MND Matters by the MND Association

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https://mndassoc.org/takeovermndpodcast
4 partages
https://als.longitudeprize.org/
2 partages
https://www.mndassociation.org/support-and-information/children-and-young-people/support-families-children-and-young-people
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https://www.youtube.com/c/LifeAfterWheels
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https://youtu.be/p8HaoQaIMGo?feature=shared
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MND Matters Episode 32: Caring for someone with MND

Saison 1 · Épisode 32

jeudi 13 juin 2024 • Durée 23:02

"One of the things we’ve said is - as long as we laugh more times than we cry, we're winning.”

Carers of people with motor neurone disease (MND) often face significant emotional and financial challenges.

In this episode, released during Carers Week 2024, Martyn shares his personal experience as an unpaid carer for his wife Anna, who was diagnosed with MND in May 2023.

As part of our MND Guarantee campaign, we are calling on the next government to do a full review of the support currently available to unpaid carers. Unpaid carers are the backbone of support for people with MND, and the financial support they receive does not reflect the contribution they make. We want this to change.

You can urge your MP candidates to sign the MND Guarantee by taking part in our e-action – it will only take a few minutes.

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MND Matters Episode 31: Tanya Arnold sits down with Tanya Curry

Saison 1 · Épisode 31

jeudi 29 février 2024 • Durée 24:37

Sports journalist and West Yorkshire branch patron Tanya Arnold sits down with Chief Executive Tanya Curry, who recently marked one year in post at the MND Association. I In this episode, Tanya discusses her tenure so far, her passion for supporting people affected by MND and her ambitions for the Association in 2024 and beyond.

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MND Matters Episode 23 (3): Richard's fundraising story #TakeOverMND

Saison 1 · Épisode 23

jeudi 19 janvier 2023 • Durée 18:03

This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for the MND Association and those affected by motor neurone disease. This is all part of our January campaign, #TakeOverMND.

This week we meet Richard. Richard’s dad died of MND in 2013. Since then he has galvanised ‘the MND Army’ - a community of friends, family and colleagues who’ve been tireless in raising funds and awareness in the fight against MND. He shares his ideas, experiences and motivations.

This month we need your help to #TakeOverMND for all those living with MND in the UK. Find a fundraising event for you this month - click here!

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MND Matters Episode 23 (2): Abi's fundraising story #TakeOverMND

Saison 1 · Épisode 23

jeudi 12 janvier 2023 • Durée 14:55

This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for the MND Association and those affected by motor neurone disease. This is all part of our January campaign, #TakeOverMND.

This week we meet Abi. Last year Abi completed the Thames Bridges Ultra Challenge, along with a team of her colleagues and family, to show their support for her dad, who is living with MND*. Abi talks to our host Helen about the trek and why it was such a positive experience.

This month we need your help to #TakeOverMND for all those living with MND in the UK. Find a fundraising event for you this month - click here!

*Sadly, Abi's dad died in March 2023.

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MND Matters Episode 23 (1): Luke's fundraising story #TakeOverMND

Saison 1 · Épisode 23

jeudi 5 janvier 2023 • Durée 22:33

This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for the MND Association and those affected by motor neurone disease. This is all part of our January campaign, #TakeOverMND.

First up is Luke. Our host, Helen, chats with Luke about his fundraising in honour of his mum, who is living with MND. Luke has set himself the incredible challenge of running 5K for a year, running the distance for 365 days straight.

This month we need your help to #TakeOverMND for all those living with MND in the UK. Find a fundraising event for you this month - click here!

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MND Matters Episode 22: Sally Light - Reflecting on 10 years as CEO

Saison 1 · Épisode 22

jeudi 15 décembre 2022 • Durée 32:13

“This has been the job of my life.”

Sally Light, Chief Executive, sat down with host Steph to reflect on ten eventful years leading the MND Association ahead of stepping down from the role at the end of 2022. Your questions have shaped this episode and in answering them, Sally shares some of her proudest moments, her hopes for the future of MND research and her parting words for the MND community.

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MND Matters Episode 21: Kevin Sinfield's Ultra 7 in 7

Saison 1 · Épisode 21

samedi 26 novembre 2022 • Durée 50:46

Seven days. 280 miles. More than £2 million raised.

In this special episode of MND Matters, we went behind the scenes and followed our patron Kevin Sinfield OBE as he ran from Murrayfield, Edinburgh, to Old Trafford, Manchester, to complete his Ultra 7 in 7 challenge.

You’ll hear from members of the MND community about why they felt compelled to come out in their hundreds to support Kevin and his team, and what it means to have someone like Kevin raising awareness and supporting the fight against MND. You’ll also hear an exclusive clip from Kevin himself.

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MND Matters Episode 20: NHS continuing healthcare (CHC)

Saison 1 · Épisode 20

jeudi 27 octobre 2022 • Durée 37:08

NHS Continuing Healthcare (CHC) is a complex subject, one that is often misunderstood, but can be hugely important for those living with motor neurone disease (MND).

In this episode, we speak to Dan Harbour from Beacon CHC to understand CHC, how to access it, and what support is available throughout the process. Dave Setters, who is living with MND, and Marian Ward, who lost her husband to MND, join us for a frank discussion about their personal experience navigating the system, and share some top tips for those going through the NHS CHC assessment process.

For more information and support, click here to access our CHC info sheet or visit the NHS website.

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MND Matters Episode 19: Travelling with MND

Saison 1 · Épisode 19

mardi 27 septembre 2022 • Durée 26:41

In this uplifting episode, Steph is joined by Ken Blackburn, who is living with MND, and Antonia Lee-Bapty. Ken films what he gets up to in his all-terrain wheelchair for his Life after wheels vlog. Antonia is Managing Director at Euan’s Guide, the disabled access charity.

Ken and Antonia share how MND can make getting out and about more difficult, plus their top tips for accessible days out. Ken uses a communication aid and pre-programmed his answers ahead of the podcast recording.

More information about travelling with MND can be found in our free guide Getting around. Our MND Connect team can support with queries about accessible travel plus our support grants that can help financially towards equipment or trips away, and our online forum is a place to share travel tips and reviews. Check out Ken’s Life after wheels vlog on YouTube and the Euan’s Guide website: www.euansguide.com.

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MND Matters Episode 18: Your signature is more powerful than you think

Saison 1 · Épisode 18

jeudi 1 septembre 2022 • Durée 30:49

In this thought-provoking episode, Helen is joined by MND researchers; Professor Majid Hafezparast, Dr Greig Joilin, Libby Moody and MND Association Branch volunteer, Hetty Smith. They all share the importance of gifts in Wills and the difference they have made to their work in research and care.

Debbie Hyslop, Legacy Marketing Officer at the MND Association, also joins us to explain what gifts in Wills are, dispel the myths around these gifts and shares how you can write your Will for free with the MND Association.

More information about gifts in Wills, our free Will-writing services, and our legacy events can be found on our website. You can also contact our Legacies Team by phone 01604 611 799 or email us at legacies@mndassociation.org.

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MND Matters by the MND Association – Détails, épisodes et analyse

Détails du podcast

Classements récents

Apple Podcasts

Spotify

Liens partagés entre épisodes et podcasts

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Podcasts Similaires Basées sur le Contenu

Podcasts Similaires Basées sur le Contenu

Apple Podcasts

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MND Matters by the MND Association – Détails, épisodes et analyse

Détails du podcast

Classements récents

Apple Podcasts

Spotify

Liens partagés entre épisodes et podcasts

Other38

Youtube2

Qualité et score du flux RSS

Historique des publications

Derniers épisodes publiés

Podcasts et contenus similaires

Podcasts Similaires Basées sur le Contenu

Podcasts Similaires Basées sur le Contenu

Other38

Youtube2

Apple Podcasts

Spotify