Explorez tous les épisodes du podcast Invisible Not Broken - Chronic Illness Podcast Network
| Titre | Date | Durée | |
|---|---|---|---|
| Mahima: Pelvic Floor, Social Media, and Hypermobility Physical Therapist | 15 juil. 2026 | 00:43:22 | |
Why is talking about pelvic floor health still taboo? Let's break the silence around this crucial topic! 💬 Tag someone who needs to hear this. In today's chat with Mahima Tiwari from Empower Heal, we dive into the importance of pelvic floor health for everyone—not just those who have given birth. It’s time to recognize that issues like erectile dysfunction and chronic pain deserve attention too. When we openly discuss these topics, we empower others to seek help and take charge of their health. Let’s change the narrative! For more insights and a deeper conversation, check the link in my bio. #PelvicFloorHealth #EmpowerHeal #HealthAwareness #EhlersDanlos #BreakTheSilence | |||
| Faye: Patient Advocacy, Disability Magazine, Safe Spaces, and Art Vs Generative AI | 01 juil. 2026 | 00:36:55 | |
Summary Faye Perez discusses her journey into independent patient advocacy, the importance of community support for those with chronic illnesses, and the launch of her new magazine, the Good News Gazette. The discussion highlights the need for safe spaces in healthcare, the role of art in healing, and the impact of generative AI on creativity. Faye emphasizes the significance of lifting each other up and fostering a supportive community for individuals navigating the complexities of chronic illness and disability. Chapters 00:00 Reconnecting with Faye: New Beginnings 02:49 The Role of Independent Patient Advocacy 05:57 Navigating the Healthcare System 08:49 Creating Safe Spaces for Patients 11:46 The Butterfly Guild: Affordable Advocacy Services 14:34 The Good News Gazette: A Positive Spin 17:46 Reflections on Society and Healthcare 18:54 Creating Joy Through Community and Art 20:41 Surprising Artistic Talents in the Community 22:26 The Importance of Real Art Over AI 23:57 Embracing Age and Authenticity 25:49 The Role of Universal Income in Supporting Artists 27:42 The Value of Community in the Disability Space 29:44 The Need for Societal Support for Artists 32:06 The Uniqueness of Human Creativity 33:48 The Impact of Stories and Community 36:08 Building a Supportive Community for All | |||
| Judy Kim: Stroke, Author, Art Therapy | 29 juin 2026 | 00:48:31 | |
🌈 Ever had a moment where your life changed in an instant? 🌀 Judy Kim shares her powerful story of surviving a stroke and how it inspired her to write "Super Survivor." Her journey highlights the importance of sharing our stories and supporting one another. What’s a pivotal moment in your life that shaped who you are today? Drop your thoughts! #LifeChangingMoments #SuperSurvivor #Podcast #Community #Support #InvisibleNotBroken #JudyKim #ShareYourStory #Resilience #Empowerment | |||
| Ms. Wheelchair 2026 Nenia Ballard: Tiktok, Wheelchair Fashion, and Adaptive Clothing | 03 juin 2026 | 00:50:34 | |
💥 Did you know that clothing can look completely different when you're seated? Nenia shares her journey in fashion reviews for wheelchair users, highlighting the need for brands to showcase their clothes on all body types. 💬 What has been your experience with fashion? Share your thoughts below! #FashionReview #DisabilityAwareness #AdaptiveClothing #InclusiveDesign Chapters 00:00 Introduction to Nenia Ballard and Fashion Reviews 02:57 The Challenges of Fashion for Wheelchair Users 05:55 Exploring Adaptive Clothing Brands 08:56 The Importance of Accessibility in Fashion 11:50 The Miss Wheelchair Experience 14:30 The Intersection of Disability and Fashion Advocacy 17:15 Shopping Challenges for Wheelchair Users 20:02 Knitting as Occupational Therapy 22:59 The Impact of Social Media on Disability Advocacy 25:53 Final Thoughts and Recommendations | |||
| Medical Anthropologist Emily Mendenhall On Long Covid, Her New Book, & US Healthcare | 06 mai 2026 | 00:52:51 | |
🌍 Ever wondered how history influences our view of chronic illness? In our latest episode, we sit down with Emily Mendenhall to discuss her groundbreaking book, "Invisible Illness." She reveals the fascinating connections between past perceptions of hysteria and today's challenges with Long COVID. What do you think – does history repeat itself in the realm of health? Share your thoughts below! #ChronicIllness #InvisibleIllness #HysteriaHistory #LongCOVID #HealthAwareness #PodcastLife #MedicalAnthropology #Discussion #EngageWithUs | |||
| MMERI Scholars: How to Choose College for Disabled and Neurodivergent Students | 27 avr. 2026 | 00:31:02 | |
Social: Navigating college with a disability? 🎓🧩 Stop the guesswork. We're chatting with MMeri Scholars' founder about their MUST-HAVE list of truly accessible universities. Parents, don't miss this! 🏫✨ 🎧 Listen to Invisible Not Broken: 🔗 in bio. #CollegeBound #Neurodiversity #InvisibleNotBroken #SpecialNeedsParenting summary In this insightful interview, Lisa shares her expertise on college accessibility for students with disabilities, highlighting resources, challenges, and strategies for families and students to navigate higher education inclusively. keywords college accessibility, disabilities, inclusive education, college planning, neurodivergence, mental health, college resources, advocacy, higher education, college admissions Chapters 00:00 Introduction to M.M.E.R.I. and Its Mission 02:51 The Importance of Inclusivity in Education 05:46 Researching Accessible Colleges 08:39 Spotlighting Supportive Colleges 11:39 Identifying Red Flags in College Selection 14:21 Barriers in College Admissions 17:24 The Role of K-12 Education in College Readiness 19:52 Navigating College Applications and Testing 22:47 Blind Spots in College Admissions 25:28 Supporting Adult Learners 28:21 Getting the Guide into Schools 31:17 Conclusion and Resources | |||
| Mariah Tyler Moore: Writing, and Medical Gaslighting | 22 avr. 2026 | 00:58:55 | |
The conversation delves into the challenges of navigating childhood illness, the impact of medical gaslighting during adolescence, and the importance of advocating for oneself in the medical system. It also explores the impact of disability on work and housing, the role of writing as a coping mechanism and productivity, and the value of disabled voices in healthcare. The conversation delves into the importance of authenticity and the challenges of empathy and compassion in society. It also explores the role of AI in creativity and ethics, as well as the concept of creativity as a practice. Takeaways
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| Lake: Education Access and Disability | 08 avr. 2026 | 01:00:59 | |
Summary In this conversation, the hosts discuss the challenges and experiences related to accessibility and accommodations in education, particularly for students with disabilities. They explore the differences between community colleges and universities, the bureaucratic hurdles in obtaining necessary accommodations, and the impact of societal structures on access to education. The discussion also touches on the role of technology, the financial burdens of education, and the importance of creating inclusive environments for all students. The conversation concludes with thoughts on the potential of AI in education and the need for systemic change to ensure equity and access for all learners. | |||
| The Blind Redhead: Tech, Access, Gaming, and Social Media Community | 27 mars 2026 | 00:55:27 | |
Ever had that moment where a piece of tech or a daily habit just… clicked? 🧠✨ We’re diving deep into the world of Accidentally Accessible—those "mainstream" tools that have become game-changers for the blind and low-vision community. From the immersive audio of the Apple Vision Pro to the freedom of a Waymo ride, the line between "assistive tech" and "future tech" is blurring. 🚗💨 But wellness isn’t just about the gadgets. It’s about the things no one thinks about: 🔹 Navigating an airport solo as a woman ✈️ 🔹 The "Tuned Out Tuesday" ritual for mental clarity 🧘♀️ 🔹 Why Guide Dogs loving the movie Wicked is the wholesome content we need 🐕🎭 Whether you're looking for your next favorite Apple Shortcut or wondering if a Kickstrand is worth the hype, we’ve got you covered. 🎧 Listen to the latest episode of Invisible Not Broken now! Click the Bard Link in our bio to stream! 🔗 👇 WE WANT TO KNOW: 1️⃣ What is one thing you wish was "accidentally accessible" in your daily life? 2️⃣ What’s your #1 "must-have" travel tool? | |||
| Miranda: Disability Representation From Superman to Kpop Demon Hunter | 18 mars 2026 | 00:59:57 | |
The conversation covers disability representation in media, the impact of disability on character development, personal stories and relationships, magic and disability representation, tropes and lazy use of magic, and the portrayal of disability in 'The Magicians' and 'Doctor Who'. The speakers discuss the need for more authentic and diverse representation of disability in media, as well as the challenges and opportunities in character development for individuals with disabilities. The conversation delves into the challenges of disability representation in media, highlighting the impact and complexity of portraying disabled characters. It also explores the importance of intentionality in representation and the need to humanize characters with disabilities. The conversation delves into the power of media representation and its role in normalizing disability, as well as the importance of creativity as a skill. It also explores the significance of disability representation in animation and the responsibility of creators in getting it right. Takeaways
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| Uncovering the Radical Legacy of Disability Activist Ed Roberts with Biographer Scot Danforth | 07 janv. 2026 | 00:50:59 | |
Uncovering the Radical Legacy of Disability Activist Ed Roberts with Biographer Scott Danforth Keywords Ed Roberts, disability rights, activism, biography, independence, community, technology, publishing, women in activism, accessibility Takeaways Ed Roberts was a pivotal figure in the disability rights movement. His activism began at UC Berkeley with the Rolling Quads. The fight for disability rights is ongoing and requires constant vigilance. Family dynamics play a crucial role in fostering independence for disabled individuals. Community building is essential for effective activism. Technology can greatly enhance accessibility for disabled individuals. The Center for Independent Living was a groundbreaking initiative for disability rights. Women played a significant but often overlooked role in the disability rights movement. Writing a biography involves difficult choices about what to include or exclude. The publishing process can be challenging, especially for underrepresented stories. Summary This conversation explores the life and legacy of Ed Roberts, a pivotal figure in the disability rights movement. Scott Danforth, the author of a biography on Roberts, discusses the challenges and triumphs of advocating for disability rights, the importance of community and independence, and the role of technology in enhancing accessibility. The conversation also touches on the often-overlooked contributions of women in the movement and the complexities of writing a biography. Danforth shares insights from his research and the publishing process, emphasizing the need for continued advocacy and the importance of storytelling in the fight for disability rights. Titles Unveiling Ed Roberts: A Disability Rights Pioneer The Legacy of Ed Roberts and Disability Activism Sound bites "This is not a very well-known man." "He had polio as a teenager." "He loved the technology." Chapters 00:00 Introduction to Ed Roberts and His Legacy 02:13 The Fight for Disability Rights 09:07 Independence and Family Dynamics 14:53 Building Community and Activism 21:28 Technological Advancements and Accessibility 26:57 Revitalizing the Center for Independent Living 27:24 The Legacy of Ed Roberts and Disability Activism 28:23 Unveiling the Myths of Disability Leadership 30:49 The Unsung Heroes of the Disability Rights Movement 31:54 Chronic Illness and the Overlooked Voices 33:30 The Joys and Challenges of Writing a Biography 35:21 The Process of Research and Writing 36:17 Editing and Storytelling in Biography 38:44 Navigating the Publishing Landscape 41:25 The Journey into Disability Studies 43:58 Dreams vs. Reality in Disability Advocacy 46:46 The Importance of Community and Creativity 48:23 Joy as Resistance in Activism Hosted on Acast. See acast.com/privacy for more information. | |||
| Relationship Goals, Chronic Illness Edition: Dating, Love, and Literally Writing the Book with Therapist Lisa Gray | 17 déc. 2025 | 00:43:45 | |
Keywords chronic illness, relationships, conflict resolution, empathy, writing process, power imbalance, emotional management, self-help, therapy, communication Summary In this conversation, Lisa Gray, a marriage and family therapist, discusses the complexities of relationships when chronic illness is involved. She shares insights on conflict resolution, the importance of empathy, and how to navigate power imbalances in relationships. Lisa also delves into her writing process, the significance of finding meaning in chronic illness, and practical tools for writing and publishing. The discussion emphasizes the need for understanding, communication, and the ability to adapt in relationships affected by chronic illness. Takeaways Conflict increases intimacy if done right. Healthy conflict means knowing your partner better. Stop fighting when you're already mad. Impulse control is key in managing conflict. Power imbalances can affect relationships with chronic illness. Empathy must go both ways in relationships. Finding meaning is crucial in the grieving process. Values can guide actions despite chronic illness. Writing can be a therapeutic process. Use tools that work for your energy levels. Titles Navigating Relationships with Chronic Illness The Art of Healthy Conflict Sound bites "Empathy needs to go both ways." "Intimacy is very broad." "Weighted blankets are so comforting." Chapters 00:00 Introduction to Chronic Illness and Relationships 02:55 Navigating Conflict in Relationships 06:02 Impulse Control and Managing Emotions 09:07 Power Imbalances in Relationships 11:54 Empathy in Chronic Illness Relationships 14:57 Core Skills for Managing Chronic Illness 17:42 Finding Meaning and Values in Relationships 20:55 Personal Discoveries Through Writing 23:55 Building Empathy Through Curiosity 24:15 Exploring Virtual Reality and Empathy 25:39 Relationships and Support in Chronic Illness 28:05 Intimacy and Chronic Illness 30:30 The Writing Process and Tools for Writers 38:58 Publishing Insights and Resources Transcript Hosted on Acast. See acast.com/privacy for more information. | |||
| Navigating the Patient Journey with Author Brenda Snow | 03 déc. 2025 | 00:41:00 | |
Summary In this conversation, Brenda Snow shares her personal journey as a patient diagnosed with multiple sclerosis and discusses her book, 'Diagnosed: The Essential Guide to Navigating the Patient Journey.' She emphasizes the universal experience of navigating chronic illness, the importance of grief and acceptance, and the need for strong doctor-patient relationships. Brenda also highlights the significance of maintaining one's identity while caregiving and the power of storytelling in healing. The discussion concludes with advice for aspiring writers and the importance of sharing personal narratives. Chapters 00:00 Introduction to Brenda Snow and Her Journey 02:49 The Universal Patient Experience 06:48 Navigating Grief and Acceptance 12:41 The Doctor-Patient Relationship 20:42 Identity and Caregiving 26:12 Finding Growth in Adversity 31:56 The Power of Storytelling 35:40 Advice for Aspiring Writers Hosted on Acast. See acast.com/privacy for more information. | |||
| The Untold Risks of TMS: Jordan Hanson's Journey | 19 nov. 2025 | 01:00:05 | |
Keywords TMS, transcranial magnetic stimulation, brain injury, mental health, medical gaslighting, patient advocacy, chronic illness, technology in healthcare, self-care, mindfulness Summary In this conversation, Jordan Hanson shares her personal journey with transcranial magnetic stimulation (TMS), a procedure intended to treat mental health issues. She discusses the initial excitement about the treatment, the subsequent negative effects she experienced, and the challenges of navigating the medical system. The conversation highlights the importance of patient advocacy, community support, and the role of technology in managing health. Jordan emphasizes the need for awareness and understanding of the risks associated with TMS and the importance of self-care and mindfulness in coping with chronic illness. Takeaways TMS is a procedure that uses magnetic fields to stimulate brain activity. Jordan experienced significant negative effects from TMS, including brain injury symptoms. Medical gaslighting is a common issue faced by patients seeking help. Community support is crucial for those dealing with chronic illness. Technology, including AI, can assist in managing health and communication. Self-care and mindfulness are essential for coping with chronic illness. Advocacy is important to raise awareness about the risks of TMS. Family planning can be complicated by health issues and uncertainties. Understanding the impact of chronic illness on daily life is vital. The journey of healing is ongoing and requires patience and support. Titles The Hidden Risks of TMS: A Personal Journey Navigating the Medical Maze: Jordan's TMS Experience Sound bites "I was called headache girl for a year." "I want to share my story to help others." "I have to protect myself and my energy." Chapters 00:00 Introduction to TMS and Jordan's Journey 01:13 Understanding the Impact of TMS on Life 01:28 Introduction and Background on TMS 04:20 Understanding Trans-Cranial Magnetic Stimulation (TMS) 07:23 The Experience of TMS Treatment 10:20 The Impact of TMS on Daily Life 13:09 Medical Gaslighting and Patient Advocacy 16:13 The Journey to Recovery and Diagnosis 19:14 Community Support and Sharing Stories 22:18 The Decision to Create a Documentary 25:13 Advocacy and Future Goals 36:11 The Need for Scientific Understanding in TMS 40:42 Coping with Chronic Illness and Disability 44:52 Navigating Family Planning Amidst Uncertainty 52:54 Leveraging Technology for Brain Injury Support 59:42 Personal Growth Through Adversity Hosted on Acast. See acast.com/privacy for more information. | |||
| Epilepsy, UK Health System VS US, and How We Can Do Better: Conversation With Célestine Laurin | 03 nov. 2025 | 01:20:40 | |
Epilepsy, UK Health System VS US, and How We Can Do Better: Conversation With Célestine Laurin Summary In this conversation, the speakers delve into the complexities of living with epilepsy and chronic illness, particularly focusing on the experiences of children and young adults. They discuss the challenges of diagnosis, the importance of support from family and friends, and the role of therapy in managing mental health. The conversation also touches on the stigma surrounding chronic illness, the impact of bullying, and practical advice for managing seizures and advocating for oneself in educational and social settings. Additionally, they explore how epilepsy is represented in the media and the need for better understanding and communication around the condition. This conversation delves into the complexities of living with epilepsy, particularly focusing on the challenges faced by women regarding medication and pregnancy. The speakers share personal experiences with the impact of epilepsy on their lives, careers, and the healthcare system. They discuss the stigma surrounding chronic illness, the importance of open communication with clients in business, and the differences in healthcare systems across countries. The conversation highlights the need for greater awareness and understanding of disability and chronic illness. In this conversation, the speakers discuss the challenges faced by individuals with disabilities, the impact of overprotection on children, and the need for inclusive spaces and universal design. They explore the healthcare systems in different countries, highlighting the disparities in access and affordability. The conversation emphasizes the importance of disability advocacy in health policy and the need for a more inclusive approach to legislation that considers the needs of all individuals, particularly those with chronic illnesses. Keywords epilepsy, chronic illness, mental health, therapy, support, bullying, childhood illness, accommodations, media representation, epilepsy, medication, women’s health, chronic illness, disability, healthcare, personal stories, photography, career choices, mental health, disability, healthcare, universal design, overprotection, advocacy, inclusivity, chronic illness, education, mental health, accessibility Hosted on Acast. See acast.com/privacy for more information. | |||
| Raven: Paranormal Romance Writer, Sirens, Disability in the Media, and Training Service Dogs | 29 oct. 2025 | 00:52:33 | |
Chapters 00:00 Introduction to Romance Writing and Disability 05:49 Life Changes During the Pandemic 11:53 Writing Romance with Chronic Illness 17:55 Representation of Disability in Romance 24:35 The Viral Success of a Romance Novel 31:07 Writing as a Form of Self-Discovery 36:06 Navigating Writing with Disabilities 49:59 The Journey of Training a Service Dog Summary In this conversation, the speakers delve into the intersection of romance writing and disability representation, particularly focusing on the experiences of chronically ill individuals. They discuss the impact of the pandemic on their lives, the process of writing romance novels that feature disabled characters, and the importance of authentic representation in literature. The conversation also touches on the viral success of one speaker's romance novel, the emotional journey of writing, and the practical challenges of writing with disabilities. Additionally, they explore the journey of training a service dog and how it has positively influenced their lives. Takeaways The pandemic led to significant life changes and new diagnoses. Writing romance novels became a creative outlet during difficult times. There is a need for authentic representation of disabled characters in romance. Readers appreciate seeing themselves reflected in literature. The success of a romance novel can be validating for writers. Writing can be a form of self-discovery and healing. Navigating the writing process with disabilities requires adaptation and support. Service dogs can provide emotional and physical support for their owners. Community and connection are vital for those with chronic illnesses. The journey of self-publishing can be empowering despite challenges. Hosted on Acast. See acast.com/privacy for more information. | |||
| Tessa Lynn Hodge: CA District 23, Rural Healthcare, and Mental Health | 28 oct. 2025 | 00:53:55 | |
Summary In this conversation, Tessa Lynn Hodge discusses her journey from being a licensed clinical social worker to running for office in District 23. She emphasizes the importance of community engagement, healthcare reform, and the need for authenticity in politics. Tessa shares her experiences and insights on the challenges faced by her community, particularly in rural areas, and highlights the significance of mental health accessibility and telehealth. Her campaign focuses on putting people over party and advocating for grassroots funding to ensure real change. Keywords disability, politics, healthcare, community, mental health, grassroots, Tessa Lynn Hodge, election, advocacy, social work Hosted on Acast. See acast.com/privacy for more information. | |||
| Joyce Griggs: How to Advocate for Yourself Before, During, and After your Appointment | 15 oct. 2025 | 00:50:25 | |
Keywords health advocacy, patient empowerment, healthcare system, self-advocacy, doctor visits, healthcare resources, United States of Healthcare, patient stories, healthcare challenges, AI in healthcare Summary In this conversation, Joyce Griggs shares her journey into health advocacy, highlighting the challenges faced by patients in navigating the healthcare system. She discusses the importance of self-advocacy, preparing for doctor visits, and managing the dynamics between patients and healthcare providers. Joyce emphasizes the need for personalized care and the role of technology, including AI, in shaping the future of healthcare. The discussion also touches on the systemic issues within the healthcare system and the importance of community support and resources for patients. Takeaways Advocacy is crucial for navigating the healthcare system. Patients often face significant challenges in getting proper care. Self-advocacy is an essential skill for all patients. Preparing for doctor visits can improve outcomes. Emotional management is key before healthcare appointments. Bias exists in healthcare, affecting patient treatment. Community support can empower patients in their advocacy efforts. AI has potential benefits and risks in healthcare decision-making. Personalized care is necessary for effective treatment. Understanding insurance processes can help patients advocate for themselves. Titles Navigating the Healthcare Maze: A Journey of Advocacy Empowering Patients: The Role of Self-Advocacy Sound bites "We need to be our own advocates." "We are the experts of ourselves." "Personalized care is essential." Chapters 00:00 Introduction to Health Advocacy 02:54 Personal Journey into Healthcare Advocacy 05:53 Navigating the Healthcare System 08:25 Building the United States of Healthcare 11:34 Resources for Health Advocacy 14:23 Preparing for Doctor Visits 17:07 Managing Emotions in Healthcare 19:48 Interviewing Healthcare Providers 22:49 Addressing Systemic Issues in Healthcare 28:02 Navigating Healthcare Access Challenges 30:38 Addressing Power Imbalances in Healthcare 34:26 The Impact of Bias in Medical Treatment 35:22 Evolving Perspectives in Medicine 37:23 Utilizing Technology for Patient Advocacy 42:04 Building Community and Support 46:51 Envisioning a Better Healthcare System 50:20 end cap.mp4 Hosted on Acast. See acast.com/privacy for more information. | |||
| Citizens United & the Disability Vote: Reclaiming Our Democracy Witch Alexis Claiborne | 01 oct. 2025 | 01:14:51 | |
Unpack the shocking influence of money in politics with us! We dissect how large donations and Super PACs are shaping elections and explore the crucial role of grassroots movements and community engagement in fighting back. Discover strategies for building political support, navigating the path to candidacy, and fostering meaningful conversations across political divides. We delve into the complexities of political discourse, the power of empathy, the necessity of intergenerational dialogue, and the urgent need for term limits. Learn about the lasting impact of Citizens United and why engaging marginalized communities, especially the disability community, is paramount. Hear personal stories on how family shapes political views and the undeniable importance of grassroots support for impactful campaigns. money in politics, super pacs, large donations, grassroots movements, community engagement, political campaigns, running for office, candidacy, political discourse, empathy in politics, intergenerational dialogue, term limits, citizens united, disability vote, disability community, marginalized communities, family and politics, grassroots support, election influence, campaign strategies Hosted on Acast. See acast.com/privacy for more information. | |||
| Aggressive Systemic Mastocytosis: Life, Advocacy, and Resilience: author Rachell Largent Phillips | 23 sept. 2025 | 00:52:48 | |
Keywords Aggressive Systemic Mastocytosis, chronic illness, advocacy, mental health, writing, self-care, body image, healthcare activism, rare diseases, education Summary In this conversation, Rachel Largent Phillips shares her journey with aggressive systemic mastocytosis, a rare disorder that significantly impacts her daily life. She discusses the challenges of living with a chronic illness, including navigating the healthcare system, advocating for herself and others, and the emotional toll of writing her book, 'Life Beyond the Flare.' Rachel emphasizes the importance of self-care, mental health, and authenticity in the face of societal pressures and the complexities of living with a rare disease. She also highlights the political nature of healthcare and the need for continued advocacy for those with chronic illnesses. Takeaways Rachel was born with aggressive systemic mastocytosis, diagnosed in her 30s. It took 12 years for her to receive a proper diagnosis. Daily life is unpredictable, requiring constant vigilance and preparedness. Advocacy is crucial; Rachel has lobbied for healthcare reforms. Writing her book was a way to educate others about her rare disease. Self-care and giving oneself grace are essential for managing chronic illness. Rest can take many forms, including mental and emotional breaks. Navigating relationships while managing a chronic illness can be challenging. Societal beauty standards can add pressure to those with chronic illnesses. Mental health is as important as physical health in chronic illness management. Sound bites "I was born with it." "I have lots of EpiPens." "It's okay to have bad days." Chapters 00:00 Understanding Aggressive Systemic Mastocytosis 03:31 Navigating Daily Life with a Rare Disorder 07:47 Advocacy and Activism in Healthcare 10:51 The Emotional Journey of Writing a Book 13:48 Finding Grace in Chronic Illness 16:01 Rest and Self-Care Strategies 18:27 Managing Allergies and Anaphylaxis 21:33 Dating and Relationships with Chronic Illness 24:45 Societal Pressures and Body Image 29:11 The Importance of Mental Health 34:07 The Power of Authenticity 37:34 Navigating the Medical System 43:45 The Reality of Living with a Rare Disease 49:56 Pursuing Education Amidst Health Challenges 54:06 The Political Nature of Healthcare Hosted on Acast. See acast.com/privacy for more information. | |||
| The Power of Kindness & Community for Disabled Writers: A Conversation with Faye Perez | 03 sept. 2025 | 01:28:08 | |
Join us for Part 2 of our inspiring conversation with acclaimed Fantasy Author Faye Perez on the "Invisible Not Broken" podcast! In this wide-ranging episode, Faye shares unique insights on how "Dressing Up" can be a powerful path to joy and self-expression, even when navigating the complexities of invisible disabilities. We delve into the "Rebellion of Kindness" and its role in fostering positive change, exploring how to build resilient communities in increasingly challenging times. Faye also offers profound reflections on the changing landscape of social norms and the nuanced experience of "Aging in the Time of COVID," providing a unique perspective on resilience and adaptation. For aspiring and established writers, this episode is packed with wisdom! Faye demystifies the "Writing Journey," revealing practical strategies for "Organizing Your Thoughts for Writing Success" and the transformative power of "Embracing the Joy of Writing." She candidly discusses "Navigating the Writer's Journey" and the profound "Art of Writing: Process and Responsibility." Tune in for an authentic, thought-provoking discussion that blends creativity, social commentary, and personal growth. Whether you're a fantasy fan, an aspiring writer, or someone interested in disability advocacy and building a kinder world, this episode offers invaluable takeaways. Hosted on Acast. See acast.com/privacy for more information. | |||
| Sister Create a Disability Dating APP for Inclusive Dating for People with Disabilities | How Datability is Changing Love & Connection ♿❤️ | 25 août 2025 | 01:01:39 | |
Looking for a more inclusive, accessible way to date while disabled or chronically ill? 💘 In this eye-opening podcast episode, we talk to Jacqueline and Alexa Child, the founders of Datability — a revolutionary dating app built by and for the disability community. They open up about dating with chronic illness, building tech for accessibility, and why representation in love matters. This episode is perfect for anyone searching for disability-friendly dating apps, chronic illness support, or inspiration from disabled entrepreneurs. 💬 Tap to listen and save for later! 📌 Follow for more disability advocacy, inclusive tech, and real talk about relationships. #DisabilityDating #Datability #InclusiveLove #ChronicIllnessAwareness #DisabledAndProud #AccessibleDating #DatingWithDisabilities #DisabledEntrepreneurs #RepresentationMatters #PodcastRecommendations #PinterestPodcast #LoveWithoutLimits Hosted on Acast. See acast.com/privacy for more information. | |||
| Empowering Disabled Entrepreneurs: Navigating Chronic Illness, Parenting, and Work-Life Balance: An | 07 août 2025 | 00:39:14 | |
Summary In this conversation, Sarah Burton shares her journey with chronic illness, discussing her diagnosis, the challenges of parenting while managing health issues, and her transition from a corporate career to entrepreneurship. She emphasizes the importance of community support for individuals with chronic illnesses and the need for greater awareness and understanding in the workplace. This conversation delves into the challenges faced by entrepreneurs with chronic illnesses, emphasizing the importance of taking intentional time off, building supportive communities, and implementing effective business strategies. The speakers discuss tools for managing health while running a business, the necessity of setting boundaries, and the cultural changes needed in workplaces to accommodate diverse needs. They also highlight the significance of hiring disabled individuals and the Lilac project aimed at improving government support for disabled entrepreneurs. Keywords chronic illness, disability, parenting, ambition, entrepreneurship, support, community, diagnosis, mental health, workplace inclusion, chronic illness, entrepreneurship, mental health, community support, business strategies, work-life balance, disability inclusion, government support, automation tools, boundaries Hosted on Acast. See acast.com/privacy for more information. | |||
| Disability & Dogs: Mastering Service Dog Puppy Training - Teenage Years, Fear Periods & Trauma : Tara Moriarty | 25 juin 2025 | 00:38:57 | |
Summary In this conversation, the speakers discuss various aspects of puppy training, particularly focusing on the challenges of training service dogs. They delve into the teenage phase of puppies, the fear periods that can arise during development, and how to manage trauma in service dogs after negative encounters with other dogs. The conversation emphasizes the importance of proper training techniques, socialization, and the need for vigilance in public spaces to ensure the safety and well-being of service dogs. This conversation delves into the essential aspects of training service dogs, focusing on foundational skills, assessment programs, handling emergencies, and navigating the challenges of training during a dog's teenage phase. The speakers discuss the importance of confidence in dogs, the differences between CGC and PDA programs, and practical advice for trainers, especially those with disabilities. They also touch on the timing of neutering and its impact on behavior, emphasizing a tailored approach to each dog's training journey. Keywords puppy training, service dogs, fear periods, dog behavior, trauma recovery, dog interactions, training tips, service dog management, puppy adolescence, dog anxiety, service dog training, dog behavior, training techniques, mobility aids, dog assessment programs, emergency handling, teenage dog training, neutering debate Hosted on Acast. See acast.com/privacy for more information. | |||
| Choosing Your Service Dog With Tara Moriarty | 21 mai 2025 | 01:07:07 | |
Summary In this conversation, the speakers discuss the complexities of choosing and training service dogs versus puppies, emphasizing the importance of temperament, the challenges of finding suitable dogs, and the training process. They share personal experiences and insights on navigating the world of service animals, including the significance of socialization and public perception. In this conversation, the speakers discuss various aspects of puppy training, focusing on capturing natural behaviors, creating a conducive learning environment, and the importance of crate training. They also touch on navigating dog parks, the need for services for disabled dog owners, establishing routines, and essential commands for service dogs. The conversation emphasizes the significance of understanding puppy development and the challenges that come with training during different growth stages. Keywords service dogs, puppies, training, temperament, challenges, public perception, potty training, socialization, choosing a dog, service dog training, puppy training, dog behavior, crate training, service dogs, dog parks, routines, commands, dog owner services, puppy development, positive reinforcement Hosted on Acast. See acast.com/privacy for more information. | |||
| Author Interview Jess Graham : Childhood Invisible Illness. Service Dogs, Writing a Book, and what about God? | 02 avr. 2025 | 00:58:24 | |
Summary In this conversation, Jess shares their journey of writing the book 'Being Sick Enough', which explores themes of invisible illness, childhood trauma, and the complexities of living with chronic conditions. The discussion delves into the challenges faced as a sick child, the misunderstandings surrounding invisible illnesses, and the process of writing personal stories while navigating relationships and self-acceptance. In this conversation, the speakers delve into the complexities of navigating trauma, the importance of meditation, and the intersection of medication and wellness. They discuss the significance of honest conversations about medication, the balance between solitude and community, and the role of spirituality in personal healing. The dialogue also touches on societal challenges and the need for empathy, as well as practical travel tips for those with chronic illness. Keywords invisible illness, chronic illness, trauma, writing, personal stories, mental health, self-acceptance, authenticity, healing, Jess, trauma, meditation, wellness, medication, spirituality, empathy, chronic illness, travel tips, community, solitude Hosted on Acast. See acast.com/privacy for more information. | |||
| Author Interview Maggie Bushway: Memoir writing, Advice for Parents, and the Joys of a Weighted Blanket | 03 mars 2025 | 00:36:25 | |
Summary In this conversation, Maggie Bushway shares her experiences as a child with brain cancer and the impact it had on her life, family, and friendships. She discusses the importance of autonomy in medical decisions, the role of writing in processing emotions, and the challenges of managing chronic illness while pursuing her passion for writing. The conversation also touches on the dynamics of friendship during illness, the journey of writing a memoir, and the balance between social life and work amidst health challenges. Takeaways Maggie felt included in her medical decisions, which empowered her. Autonomy is crucial for children facing health challenges. Friendship can provide both support and normalcy during illness. Writing serves as a powerful tool for emotional expression. Reading her father's blog helped Maggie process her past. Maggie's early writing experiences laid the foundation for her memoir. Journaling can be a helpful starting point for aspiring writers. Managing chronic illness requires careful scheduling and prioritization. Finding humor in difficult situations can aid in coping. Creative expression can take many forms, including fiction. Keywords Maggie Bushway, childhood illness, memoir, writing, chronic illness, friendship, family dynamics, emotional processing, creative expression, support Hosted on Acast. See acast.com/privacy for more information. | |||
| Interview With Service Dog Trainer: Tara Moriarty | 03 févr. 2025 | 00:45:00 | |
Summary In this conversation, Tara Moriarty discusses her journey into the world of service dogs, the challenges of finding and training them, and the importance of understanding their role in supporting individuals with disabilities. The discussion covers the costs associated with obtaining a service dog, the various training methods, and the misconceptions that the public holds about service dogs and their handlers. This conversation delves into the distinctions between service dogs and emotional support animals, emphasizing the legal definitions and roles of each. It explores the challenges faced by service dog owners, including the need for proper training and support systems. The discussion highlights the importance of planning for the future care of service dogs, especially for individuals with degenerative conditions. Additionally, it covers the process of finding the right dog and trainer, advocating for positive reinforcement training methods, and the significance of using food as a motivational tool in dog training. Chapters 00:00 Introduction to Service Dogs and Their Importance 03:13 The Cost and Accessibility of Service Dogs 06:07 The Journey into Dog Training 08:52 Understanding Dog Behavior and Training Methods 12:06 The Need for Service Dogs: When is it Time? 14:59 Choosing the Right Breed for Service Dogs 17:45 Public Misconceptions About Service Dogs 25:50 Understanding Service Dogs vs. Emotional Support Animals 29:08 Navigating the Challenges of Service Dog Ownership 31:55 Preparing for a Service Dog: Key Considerations 34:22 Finding the Right Dog and Trainer 38:53 The Importance of Positive Reinforcement in Training 44:57 Innovative Training Techniques and Resources Takeaways Service dogs can be very expensive, ranging from $20,000 to $40,000. Nonprofits may offer lower-cost options, but availability is limited. Training a service dog can be a complex and costly process. Understanding dog behavior is crucial for effective training. Positive reinforcement is a more effective training method than punishment. Many people consider getting a service dog too late in their journey. The right breed for a service dog is less important than temperament. Labradors, Goldens, and Poodles are commonly recommended breeds. Public misconceptions about service dogs can lead to challenges for handlers. Emotional support is not a task that qualifies a dog as a service dog. Service dogs are task-trained to mitigate specific disabilities. Emotional support animals provide comfort but lack legal recognition as service animals. It's crucial to have a plan for the care of a service dog as health conditions change. Choosing the right breed is essential for first-time service dog owners. Positive reinforcement is key to effective dog training. Finding a qualified dog trainer can significantly impact training success. Service dog tasks are tailored to individual needs and circumstances. Proper training and socialization are vital for service dogs to function in public. Planning ahead for a service dog's future is necessary for responsible ownership. Using food as a reward can enhance training and strengthen the bond with your dog. Keywords service dogs, dog training, psychiatric service dogs, emotional support, dog behavior, training methods, cost of service dogs, choosing a service dog, public misconceptions, service dogs, emotional support animals, training, positive reinforcement, disability, dog ownership, service dog tasks, finding a trainer, dog breeds, service dog laws Hosted on Acast. See acast.com/privacy for more information. | |||
| Tisha Foster: Glamour, Motherhood, Faith, and Chronic Illness | 09 janv. 2025 | 00:53:13 | |
Summary In this conversation, Tisha shares her journey of living with chronic illness, emphasizing the importance of gratitude, community support, and the struggles of public perception. She discusses her experiences with autoimmune disorders, the challenges of diagnosis, and how she has reframed her relationship with her illness, focusing on empowerment rather than battle. In this conversation, the speaker shares their experiences of parenting with a disability, discussing the challenges of communicating their condition to their children and the emotional toll it takes on family dynamics. They explore the journey of finding purpose while being bedbound and the therapeutic process of writing a book about their experiences. The discussion emphasizes the importance of support systems, the need for understanding in educational settings, and the resilience required to navigate life with a disability. Takeaways Gratitude can be a powerful tool for coping with chronic illness. Public perception often overlooks the struggles of those with invisible illnesses. Community support plays a crucial role in mental health and resilience. The journey to diagnosis can be long and fraught with challenges. Reframing the narrative around illness can lead to empowerment. It's important to check in on loved ones, even those who seem happy. Sharing personal stories can help others feel less alone. Wearing heels can be a form of self-expression and empowerment. Language matters when discussing illness and identity. Writing can be a therapeutic way to share one's journey. Talking to children about disabilities requires different approaches based on their age. The emotional impact of a parent's illness can lead to complex family dynamics. Creating a game out of challenges can help children cope with difficult situations. Parents often feel guilt for not being able to participate in typical activities with their children. Support from family and friends is crucial when dealing with chronic illness. Living with a disability can lead to feelings of isolation and despair. Finding purpose and joy in life, even from bed, is possible. Writing about personal experiences can be a healing process. It's important to advocate for accessibility in schools and public spaces. Resilience and community support are key to thriving despite adversity. Keywords gratitude, chronic illness, public perception, diagnosis journey, living with illness, mental health, autoimmune disorders, personal stories, resilience, community support, disability, parenting, mental health, communication, writing, resilience, family dynamics, bedbound life, emotional support, personal journey Hosted on Acast. See acast.com/privacy for more information. | |||
| Musician Ann-Britt Celebrating New Music, Creativity and Chronic Illness, and Creating New Goals | 28 oct. 2024 | 00:53:21 | |
Summary In this conversation, Monica Michelle and Ann-Britt discuss their shared experiences with chronic illness, particularly Ehlers-Danlos syndrome. They explore the challenges of living with a chronic condition, the importance of community support, and the therapeutic role of music in coping with illness. Ann-Britt shares her journey from being an active musician to adapting her life around her health challenges, including the use of a wheelchair. They also touch on the differences in healthcare systems between Denmark and the USA, emphasizing the need for better understanding and support for those with chronic illnesses. In this conversation, Monica Michelle and Ann-Britt discuss the challenges of traveling with a disability, the emotional journey of adapting to life changes due to chronic illness, and the importance of setting boundaries. They explore generational differences in self-care, the concept of diminished normalcy, and the emotional ties to home. Ann-Britt shares her musical inspirations and the themes of her upcoming album, highlighting the beauty in small moments and the power of creativity in the face of adversity. Keywords chronic illness, Ehlers-Danlos syndrome, mental health, creativity, music therapy, wheelchair use, healthcare systems, Denmark, USA, community support, chronic illness, accessibility, self-care, personal growth, music, life changes, boundaries, emotional health, travel experiences, generational differences Hosted on Acast. See acast.com/privacy for more information. | |||
| Author of “Finding A New Normal: Living Your Best Life with Chronic Illness”: Suzan Jackson | 23 sept. 2024 | 00:49:39 | |
Monica Michelle is joined by author Sue Jackson. Sue lives with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and Lyme disease. In this episode, Monica and Sue discuss:
00:46 Sue’s diagnosis and how she manages her symptoms 13:03 Parenting with a chronic illness 25:02 COVID-19’s impact on chronic illness 30:35 Books as a form of escapism and connection 42:00 The challenges of writing and the importance of routines with chronic illness The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Using Self-Portraits to Represent Chronic Pain | 04 sept. 2024 | 01:00:29 | |
Monica Michelle is joined by artist Kyrianna Bolles. Kyrianna lives with chronic pain. In this episode, Monica and Kyrianna discuss:
00:00 Intro to Kyrianna 10:45 Kyrianna’s self portraits 24:42 Kyrianna’s Support group 33:40 Animus 45:57 Kyriannas favorite support tools The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Dory’s Corner: New Podcast intro with Host Nick Clemmons | 12 août 2024 | 01:00:25 | |
Monica Michelle is interviewed by consultant and content creator Nick Clemmons. Nick recently started the blog Dory’s Corner with Invisible Not Broken. A companion podcast hosted by Nick will be released soon. Nick lives with Sickle Cell Disease. Monica lives with Ehlers-Danlos Syndrome, POTS, MCAS, and Fibromyalgia. In this episode, Nick and Monica discuss:
00:42 - Monica’s history and relationship with her disabilities 13:06 - How Monica found her voice *Trigger Warning: Mention of SA* 31:40 - Media representation 45:09 - Monica’s family The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Disability Access in the Education System and How to Support Disabled Folks’ Needs with Nick Clemmons | 05 mai 2024 | 00:54:05 | |
Monica Michelle is joined by consultant and podcast host Nick Clemmons. Nick lives with Sickle Cell Disease. In this episode, Monica and Nick discuss:
00:42 - ADA, Title IX, and disability access in schools 20:08 - How Nick makes and achieves opportunities 28:40 - Media and disability 40:42 - How to respectfully be concerned about someone else’s needs The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Vulnerability, Resiliency, and Advocacy with Tim Reitsma | 15 avr. 2024 | 00:47:06 | |
Monica Michelle is joined by consultant and podcast host Tim Reitma. Tim lives with Crohn's Disease. In this episode, Monica and Tim discuss:
00:47 - Tim's diagnosis 06:31 - How and why Tim applies self advocacy 15:41 - Why Tim started his podcast 22:42 - Invisible condition etiquette 31:00 - What HR can do better for employees with invisible illness 39:31 - Tools Tim uses to care for his Crohn’s outside the home The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Tech and Disability: What VR Offers the Disabled Community with Sunny Ammerman | 19 mars 2024 | 01:10:27 | |
Monica Michelle is joined by artist and disability advocate Sunny Ammerman Sunny lives with Septo-optic dysplasia, panhypopituitarism, Optic Nerve Hypoplasia, and is missing a membrane in the brain called the "septum pellucidum". In this episode, Monica and Sunny discuss:
00:45 - What VR/AR offers for chronically ill and disabled folks 11:57 - Sunny’s conditions and how she copes with them 17:55 - Features that make VR games accessible or inaccessible as well as different games and their play experiences 37:13 - The social aspects of virtual gaming 51:32 - What opportunities VR has for the future 1:04:49 - Sunny’s VR support group The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Reporting on Chronic Illness and Disability with Journalist Julia Metraux | 26 févr. 2024 | 00:39:16 | |
Monica Michelle is joined by Journalist Julia Metraux. Julia lives with vasculitis, mild to moderate hearing loss, and has experienced long COVID. In this episode, Monica and Julia discuss:
00:32 - Julia's diagnostic journey 07:02 - Julia’s work reporting on the online community of chronic illness 16:32 - The effect of Internet communities on chronically ill and disabled folks 26:46 - How Julia’s illness impacts her work, both in what she writes about and how she manages her lifestyle The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Author of “Pain: The Ultimate Mentor,” Physiotherapist Kevin Hunt | 05 févr. 2024 | 00:31:29 | |
Monica Michelle is joined by author & physiotherapist Kevin Hunt. Kevin lives with chronic pain. In this episode, Monica and Kevin discuss:
00:34 - Kevin’s work as a physiotherapist specializing in the experience of pain 06:44 - The Hexagon Model for managing your life’s needs 14:00 - Putting aside the idea of a “quick fix” 19:45 - Kevin’s personal experience with pain and how he uses it with patients 28:44 - Kevin’s book, “Pain: The Ultimate Mentor” The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Author of “Through the Pain: The Silent Suffering & Triumph of a Personal Trainer”: John K. Frazier | 16 janv. 2024 | 00:28:35 | |
Monica Michelle is joined by author & personal trainer John K. Frazier. John lives with ankylosing spondylitis. In this episode, Monica and John discuss:
00:50 - John’s business & diagnosis 07:19 - Chronic pain olympics 09:31 - Talking about & hiding a diagnosis 15:09 - Personal triumph 18:24 - Staying in the present 23:29 - The superman complex The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| The Creative Process, Self Worth, and Dating with Disability: Laura Mustard | 02 janv. 2024 | 00:31:08 | |
Monica Michelle is joined by musician Laura Mustard. Laura lives with VATER syndrome. In this episode, Monica and Laura discuss:
00:30 - Laura’s new EP / Monica’s recent COVID experience 05:32 - Relationships with chronic illness 11:20 - Image and self acceptance with disability 15:32 - Laura’s creative process and current projects 20:05 - Pursuing creativity despite social media attention The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Author of “The Girlfriend’s Guide to Lupus”: Amanda Chay | 19 déc. 2023 | 00:30:43 | |
Monica Michelle is joined by author Amanda Chay. Amanda lives with Sjögren’s and Lupus. In this episode, Monica and Amanda discuss:
00:26 - Intro + The Girlfriend’s Guide to Lupus 02:17 - Amanda’s diagnosis 10:09 - Amanda’s outlook on writing 17:11 - Navigating chronic illness with kids & family 23:29 - Labels and roles 26:24 - Flare reads & closing remarks The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Author of “Compass Points the Way”: Alexis Kline | 04 déc. 2023 | 00:23:14 | |
Monica Michelle is joined by author Alexis Kline. Alexis lives with Dysautonomia. In this episode, Monica and Alexis discuss:
00:28 - Alexis’s diagnosis & dog 07:18 - Sick teenager road map 10:00 - Alexis’s book & workflow 16:25 - Having an isolated diagnosis 20:50 - Wildlife photography, purchases The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Author of “From the Sidelines to the Finish Line”: Emily Falcon | 20 nov. 2023 | 00:36:47 | |
Monica Michelle is joined by author Emily Falcon. Emily lives with ALCAPA. In this episode, Monica and Emily discuss:
00:28 - Being a sick kid & Emily’s book title 07:28 - Mortality 10:16 - Portrayal of disability in media 12:21 - Post-surgery support 19:23 - Having a public body 23:43 - Self-motivation 29:46 - Emily’s tips for adventures The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| A 26-Year Search for the Right Diagnosis: Micaela Hoo | 07 nov. 2023 | 00:35:19 | |
Monica Michelle is joined by writer and entrepreneur Micaela Hoo. Micaela lives with Lyme disease, bartonella, babesia, mold toxicity, parasite overgrowth, candida overgrowth, Hashimoto's disease, and Morgellons disease. In this episode, Monica and Micaela discuss:
00:24 - The start of Micaela’s diagnosis journey 14:42 - Gastroparesis & Micaela’s research 16:52 - Healthcare insurance, wait times, and bad docs 21:52 - Micaela’s research pays off 25:52 - Medical closure 29:33 - Micaela’s businesses The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Patience, Productivity, and the “Push Through Pain” Mindset: Rita White | 25 oct. 2023 | 00:28:46 | |
Monica Michelle is joined by physical therapist Rita White. Rita lives with Ehlers-Danlos syndrome, Mast Cell Activation syndrome, and POTS. In this episode, Monica and Rita discuss:
00:38 - Rita’s diagnosis and job 04:58 - “pushing through the pain” 14:10 - handling bad days & Rita’s business 19:28 - productivity and patience 26:16 - favorite purchases under $100 & closing remarks The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Navigating Work, Relationships, and Parenting with Epilepsy: Sara Staggs | 02 oct. 2023 | 00:32:09 | |
Monica Michelle is joined by author Sara Staggs. Sara lives with epilepsy. In this episode, Monica and Sara discuss:
00:30 - Sara’s writing process 06:03 - Sara’s diagnosis & college 09:44 - Pregnancy & parenting 13:37 - Disability disclosure in dating and parenting 19:17 - Characters with chronic illness 24:36 - Seizure first aid and life with epilepsy 27:37 - Favorite purchases under $100 The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com #epilepsy #epilepsyawareness #author #UncontrollableBook #SaraStaggs Hosted on Acast. See acast.com/privacy for more information. | |||
| Talking TV, Reading, Happiness, and Parenting: Dione Bullard | 18 sept. 2023 | 00:36:47 | |
Monica Michelle is once again joined by musician, chef, and activist Dione Bullard. Dione lives with End Stage Renal Disease. In this episode, Monica and Dione discuss:
02:20 - Platonic 11:42 - Somewhere Boy 14:09 - More favorite shows 21:38 - Favorite books 26:17 - Appreciating moments of delight 30:42 - Parenting through guided experience Series mentioned in this episode Available on Apple TV+
Available on Hulu
Available on Netflix
Other
The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Adulting on Disability Income, Reflecting on Privilege and Prejudice: Cosmo | 04 sept. 2023 | 00:38:12 | |
Monica Michelle is joined by activist Cosmo C. Cosmo lives with porphyria, Ehlers-Danlos syndrome, and fibromyalgia. In this episode, Monica and Cosmo discuss:
00:33 - Cats and LARPing 12:05 - Adulting on disability income 22:01 - Privilege and prejudice 31:19 - Deadlines, speech, and steroids The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Resilience & Self-Advocacy in Health, Music, and Culinary Arts: Dione Bullard | 22 août 2023 | 00:41:42 | |
Monica Michelle is joined by musician, chef, and activist Dione Bullard. Dione lives with End Stage Renal Disease. In this episode, Monica and Dione discuss:
06:17 - Dion’s diagnosis 14:44 - Music career & food 21:42 - Self advocacy 26:05 - Disparities in care of dialysis centers 31:27 - How to speak with healthcare professionals 35:22 - Distilling down our purpose in life 37:11 - Favorite apps and culinary tools The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||
| Chronic Pain, Opioid Hysteria, and Tech Tools for Advocacy: Kim Luke | 07 août 2023 | 00:41:50 | |
Monica Michelle is joined by activist Kim Luke. Kim lives with multilevel spondylosis, POTS, and fibromyalgia. In this episode, Monica and Kim discuss:
00:51 - How Kim started 10:54 - Kim’s work 16:03 - Pain clinic negligence 19:33 - Healthcare in politics 27:08 - Recommendations for teaching and advocacy 31:47 - Disability Tech Business Idea 36:04 - The flat effect 40:12 - Pillows! The full transcript and all links mentioned can be found on the episode page on invisiblenotbroken.com Hosted on Acast. See acast.com/privacy for more information. | |||