Passion for Patients - Détails, épisodes et analyse

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Passion for Patients

Tonya

Business & Entrepreneuriat

Fréquence : 1 épisode/20j. Total Éps: 24

Tonya Winders is the host of the Passion For Patients podcast and the president and CEO of the Global Allergy and Airways Patient Platform (GAAPP). With a keen focus on enhancing patient engagement and community-building, Tonya has eagerly introduced this innovative podcast series to provide a new channel for connecting with and expanding her audience. Her dedication to patients’ well-being has driven the meticulous months of planning leading up to the launch of this exciting platform.

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Données mises à jour le 08/11/2026

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EP 24 - Celebrating Milestones and Advancing Patient Advocacy: GAAPP’s Journey in 2025 and Beyond

mercredi 31 décembre 2025 • Durée 15:40

Welcome to the Passion for Patients podcast, where patient advocacy takes center stage! In this special year-end episode, Tonya Winders—President and CEO of GAAPP, the Global Allergy and Airways Patient Platform—reflects on the incredible achievements and milestones reached in 2025 by the GAAPP community. With over 200 patient advocacy groups spanning every continent and more than 25 disease areas, GAAPP has made significant progress in disease awareness, education, advocacy, and research.Join Tonya Winders as she celebrates standout moments like landmark resolutions at the World Health Assembly, record-breaking campaigns for respiratory diseases, and the growth of educational resources and research collaborations. She also offers an inspiring look ahead to 2026, sharing exciting plans for furthering awareness, driving guidelines updates, advancing policy initiatives, and supporting innovation in respiratory and immunology care.Whether you’re a GAAPP member, industry partner, or passionate advocate, this episode is filled with gratitude, hope, and a call to recharge for another transformative year of making a difference in patient lives worldwide.5 Key Takeaways:1. Unprecedented Global Growth:GAAPP now unites 200 patient advocacy groups across every continent and covers 25+ disease areas—a major milestone in global collaboration.2. Impactful Awareness Initiatives:Participation in 25 World Awareness Days, with record numbers of organizations raising the voice for conditions like chronic cough and asthma.3. Capacity Building & Education:New resources like the Knowledge Hub and Understanding Medications Hub empower advocates and patients with knowledge and tools to manage their conditions more effectively.4. Landmark Advocacy Success:Both the United Nations Political Declaration and World Health Assembly Resolution elevated respiratory diseases as global public health priorities for the first time ever.5. Advancing Research & Innovation:30+ peer-reviewed publications, multiple surveys, and growing clinical trial recruitment drive patient-centered innovation, with exciting treatment breakthroughs expected in 2026.Take a moment to celebrate these shared triumphs and rest up for an action-packed 2026. Stay passionate, stay engaged, and let’s make even bigger strides together with GAAPP—your worldwide patient advocacy family!#RespiratoryHealth #PatientAdvocacy #GlobalAllergy #HealthcareInnovation #GAAPPSummit

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EP 23 - The Double Impact of Asthma and Adrenal Crisis: Hilary Hodge’s Patient Story

Épisode 22

mardi 30 décembre 2025 • Durée 20:54

Welcome to another episode of the Passion for Patients podcast, hosted by Tonya Winders, President and CEO of GAAPP. In today’s episode, Tonya Winders sits down with special guest Hilary Hodge, a dedicated patient advocate joining us from France. Together, they dive into Hilary Hodge’s journey with severe asthma, long-term prednisone use, and the challenges of living with adrenal insufficiency—a condition that often goes undetected until crisis hits. Through personal stories and professional insights, this conversation sheds light on the serious consequences of systemic steroid use, the importance of monitoring side effects, and the growing movement for steroid stewardship in respiratory care. Get ready for a thoughtful discussion packed with actionable advice and inspiration for patients, providers, and policy makers alike.

Here's the three key takeaways of this episode:

1. Steroid Toxicity Is Real & Underestimated: Long-term use of oral steroids can result in serious side effects—including adrenal insufficiency—which is more common than many realize. As Hilary Hodge shared from personal experience, regular monitoring of cortisol levels for patients on prednisone is critical yet not routinely done. This gap in care can leave patients at risk for life-altering complications.

2. Patient Advocacy Can Drive Change: Hilary Hodge emphasized the importance of patients learning to advocate for themselves, especially when managing complex comorbidities like adrenal insufficiency. Lived experiences, such as hers, are invaluable for informing best practices and helping guide both patients and clinicians toward better outcomes.

3. It’s Time for Steroid Stewardship: The medical community needs to shift towards the responsible and cautious use of steroids. Tonya Winders strongly argued that oral corticosteroids should be a “last resort”—not an automatic go-to—because of the risks and long-term harm they can cause. As understanding and data have evolved, so should the guidelines and conversations within respiratory care.

We hope you found this thoughtful conversation around adrenal insufficiency, steroid toxicity, and the importance of oral corticosteroid stewardship in chronic respiratory disease to be inspiring and informative. If you enjoyed this discussion or learned something new, please like, subscribe, and share your thoughts in the comments below.

EP 22 - Food Allergy Advances in 2025: Updates on Diagnosis, Treatments, and Prevention

Épisode 21

mardi 23 décembre 2025 • Durée 23:41

Welcome to the latest episode of the Passion for Patients podcast, where host Tonya Winders, President and CEO of GAAPP, is joined by Chief Medical Officer Dr. Karen Rance for an insightful discussion on the evolving landscape of food allergies in 2025. In this episode, you’ll hear about groundbreaking advancements in diagnosis and treatment—from personalized approaches with component-resolved diagnostics to new options like biologics and skin patch immunotherapy. The conversation explores strategies for prevention, global trends, and practical tips for living confidently with food allergies. Karen Rance and Tonya Winders also tackle common myths and the emotional impact of life-threatening allergies, sharing empowering advice and a hopeful outlook for the future. Whether you’re a patient, caregiver, or healthcare professional, this episode delivers the latest updates and inspiration to help you navigate the world of food allergy management.

Here are 3 key takeaways from their insightful conversation:

1. Personalized Diagnostics and Treatments: Component-resolved diagnostics now allow for precise identification of food proteins triggering allergies, paving the way for tailored treatment plans.

2. Innovations in Prevention and Therapy: Early introduction of allergenic foods for infants is now encouraged, while advancements in immunotherapy—including skin patches, sublingual tablets, and biologics like omalizumab—are changing the landscape of food allergy management.

3. Empowering with Awareness & Technology: The importance of accurate food labeling, global best practices, mental health support, and new apps and AI-powered tools help individuals with food allergies navigate daily life and travel with greater confidence.Food allergies are challenging, but as Karen Rance emphasized, they are manageable—and no patient is alone. Community support and ongoing scientific progress are shaping a brighter future for millions globally.

Let’s keep the conversation going and continue advocating for even better care and awareness!

#FoodAllergy #HealthcareInnovation #PatientAdvocacy #PodcastRecap

EP 21 - Latest Advances in Environmental Allergy Diagnosis, Treatment, and Prevention with Dr. Karen Rance

Épisode 21

jeudi 18 décembre 2025 • Durée 22:59

Welcome to a new episode of the Passion for Patients podcast, where Tonya Winders and Chief Medical Officer Dr. Karen Rance explore environmental allergies. They break down what allergies really are, the differences between seasonal and year-round allergies, common symptoms, and how these conditions are diagnosed and treated—including antihistamines, immunotherapy, and prevention strategies.The episode also covers how allergies impact mental health, sleep, and quality of life, challenges for underserved communities, and the latest innovations in care. Packed with practical tips and insights, this episode is a must-listen for anyone navigating allergies or curious about the latest developments in this evolving field.

Here are 3 key takeaways for anyone involved in allergy care or living with allergies:

1. Personalized Allergy Care Matters: Allergic rhinitis and environmental allergies are not a “one size fits all” condition. Diagnostics and treatment options—from skin testing to sublingual tablets—should be tailored to the individual, their triggers, and their lifestyle.

2. Prevention & Awareness Are Foundational: Simple strategies like using pollen tracking apps, optimizing bedroom environments, and employing air filters can make a real difference. Staying proactive and informed is key to managing symptoms effectively.

3. Innovations & Hope on the Horizon: Advancements such as new immunotherapy modalities and forthcoming biologics are shaping the future of allergy management. It’s an exciting time with more options and research than ever before.

Environmental allergies are manageable—and emerging treatments continue to empower both patients and providers. Thanks Karen Rance and Tonya Winders for leading this important conversation!

#AllergyAwareness #HealthcareInnovation #PatientCare #Immunotherapy #PodcastInsights

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EP 20 - Understanding Chronic Urticaria: Latest Treatments, Triggers, and Hope for Patients Worldwide

Épisode 19

vendredi 28 novembre 2025 • Durée 29:59

Welcome to the Passion for Patients podcast by GAAPP and We See You! In this inspiring episode, your host Kristen Willard sits down with allergy specialist Karen Rance to dig deep into chronic urticaria—known as CU. Together, they unpack what chronic hives really are, the emotional weight of living with a misunderstood condition, and the latest advances in diagnosis, treatment, and self-management. Whether you’re newly diagnosed, supporting a loved one, or living with chronic urticaria yourself, you’ll find expert insight, hope, and practical tools in today’s conversation.

Here are the 5 Key Takeaways from this Passion for Patients episode with Kristen Willard and Karen Rance:

1. Chronic Urticaria Defined:Karen Rance emphasizes that chronic urticaria (CU) is diagnosed when hives or swelling persist for six weeks or longer. This distinguishes CU from acute allergic reactions, which are brief and usually have a clear cause, making CU a sometimes misunderstood condition.

2. Diagnosis Relies on Patient Involvement:The main tools for diagnosing CU are a detailed clinical history and patient-provided documentation. Both Karen Rance and Kristen Willard stress the importance of journaling symptoms, tracking possible triggers, and taking photos, especially since symptoms may not always be visible during medical appointments. Standardized tools like the Urticaria Activity Score and angioedema control test can also help.

3. Exciting Advances in Treatment:While antihistamines are the first line of defense, there’s real progress: two biologics (omalizumab and duvalizumab) are now available for those with hard-to-control symptoms. The conversation encourages patients to stay informed about all treatment options and discuss them openly with their healthcare providers, as access and global advocacy continue to improve.

4. Triggers and Stress Management:Triggers for CU are highly individual and can include allergens, stress, temperature changes, medications, or even daily routines like bathing. Identifying triggers (when possible) through journaling not only helps with management but can also ease feelings of self-blame. Stress reduction and routine self-care, even between flare-ups, are vital for better outcomes.

EP 19 - Understanding Atopic Dermatitis: Latest Insights, Treatments, and Support for Patients Worldwide

Épisode 18

mardi 18 novembre 2025 • Durée 21:13

Welcome to another episode of the Passion for Patients podcast, brought to you by Global Allergy and Airways Patient Platform (GAAPP). In today’s episode, host Kristin Willard sits down with Chief Medical Officer Dr. Karen Rance to explore atopic dermatitis—commonly known as eczema or AD. They uncover why AD is one of the most prevalent and burdensome chronic skin conditions worldwide, discuss how it’s diagnosed, and break down the latest advances in treatment.

You’ll hear practical tips for managing symptoms, learn about potential barriers to accessing breakthrough therapies globally, and discover how organizations like GAAPP are working to close those gaps. Karen Rance and Kristin Willard also dive into the emotional and social impact of AD, the importance of tracking symptoms, and how patients and caregivers can find community support. Whether you’re living with eczema, caring for someone who is, or just want to understand this complex condition a bit better—this episode will offer clarity, hope, and actionable advice for living well with AD.

Here are 5 key takeaways from this episode:

1. Atopic Dermatitis is a Chronic Condition

Atopic dermatitis (AD), also known as eczema, is a chronic inflammatory skin disease that affects both children and adults worldwide. It is driven by an overactive immune system, making it distinct from other common rashes like contact dermatitis.

2. Diagnosis and Tracking are Essential

AD is typically diagnosed through clinical evaluation, detailed symptom history, and sometimes skin tests. Keeping a symptom journal and taking photos can be invaluable for both patients and healthcare providers to track flare-ups and manage care more effectively.

3. Treatment Advancements Bring Hope

Treatment for AD has evolved, with newer options like biologics and JAK inhibitors offering potential relief, especially for more severe cases. However, basic daily skin care, such as moisturizing and avoiding triggers, remains crucial.

4. Beyond the Skin: Mental and Social Impact

EP 18 - Living With Chronic Cough: Irantzu Muerza’s Journey of Advocacy and Hope for Better Treatments ,

Épisode 18

vendredi 7 novembre 2025 • Durée 23:24

Welcome to another inspiring episode of Passion for Patients, hosted by Tonya Winders. Today, Tonya sits down with Irantzu Muerza, the president of Asthma and Allergy Spain and a dedicated member of the Global Allergy and Airways Patient Platform (GAAP) family. Muerza takes us through her deeply personal journey as both a patient living with severe asthma and chronic cough, and as a passionate patient advocate. From years of misdiagnosis and the life-changing moment of meeting a supportive lung specialist, to the founding of patient associations and advocating for greater awareness of chronic cough, Muerza shares the emotional and physical challenges she’s faced—and the transformative power of community and perseverance. Listen in as she discusses the ongoing stigma of chronic cough, her hopes for more effective treatments, and the importance of advocacy, education, and support for patients worldwide.

Here are 5 key takeaways from this episode:

1. The Power of Patient Advocacy

Irantzu Muerza shared her personal journey from being underdiagnosed for severe asthma to becoming a leading advocate for patients in Spain. Her story highlights how receiving the right diagnosis and support can empower individuals to help others facing similar challenges.

2. Chronic Cough: More Than Just a Symptom

This episode sheds light on the misconception that chronic cough is simply an asthma symptom. Irantzu Muerza discussed her struggle to get a proper diagnosis and the difference between chronic cough and symptoms of other illnesses, raising awareness about this often-overlooked condition.

3. The Mental and Social Impact of Chronic Cough

The discussion emphasized how living with chronic cough affects more than just physical health—it leads to sleep deprivation, social stigma, and mental health struggles, especially in the post-COVID era where coughing can draw uncomfortable attention.

4. Lack of Effective Treatments and Research Needs

Irantzu Muerza highlighted the current gap in effective, approved treatments for chronic cough, with most solutions being basic home remedies. The episode calls for more research and development of medications to address this debilitating issue.

EP 17 - Asthma Care in 2025: Innovations, Biologics, and Personalized Treatments

Épisode 17

jeudi 30 octobre 2025 • Durée 20:42

Welcome to another episode of the Passion for Patients podcast, hosted by Tonya Winders, President and CEO of GAAP. In this episode, Tonya is joined by Dr. Karen Rance, GAAP’s Chief Medical Officer, to dive into the latest scientific updates on asthma care for 2025 and beyond. Together, they explore the cutting-edge advances shaping asthma management, including personalized treatments, the evolving role of biologics, and the integration of smart technologies like wearables and smart inhalers. They also discuss shifting global guidelines, address the impact of environmental and regional triggers, and highlight the importance of self-management, symptom tracking, and equitable access to care. Whether you’re a patient, caregiver, or healthcare professional, this episode provides practical tips and forward-looking insights to help you live well with asthma today—and tomorrow.

Tune in for an engaging conversation packed with expert advice and the latest updates you need to know!

Here are the top 3 takeaways for anyone in healthcare, advocacy, or living with asthma:

🔹 Personalized & Precise Treatments:We’re moving beyond “one size fits all.” New guidelines are focused on personalized care—identifying treatable traits (like allergies, obesity, and environmental triggers) and matching treatments accordingly. Understanding your personal asthma triggers and working closely with your healthcare team is more important than ever.

🔹 Tech-Enabled Self-Management:From smart inhalers and wearable technology to journaling symptoms, there’s a major push toward empowering patients through technology and self-awareness. Smart (Single Maintenance and Reliever Therapy) approaches are gaining traction for better adherence and outcomes.

🔹 Equity & Access Matter:Access to essential medicines like inhaled corticosteroids and advanced biologics remains a challenge in many regions. Organizations like GAAP are deeply invested in ensuring equitable access to treatments worldwide—because everyone deserves the chance to live well with asthma.

Let’s keep advocating for innovation, access, and empowerment in respiratory health!If you’re interested in the full conversation, catch the Passion for Patients podcast and stay tuned for more scientific updates.

EP 16 - How AI Tools Are Transforming Patient Advocacy: Insights from Tonya Winders and Kristen

Épisode 16

mercredi 15 octobre 2025 • Durée 23:52

Welcome back to the Passion for Patients podcast! In this exciting episode, host Tonya Winders is joined by Kristen, GAAP's VP of Education, to dive into the world of artificial—or as Tonya prefers, "augmented"—intelligence and its game-changing impact on the work they do at the Global Allergy & Airways Patient Platform (GAAP). Together, they unpack the latest AI tools revolutionizing each of GAAP’s four pillars: awareness, education, advocacy, and research. From Canva's Magic Design to Otter's meeting notes and innovative chatbots providing trustworthy, curated answers, Tonya and Kristen share real-life examples and practical tips for making these technologies work for you. Whether you’re a seasoned AI user or just starting to explore, this episode is packed with insights to help you work more efficiently, stay informed, and make a bigger impact—while never losing that all-important human touch. Tune in to discover how to harness the power of AI in your daily workflow as a patient advocate!

Here are the 3-5 key takeaways from this episode;

1. AI Tools Are Revolutionizing Nonprofit Efficiency Across Pillars

The hosts discuss how artificial intelligence—what they prefer to call "augmented intelligence"—is streamlining work in GAP's four key pillars: awareness, education, advocacy, and research. Each area benefits from different AI-powered platforms and tools, such as Canva's Magic Design, project management apps with AI features, chatbots like the asthma bot, and curated research tools.

2. Practical AI Solutions Are Now More Accessible Than Ever

Tools like Canva, Monday.com, Gemini, and Otter.AI have become more intuitive and affordable—or even free at the introductory level—making it much easier for teams and individuals to adopt them for project management, design, travel planning, meeting notes, and more.

3. Quality and Credibility Remain Essential in AI Usage

Tonya and Kristen underscore the importance of not blindly trusting AI output. They recommend using AI for first drafts, always editing and fact-checking before distributing content, and ensuring information is evidence-based and at the proper health literacy level, using platforms like Grammarly and readability tools.

EP 15 - GAAPP 2025 Initiatives: Knowledge Hub and Patient Medication Resources Unveiled

Épisode 15

jeudi 5 juin 2025 • Durée 17:21

Welcome to Passion for Patients! In this episode, host Tonya Winders is joined by Kristen Willard, Vice President of Education at Global Allergy and Airways Patient Platform (GAAPP), to unveil two exciting new initiatives coming in 2025. Tune in as they discuss the launch of the members-only Knowledge Hub, a dedicated space for organizations to connect, collaborate, and easily access valuable resources. Plus, discover the Understanding Your Medications Hub—an accessible public platform designed to empower patients, families, and healthcare providers with up-to-date information and practical tools for managing a wide range of conditions. Don’t miss this insightful conversation on how GAAPP is strengthening its community and supporting better patient outcomes!

Here are three key takeaways every healthcare leader should know:

1. Knowledge Hub for Members: A secure, members-only digital space is coming soon, making it easier than ever for member organizations to find, share, and amplify resources. The searchable library and community forum will enable deeper connections and collaboration across our global network.

2. Understanding Your Medications Hub: This public-facing resource will empower patients, caregivers, and providers with interactive and easy-to-understand materials about diagnosis, treatment options, medication adherence, flare recognition, and so much more—all in one accessible place.

3. Collaborative Learning & Growth: Both hubs are designed to highlight diverse resources from member organizations, foster peer-to-peer support, and continuously evolve based on user feedback. GAAPP’s commitment to collective impact and ongoing education is front and center!

If you want to learn more or take action, please visit https://gaapp.org/ and let’s make a difference together!

Thank you for being part of our growing Passion for Patients family. Stay tuned for more updates and mark your calendars for the big reveal at GAAPP Summit in September!

Thanks for listening to Passion for Patients! Be sure to subscribe, leave a review, and join us next time for more inspiring stories and updates from the world of patient advocacy.

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