PEP Talks ISPEP – Détails, épisodes et analyse

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PEP Talks ISPEP

Emma Sutcliffe

Forme & Santé

Business & Entrepreneuriat

Éducation

Fréquence : 1 épisode/15j. Total Éps: 20

PEP Talks from ISPEP The role of a patient engagement professional can be ... lonely, rewarding, frustrating, demanding. All of these things! It is a challenge advocating for people living with chronic, rare, sometimes life-threatening conditions. These short PEP Talks are there for you when you need a boost from a fellow professional. Brought to you by ISPEP -- the professional home for all patient engagement experts.

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🇬🇧 Grande Bretagne - medicine
19/06/2025
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🇬🇧 Grande Bretagne - medicine
17/06/2025
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https://pmlive.com/wp-content/uploads/2024/02/1223_A4_Medscape_WebMD_White_Paper_AW_WEB_v3.pdf
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Score global : 73%

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Danielle Alstat is 'All In' leading advocacy for people living with PBC: Hear her story from newly-diagnosed to FDA Advisor.

Saison 4 · Épisode 3

lundi 16 juin 2025 • Durée 25:18

Danielle Alstat, a patient advocate diagnosed with primary biliary cholangitis (PBC), shares her journey from diagnosis to becoming a prominent voice in patient advocacy.

After facing the shock of her diagnosis and the challenges of working as a respiratory therapist during the COVID-19 pandemic, Danielle found solace and support through online communities, notably the PBC Foundation. Her advocacy efforts led her to establish a support group with over 2,000 members, providing a platform for patients worldwide to connect and share experiences.

Danielle emphasises the importance of patient voices in clinical trials, highlighting ethical concerns with long-term placebo use in PBC trials. Her role as a patient representative at an FDA hearing underscored the need for regulatory systems to evolve and better accommodate patient needs.

Through collaboration with various stakeholders, including pharma companies, Danielle advocates for change in clinical trial protocols to ensure patient safety and efficacy. Her story is a testament to the power of community, education, and the relentless pursuit of advocacy to drive meaningful change in healthcare.

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The Relentless Pursuit of Patient-Centered Care: Inspired Leadership Lessons from Dr Anthony Yanni

Saison 4 · Épisode 2

lundi 2 juin 2025 • Durée 31:37

This episode features Dr Anthony Yanni, global head of patient centricity at Astellas Pharma. Sponsored by Intercept Pharmaceuticals, the episode delves into the importance of patient engagement and centricity in the pharmaceutical industry.

Dr Yanni discusses his methodology of "dull nagging pressure" to advocate for patient centric approaches, emphasising persistence and the need for industry-wide adoption. He shares insights from his clinical experience and the challenges of integrating patient perspectives into medicine development and delivery.

The conversation highlights the role of patient centricity in rebuilding trust with patients and the necessity of sharing successful practices across the sector. Dr Yanni's work at Astellas, including the Patient Centricity University, aims to inspire and educate professionals on creating impactful patient engagement strategies.

The episode concludes with a call to action for patient engagement professionals to embrace their roles as privileged and essential in transforming healthcare.

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For a PEP it is always personal: Bringing the passion and persistence in the patient voice into paediatric trial design

Saison 2 · Épisode 5

lundi 27 janvier 2025 • Durée 21:31

This Pep Talks episode features Begonya Nafria Escalera, head of patient engagement in research at St. John De De Children's Hospital, who champions the inclusion of children and young people in clinical research, a practice not yet widespread in Spain.

Begonya discusses the challenges of communicating complex trial protocols to young patients and their families, highlighting the innovative methods her department employs, such as high-realistic simulation, to ensure trials are both patient-friendly and effective. Sharing her personal journey, Begonya emphasises the importance of publishing successful patient involvement projects to inspire others.

The conversation underscores the need for persistence, passion, and collaboration in patient engagement and celebrates the positive trend of pharmaceutical companies increasingly valuing patient input in clinical trial design.

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Empathy with Evason: How an “accidental advocate” is re-writing the communications rules for patients

Saison 2 · Épisode 4

lundi 13 janvier 2025 • Durée 20:40

On PEP Talks, Emma interviews communications coach and advocate Monica Kleijn Evason. They recall meeting at a cancer conference where survivors' "FUCK cancer" shirts sparked a discussion on disruptive language in advocacy. Monica shares her advocacy journey, prompted by her son's brain tumor diagnosis and their struggles with the medical system. She stresses communication and empathy in healthcare, especially for young survivors post-treatment.

They also discuss emotional regulation for advocates and improved communication between patients, doctors, and pharma. Monica concludes with inspiration from young survivors who find humor in hardship.

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Patient Engagment: Driven by empathy, fuelled by business. How ISPEP supports all patient professionals

Saison 2 · Épisode 3

vendredi 20 décembre 2024 • Durée 24:56

Pep Talks, hosted by Emma Sutcliffe, is a podcast series sponsored by the International Society for Patient Engagement Professionals (ISPEP). In a twist, Emma is interviewed by Alexandra Charge, CEO of ISPE, about her new role as Chief Patient Officer.

Emma shares her journey from a medical biochemist to a patient engagement professional, emphasizing the importance of empathy and strategic business practices in the pharmaceutical industry.

The discussion highlights the challenges and responsibilities of patient engagement professionals, the need for professionalization, and the evolving role of patient advocacy. Emma envisions a future where new leaders emerge within the ISPE community, fostering growth and development in patient engagement.

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Onions, pop culture & sea-gazing: How being an 'outsider' brings emotional resonance to the science of patient engagement

Saison 2 · Épisode 2

vendredi 6 décembre 2024 • Durée 20:38

In this episode, Emma interviews Rasmus, the head of communication at James Lind Care, a clinical trial research organization. Rasmus discusses the challenges of patient recruitment for clinical trials, emphasizing the need for increased awareness, education, and simplified communication.

He shares insights on his role in bridging the gap between patients and the pharmaceutical industry, highlighting the importance of understanding patient needs and motivations. Rasmus also talks about the significance of change management in the pharma industry and the necessity of presenting a business rationale for patient engagement.

The conversation underscores the value of diverse perspectives and the impact of effective communication in fostering patient participation in clinical research.

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Strive4Five with Steve: Core skill sets for honest and empathic patient advocacy

Saison 2 · Épisode 1

mercredi 6 novembre 2024 • Durée 21:31

In this episode of Pep Talks, Emma interviews Steve Clark, a cancer survivor and patient advocate. Steve shares his journey from diagnosis to founding Strive for Five, a non-profit focused on providing hope to others with cancer.

He discusses the importance of effective communication between patients and doctors, the nocebo effect, and the bio-psychosocial model of care. Steve emphasizes the power of positivity and the importance of support systems, including therapy and pets.

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Fighting for patients in everyway: Stacy Hurt is out there, every day, making patient engagement matter.

Saison 1 · Épisode 6

vendredi 25 octobre 2024 • Durée 20:12

Stacey Hurt, Chief Patient Officer at Parexel, shares her journey and role in a PEP Talk podcast sponsored by Medscape. As a stage four colorectal cancer survivor and caregiver to her son with profound disabilities, Stacey brings authenticity and a unique perspective to her position. She emphasizes the importance of patient engagement in clinical trials, advocating for the inclusion of patient voices to improve trial design and outcomes.

Stacey discusses the challenges and strategies in defending the business value of patient engagement, highlighting the significant cost savings and efficiency gains. She also reflects on her personal experiences and the impact of her work on the industry, aiming to inspire and guide others in patient advocacy. Stacey's story underscores the transformative potential of patient-driven solutions in clinical research.

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From scientist to strategist: Dr Victoria Harvey-Jones is on a mission to humanise healthcare

Saison 1 · Épisode 5

vendredi 11 octobre 2024 • Durée 14:03

In this PEP Talk we hear from multi academic award winning cancer researcher, Victoria Harvey-Jones, about the three 'Rs' that we must address to improve communications between doctors and patients; and why the white paper she co-authored with other leaders is a game changer to humanise healthcare communications.

Patient centricity to Integration: enhancing Cancer outcomes - To drive improvements in patient outcomes, it's vital that we integrate the lived experiences of people living with diseases like cancer into medical education. Read more in Medscape’s white paper, "Patient Centricity to Integration: Enhancing Cancer Outcomes," which won an Award of Excellence at APEX, Awards for Publication Excellence 2024!

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From Photographer to Professor: With a few detours along the way

Saison 1 · Épisode 4

vendredi 27 septembre 2024 • Durée 22:40

Hear how Lara Bloom became the first Associate Professor of Patient Engagement Practice and built the Ehlers Danlos Society courtesy of a chance meeting in an art gallery.

In this episode of "Pep Talk," Lara shares her journey from a career in photography to becoming a leading advocate for Ehlers-Danlos syndrome (EDS) and patient engagement. She discusses the challenges of living with EDS, the importance of patient advocacy, and her work in building the Ehlers-Danlos Society into a global organization. Lara emphasizes the need for healthcare professionals to listen to patients and incorporate lived experiences into care.

She also highlights the significance of collaboration and the role of patient engagement in improving healthcare outcomes. The conversation concludes with Lara's thoughts on maintaining a positive outlook and the importance of trusting the process.

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PEP Talks ISPEP – Détails, épisodes et analyse

Détails du podcast

Classements récents

Apple Podcasts

Spotify

Liens partagés entre épisodes et podcasts

Other1

Qualité et score du flux RSS

Historique des publications

Derniers épisodes publiés

Podcasts et contenus similaires

Podcasts Similaires Basées sur le Contenu

Apple Podcasts

Spotify

Other1

Podcasts Similaires Basées sur le Contenu