Teona Ducre is a pancreatic cancer survivor who uses her personal journey to raise awareness about the disease, particularly within the Black community. Diagnosed in 2016, she empowers individuals to advocate for themselves and emphasizes the importance of early detection. As a member of PanCAN’s Survivor Council Alumni, she promotes genetic and biomarker testing to improve treatment outcomes and assess familial risk, appearing in public service campaigns to amplify her mission.

In celebration of National Survivor Month this episode is dedicated to Survivor Kay Kays who was diagnosed in 1994

Nourishing Wellness: Eating Healthy on the Cancer Journey with Nutritional Therapy and Breathwork Facilitator Andrea O'Donnell

 

Amy Reiss, Director of Patient Programs with the Hirshberg Foundation for Pancreatic Cancer Research joined Living Hope to talk about the 18th Annual Hirshberg Symposium taking place on April 13 at UCLA Luskin Conference Center.  Symposium topics include the latest in pancreatic cancer care, genetic testing, enzyme research, just to name a few.  There’s also a chance to ask questions of the experts and connect with survivors.  You can attend in person or virtually, go to pancreatic.org to register.

This episode is dedicated to Survivors Julie Lopp and Tom Arai

 

Thom Mrozek, a 12-year survivor of pancreatic cancer, diagnosed on the unique day of Leap Day. Thom's diagnosis day has become symbolic of his extraordinary journey—rare, remarkable, and filled with unexpected turns. As he celebrates each leap year, he also marks another year of survival, another year of making a difference, and another year of cherishing the gift of time. His story is a profound testament to resilience, courage, and the unwavering human spirit. 

This episode is dedicated to Tom Gregory and his wife Debbie. 

In this episode of Living Hope, we welcome Mike Greenstein, a committed advocate in the battle against pancreatic cancer, driven by his experience as a caregiver for his sister Jackie. Mike combines his business expertise with deep compassion in his work at Let's Win! Pancreatic Cancer, aiming to strengthen the network of support for patients and their families. He delves into the caregiver's view on recognizing a patient's struggles and discusses ways to assist his sister within this reality. Additionally, Mike highlights the vital role that coaches play in guiding families through the pancreatic cancer journey. Tune in for a heartfelt discussion on empathy, assistance, and united efforts towards hope.

"As long as you speak my name, I shall live forever" is dedicated to Jaclyn Hope Greenstein. Jackie is remembered for her spirit and profound love for her family and friends, she was the embodiment of courage. Facing her fears with unwavering bravery.  Her legacy of inspiration continues to touch lives daily.

 

 

 

 

Pamela Acosta Marquardt and Julie Fleshman have both been profoundly impacted by the loss of their parents to pancreatic cancer, which fueled their dedication to creating change. In 1996, Pam faced the loss of her mother after a six-month struggle with the disease. Confronted by the lack of resources and support for pancreatic cancer, she was driven to take action, ensuring that individuals and families affected by this illness would have access to vital information, resources, and hope. Similarly, Julie's journey at PanCAN was ignited by personal tragedy when she lost her father just four months following his diagnosis at the age of 52. Dissatisfied with the inadequate treatment options available, Julie has spent over two decades as a leader and a global catalyst for change, fighting for better outcomes for those facing pancreatic cancer. Together, their personal experiences have not only shaped their leadership at PanCAN but also exemplified their unwavering commitment to the cause.

While facts are critical to understanding and treating the disease, feelings are equally important in shaping the patient's experience and approach to care. The podcast serves as a reminder that in the face of a challenging diagnosis, the fusion of facts and feelings guides not just survival, but the quality of life.

Dr. Jose Trevino serves multifaceted roles one as the Surgeon-in-Chief at Virginia Commonwealth University Massey Cancer Center. He is dedicated to not only providing patient care and education but also contributing to the field of pancreatic cancer research.  Developing novel therapies and advancing research in health disparities related to pancreatic cancer are crucial efforts that can have a significant impact on improving outcomes for patients.  Clinical trials play a crucial role in advancing medical research and improving healthcare outcomes. We had a honest in depth talk with Dr. Trevino about the world of clinical trials.  

"I wanted to be the that person that was going to tackle the the biggest obstacles and you can't get a bigger obstacle than pancreatic cancer." Dr Trevino

"As long as you speak my name I shall live forever" is dedicated to Shana Stein and the others who have participated in a clinical trial with our deepest appreciation.

 

Sarah Banks from Hirshberg Foundation joins us to discuss her own mother's journey with Pancreatic Cancer.  Sarah Banks' personal connection to pancreatic cancer through her mother's journey likely provides a deeply heartfelt and insightful perspective. Her experience may offer a unique blend of personal and professional insights into the challenges faced by both patients and their families when dealing with this disease.

Jay shares his personal journey with pancreatic cancer. Such openness can be incredibly impactful for others facing similar challenges, offering them insight, guidance, and hope.

Thom Mrozek's decade-long battle with pancreatic cancer is a testament to resilience and determination in the face of a challenging illness. Such a journey likely involved numerous highs and lows, requiring immense strength and perseverance.

Dr. Lighter Chen's exploration of acupressure and its potential to facilitate the body's natural healing process by balancing energy flow aligns with traditional Chinese medicine principles. Acupressure is believed to stimulate specific points on the body to alleviate pain, enhance relaxation, and promote overall wellness by addressing imbalances in the body's energy pathways.

Dr. Diane Simeone, a leader in the field of pancreatic cancer research currently serves as the Director of the Moores Cancer Center at UC San Diego Health. Dr. Simeone founded (PRECEDE) the Pancreatic Cancer Early Detection Consortium. Dr Simeone shares her insights into the challenges and advancements in combating one of the toughest forms of cancer. 

#PRECEDEConsortium #CancerBreakthroughs #DrDianeSimeone

#PancreaticCancer #CancerResearch #EarlyDetection #MooresCancerCenter

Thom Mrozek's willingness to share his experience with the Whipple Procedure offers invaluable insight into a significant aspect of pancreatic cancer treatment. The procedure is known for its complexity and challenges, and hearing firsthand from someone who has undergone it can provide a unique perspective. Thom's journey and his insights could help demystify the procedure for others facing similar decisions and offer them a sense of what to expect in terms of recovery and adapting to post-operative life. What specific aspects of his experience did Thom find most challenging, and what advice does he have for individuals preparing for or recovering from the Whipple Procedure?

Diagnosed in June 2021, Mike Kratzer is an incredibly resilient individual. Facing pancreatic cancer with positivity can be a tremendous challenge, but it also speaks volumes about his strength and mindset. Maintaining such a positive attitude during a difficult journey like this can inspire and uplift not only himself but also those around him. How did he find the strength to stay positive, and what advice does he have for others facing similar challenges?

Losing someone can make the holiday season incredibly tough. It's okay to feel sad during these times. Finding ways to honor and keep the memories of our loved ones alive by sharing stories about them can be a beautiful way to keep their spirit alive during the holidays and help us through the grieving process. Guest Stephannie Ruvalcaba Ho shared some ways to remember our loved ones only on OC Talk Radio livestreamed from @UCI Beall Applied Innovation Center.

Not everyone is up to the Holiday cheer, this episode is dedicated to St James in Newport Beach “Annual Blue Christmas” service on Thursday, December 21 at 7pm “to pray, meditate and console your heart.” For information please email info@stjamesnewport.org

Andrea O'Donnell is a certified Nutritional Therapy Practitioner and owner of Rising Roots Nutrition. She started her business after years of struggling with her own health issues.  She went to the doctors but felt she was not being heard or supported by doctors. Wanting to bring her daughter into a healthier lifestyle and wanting to help others after her mother's diagnosis of pancreatic cancer, Andrea started her company.  You can contact Andrea at  andrea@risingrootsnutrition.com

"I was determined not to let cancer control my life.” Laurie MacCaskill a Professional Speaker, Motivator, Patient Advocate, Cancer Life Coach and a 17-year pancreatic cancer survivor shares her journey and some invaluable tools she developed to help in her fight with the world’s toughest cancer.

Why volunteer for a cancer that has such a dismal outcome? Bringing awareness being around people that you share something in common with helped her to heal having a voice helped her to feel empowered. 

Stephannie was the Caregiver for her Grandmother in the non tradional sense.  She would visit her, read to her, dance for her or just hold her hand and talk with her.

Stephannie's favorite event is PurpleStride, this year she had a different role, she was able to speak with people attending and was able to share her story and hear their story.  In talking to people they expressed they felt hope, felt love and gratiful to have so many people there fighting for a cure.

Stephannie feels volunteering with this group is rewarding in itself.  Being a part of something that is giving back to people. The deep friendships you make with the people you volunteer with is rewarding.  

"As long as you speak my name, I shall live forever." Is dedicated to my dad, Bill Whitson "Gramps" who died on June 1, 1998 - 25 years ago.

Amy Reiss, the Patient and Family Support Coordinator from the Hirshberg Foundation previewed their 17th Annual Symposium on Pancreatic Cancer (in collaboration with the UCLA Hirshberg Center for Pancreatic Diseases) that was held at UCLA's Luskin Conference Center March 11, 2023.

Watch the 17th Annual Symposium https://youtu.be/OgMZ-TqgrCc

SAVE THE DATE: The 18th Annual Symposium on Pancreatic Cancer is on Saturday, April 13!  Registration opens in January 2024

When a guest is unable to come, as sorry as we are, that gives Paul and I the opportunity to talk and do a little catch up.  We covered a large range of topics like the Hirshberg Symposium, Taking a Leap of Faith, PanCAN's PurpleStride OC, November Awareness, is COVID still affecting the pancreatic cancer community, mask vs no mask.

 

 

 

 

We learned about clinical trials and their importance with Fatima Zelada-Arenas. Fatima is the Director of Patient Services Research and Education at the Pancreatic Cancer Action Network (PanCAN). She works directly with pancreatic cancer patients and caregivers providing resources and information. Fatima has a special interest in patient advocacy, research, and mental health.  We talked about clinical trials and their importance.    You can learn more "Pancreatic Cancer Clinical Trials:  What You Need to Know" https://youtu.be/rf9A1dErCsw

Sisters, Allison and Erica start a non profit organization to honor their mother and continue her legacy.  Miracle for Melanie continues the Legacy that their mother started many years ago and continued during her fight with pancreatic cancer. 

For more information please visit the website www.miracle4melanie.org

"As long as you speak my name, I shall live forever," is dedicated to Melanie Darvin Stridler and to our Nation's Heroes she dedicated her life to.

 

 

 

 

 

 

 

 

Erica’s way of navigating her own grief by trying to make an impact or a difference

in the lives of others.

 

During the month of June, OC Talk Radio's program "Living Hope: Your Journey with Pancreatic Cancer" acknowledges the hardships that survivors endure and celebrates their strength and resilience. Meet our featured survivor Charles Czajkowski, a remarkable six-year pancreatic cancer survivor who lost his mother to the same disease 25 years ago. Diagnosed early, Charles underwent a robotic Whipple surgery and extensive chemotherapy. Charles lives by the mantra "Carpe Diem." Join us to hear his inspiring story of resilience, advocacy, and a zest for life.

 

Jennifer Garrepy, Reiki Master, advanced studies in Healing Touch, and one of fewer than 100 Certified Healing Touch for Animals Practitioners worldwide. We chatted about how and why she was called to the healing arts, what to expect, how to prepare as well as my experience with a Healing Touch session.  After my session I felt more relaxed than I had in a long time, a calmness.  

For more information on Reiki/Healing Touch or to schedule an appointment please go to garrepy.com

Let's Win launched in 2016 with a goal of breaking down the barriers between the doctors, the patients and the researchers so that everyone diagnosed with pancreatic cancer has easy access to the latest information about the best treatment options.   Join us as we talk about the growth of Survivor stories, importance of clinical trials and genetic testing.  Let's Win platform educates patients and guides them to get to treatments and to clinical trials and information in lawmans terms.   "As long as you speak my name, I shall live forever," today's episode of Living Hope is dedicated to Anne Glauber  

Jenny Isaacson, Vice President of Stewardship & Partnerships at the Pancreatic Cancer Action Network, is responsible for the overall management and direction of the organization’s stewardship efforts. She also oversees strategic partnerships including the World Pancreatic Cancer Coalition, that came together in 2013 to discuss working together to raise global pancreatic cancer awareness and work collaboratively to support each other's efforts.  The group consists of more than 90 pancreatic cancer organizations in over 30 countries working to raise awareness and rewrite history for the world’s toughest cancer. 

"As long as you speak my name I shall live forever" is dedicated to Sandra Mack, a ten year pc survivor who died in September 2022

 

Tom, away from home, gets a call on his 65 birthday from his Dr, not wishing him a happy birthday but instead telling him she needed to see you as soon as possible.

Tom, very active and an enthusiast bike rider is diagnosed with stage 4 pancreatic cancer.  Tom was not a candidate for surgery but went on a clinical trial.  Treatment went on for 15 months after which Tom received good news - he was "NED" - no evidence of disease.  Tom started an oral chemo and continues to take it today.  We talk about the importance of clinical trials, how he has been able to return to a "normal" way of life, he continues to ride his bike, play golf and enjoy life.  Tom continued to be as active as possible during treatment and found this was a way to help him through his treatment and the anxiety that goes along with treatment.  Tom shares his inspiration journey and how he continues to help others through their treatment and journey by hosting a support group through Zoom, every Friday 9am -10:30am PT - to join this support group or for more information regarding group please email Tom at ta20390@yahoo.com

"As long as you speak my name, I shall live forever."  This episode of Living Hope is dedicated to Susan Stueber.  When the pandemic hit Susan wanted to provide a weekly support group to help patients/survivors and caregivers.  She formed a group through Zoom and asked Tom to help her co-host the group which Tom has continued to do since Susan's death on September 29, 2022 her 70th birthday.

"As long as you speak my name, I shall live forever," is dedicated to Susan Stueber who in response to the pandemic wanted to offer a safe place for other pancreatic cancer patients/survivors and their Caregivers to turn.  To join the Friday morning support group please reach out to Tom at ta20390@yahoo.com

"It's not what you know but who you know," was certainly true for 10-year pancreatic survivor Thom Mrozek.  Thom wasn't sure how public he wanted to be about his diagnosis, but when his daughter, who at that time attended an episcopal school asked at Chapel "can we pray for my dad?" her request started the ball rolling.   Thom woke up one morning with a recurring pain that went on for a few days.  The pain became worse, and he took himself to urgent care.  The location of his pain caused the urgent care Dr to check his heart.  His heart looked good, and the Dr felt it was a stomach problem probably an ulcer or acid reflux. He was given some medicine and told to follow up with his Primary Care doctor.  Thom went to his internist who ordered a series of tests.  Thom, standing in front of his office received a phone call from his Dr "Thom it's your pancreas, stop eating!" that comment lead to a "six-week testing treadmill."   Thom shares his inspirational journey and how a prayer request led to a community of support for Thom and his family.   "As long as you speak my name, I shall live forever." This episode is dedicated to Lupe Romero                  

Melissa knew at a very young age that she wanted to help those with cancer.  Initially she wanted to be an oncologist.  A professor took her aside and told her "you have a gift in you as a teacher, educator, researcher, you don't you consider this as a career?" 

Melissa Rowland-Goldsmith, affectionally referred to as Dr RG by her students took that advice and is the Associate Professor of Biological Sciences and Biochemistry and Molecular biology and Co-Director, Center for Excellence in Teaching and Learning at Chapman University.  We welcome Melissa back to learn about her unique teaching program for future physicians and researchers. 

 

"As long as you speak my name I shall live forever" is dedicated to Sandra Mack

Reflecting back over 25 years with Hirshberg Founder Agi Hirshberg and her daughter Lisa Manheim, Executive Director.  Hirshberg Foundation got its start more than 25 years ago when Ron Hirshberg was diagnosed with pancreatic cancer.  Ron and Agi decided they were going to beat this disease together and live a long life, sadly six months later Ron died.  They had made a promise together to find a cure, it was only natural that Agi would continue after Ron's death.  We chat about how Hirshberg started with only two doctors, the importance of the "Five Pillars," the labs Hirshberg has funded, how five universities in the UC system collaborate together.

"As long as you speak my name I shall live forever" is dedicated to Ron Hirshbert

 

 

Sarah Banks is the Development Manager for the Hirshberg Foundation for Pancreatic Cancer Research.  The 25th annual LA CANCER CHALLENGE was a walk/run benefitting the Hirschberg Foundation and their ongoing work battling Pancreatic Cancer.  LACC was held on Sunday, October 23rd, on the beautiful campus of UCLA, where much of the foundation’s research is conducted.  LACC is an annual Halloween-themed event benefiting pancreatic cancer research and includes a Fit Family Expo, activity tents, Candyland Kids Zone, Kids costume contest and so more!

#LACC #UCLA #pancreaticcancerawareness

 

Ben Franklin has been quoted as saying “In this world nothing can be said to be certain except Death and taxes” Death is a harsh reality that none of us wants to think about or deal with regardless of our health. Death is part of life and planning your estate can give you peace of mind that your wishes will be met, and your loved ones are taken care of.  

Allison Lee is a Trust and Estate Planning Attorney and the Associate General Counsel for Free Will.  Allison, whose career was helping others plan their estate now suddenly found it deeply personal.  She was shocked to learn that her otherwise healthy mother was diagnosed with pancreatic cancer. Allison shares her journey and the importance of estate planning.

Taking care of your Estate Planning will make things go smoothly.  Not having a plan in place your Estate could end up in Court and state law is going to govern where your assets go.  As hard as this can be the best thing we can do for our loved ones and ourselves is to have our arrangements in place.  This episode is not meant to take away hope but more to offer resources.  If you'd like more information, please contact Free Will at F-R-E-E-W-I-L-L-D-O-T-C-O-M   "As long as you speak my name, I shall live forever" - today's episode is dedicated to Melanie Darvin Stratler.

This episode features Dr. Allison Ocean discussing the critical aspects of pancreatic cancer, emphasizing the importance of awareness, early detection, and advancements in treatment. It covers the pancreas's function, challenges in diagnosing pancreatic cancer early, and key symptoms like back pain and jaundice. Dr. Ocean explains the two main types of pancreatic cancer—adenocarcinoma and neuroendocrine tumors—and their impact on treatment. The episode explores current treatment options, including chemotherapy, radiation, and immunotherapy, while highlighting the role of precision medicine. Risk factors such as family history, diabetes, smoking, and genetic mutations are discussed, along with the growing research and advocacy efforts aimed at improving patient outcomes and support through organizations like Let’s Win Pancreatic Cancer.

 

June is National Cancer Survivor Month, a time dedicated to honoring cancer survivors, offering hope to those newly diagnosed, supporting their families, and engaging the community. During the month of June, OC Talk Radio's program "Living Hope: Your Journey with Pancreatic Cancer" acknowledges the hardships that survivors endure and celebrates their strength and resilience. Meet our featured survivor Camille Moses a dedicated patient advocate in the fight against pancreatic cancer. Camille tirelessly raises awareness and provides support for those battling this disease. Her commitment and contributions are invaluable in the battle against cancer. Join us to hear Camille's inspiring journey and her relentless efforts to make a difference. 

 

Dr Kim joined us to talk about the use of the ViewRay MRIdian for treatment of pancreatic cancer at Hoag Hospital.  Dr Kim explains that the tumor needs to be hit with high energy x-ray beams.  To be able to hit the tumor you need to be able to see the tumor.  It's that simple. 

This is the only machine that uses MRI imaging to visualize the tumor. Tumors move with each breath and this machine allows the tracking of the tumor in real time allowing them to be precise in delivering treatment.

This episode of Living Hope is dedicated to the donors of the View Ray MRIdian Dean and Gerda Koontz

#DeanandGerdaKoontz #PancreaticCancer #Hoag Health

See the ViewRay MRIdian https://youtu.be/RRx8kd0vaXw

 

 

Susie Lemieux was the Caregiver for her husband, Peter.  Peter survived 11 months before his death.  Six months after losing her husband, Susie was diagnosed with pancreatic cancer. People came to her and asked how did she get it, was it contagoius? Susie had nothing to compare it with and assumed in a year she would also be dead.  

Susie moved back to California with her daughter, Natascha.  Natascha became her Caregiver and was very supportive and involved in her healing journey.  Susie decided to take a little different route for her healing.  Susie shares her unique journey from Caregiver to Patient/Survivor and Natascha shares her journey as Caregiver for her mom.  Hear their inspirational journey.

"As long as you speak my name, I shall live forever." This episode is dedicated to Susie's husband, Peter Lemieux.

Christina Parrish, is a 14 year "Sur-Thriver" of Stage 4 Pancreatic Cancer.  Christina describes herself as sur-thriver because she strives to thrive everyday.  "It's important to realize that you are surviving everyday no matter the struggles."  Christina is the Founder of The Purple Iris Foundation.  Their mission is to raise awareness, provide support, and give hope to indivduals and families affected by cancer, in Maine.  Christina was in great shape and exercised regularly. She will share her journey with us and how her workout on a Pilates ball sent her to the doctor.

If you or anyone you know is in Maine you can contact The Purple Iris Foundation 

• https://www.purpleirisfoundation.com/
• purpleirisfoundation@gmail.com
• PHONE: 207-579-1969

"As long as you say my name, I shall live forever." This episode of Living Hope is dedicated to Peggy Kessler.  Peggy was diagnosed in 2001 and died in 2018.  Chris and I had the honor of meeting Peggy.  Peggy was a great inspiration not only to us but those she came in contact with.

 

A quote from Hamlet is how Kitty felt when getting her diagnosis of pancreatic cancer.  Kitty was going through a difficult time dealing with her father's illness, a friend in the hospital, so much going on at one time.  It felt like the whole army was marching down on her.  How does someone diagnosed with pancreatic cancer feel like they are the luckist person in the world?  Kitty is very open in sharing her journey with us.  Kitty shares advice given to her husband from her Dr "Your wife is not a statistic, she is a person."  As well as her own advice, "Dont' lose hope, don't lose hope, be here while you're here."

"As long as you speak my name, I shall live forever." This episode is dedicated to Charlotte Rae, a great inspiration and the woman who introduced us.  We love you Charlotte!

Kitty Swink is an actress, activist, artistic director and a two time cancer survivor. She thought when at 39 she survived Breast Cancer she was done. Not so fast. 12 1/2 years ago at 49, she was diagnosed with Stage 2 Pancreatic Cancer, had a Whipple Procedure, chemo, radiation and more chemo and now at 62 she still shows no signs of disease. Grateful to be healthy and working at her craft she devotes a lot of time to helping others diagnosed with Pancreatic Cancer move forward with their lives. It has blessed her with many great friends, not the least of which is her adopted mom, Charlotte Rae. Her career began in commercials, regional theatre and off Broadway. She moved to California with husband of the year, every year, actor Armin Shimerman. She has appeared on dozens of television shows starting from It's Garry Shandling's Show and Designing Women, through Star Trek DS9 and Law and Order, on through The Fosters. She currently has two films on the Festival circuit, Penumbra and Diani and Devine Meet the Apocalypse. She is Associate Artistic Director of the award winning Antaeus Theatre Company. She has been nominated for Ovation, LA Drama Critic and Broadway World Awards and she has received an Independent Series Award, multiple Scenie Awards and an LA Drama Critics Award.  She is a former National VP of Screen Actors Guild.

Eleven people out of one hundred will be alive five years after their pancreatic cancer diagnosis. The five-year survival rate for pancreatic cancer patients has increased recently from a single digit number to 11%. Tori Larrick, Patient Services Manager ll with the Pancreatic Cancer Action Network recently shared with us why early detection and better treatment options are some of the reasons why we are seeing this increase.

This episode of Living Hope is dedicated to PanCAN's Survivor Council and Survivor Council Alumni. The Survivor Council was formed to represent the voice of survivors and they are committed to ensuring that the survivor perspective is integrated into all that PanCAN does.

 

Ken Parme, a husband, father, grandfather a man with many talents when asked how he wants to be remembered he replied very simply "as a kind man." Ken is a very kind, friendly, talented man who I've had the pleasure of knowing for a number of years.  It wasn't until he shared his journey with us that I realized how much we had in common in regards to our diagnosis.  In December 2012 Ken was diagnosed with an inoperable tumor.  The tumor was wrapped around his veins, and lying against his aorta.

Ken took good care of himself, ate right and was active. He was a power walker and one day on a walk with his wife Rebecca, he couldn’t keep up with her. Rebecca insisted he go see his doctor. Tests were done and Ken was told he was a diabetic and started on insulin immediately. After starting insulin, Ken still felt lousy, so his wife made an appointment with an endocrinologist. Ken, shares his journey starting with his diagnosis of an inoperable pancreatic cancer tumor, his treatment with chemotherapy, the use of the new Cyber-Knife, his eight years "stable status" and a book he and his wife wrote together. Ken and Rebecca Parme wrote a book “In The Gaze of The Divine, Life with Pancreatic Cancer.” from the patient/survivor and caregiver point of view. Available on Amazon.  Ken has also written a children's book available on Amazon “The Adventures of Madde Mckinsey

This episode of Living Hope is dedicated to Ken's wonderful, wife and Caregiver, Rebecca. We want to leave you with a quote from their book, “May we all get to the place where we can accept -let go- and focus on the blessing of the day.”

Paul and I sat down and had a chat about the ways in which COVID has complicated people's battle with pancreatic cancer.  The affects it had on the patient and their families. Being back in person at PurpleStride, how having a positive outlook can get you through the difficult times.  What we hope for the future of Living Hope and more!

#PurpleStrideOC #PurpleStride #PancreaticCancer #COVID

 

Laurie Paolone went to lunch with friends.  Later when she wasn't feeling well she thought she had food poisoning.  When the symptoms became worse she went to the Dr and was treated for an ulcer. It wasn't until someone noticed she was jaundice (yellowing of skin/eyes) that she was told to go to the ER immediately and learned she had pancreatic cancer.   The first thing Laurie thought of was "oh my God, I can't have my parents bury me."  Laurie shares her inspirational journey through the roller coaster ride of diagnosis, the Whipple, chemotherapy, radiation, being cancer free to reoccurrences, only OC Talk Radio, Orange County’s only community radio station, live streamed from UCI Beall Applied Innovation Center at the Cove.

 

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This episode of Living Hope is a continuation of a pervious conversation about being a Caregiver with Stephanie Ruvalcaba Ho. What is a Caregiver? If you provide help to another person in need, you are a caregiver. Caregivers can be professional - hired through an agency or a family member stepping up.  Caregivers come in all different types - the one who takes care of all the medical needs, runs errands, meals, personal needs.  There is a lot to being a Caregiver, many challenges, roll coaster of emotions. Even with all these feelings there are some good things that can come out of this difficult situation. Listen as we have a very open and honest discussion here only on OC Talk Radio, Orange County's only community radio station streaming live from UC I Beall Applied Innovation at the Cove.

This episode of Living Hope is dedicated to all Caregivers and thank them for their care, support and love during our journey.  I’d like to end with a quote from Former First Lady, Rosalynn Carter: “There are only four kinds of people in this world: those who have been caregivers, those who are currently caregivers, those who will be caregivers and those who will need caregivers. Caregiving is universal.”

I can't believe a year has come and gone! Who knew, for me the first episode I would go from "Executive Producer," to actually becoming the host.  Looking back through our first year, so many amazing journeys, each one left me with wanting to learn more.  We shared so many emotions, laughter and tears but each one filled with love. Many of the journey's may not have had the outcome we hoped for but we still found something positive, some strength we could take from every journey.  Join us on our weekly journey as we provide hope here only on OC Talk Radio Orange County's only radio station live streaming from our station here at UCI Beall Innovation Center at the Cove

For Patient Services please contact the Pancreatic Cancer Action Network at

877-PAN 2-CAN

Share your journey by contacting us at octalkradio.net or paul@octalkradio.net

https://www.facebook.com/LivingHope2055

or email livinghopepc@outlook.com

Check out the Hirshberg Foundation for Pancreatic Cancer Research https://pancreatic.org/ for the recording of the 16th Annual Symposium that took place on April 23, 2022

June is National Cancer Survivor Month, a time dedicated to honoring cancer survivors, offering hope to those newly diagnosed, supporting their families, and engaging the community. During the month of June, OC Talk Radio's program "Living Hope: Your Journey with Pancreatic Cancer" acknowledges the hardships that survivors endure and celebrates their strength and resilience. Our first featured survivor is Robert Panacci.

"From the very beginning of this unwanted journey, I have believed that not only could I survive this, but that I had to because I wasn’t ready to accept any other alternative.” Robert Panacci

What is the pancreas, where is it and what does it do? Can you live without your pancreas? What do you do after getting a pancreatic cancer diagnoses? Hear the answers to these questions and others, only on OC Talk Radio, Orange County's only community radio station live streamed from UCI Beall Applied Innovation Center at the Cove.

A family friend gave 14 year old Tori a purple journey to help her cope with her feelings after learning her father had been diagnosed with pancreatic cancer.  Ironically at that time neither realized purple is the awareness color for pancreatic cancer.  Tori felt her journal offered her a safe place to write about her journey and also used this journal not only to write about her feelings but to also keep track of her dads symptoms, treatments, medications, test results, anything to do with his journey.  Hear how this teenage girl helped co-facilitate a support group for other teenagers who had lost their parent and how her experience led her to where she is today.  Only on OC Talk Radio, Orange County's only community radio station live streamed from UCI Beall Applied Innovation Center.  

PS We're Back!  PanCAN Orange County Affiliate JB Jaso, joins us and we talk about PurpleStride Orange County!  Last time we had an in person PurpleStride was in 2019.  We're so excited to be back!  We talk about the route, the new way to do the Path of Heroes and how you can get involved!

This episode of Living Hope is dedicated to all those who helped put Orange County PurpleStride together:  JB, Vic Luna, Rosa and Juan Velasco, Ross Swartz, Rick Pinson, Colleen LaSalle, Madison, Julia, Silvia, Stephannie, Angels staff, Media sponsor OC Talk Radio, Paul Roberts, Le Grand Marketing, Sprouts

JB surprised me with a dedication to my 20th year survivor-versary!

In this episode of Living Hope we continue our conversation we started on March 24.  What to do when a loved one dies?  This is a subject no one wants to talk about but at some point it's information that can be helpful.  If we can all set down and talk about what we want when we die it would be so helpful for those left behind.  What is a  Advanced Health Care Directive? Is one needed?  Who needs to be notified? What kind of service should we have?  Would a check list be beneficial? These are some of the topics we talked about. It can be a heavy subject but we did have some laughs along the way.  

"As long as you speak my name, I shall live forever"

This episode is dedicated to Lupe Romero, "Inhale life to the fullest"