On One Condition – Détails, épisodes et analyse

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On One Condition

Sylvain Berthelot

Forme & Santé

Fréquence : 1 épisode/14j. Total Éps: 57

On One Condition is a podcast for anyone who wants to learn about a specific health condition. Hear from people who live with a condition, how it affects them and how they manage it. Sylvain Berthelot has worked in the clinical trial industry for over a decade. He is naturally curious and passionate about how the body functions. Through his interviews, he aims to give fellow human beings a voice, spreading the word about the multitude of medical conditions that affect us.

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Apple

Données mises à jour le 04/07/2026

Classements récents

Dernières positions dans les classements Apple Podcasts et Spotify.

Apple Podcasts

🇫🇷 France - Medicine
27/02/2025
#93
🇫🇷 France - Medicine
26/02/2025
#83
🇫🇷 France - Medicine
25/02/2025
#54

Spotify

Aucun classement récent disponible

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À améliorer

Score global : 48%

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Derniers épisodes publiés

Liste des épisodes récents, avec titres, durées et descriptions.

Episode 57: Jan Steele - Celiac Disease

Épisode 57

mercredi 26 février 2025 • Durée 42:13

Jan was diagnosed with celiac disease at just three years old. She shares her experiences, from childhood challenges to her current work in France, where she runs a gluten-free teaching kitchen. Through the conversation, Jan illustrates how celiac disease is not a limitation but an opportunity to embrace a mindful, health-oriented lifestyle. She offers practical advice, like focusing on whole foods and learning to cook from scratch, while also advocating for better awareness in restaurants and among healthcare professionals. Her positivity shines through her words, offering encouragement to anyone navigating similar journeys.

The song that Jan selected is Where I belong by Kurt Harris.

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Episode 56: Jenny Jones - Familial Adenomatous Polyposis

Épisode 56

mercredi 12 février 2025 • Durée 34:59

Jenny recounts a deeply personal story of struggles, courage and self-discovery, as she looks back on her battle with Familial Adenomatous Polyposis (FAP). A traumatic surgery experience had an extremely negative impact on Jenny's mental health, leading to a childhood marked by medical PTSD and deep depression. Through heartfelt dialogue, Jenny shares her journey of diagnosis, advocacy, and acceptance. She has transformed her struggles into a mission to improve lives through awareness and research.

The song that Jenny selected is Sound of Madness by Shinedown.

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Episode 55: Laura Will - Polymicrogyria

Épisode 55

mercredi 29 janvier 2025 • Durée 38:47

Laura shares her experience as the mother of Alden, a child living with polymicrogyria, a rare brain malformation. With striking honesty, she speaks to the challenges, unexpected joys, and the lessons she's learned about resilience and acceptance. Laura’s narrative illustrates the struggles of parenting a medically complex child, from grappling with sleep deprivation to fighting for appropriate resources in the school system. Yet, through it all, her unwavering love for Alden and her fierce advocacy for his dignity and well-being shine through.

The song Laura chose is What a Wonderful World by Louis Armstrong.

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Episode 54: Joanne Paquette - Ollier's Disease

Épisode 54

mercredi 15 janvier 2025 • Durée 35:14

Ollier's disease has shaped Joanne's life since infancy. Her story is one of resilience, adaptation, and hope, as she recounts the challenges of undergoing numerous surgeries, navigating family dynamics, and finding ways to thrive despite her condition. Our conversation dives into Joanne's work as the founder of RAREsies, her mission to support those with rare diseases, and her advocacy for education and awareness. Through her words, Joanne radiates a spirit of determination and a belief in the power of human connection. As she shares her struggles and triumphs, she offers profound insights into living with a rare disease and how one can turn adversity into strength.

The song that Joanne chose is Love Shack by the B-52's.

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Episode 53: Jocelyn Wong - Morquio Syndrome

Épisode 53

mercredi 1 janvier 2025 • Durée 22:46

Jocelyn shares about living with Morquio Syndrome, a rare skeletal disorder. Her journey started in Hong Kong, where she spent part of her childhood, before moving to the US. Jocelyn reflects on the different approach to medicine between both countries, which partly led her to become a writer and patient advocate. She shares her struggles and triumphs, shedding light on a condition many may not understand. Her candid discussion highlights her resilience, the value of medical advancements, and her hope to inspire others.

The song that Jocelyn chose is Silence is Golden by Leslie Cheung.

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Episode 52: Chris Velona - Batten Disease CLN8

Épisode 52

mercredi 18 décembre 2024 • Durée 37:01

Chris shares the profound journey of raising his son, Sebastian, who has Batten disease CLN8. He reflects on the bittersweet experiences of witnessing Sebastian’s once-vibrant abilities erode under the weight of this rare, degenerative condition. Chris shares his constant search for new therapies that can help reduce the frequency of his son's seizures. We also talk about his fund-raising for clinical research and the lack of appetite from pharmaceutical companies to treat his son's rare condition.

The song that Chris chose is Tiny Dancer by Elton John.

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Episode 51: Andrea Sinclair - Polyglandular Autoimmune Syndrome

Épisode 51

mercredi 4 décembre 2024 • Durée 39:59

Andrea shares her journey with Polyglandular Autoimmune Syndrome (PAS) and its complex challenges. Her story spans a life shaped by resilience and a relentless pursuit of better health outcomes, offering invaluable insights into living with rare, chronic conditions. Andrea speaks candidly about her experience, including her battles with diabetes, adrenal complications, and the transformative impact of receiving islet cell transplants. Her optimism and strength shine as she recounts triumphs over immense challenges.

The song that Andrea chose is Higher Ground by Stevie Wonder.

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Episode 50: Jen Cueva - Pulmonary Hypertension

Épisode 50

mercredi 20 novembre 2024 • Durée 31:54

Jen shares her journey with pulmonary arterial hypertension (PAH), a condition marked by high blood pressure in the lungs, which severely affects her daily life. She recounts her initial symptoms, eventual diagnosis, and the physical and mental challenges that followed. As a former hospice nurse and caregiver, Jen reflects on her transition to patient, detailing the emotional impact of her increasing dependence on others. She is now an advocate for those with PAH and rare diseases, working to raise awareness and connect people to clinical trials and support networks.

The song that Jen selected is The Climb by Miley Cyrus.

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Episode 49: Kerri Mauer - Myasthenia Gravis

Épisode 49

mercredi 6 novembre 2024 • Durée 48:42

Kerri lives with Myasthenia Gravis (MG), a rare autoimmune condition that has turned her life upside down. Through profound reflections, she shares the multifaceted impact of MG on her life, touching on themes of resilience, loss, and gratitude. Kerri describes the strength required to live with an “invisible disability” and the journey to reframe her life around moments of beauty and simplicity. This discussion with Kerri feels like a journey in itself, filled with wisdom and warmth.

The song that Kerri chose is Both Sides Now by Joni Mitchell.

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Episode 48: Daniel DeFabio - Menkes Disease

Épisode 48

mercredi 23 octobre 2024 • Durée 36:37

In this heartfelt episode, Daniel opens up about his journey with his son, Lucas, who was diagnosed with Menkes disease, a rare genetic disorder. Daniel shares the emotional challenges, personal growth, and love that shaped his family's experience. He discusses the need to adjust expectations as a parent, from the small things like waiting nine years for Lucas to grab his finger, to facing the reality that Lucas' life would be short. The podcast touches on the emotional rollercoaster of caring for a child with a life-limiting illness, but also celebrates the joy Lucas brought to their lives. Daniel’s reflections are filled with warmth, sorrow, and lessons learned from his son’s light.

The song that Daniel chose is Starlight by Muse.

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