2 of this powerful story we discuss Kayla's coming back to her mom in the final year's of Diana's life. Kayla tells us all about her grief journey and her hopes for her future. Make sure you listen t o Part 1 first! Thank you Kayla for sharing your story. --- *Trigger warning: This episode discusses physical and verbal abuse.


Please check out the amazing sponsors mentioned in this episode:

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Anticipatory Grief: Victoria's Story01 Oct 202400:46:06

Victoria openly shares the brutality of anticipatory grief, the unending love she has for her mama and the ways she got to know herself in the darkness. We were blown away.

Please share this episode with someone you think needs to hear it.

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All things Remember Me Community + Advocacy: ⁠⁠www.remembermeftd.com⁠⁠ | ⁠⁠@remembermepodcast⁠⁠

Holding Space Course Begins 10/7: Register ⁠⁠here⁠⁠.

Check out our friends at ⁠⁠Wake Up Maggie Film⁠⁠.

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Behrooz31 May 202100:45:43

In our Season 2 finale, we speak with our new friend Mitra. Mitra tells us all about the FTD journey she is currently on with her father Behrooz. Mitra's road to learning her father was ill actually started with her own health crisis, and thus began her search of what was wrong with Behrooz.

Mitra is a wonderful storyteller, and shares all about the fascinating life that Behrooz lived before his FTD diagnosis. It is one of the most touching father-daughter stories we've ever heard, and we are so thankful she shared it with us. You won't want to miss the very special ending... 

We'll be back with Season 3 on July 12th. Thank you to all who were a part of making this season a huge success - we raised awareness, we helped others feel less alone AND we tried our very best to always, always accept the good. Thank you.

While You're Waiting for Season 3, You Can:

- Follow us on instagram @remembermepodcast for new daily content

- Sign-up for our bi-weekly newsletter "All the Good Things" on our website 

- Catch up on old episodes on our site or on Apple Podcasts & Spotify

- Start journaling with us! Buy anything on Promptly's website with our code REMEMBERME15 for 15% off by using this link.

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Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Side Chat: Milestones, Dreams & Pushing Through24 May 202100:37:43

Rachael and Maria sit down for the third and final "side chat" of the season. They discuss the big milestones of the last few months, their dreams and plans for the future of Remember Me AND what it's been like to push through and produce the podcast after losing Lia and Frankie.

We'll be on a break after next week until Monday, July 12th. In the meantime, catch up on old episodes and follow us on instagram!

Here are 4 ways to support our podcast without spending any money!

1) Leave us a review on Apple Podcasts.

2) Follow us on Instagram & share our page on your stories!

3) Visit our website and subscribe to our bi-weekly Newsletter "All the Good Things"

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Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Ed17 May 202100:29:34

Heather shares the story of her father, Ed, who she cares for at home alongside her mother.

In this episode we really tackle all the feelings around watching a parent live with this disease. Heather is wonderfully vulnerable and we loved having raw and honest conversation. We also loved learning about wonderful Ed -before FTD- all about his art, his teaching, and his love for his friends and family. Enjoy.

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Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."   ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Shakeel10 May 202100:47:08

Abrar shares the story of his father, Shakeel. This is a episode filled with beautiful memories and an inspiring story of a family and community that worked together to support each other and love each other through tragedy. Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."  ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Expert Chat: How To Advocate For A Loved One Living In A Care Facility with Laurette Klier03 May 202100:51:22

Laurie Klier, Certified Dementia Practitioner, specializing in senior advocacy and compassionate care initiatives, chats with us all about how to advocate for your loved one living in a long term care facility.

She also tells us how she got into her work and the inspiration behind her heart centered business Nana's Books.

More resources on this topic will be shared in this week's newsletter, so be sure to sign up at www.remembermeftd.com today.

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Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Nancy26 Apr 202100:44:27

Nancy's story is told by her daughter, Olivia. Nancy was an American who moved to Spain in her 20s and married and raised her family there - all while also becoming a blossoming entrepreneur.  Olivia shares how she discovered her mother had FTD, and her experience caring for her mother while going back and forth from the US to Spain. --- Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Expert Chat: Genetics & FTD with Diane Lucente, MS, LCGC19 Apr 202100:45:22

Our long awaited episode is finally here! It's time to talk about Genetics. 

We had the honor of speaking with Diane Lucente, MS, LCGC, Manager of Genetic Counseling at world renown Massachusetts General Hospital Frontotemporal Disorders Unit. 

We cover the basics - and Diane gives us a real science lesson - so feel free to take out a pen and paper for some notes. Diane answers a few listener questions, explains to us the difference between clinical and research testing, and gives insight into what it like to meet with a genetic counselor.

Let us know what you think of the episode on instagram @remembermepodcast or send us a note at www.remembermeftd.com

Learn more about Massachusetts General Hospital's FTD Unit here: http://www.ftd-boston.org/

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Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." To support the podcast, you can buy us a coffee here

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Sylvia12 Apr 202100:43:57

Sisters Joanne and Susan share their experience caring for their mother who had both FTD and ALS. They share beautiful insight on how they cope with their waves of grief and how they continue to keep Sylvia's memory alive.

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Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Sheryl, Pt. 205 Apr 202100:28:58

This is the second half of our interview with Sheryl - Before you listen, we recommend you listen to Sheryl, Pt 1 (Season 2, Episode 8) if you haven't already. 

Sheryl is our first ever guest who is living with FTD. She was diagnosed with FTD in 2013, and is one of few FTD patients who can communicate what they are experiencing with this devastating disease. This is part two of our fascinating conversation. Sheryl answers so many questions I think caregivers often wonder but don't have the opportunity to ask. She has such an incredible personality and sense of humor, we adore her and can't wait to have her back! 

Have a question for a future episode with Sheryl? Comment on her episode post on our instagram page @remembermepodcast or send us an e-mail at remembermepodcast@gmail.com.

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Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Lois29 Mar 202100:34:43

Lois' story, as told by her daughter Anne Marie. 

Anne Marie does an incredible job describing her feelings around grief - and we dive into our questions about who our parents really were outside of being parents. We hope you enjoy this open and honest conversation...

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Steve24 Sep 202400:48:09

Our first episode of the season belongs to our new pal Scott.

Through an open letter to his grief and the most beautiful love for his Dad, Scott openly recounts the experience of his father Steve's FTD journey - and his magnificent ability to explain what grief feels like will leave you speechless.

We hope that Season 9 helps you feel less alone. Spread the word + share this episode with a friend for World FTD Awareness Week.

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All things Remember Me Community + Advocacy: ⁠www.remembermeftd.com⁠ | ⁠@remembermepodcast⁠

Holding Space Course Begins 10/7: Register here.

Check out our friends at Wake Up Maggie Film.

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Side Chat: Finally Meeting22 Mar 202100:26:39

In this side chat, we are recording for the FIRST TIME in the SAME ROOM! We talk all about our adventures in Denver, CO.

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Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Heitor15 Mar 202100:41:05

Carol shares the story of her father Heitor.

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Sheryl, Pt. 108 Mar 202100:27:38

This may be the most important episode we've ever done. We hear from Sheryl, who is was diagnosed with FTD in 2013. Sheryl is one of few FTD patients who can communicate what they are experiencing with this devastating disease. 

This is just one excerpt of our fascinating conversation - stay tuned for the rest. We loved Sheryl and can't wait to have her back!

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Embracing our Grief01 Mar 202100:50:25

Rachael and Maria recap the With Love Collaboration episodes and dive into how they're doing a few months after their parents passing. 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Remember Me X With Love: Maureen & Scott22 Feb 202100:50:27

Maureen's story, told by her husband, Scott.

This month, we’ve partnered with The Association for Frontotemporal Degeneration (The AFTD) on their 10th annual fundraising and awareness campaign With Love. Centered around Valentine’s Day, this February based campaign is an opportunity to honor or remember someone that has been affected by FTD. This one-month fundraiser aims to raise critical FTD awareness and funds for AFTD’s mission while telling stories with love.

You can donate to Scott's With Love Campaign page in honor of his wife Maureen here: https://www.classy.org/fundraiser/3099524

You can learn more about Remember Me and our collaboration on our website www.remembermeftd.com 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Remember Me X With Love: Linda & Kim15 Feb 202101:11:57

Linda's story, told by her daughter, Kim.

This month, we’ve partnered with The Association for Frontotemporal Degeneration (The AFTD) on their 10th annual fundraising and awareness campaign With Love. Centered around Valentine’s Day, this February based campaign is an opportunity to honor or remember someone that has been affected by FTD. This one-month fundraiser aims to raise critical FTD awareness and funds for AFTD’s mission while telling stories with love.

You can donate to Kim's With Love Campaign page in honor of her mom Linda here: https://www.classy.org/fundraiser/3113402

You can learn more about Remember Me and our collaboration on our website: www.remembermeftd.com 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Remember Me X With Love: John Sr. & Jr.08 Feb 202100:41:29

John's story, told by his son, John Jr.

This month, we’ve partnered with The Association for Frontotemporal Degeneration (The AFTD) on their 10th annual fundraising and awareness campaign With Love. Centered around Valentine’s Day, this February based campaign is an opportunity to honor or remember someone that has been affected by FTD. This one-month fundraiser aims to raise critical FTD awareness and funds for AFTD’s mission while telling stories with love.

You can donate to With Love at the link on our website www.remembermeftd.com 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Remember Me X With Love: Amalia & Sophia01 Feb 202100:52:00

Amalia's story, told by her sister, Sophia.

This month, we’ve partnered with The Association for Frontotemporal Degeneration (The AFTD) on their 10th annual fundraising and awareness campaign With Love. Centered around Valentine’s Day, this February based campaign is an opportunity to honor or remember someone that has been affected by FTD. This one-month fundraiser aims to raise critical FTD awareness and funds for AFTD’s mission while telling stories with love.

You can donate to With Love at the link on our website www.remembermeftd.com 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

All about The Association for Frontotemporal Degeneration with CEO Susan Dickinson25 Jan 202100:46:18

Rachael and Maria interview CEO Susan Dickinson to learn more about the Association for Frontotemporal Degeneration (The AFTD). We talk about research, resources for caregivers and more.

This episode is also an intro into our Remember Me x AFTD Collaboration on the Annual With Love campaign, launching in February

Learn more about The AFTD at theaftd.org

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

A Break In Time18 Jan 202100:46:48

Rachael + Maria are back after an unexpected break... and ready to tackle the new phase of their journey with FTD. 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Trailer | Season 9 of Remember Me17 Sep 202400:06:26

See what's in store for Remember Me Season 9...


Follow us on Instagram for the latest RM news @remembermepodcast or visit us at www.remembermeftd.com

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The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Mark D. (Part 2)14 Dec 202001:09:09

As a follow up to Episode 9, hear Mark's story told from his son Caleb's perspective. 

We're going on holiday break. Stay tuned for Season 2, starting January 18th. Be well, friends. 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Side Chat #4: Maria's BFFs Weigh In On How To Support A Friend Dealing With FTD07 Dec 202000:41:55

Maria gets the help of her best friends Nikki + Kelly to discuss this week's side chat topic: How to Support A Friend Dealing with FTD.

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Expert Chat #2: Moving A Loved One Into A Nursing Facility with Katie Brandt30 Nov 202000:40:51

Katie and Maria talk about transitioning a loved one with FTD into residential care. Katie provides tips and resources and answers listener submitted questions. Katie Brandt is a global advocate for FTD and the Director of Caregiver Support Services and Public Relations at the Massachusetts General Hospital's Frontotemporal Disorders Unit. You can learn more about the MGH FTD Unit at www.ftd-boston.org Learn more about Katie and her Love is Out There Campaign at www.loveisoutthereftd.org ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Side Chat #3: The Waves of Grief16 Nov 202000:45:10

Rachael and Maria talk about their experiences navigating the waves of grief. 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Robin09 Nov 202000:46:03

Robin's story, from her daughter Olivia's perspective. 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Jimmy02 Nov 202000:51:10

Jimmy's story, told by his daughter, Ashley. 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Anne26 Oct 202000:51:05

Anne's story, told by her daughter, Corey.

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."  ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Expert Chat #1: Ashley Stevens, "The Dementia Guru" Talks Caregiving & Grief 19 Oct 202001:03:57

Ashley Stevens, MSW, @thedementiaguru, talks to us about dementia caregiving and grief. 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease.  The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good."  ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Lisa12 Oct 202000:48:41

Lisa's story, told by her daughter Brittany. Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease.  The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." Consider participating in the FTD Hot Shot Challenge to raise awareness for FTD! Go to theaftd.org/ftdhotshotchallenge or @ftdhotshotchallenge on Instagram for more info! ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!



Side Chat #2: Check-in & Episode Recaps05 Oct 202000:31:34

We check-in on how we're doing and talk about our favorite moments from the first 8 interviews! Don't forget to participate in the FTD Hotshot Challenge! Follow  along on Instagram at @ftdhotshotchallenge and learn more at  www.theaftd.org/hotshot Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of  Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real,  and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!



On The Road with HFC | Reflections On The Caregiving Journey12 Sep 202400:26:33

We wrap up our special summer series with a heartfelt conversation on both our time on the road and our time as caregivers.


Thank you to HFC for this special opportunity + for supporting our work at Remember Me.


Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠.


And don't forget to follow us ⁠⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠⁠ and ⁠⁠⁠⁠⁠@wearehfc⁠⁠⁠⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more.

For all things RM: ⁠⁠⁠www.remembermeftd.com

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

Mark D.28 Sep 202000:59:03

Mark's story, told by his daughter Keri.

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of  Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real,  and so full of love. We hope it inspires you to "accept the good."____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


June (Part 2)21 Sep 202000:49:15

Michelle from @thesisterproj shares her perspective on her journey with her mother June. 

If you haven't already, take a listen to Episode 4: June, with her sister Lauren. 

Remember Me is a podcast created by two moms who became fast friends on Instagram. It features stories of Frontotemporal Dementia (FTD) with a focus on remembering individuals for who they were before the disease. The stories shared are raw, real, and so full of love. We hope it inspires you to "accept the good." ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Pete14 Sep 202000:47:20

Pete's story, told by his daughter, Erin.

Remember me is a podcast created by two moms who became fast friends via Instagram. It features stories of Frontotemporal Dementia (FTD) - a disease that 60 minute's called "The Cruelest Disease You've Never Heard Of". The stories are told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace and help us remember our loved ones for who they were before FTD. ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Mark07 Sep 202000:51:48

Mark's story, told by his daughter, Melissa.

Remember me is a podcast created by two moms who became fast friends via Instagram. It features stories of Frontotemporal Dementia (FTD) - a disease that 60 minute's called "The Cruelest Disease You've Never Heard Of". The stories are told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace and help us remember our loved ones for who they were before FTD.  ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Side Chat #1: Get To Know Your Hosts31 Aug 202000:45:00

Learn a little more about your hosts, Rachael and Maria. Remember me is a podcast created by two moms who became fast friends via Instagram. It features stories of Frontotemporal Dementia (FTD) told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace. ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!



June24 Aug 202000:51:53

June's story, told by her daughter, Lauren.

Learn more about Lauren and her sister Michelle on their blog: thesisterprojectblog.com 

You can also follow Lauren on Instagram: @themidsis and @thesisterproj

Remember me is a podcast created by two moms who became fast friends via Instagram. It features stories of Frontotemporal Dementia (FTD) told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace.   ____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Mike17 Aug 202000:51:49

Mike's story, told by his wife Katie.

Learn more about Katie and her Love is Out There Campaign at www.loveisoutthereftd.org

Remember me is a podcast created by two moms who became fast friends via Instagram. It features stories of Frontotemporal Dementia (FTD) told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace.  

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


Amalia10 Aug 202000:45:26

Amalia's Story, told by her daughter Maria.

Remember me is a podcast created by two moms who became fast friends on instagram. It features stories of Frontotemporal Dementia (FTD) told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace.

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!




Frank03 Aug 202000:50:37

Frank's Story, told by his daughter Rachael. 

Remember me is a podcast created by two moms who became fast friends. It features stories of Frontotemporal Dementia (FTD) told by the bystanders of the disease - the family members who witnessed everything. The stories shared are raw, real, and so full of love. We sincerely hope they bring a sense of solace.

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠PATREON⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


On The Road with HFC | Music, Grief + Dementia with Karen Pearson at Amoeba Music23 Aug 202400:41:54

We stopped at the ICONIC Amoeba Music... and we had the most tender conversation on music and grief with Co-Owner Karen Pearson. We loved hearing about her beloved Ilene. We could have talked for hours.


We hope this episode finds the people who need to hear it so please share!


And don't forget to follow us ⁠⁠⁠⁠@remembermepodcast⁠⁠⁠⁠ and ⁠⁠⁠⁠@wearehfc⁠⁠⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more.


Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠⁠⁠here⁠⁠⁠⁠. Thank you to HFC for supporting our work!

For all things RM: ⁠⁠www.remembermeftd.com

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

On the Road with HFC | The Brain Donation Decision with Lauren Miller Rogen15 Aug 202400:32:29

A very special sit-down interview with Lauren Miller Rogen, actress, screenwriter, director AND co-founder of ⁠⁠HFC⁠⁠ alongside her husband Seth.

This is a raw + honest conversation between 3 daughters of dementia about the decision to donate their parents brain's to research.

We hope this episode finds the people who need to hear it so please share + DON'T FORGET to follow us ⁠⁠@remembermepodcast⁠⁠ and ⁠⁠@wearehfc⁠⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more.

Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap ⁠⁠here⁠⁠. Thank you to HFC for supporting our work!

For all things RM: www.remembermeftd.com

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

On The Road with HFC | A Little Summer Adventure15 Aug 202400:47:31

Surprise! Here to share all about being on the road with ⁠HFC⁠ AKA Hilarity for Charity.

Have no idea what we're talking about? Take a seat. From touching brains at UCI Mind to jamming out at Ameoba music to chatting up strangers on Hollywood Boulevard with Bruno the BRAIN PUPPET... we had ourselves an adventure. Buckle up for some fun + stay tuned for some more bonus episodes from our trip. BUT DON'T FORGET to follow us ⁠@remembermepodcast⁠ and ⁠@wearehfc⁠ on Instagram because there's even more content there (+ more to come) about our trip and our heart to hearts in the car about all things caregiving, grief and more.


Navigating caregiving can be tough, but you don’t have to do it alone. Check out the HFC Caregiver Roadmap here. Thank you to HFC for supporting our work!

For all things RM: www.remembermeftd.com

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

BONUS: Understanding Different Aspects of FTD Research with Dr. Irwin and Dr. Massimo20 Jun 202400:35:36

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is #2 of the TWO bonus episodes we produced for Season 8!

In this episode we tackle the different types of research with Dr. Irwin and Dr. Massimo, the Co-Directors of the Penn FTD Center.

Some of the questions we ask:

-What are the different types of research? Pharmacological vs. not?

-How does brain donation support research?

-How do we make research more accessible?


Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info!


Check out the companion blog post for this episode which can be read ⁠⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠⁠ full of more resources and info.

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We want to send big love to the entire ⁠⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠⁠.

To sign up for our e-mail visit our website ⁠⁠⁠⁠⁠remembermeftd.com⁠⁠⁠⁠⁠.

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!

BONUS: Understanding Clinical Trials for FTD with Dahlia Kamel, Penn FTD Center20 Jun 202400:58:03

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is one of TWO bonus episodes we produced for Season 8!

In this episode we tackle Clinical Trials with our friend Dahlia Kamel, MS - Clinical Trials Lead at the Penn FTD Center.

Some of the questions we ask:

-What is a clinical trial?

-What do the different phases mean?

-What are the considerations for families? Benefit vs. Burden


Research and clinical trials are such an important aspect of our advocacy and we are thrilled to bring you these 2 episodes stacked full of useful info!


Check out the companion blog post for this episode which can be read ⁠⁠⁠⁠⁠here⁠⁠⁠⁠⁠ full of more resources and info.

--

We want to send big love to the entire ⁠⁠⁠⁠Penn FTD Center Team⁠⁠⁠⁠.


Want to support the podcast? Want more content + connection? Join us on Patreon in Re-Members Only.

____

The Remember Me Podcast + Community provides resources, connection and understanding for families, caregivers and people affected by Frontotemporal Dementia. For all things RM, join us over on ⁠⁠⁠⁠⁠⁠⁠⁠⁠PATREON⁠⁠⁠⁠⁠⁠⁠⁠⁠, visit our website www.remembermeftd.com or follow us on Instagram!


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