In our first LIVE episode, renowned broadcaster, Edith Bowman hosts a powerful panel discussion with Netflix and Hollyoaks actor Ellie Henry, Fashion PR Hum Fleming, and student Mariam Hussain who share their personal stories of diagnosis, school, work, memory loss, and the importance of support networks.
We also explore the impact of epilepsy on mothers as BBC F1 host Jenny Gow, Dr Laura Cunnane and Kelly Norford open up about the challenges and resilience of families navigating epilepsy with their child. Dr. Tejal Mitchell, consultant neurologist, joins to answer questions and discuss the unique challenges facing women and girls, including hormonal changes, medication, and the transition from paediatric to adult care.
Hear Her Voice centres the voices of women and girls living with epilepsy and is an example of how powerful a conversation can be.
PLEASE NOTE:
Epilepsy is a highly individualised condition, and each person’s experience can vary significantly.
The information, experiences, and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice, diagnosis, or treatment. Always consult a qualified healthcare provider for personalised medical advice and support tailored to your specific needs.
⚠️ Please proceed with care: This film discusses SUDEP (Sudden Unexpected Death in Epilepsy) and may be triggering for some viewers.
For more information search 'SUDEP' on our website.
If you’re sad, worried, or lonely, text the word ‘PURPLE’ to 85258 to start a conversation with Shout. More info: https://www.youngepilepsy.org.uk/shout
Chapters:
0:00 Introduction and Overview
2:00 Living with Epilepsy: Ellie’s Story
7:30 School, Exams, and Advocacy: Maryam’s Experience
15:00 Memory, Support, and Openness: Hum’s Journey
29:00 Mothers’ Panel: Family Life and Resilience
50:00 Coping with Loss and Finding Community: Laura’s Story
61:00 Expert Q&A with Dr. Tejal Mitchell
79:00 Audience Questions and Reflections
89:30 Closing Thoughts and Support
Useful Links:
- Young Epilepsy website: https://www.youngepilepsy.org.uk/
- Information about epilepsy: https://www.youngepilepsy.org.uk/about-epilepsy
- Seizure first aid poster: https://www.youngepilepsy.org.uk/sites/default/files/2025-02/SeizureFirstAidPosterPrinterFriendly.pdf
- Youth Voice Network: https://www.youngepilepsy.org.uk/youth-voice-network/
- Young Epilepsy Youth Support Services: https://www.youngepilepsy.org.uk/what-we-do/voice-support/support-inclusion
Social Media:
- X: https://x.com/youngepilepsy/
- Facebook: http://facebook.com/YoungEpilepsy
- Instagram: https://www.instagram.com/youngepilepsy/
- YouTube: https://www.youtube.com/user/youngepilepsy
- LinkedIn: https://www.linkedin.com/company/young-epilepsy/
- TikTok: https://www.tiktok.com/@youngepilepsy/
Contact: communications@youngepilepsy.org.uk
