Life in the Void - Whitney Dafoe

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https://www.whitneydafoe.com/mecfs
26 partages
https://www.whitneydafoe.com/mecfs/whatismecfs
26 partages
https://www.whitneydafoe.com/mecfs/mystory
26 partages

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Chocolate Fix!

Saison 2 · Épisode 9

jeudi 17 avril 2025 • Durée 04:46

Chocolate, no joke, makes me feel better than all of my huge box of supplements combined. That is, in the short term. In other words, the meds and supplements I’m taking are I’m *sure* helping me more than chocolate in a more long term sense, but chocolate…

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Cutting 99.7% Out Of Your Life

Saison 2 · Épisode 8

jeudi 27 mars 2025 • Durée 01:54

I often say this to healthy muggles: Close your eyes and picture all of the things you do in your life…Now imagine removing 99.7% of those things…

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My New Print Store!

Saison 2 · Épisode 7

lundi 10 mars 2025 • Durée 02:47

I want to announce my new Print Store!

I have been working on putting this store together for 2 years now…The images were all taken before I became severe with ME/CFS in 2013…So it is a sort of parallel dimension time capsule of what could have been with my life. I want to share these images and possibly prints of these images with all of you! ❤️

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The Forever Night Of ME/CFS

Saison 2 · Épisode 6

mardi 4 mars 2025 • Durée 02:10

Memories tearing like tissue paper,
Of all the dreams,
I thought might be made real,
Tearing into pieces so small,
They float away,
Into the forever night of ME/CFS…

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I Started Eating Food Again in 2024...What Will 2025 Bring?

Saison 2 · Épisode 5

lundi 17 février 2025 • Durée 10:04

I started eating real food again in 2024!...I have now stopped the Peptamen food formula completely, and get all my calories from real food!...It has come time that I feel stable enough with this new change that I feel comfortable telling you all. And I want to tell you because I want you to hear this story!

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The 2025 ME/CFS Valentine's Day Challenge!

Saison 2 · Épisode 4

vendredi 14 février 2025 • Durée 02:31

Will you take the 2025 ME/CFS Valentine’s Day Challenge and reach out to 2 people you love and tell them you love them and why? …You will make their day. And if we all do this, it will have a ripple effect and reach through the ME/CFS community and none of us will feel alone or unloved today.

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Letter to my Fingernails from my Nervous System

Saison 2 · Épisode 3

lundi 10 février 2025 • Durée 01:38

Psssst! Hey fingernails!
Didn’t you get the memo? What are you doing growing so fast like that, not to mention those perfect cuticles! We are in total body shut down mode here, you’re not supposed to be doing anything right.

[Trigger Warning: This post is a joke]

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The Blackhole of ME/CFS Medical Care

Saison 2 · Épisode 2

lundi 20 janvier 2025 • Durée 03:25

My bloodwork never matches how I feel. Treatments don't work or make me worse. I am constantly dumping energy into seeking new treatments that likely won't work. This system has failed us...

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Ron Davis's message of hope for 2025 and plea for help

Saison 2 · Épisode 1

mercredi 15 janvier 2025 • Durée 03:13

I think of you all every day as I work to untangle the complex molecular basis of this horrific disease…I am very optimistic that soon the major mechanisms that initiate the disease will be found. This will allow a concerted effort to reverse the process and find a cure…

Link to Fundraiser

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Chronically Sick Holidays

Saison 1 · Épisode 17

mardi 24 décembre 2024 • Durée 03:16

Whatever you’re celebrating this holiday season, so many of us will be lonely…It’s important when we have lost something to not just focus on what we have lost, but also remember what we still have. This is the way we can survive anything.

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