Explorez tous les épisodes du podcast Inside the Children's Hospital
| Titre | Date | Durée | |
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| Why Hospital Continuity and Staff Support Are Critical: Parents Speak Out | 07 May 2026 | 00:56:12 | |
Supporting Families in Pediatric Healthcare: Insights from Parent Caregivers In this episode, we explore the experiences of parent caregivers navigating their child's complex health journeys, emphasizing the importance of advocacy, sharing stories, and hospital-family collaboration. Join us as these incredible parents discuss how they advocate for their children, the role of social media in building community, and what hospital leadership can do to improve family-centered care.Key topics covered:
Timestamps: 00:46 - Introduction to the episode and guest caregivers' perspectives 01:47 - The role of social media in sharing real-time hospital experiences 05:56 - Reasons behind sharing stories online and the community that forms 09:15 - How sharing supports advocacy and awareness efforts 13:08 - Balancing transparency and privacy when sharing health updates 15:15 - Evolving sharing practices as children grow older 18:57 - Privacy considerations for children with medical needs 21:42 - What hospital staff and leadership can do to improve family experiences 24:22 - The importance of continuity of care and staff retention 28:43 - Overcoming barriers to speaking up at the bedside 33:08 - Building trust and advocacy in healthcare teams 38:32 - Supporting parental mental health and caregiver well-being 44:03 - Strategies for effective parent-physician communication 49:38 - Parent-led initiatives and resources to empower families 51:45 - Current projects and ways to connect with the speakers 55:12 - Closing remarks and gratitudeResources & Links: Connect with the Guests: This episode highlights how sharing personal journeys fosters community, advocacy, and system improvements—empowering families to be active participants in healthcare.
The Inside the Children's Hospital podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.
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| Trisomy 13: Challenging the Narrative and Choosing Hope | 06 May 2026 | 00:59:45 | |
What happens when a diagnosis labeled "lethal" doesn't tell the full story? In this episode of Inside the Children's Hospital, Katie Taylor sits down with Nicole, a mom of five, who shares her daughter Charlotte's journey with Trisomy 13—a diagnosis often associated with limited survival and quality of life. After receiving devastating news over the phone while at work, Nicole and her husband were told their daughter likely wouldn't survive. But instead of accepting that narrative, they sought out information, second opinions, and a care team willing to partner with them. From navigating medical bias and a complicated NICU stay to bringing Charlotte home without nursing support, Nicole shares what it really looks like to parent a medically complex child—and the joy that exists alongside the challenges. This conversation highlights the importance of advocacy, informed decision-making, and viewing each child as an individual—not just a diagnosis. You'll hear:
This is a story of advocacy, resilience, and redefining what's possible What You'll Learn in This Episode
A diagnosis does not define a child's life—and when families are given the space, support, and information to make informed decisions, they can create a path filled with joy, connection, and meaning. Resources Mentioned SOFT (Support Organization for Trisomy 13, 18, and Related Disorders)Emersynn Isla Shining Star Foundation Trisomy 13 & 18 Parent Support Groups (Facebook communities) Understanding Trisomy 13 AAP Article: Guidance for Caring for Infants and Children with Trisomy 13 This episode is a powerful reminder that behind every diagnosis is a child, a family, and a story that deserves to be fully seen and understood.
Connect with Us
The medical information provided is not a substitute for professional advice; please consult your healthcare team. Trisomy 13, Patau syndrome, Trisomy 13 prognosis, Trisomy 13 life expectancy, Trisomy 13 baby thriving, Trisomy 13 and 18 support, SOFT organization Trisomy, NIPT high risk results, amniocentesis Trisomy 13, medical advocacy NICU, DNR without consent NICU, hospital transfer NICU, medically complex child at home, trach and ventilator at home baby, pediatric rare diagnosis, child life specialist NICU siblings, NICU sibling visits, postpartum depression NICU, Trisomy 13 quality of life, rare chromosome disorder support, AAP Trisomy 13 standards of care | |||
| Trust, Grief, and Loving Your Child Through Big Identity Changes | 04 Mar 2026 | 00:34:08 | |
What happens when your child shares something that shifts the future you thought you understood?
In this episode of Inside the Children's Hospital, Katie sits down with Kelly Kemp — certified child life specialist of more than 30 years and mom of three — to talk about navigating trust, grief, advocacy, and love after her child was diagnosed with gender dysphoria and came out as transgender.
Kelly shares:
This conversation is not about politics. It is about parenting inside a medical diagnosis. It is about trust. It is about grief that doesn't mean rejection. And it is about the steady, protective love that children need — especially when the world feels loud. Whether your child is navigating a medical diagnosis, identity development, or a season you didn't anticipate, this episode will remind you: Grief and love can coexist. Trust is foundational. And your child still needs you. Resources & Crisis Support:
Connect & Support from Child Life On Call:
Medical information provided is not a substitute for professional advice—please consult your care team.
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| 203: 12 Years to Diagnosis, Understanding Four Key Emotional Reactions, and Channeling Her Story into Positive Action - Jessica's Story | 24 Jan 2024 | 00:42:46 | |
"If you have a question, ask it. You are the parent, you need to know" - Jessica Siddi-Sewart How can medical parents use their experiences to promote action and advocacy? As a child life specialist, I know that there is not one "normal" or "best" reaction for a parent when their child receives a medical diagnosis. Today's guest, Jessica Siddi-Sewart and she helps us reflect on the different stages parents go through when facing a medical diagnosis for their child. She is also a mother of three, a paralegal, and a business owner. I had the pleasure of meeting Jessica during our time at the American Academy of Pediatrics Conference this past October and was instantly drawn to her products and knew I wanted her to join me on the Child Life On Call podcast. Her company Puffaluffs Inc. was inspired by a personal experience with one of her sons. After giving birth at 28 weeks, a NICU stay, and a long and emotional journey to receiving a diagnosis, Jessica still found a way to make meaning and give back. For Jessica's son, it took 12 years and hundreds of doctor appointments to receive a concrete diagnosis: DiGeorge Syndrome. She shares her journey and learned the importance of finding support and resources from families walking through similar challenges. "It teaches you to pivot. It teaches you, you know, to learn different things and be okay. It is what it is and you will be okay" The resources mentioned in this episode are: Diagnosis resources for families with DiGeorge include: About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures
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| 202: Infantile Spasms, Healing from Trauma and Emotional Resilience | 17 Jan 2024 | 00:47:30 | |
In this episode about parenting a child with infantile spasms, Katie Taylor, a certified child life specialist, has a profound conversation with Hailey, a resilient mother navigating the complexities of raising a child with a disability. Join us as we delve into Hailey's journey, exploring the challenges and triumphs of parenting under extraordinary circumstances. "It's not always about thriving in the traditional sense; sometimes it's about finding small victories in our daily struggles and embracing them." - Hailey Adkisson About the Episode: This episode offers an intimate glimpse into the life of Hailey, a mother from the Pacific Northwest, and her blended family. Hailey shares her experiences managing her professional life while being a dedicated caregiver to her youngest child, diagnosed with infantile spasms. The discussion also touches on the significance of mindfulness and the power of being present, especially during challenging times. From the episode with Hailey and Katie, here are three key takeaways:
"I've learned so much from my daughter. Even though the journey is tough, it has opened my eyes to a different kind of love and strength." - Hailey Adkisson In our enlightening talk with Hailey, we discover the often-overlooked realities of caregiving and the resilience it fosters. Her parenting journey is a testament to the strength found in adversity and the importance of mindfulness in the face of life's challenges. We hope this episode inspires and provides valuable insights to caregivers and families facing similar journeys. You can buy Hailey's book, What is Epilepsy?, on Amazon. About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures | |||
| 201: Personal Growth Theory, NEC in the NICU and Shielding Siblings - Kathryn's Story | 10 Jan 2024 | 00:43:38 | |
I'm his mom, and I carried him for almost nine months, and no one loved him more than me. I'm his expert, and I'm going to own that. - Kathryn Whitaker Have you ever found yourself amazed at the strength people find in the toughest of times? Well, on today's podcast, we're talking about one of the common themes we've seen over the past 200 episodes of Child Life On Call and something I consistently see parents share on social media. We're talking about the incredible phenomenon of PTG, or post-traumatic growth. We're taking a special look at one of the deeply personal journeys a parent has embarked on during and after their child's medical battles. Together, we'll explore how these intense experiences can unexpectedly sow seeds of strength, knit tighter family connections, and awaken a profound appreciation for every precious moment of life. And guess what? We have a special guest, parent, and passionate advocate, Kathryn Whitaker, who's here to share her inspiring story. So grab your favorite cup of comfort, settle in, and join us as we uncover the resilience and beautiful transformation hidden within the heart of every parent's medical challenge. Kathryn Whitaker, a proud 6th generation Texan and a mother of six, brings a wealth of personal experience and resilience to the Child Life On Call podcast. With a background in agriculture and marketing, Kathryn's journey as a seasoned NICU parent has inspired her to advocate for families facing similar challenges. Her work with Hand to Hold, a national nonprofit supporting NICU families, showcases her passion for providing strength and support to others dealing with the NICU experience. Through her difficult experiences, Kathryn has found personal growth and hope, offering valuable insights to parents navigating similar paths. Her unique perspective and unwavering resilience make her a compelling voice for anyone seeking strength and inspiration during challenging times. You are not going to be the same person, thankfully, but hopefully a stronger, better version of the person who walked in the door, as opposed to the person who walks out. - Kathryn Whitaker The resources mentioned in this episode are:
About Katie Taylor, CCLS and Child Life On Call: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field of child life and the families she's served with over a decade of working at the bedside. She is an accomplished author, engaging child life and entrepreneurship speaker, and the Child Life On Call Podcast host. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys. Learn 6 Positions to Help Kids Feel Comfortable and Safe During Procedures
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| 200: Anonymous questions from Instagram, Katie's personal burn story, and reflecting on 2023 | 20 Dec 2023 | 00:35:40 | |
In this milestone 200th episode, Katie delves into a unique mix of content, answering insightful questions from Instagram, sharing a personal story about her daughter Cameron's burn accident, and reflecting on the impactful moments of 2023. The episode features discussions on a variety of books Katie read throughout the year, the best toys of 2023, and tackles the challenging aspects of balancing work and personal life as a child life specialist. Katie's candid sharing of Cameron's experience provides a heartfelt insight into the realities of parenting and healthcare challenges. Toys that I recommend in this podcast: Melissa & Doug Sticker Wow (At Wal-Mart Only) Katie also shares her thoughts on balancing professional responsibilities with personal life, offering valuable insights for child life specialists and parents alike. Additionally, she discusses her favorite books and toys of 2023, showcasing how these resources can be instrumental in child life practice. This episode is not just a celebration of reaching a significant milestone but also a testament to the power of shared experiences and the strength of our community. Tune in to hear Katie's heartfelt reflections and valuable advice as we continue our journey together in supporting families through healthcare experiences.
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| Episode 199 | Kate's Story- A daughter with Infantile Spasms | 13 Dec 2023 | 00:33:16 | |
Join me for an emotional and insightful conversation as I sit down with Kate Kostolansky in this episode of Child Life On Call. Kate, a dedicated mother and advocate, shares her touching journey of raising her daughter, Charlotte, who battles infantile spasms. In this heartfelt discussion, Kate sheds light on the challenges faced by families dealing with rare medical conditions, emphasizing the importance of parental instincts and advocating for timely medical attention. Discover Kate's inspiring efforts to create age-appropriate resources, including a poignant book and a comforting teddy bear, designed to support and educate children navigating epilepsy. This episode offers valuable insights into the world of pediatric epilepsy and the powerful impact of emotional support from peers. Kate's advocacy work and her family's emotional journey will surely resonate with anyone facing similar challenges. Tune in to gain a deeper understanding of navigating pediatric epilepsy and the remarkable strength found in advocacy and support. #InfantileSpasms #PediatricEpilepsy #ChildLife #Advocacy #RareMedicalConditions In this episode, you will be able to:
The key moments in this episode are:
Ways to Connect with Kate Char Bear Keeps Dancing Brave Bear Use discount code CLOC10 to receive a discount! Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.
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| Episode 198 | Jennifer's Story- A son with necrotizing enterocolitis (NEC) | 06 Dec 2023 | 00:27:34 | |
In this episode of Child Life On Call, we are honored to host Jennifer Canvasser, the driving force behind the NEC Society, as she shares her poignant journey and advocacy for Necrotizing Enterocolitis (NEC) awareness in the NICU. Join us as Jennifer unveils her personal story and how she transformed her loss into a powerful force for supporting families grappling with NEC. Gain valuable insights into the pivotal role of human milk and early intervention in mitigating the risk of NEC, and the vital need for open communication between healthcare providers and families in the NICU. Jennifer also sheds light on the indispensable contribution of Child Life specialists and palliative care teams, along with the plethora of resources available on the NEC Society's website. Additionally, Jennifer delves into her touching book, "Forever Our Little One," a heartfelt guide for parents navigating the complexities of grief. Tune in to this impactful episode and be inspired by Jennifer's unwavering commitment to enhancing NEC awareness and providing unwavering support for families in the NICU. In this episode, you will be able to:
More about Jennifer Jennifer Canvasser is the Executive Director and founder of the NEC Society. With firsthand experience as a mother who lost her son to Necrotizing Enterocolitis (NEC), Jennifer's expertise and advocacy work in the field of NEC is invaluable. Her dedication to raising awareness and driving change is evident through her establishment of the NEC Society, which brings together researchers, scientists, and families affected by NEC. Jennifer's personal journey in the NICU has propelled her to create a platform that fosters collaboration and provides support for families facing the challenges of NEC. Her work aims to empower parents and improve outcomes for premature babies at risk of NEC. We are privileged to have Jennifer as a guest on this episode, as she shares her knowledge and personal insights to shed light on the importance of NEC advocacy.
Connect with Jennifer
The key moments in this episode are:
Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.
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| Episode 197 | James' Story- A son with a congenital heart defect | 29 Nov 2023 | 00:43:28 | |
In this episode, our guest James Robinson will share the keys to living life to its fullest, both inside and outside of the hospital, so that you can provide the result of bringing joy and happiness to your child's life, despite their medical condition. James Robinson, the author of the book "More Than We Expected: 5 Years with A Remarkable Son." On today's episode, he shares his personal experience as a parent of a child with a congenital heart defect.
Living in Brooklyn, New York, James and his wife have three children, one of whom was born with a serious congenital heart defect. They navigated their way through multiple surgeries and hospital stays, learning valuable lessons along the way. James's story highlights the importance of holistic care and the impact of medical professionals, from doctors to Child Life Specialists, in providing support to families. James and his family found strength and created meaningful experiences for their child. It was a privilege to be his father. We learned a lot through our journey about what it means to live when you have a medical condition. - James Robinson In this episode, you will be able to:
Connect with James Learn more about James' book here. Link to purchase "More than we Expected" To request bookplates and oregano seeds: https://morethanamemoir.com/bookplates/ Social media: FB: MoreThanAMemoir Instagram: MoreThanAMemoir X/Twitter: MoreThanAMemoir All bestThe key moments in this episode are: Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.
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| Episode 196 | Hannah's Story-A son with VACTREL Association | 15 Nov 2023 | 00:49:53 | |
In this episode, you will be able to:
Hannah Parsons is the guest on this week's episode of Child Life On Call. She shares her personal journey as a mother to a child with Vactrel Association. Hannah has a diverse background, starting out as an actor and comedian before transitioning into editing and stagecraft. Living in Los Angeles with her husband and two-year-old son, Obie, Hannah has faced numerous challenges and complexities throughout her son's medical journey. From navigating a unique pregnancy without insurance to experiencing the unexpected during childbirth, Hannah's story sheds light on the emotional rollercoaster of motherhood and medical motherhood. Her determination, resilience, and unwavering belief in her son's well-being are truly inspiring. Tune in to hear Hannah's incredible journey and gain insights into the realities of special needs parenting. The key moments in this episode are:
Connect with Hannah here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. | |||
| Episode 195 | Mackenzie's Story- A daughter with Severe Tethered Cord and Caudal Regression Syndrome | 08 Nov 2023 | 00:30:13 | |
Join Katie Taylor in an emotional conversation with Mackenzie Carolin as they discuss the unexpected medical journey she faced with her daughter. Learn how Mackenzie navigated the complexities of her child's healthcare needs and discover the importance of trust and human connections during challenging times. This episode of Child Life On Call provides valuable insights and support for parents who find themselves in similar situations. Don't miss this heartwarming and inspiring discussion that highlights the power of advocacy and the strength of a supportive community. Join us now and start watching to gain valuable knowledge and find solace in knowing you're not alone in your journey. In this episode, you will be able to:
My special guest is Mackenzie Carolin. Mackenzie Carolin, a parent from Florida, joins us on this episode of Child Life On Call. Mackenzie shares her personal journey as a mom navigating unexpected medical conditions with her child. With a background in the medical field and surrounded by family members in healthcare professions, Mackenzie brings a unique perspective to the challenges faced by families in similar situations. From the initial shock of discovering her daughter's condition to the emotional rollercoaster of hospital visits and uncertainty, Mackenzie's story highlights the importance of trust, human connections, and advocating for your child's healthcare needs. Join us as Mackenzie shares her experiences and provides valuable insights for parents in similar situations. The key moments in this episode are: Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.
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| Episode 194 | Keeley's Story- A daughter with hydrops fetalis | 01 Nov 2023 | 00:47:34 | |
Are you a parent of a child with a medical condition? Join me, Katie Taylor, as I chat with Keeley Machen Schares, a Child Life Specialist, in this special episode of Child Life On Call. Keeley takes us through her incredible journey as a mother to a premature baby with hydrops fetalis and profound hearing loss. From routine ultrasounds to a life-saving diagnosis, Keeley's story will captivate you. Learn about the challenges she faced, the importance of finding the right medical team, and the power of support from fellow parents. Keeley's experience serves as a beacon of hope and inspiration for parents navigating through their own medical journeys. Don't miss out on this heartfelt conversation and join us today. In this episode, you will be able to:
My special guest is Keeley Machen Schares Keeley Machen Schares is a seasoned Child Life Specialist with over seven years of experience. As a dedicated mom herself, she understands firsthand the challenges and emotions that come with having a child with medical conditions. Keeley's journey took an unexpected turn when her daughter, Dottie, was diagnosed with hydrops fetalis during pregnancy. This life-changing experience led her to navigate the complexities of the healthcare system while also being a supportive advocate for her daughter. Keeley's expertise in child life and her personal experience as a parent of a child with special healthcare needs make her a valuable resource for other parents facing similar situations. She brings a unique perspective and a wealth of knowledge to the discussion, providing insights and support to parents dealing with prematurity, hydrops fetalis, and hearing loss. The key moments in this episode are:
Connect with Keeley here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. | |||
| Helping Kids Navigate Physical Differences: Child Life Strategies for Confidence, Curiosity & Resilience | 25 Feb 2026 | 00:31:58 | |
How do you help a child respond when someone asks about a scar, burn, or limb difference? This week's guest, Abby Horton, opens up about her journey as a Child Life Specialist working across ICU, burn, surgical, rehab, and inpatient settings—and how those experiences shaped the way she supports families navigating physical differences. From sudden trauma and accidents to limb differences, burn injuries, surgical scars, and hair loss from chemotherapy, Abby shares how parents can gently empower their children to own their story with confidence. She and Katie discuss simple, age-appropriate scripts that help children respond to questions about their bodies. Abby explains why modeling these conversations early matters, how to give kids space to answer for themselves, and why curiosity from peers is often just that—curiosity, not cruelty. If you've ever wondered how to help your child respond to stares, questions, or comments about a physical difference, this conversation offers practical tools and deep reassurance. Abby's biggest message? You're probably doing better than you think—and it's not about having perfect words, but about helping your child feel loved and supported. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources & Ways to Connect: Website: Little Lighthouses Child Life Services Abby offers virtual support for families navigating physical differences, medical transitions, and post-hospital adjustment. Connect & Support from Child Life On Call:
Medical information provided is not a substitute for professional advice—please consult your care team.
Keywords: physical differences in children, limb difference support, burn survivor child, surgical scars in kids, hair loss from chemotherapy, child life specialist, five cent story, five dollar story, resilience in children, bullying vs curiosity, parenting medically complex child, body confidence in kids, hospital to home transition, psychosocial support for families, sibling advocacy, Little Lighthouses Child Life | |||
| Episode 193 | Katie's Takeaways from the American Academy of Pediatrics Conference | 25 Oct 2023 | 00:16:08 | |
It's a solo episode this week and our host, Katie Taylor, CCLS, dives in to what she experienced at the American Academy of Pediatrics Conference. Katie talks about her travels to Chicago to train a group of clinicians in Chicago, and then her trip to DC where she had hundreds of conversations with pediatricians from across the globe. What was the overwhelming takeaway? PEDIATRICIANS LOVE CHILD LIFE, y'all! Listen to hear more about what Katie learned as a child life specialist exhibiting at the conference for the first time. ____ Are you a parent of a child who HATES shots? Me, too! But, rest assured - we're giving you ALL the tips and tricks to make these experiences way easier for kids... and YOU! These are the LAST few days to get course access to our Parent Course "How to Help Your Child With Shots!" ____ Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
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| Episode 192 | [Repost] Teresa's Story- A daughter with Spina Bifida and a Tethered Cord | 18 Oct 2023 | 00:46:48 | |
This episode is a repost in honor of Spina Bifida awareness month. Are you a parent of a child with spina bifida who is seeking support and guidance to navigate the challenges of raising your child? Are you looking for increased understanding, support, and strategies to help you and your child thrive? Join us as we welcome guest Teresa Crespo, who will be sharing the solution to help you achieve that desired outcome. Get ready to gain valuable insights and practical tips that will empower you as a parent and enhance your child's quality of life. In this episode, you will be able to:
My special guest is Teresa Crespo Allow us to introduce Teresa Crespo - a mother, a problem solver and an advocate for kids with Spina Bifida. Hailing from Miami, Teresa's 14-year old daughter Isabella was born with this congenital disorder, which led her into a rollercoaster ride through the healthcare system. Also an entrepreneur, Teresa co-created 'Hidden Underwear', a solution for children, like Isabella, who want to blend in with their peers. Teresa's strength, determination, and warm demeanor make her a beacon of hope for other parents. The key moments in this episode are: Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨👩👧👦💉It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here! | |||
| Episode 191 |[Repost] Shani's Story-A child with a learning difference #ADHD #Anxiety #Dyslexia #Dysmorphia | 11 Oct 2023 | 00:43:36 | |
We wanted to repost this epsidoe to highlight that October is Learning Disabilities / Dyslexia / Attention Deficit Hyperactivity Disorder Awareness Month. In a world of unexpected twists, sometimes the greatest surprises lie within our own children. Child Life Specialist, Shani Thornton's journey with her son's learning differences took an unforeseen turn, unraveling a mystery that went beyond what anyone could have imagined. But what if this unexpected twist held the key to unlocking their hidden potential? Join us as we delve into the story of a mother's unwavering determination, and discover how engaging in activities outside of academics could be the missing piece to building confidence and self-esteem in children with learning differences. Get ready to embark on a journey of empowerment and endless possibilities... In this episode, you will be able to:
My special guest is Shani Thornton Meet Shani Thornton, a seasoned Child Life specialist with nearly 14 years of experience in the field. Living in Northern California, Shani balances being a loving mom of two alongside running her private practice, Child Life Mommy. Typically offering a range of services including hospice care support for children of adult patients, workshops, and grief counseling, Shani's approach is marked by compassion and understanding. Known for her deep understanding of child development, she has a personal connection to this episode's theme: raising confident children with learning differences. Shani has navigated her own children's learning journey and excels in creating an environment that facilitates emotional growth beyond academics. The key moments in this episode are:
Connect with Shani here. Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨👩👧👦💉It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here! | |||
| Episode 190 |Sara's Story- Telling your Child you have Cancer [Repost in honor of Breast Cancer Awareness Month] | 04 Oct 2023 | 00:52:42 | |
In honor of October being Breast Cancer Awareness month we wanted to repost this episode to provide awareness to our community. Breast cancer survivor, Sara Olsher, battles the disease as a single parent, using her experience to empower others and create resources for families facing cancer, in a moving and inspiring episode of the Child Life On Call podcast. In this episode, you will be able to:
My special guest is Sara Olsher Let's meet Sara Olsher, a mother, a steadfast partner, and a formidable cancer warrior. Living in the heart of California's wine country, Sara embodies the phrase 'survivor' in more ways than one. Having traversed the rocky terrain of single parenthood and then battling against a troublesome breast cancer diagnosis, Sara's life journey is nothing short of inspirational. Her frank and sensitive sharing of her personal struggles inspires hope and resilience. The key moments in this episode are: Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨👩👧👦💉It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here! | |||
| Episode 189 | Ryan's Story - A son with Costello Syndrome | 27 Sep 2023 | 00:47:22 | |
My special guest is Ryan Sheedy Meet Ryan Sheedy, an incredible father who, much to his own surprise, found himself immersed in the delightful chaos of caring for twin boys. His world drastically transformed ten years ago, when he moved from Pennsylvania to Bentonville, Arkansas. Not only has Ryan navigated the unexpected challenges of parenting twins, but he has also bravely navigated his son's Costello Syndrome diagnosis. Through it all, he's embraced being a stay-at-home dad, constantly learning, adapting and conquering unforeseen hurdles. We can plan as much as we want to plan, but it's out of our control. We have to go with the flow. - Ryan Sheedy In this episode, you will be able to:
The key moments in this episode are: Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨👩👧👦💉It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here! | |||
| Episode 188 | Rhandyl and Deonna's stories from Raising Disabled | 20 Sep 2023 | 00:56:12 | |
My special guest is Rhandyl Vinyard, Deonna Wade Rhandyl Vinyard and Deonna Wade are two phenomenal mothers from Texas, each raising disabled children. Drawn together by shared circumstances, their friendship continues to strengthen others walking a similar path. Rhandyl, a physical therapist assistant, is the mother to Remy, who has required intensive medical care from an early age. Her background in healthcare provides a unique perspective into the challenges of raising a disabled child. Deonna, once a teacher, is mom to Allie who was thrust into an unexpected medical journey after a rare and tragic accident. Both moms bring a wealth of personal experience and heartfelt understanding to the table, connecting communities and gifting invaluable advice to others. If that's your only thing is being that caretaker role and that's it, it's going to eat you up eventually... life is short and that we're not guaranteed tomorrow. So let's just have fun today and be happy and thankful for what we have. - Deanna Wade In this episode, you will be able to:
The key moments in this episode are: Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨👩👧👦💉It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!
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| Episode 187 | Kayleigh's Story-A Child Life Specialist's son with Tetralogy of Fallot [part 2] | 13 Sep 2023 | 00:35:12 | |
Do you want to become a confident advocate for your child's medical needs? Are you searching for a solution to navigate the complex world of medical care for children with conditions? Join us as we welcome Kayleigh Koehler, a Child Life Specialist who has transformed into a medical parent. She will be sharing valuable insights and strategies on how you can achieve the ultimate goal of becoming a knowledgeable and effective advocate for your child's medical journey. Get ready to embark on a transformative journey towards becoming the empowered advocate your child needs. Kayleigh Koehler is a remarkable and multifaceted individual who navigates through life wearing various hats. As a wife to her high school sweetheart Mitch and a mother to their charming four-year-old son, Hudson, Kayleigh's world is filled with love and profound resilience. Professionally, she is a dedicated child life specialist working tirelessly in a cardiac ICU. Her firsthand expertise and personal connection to her job started to take a unique and powerful perspective when her unborn son was diagnosed with a heart condition. Kayleigh's courage, wisdom, and gutsy perseverance inscribed an unforgettable chapter in her life story where her professional and personal world astoundingly intertwined. Because of this experience, I am a better child life specialist. Because I understand the world in a different way that I simply could not understand when I wasn't a mom. - Kayleigh Koehler
The key moments in this episode are:
Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨👩👧👦💉It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here! | |||
| Episode 186 | Kayleigh's Story - A Child Life Specialists son with Tetralogy of Fallot [part 1] | 06 Sep 2023 | 00:31:23 | |
Welcome to the ChildLife On Call podcast, where I, Katie Taylor, sit down with Kayleigh Koehler, a certified child life specialist, to discuss her journey as a medical mom and a child life specialist in a cardiac ICU. Join us as we dive into Kayleigh's personal story, from her gut intuition during pregnancy to her son's diagnosis, and the emotional challenges she faced along the way. We explore the importance of trusting gut intuition, the complexities of navigating the healthcare system as a parent, and the impact of personal experiences on professional practice. Whether you're a child life specialist, nurse, doctor, or any healthcare professional working with pediatric patients, this episode will provide you with valuable insights and a deeper understanding of the emotional journey of becoming a medical mom. Get ready to be inspired and gain a new perspective on supporting families through challenging medical experiences. In this episode, you will be able to:
My special guest is Kayleigh Koehler Our guest today, Kayleigh Koehler, paints a picture of resilience and determination in her unique personal and professional journey. From her early days being a carefree high school lover with her husband, Mitch, to becoming a mother to their vibrant son, Hudson - she personifies strength. Alongside the joys and challenges of parenting, Kayleigh also stars as a certified child life specialist working passionately in a cardiac ICU. When they discovered Hudson's heart condition, her professional and personal life merged in an unprecedented way. This transformative experience endowed Kayleigh with a profound understanding of patient care, advocacy, and resilience. Her story is a testament to her unbreakable spirit. The key moments in this episode are: Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialists and Clinicians! 🌈👨👩👧👦💉It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here! | |||
| Episode 185 | J.R.'s Story- A son with a Rare Disease | 30 Aug 2023 | 00:48:57 | |
Meet J.R., a parent on a challenging journey. From aggressive behaviors to sensory challenges, she shares her struggles of raising a child with severe special needs. But just when things start to improve, an event occurs which leaves her questioning everything. You will not want to miss this story of resilience and uncertainty. In this episode, you will be able to:
My special guest is J.R. Meet J.R., a remarkable woman whose world authentically embodies the complexities and nuances of parenting. An academic powerhouse, J.R. boasts a solid background in molecular biology and human genetics. But it's her real-life experience as a mother to three beautiful sons - one of whom has a severe diagnosis - that truly validates her expertise. Her middle son's journey with intellectual disability, seizures, autism, and behavioral challenges led to his group home placement from the age of twelve. J.R.'s dedication to understanding and improving the lives of children with complex needs manifests in her volunteering with the SynGAP Research Fund. Her candid accounts of becoming a parent, navigating the healthcare system, and learning to balance her family's varied needs radiate a contagious strength and resilience. The key moments in this episode are: Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialist and Clinicians! 🌈👨👩👧👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!
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| Episode 184 | Casey's Story - Free Resources to Bring Families Together | 23 Aug 2023 | 00:24:14 | |
In the world of healthcare, where hope often intertwines with despair, one woman's accidental encounter sparked a revolution of compassion. Casey Baynes, driven by a single twist of fate, unlocked the power of providing support and joy to critically ill children and their families. The story unravels in unexpected ways, leading us down a path where ordinary logistics transformed into extraordinary healing. Brace yourself for a tale that will leave your heart racing and your soul yearning for more. My special guest is Casey Baynes Casey Baynes is an inspiring individual with a heart of gold and an unmatched passion for supporting the families of critically ill children. She has dedicated her life to ensuring that these families are treated with love, compassion, and care through her organization, Casey Cares Foundation. Having started her journey as a volunteer at a children's hospital, Casey's life took an unexpected turn when she witnessed the challenging lives of these children. Today, with her team, she creates memorable moments for these young patients and their loved ones with programs like Cammie's Jammies and fun family movie nights. If we all pull together and help and support one another, we can make it. - Casey Baynes In this episode, you will be able to: The key moments in this episode are:
Connect with Casey Cares Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. | |||
| Micro Preemie at 25 Weeks: A NICU Mom's Journey | 18 Feb 2026 | 00:43:09 | |
This week's guest opens up about the shock of an emergency C-section at 25 weeks and 3 days, the fear of entering the NICU for the first time, and the powerful role Child Life Specialists played in supporting not only Vincent, but their entire family, including his older brother. She reflects on what helped her cope during long NICU days, how she advocated for herself using her healthcare background, and what she wishes she had known about the "medically complex" label sooner. This episode explores sibling bonding in the NICU, the impact of a truly integrated care team, the importance of addressing social determinants of health, and how resilience can grow in the smallest of patients. Anna's story is a beautiful reminder that families may not remember every name—but they will always remember how they were made to feel. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources Mentioned Today's Episode: Connect with Anna: Connect & Support from Child Life On Call:
Medical information provided is not a substitute for professional advice—please consult your care team. Keywords: micro preemie, NICU journey, 25 week preemie, medically complex child, chronic lung disease in children, antepartum hospitalization, emergency C-section, sibling support in NICU, child life specialist, Ronald McDonald House, Hand to Hold, March of Dimes, NICU discharge, parenting after the NICU, medical motherhood, resilience in children, premature birth support, Midwest NICU mom | |||
| Episode 183 | An EMS professional tells us how to prepare your child for an ambulance ride | 16 Aug 2023 | 00:28:50 | |
Have you ever heard these myths about preparing children for ambulance rides and hospital transfers? Myth 1: Children don't need any special preparation for medical transportation. Myth 2: It's best to keep children in the dark about what to expect during the ride. Myth 3: Distractions like toys or electronics can prevent children from feeling anxious. In this episode, our guest Josh Itano will debunk these myths and share the truth about how to prepare children for a smooth and anxiety-free medical transportation experience. Join host Katie Taylor as she interviews ambulance paramedic Josh Itano, who shares valuable insights on how to prepare children for ambulance rides and hospital transfers. Learn how to ease your child's anxiety and create a comforting environment, but be prepared for a shocking moment that will leave you questioning what happens next. Find out more on the Child Life On Call podcast. In this episode, you will be able to:
My special guest is Josh Itano. Meet Josh Itano, an empathetic first-responder whose commitment to his profession is evident in the extra steps he takes to provide comfort during stressful times. After spending over three and half years working as an EMT Basic, Josh's experiences span from serving suburban Chicago neighborhoods to aiding in wilderness settings. He's been an EMTB Field Training officer and chaplain, and he voluntarily serves the Glenwood Volunteer Fire Department. Josh brings to light the critical aspect of communication during high-stress situations and shares his experiences dealing with a range of patients, including those dealing with psychological distress. The key moments in this episode are: Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. Feel empowered with Child Life On Call's Mastering Immunizations: Expert Tips to Prepare, support and respond like a Child Life Specialist Course for Parents, Child Life Specialist and Clinicians! 🌈👨👩👧👦💉 It is the only course you'll ever need to be able to prepare, respond and support your child at any age and stage for immunizations. Evidenced-based tips from a child life specialist who has been supporting kids through painful procedures for 13+ years. This offer will only be available for a limited time. Pre-order your course today here!
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| Episode 182 | Virtual Child Life Services in the Hospital with Sarah Lanham | 09 Aug 2023 | 00:18:30 | |
In a world turned upside down by the pandemic, one Child Life Specialist found herself on a journey she never could have anticipated. But little did she know, a twist of fate was about to lead her down an unexpected path. This story is the catalyst for a groundbreaking virtual Child Life Specialist program. Stay tuned to discover how her resilience and determination transformed the healthcare experience for children and their families, forever changing the landscape of pediatric care. In this episode, you will be able to:
My special guest is Sarah Lanham Meet Sarah Lanham, a dedicated and passionate Certified Child Life Specialist revolutionizing the field with her innovative virtual services. She hails from Grand Rapids, Michigan, working at the renowned Helen DeVos Children's Hospital. Since stepping into the world of virtual patient care, Sarah has effectively transformed traditional face-to-face services, demonstrating the direct impact virtual child life services can have on kids and their families. Her work not only helps to demystify hospital visits for children but also significantly reduces their apprehension and fear. Her successful adaptation to a virtual setting underscores her skill in navigating the modern needs of child healthcare. The key moments in this episode are:
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| Episode 181 | Jan' s Story- A daughter with PVOD and a Lung Transplant | 02 Aug 2023 | 00:49:10 | |
A mother fights against time and navigates the emotional rollercoaster of her daughter's lung transplant, as she strives to fulfill her promise while facing the heart-wrenching challenges of the organ transplant process in a race for survival. In this episode, you will be able to:
My special guest is Jan Stepps Life sometimes throws curveballs that test our strength and resilience. As a parent who has navigated the complex journey of her child's lung transplant, Jan Stepps is a beacon of hope and strength for all families facing similar situations. Armed with personal experience and the lessons learned from her daughter's PVOD diagnosis and subsequent transplant, Jan generously shares her insights on the emotional highs and lows of this life-changing journey. Once an accomplished train dispatcher, she adeptly uses her situational management skills, providing clarity amidst the chaos that such overwhelming situations create. The key moments in this episode are:
Connect with Jan Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here. Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.
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| [Child Life 101] How to Prepare Babies, Kids and Teens for Procedures | 31 Jul 2023 | 00:19:04 | |
[ Child Life 101] How to Prepare Children for Medical Procedures Does this sound familiar? You try to prepare children for medical procedures, but no matter what you do, they still end up feeling stressed and anxious. You've been told to simply explain the procedure to them, but it's not working. The pain of seeing children scared and overwhelmed during medical experiences is heart-wrenching, and you're desperate to find a better way to help them feel informed and equipped. In this episode, you will be able to:
The key moments in this episode are: We want to make sure that they have accurate information. One of the things we can do with these preschoolers who use their beautiful imagination is really use that to our advantage when we are preparing them for something. - Katie Taylor
Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
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| Episode 180 | Dianne's Story- How Neurofeedback helped her son | 26 Jul 2023 | 00:30:02 | |
If you're feeling overwhelmed, frustrated, and powerless as you try to address your child's unresolved behavioral issues, only to see them persist and worsen, then you are not alone! Despite your best efforts, the actions you may already be taking, such as discipline strategies, counseling, or seeking help from professionals, may not be producing the desired results. Instead, you may be witnessing strained relationships within your family, academic struggles, social isolation, and a constant sense of stress and worry. Understanding the long-term effects of unresolved behavioral issues on individuals and families is crucial in order to find effective support and interventions for your child. In this episode, you will be able to:
My special guest is Dianne Kosto Our guest for this episode is Dianne Kosto, founder, and CEO of Symmetry Neuro-PT. A mother deserving the title on a mission, she has spent her life tirelessly looking for ways to help her son. Her dedication led her into unfamiliar territory: Neurofeedback. From holes in the walls to constant disruption at home and school, Dianne's quest for a solution kept taking her back to square one. That is, until she discovered neurofeedback. This unexpected journey allowed her son to thrive and inspired Dianne to shift gears professionally, creating a platform through which she could support other families. The key moments in this episode are: Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.
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| Episode 179 | Laura's Story-Why Therapeutic Play is Essential During Healthcare Experiences | 19 Jul 2023 | 00:31:53 | |
Attention, parents! Have you ever come across these myths while seeking ways to support your child's emotional well-being during healthcare experiences? Myth #1: Children are too young to understand and process their emotions. Myth #2: Therapeutic play is just a form of entertainment, not a valuable tool for emotional support. Myth #3: Children will naturally bounce back emotionally after healthcare experiences. Well, today we have an expert guest, Laura Sufka, who will debunk these myths and shed light on the importance of therapeutic play in supporting children's emotional well-being. Get ready to discover the truth and equip yourself with the tools to help your child process their emotions effectively. In this episode, you will be able to:
Let's introduce Laura Sufka, certified Child Life Specialist and a staunch believer in the healing power of play. With more than 20 years serving children and families in the healthcare setting, Laura's approach to children's emotional well-being emphasizes the therapeutic power of undirected play. Her extensive experience across various healthcare environments shaped her holistic approach, continuously adapting and evolving to best serve children's needs. She is the proud founder and owner of Children's Coping Connection, her private practice. Here, Laura employs therapeutic play as a modality to help children process challenging life events, extending her expertise and support into the homes of those in need. Her work underlines her unwavering dedication to empowering children in healthcare settings. The key moments in this episode are:
Connect with me here:
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| Episode 178 | Expert Guest on Adolescent Medicine: Dr. Hina Talib | 12 Jul 2023 | 00:33:50 | |
If you're feeling overwhelmed and powerless as you watch your teenager's health concerns worsen, despite your efforts to find solutions, then you are not alone! In this episode, you will be able to:
In a world where unexpected twists can alter the course of our lives, Hina Talib's journey into adolescent medicine was nothing short of serendipitous. Little did she know that a chance encounter during a medical school rotation would ignite a passion so fierce, so resolute, that it would shape her life's work. But what was it about this field that captivated her? What secrets did she uncover that could forever change the lives of parents with health concerns for their teenagers? Brace yourselves, for within this transcript lies an unexpected twist that will leave you yearning for more. The key moments in this episode are: The resources mentioned in this episode are:
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| Episode 177 | Kimberly's Story - Cord Prolapse and Emergent C-Section at 26 Weeks | 05 Jul 2023 | 00:36:39 | |
Empowering NICU Parents: Kimberly Reyes Shares Her Advocacy Journey If you're feeling helpless and overwhelmed in your NICU journey, despite trying to be involved and advocate for your baby, then you are not alone! It can be frustrating when your requests and concerns are not heard or acted upon by healthcare providers, and you may feel like you have no control over your baby's care. You may be spending countless hours researching and asking questions, but still feel like you're not making progress. It's important to know that your feelings are valid and that there are ways to increase your involvement and advocacy in your baby's care. In this episode, you will be able to:
My special guest today is Kimberly Reyes. We are excited to introduce Kimberly Reyes, a compassionate mother who channeled her own NICU journey into a mission to inspire and educate other parents. With a background in teaching that spans 15 years, Kimberly has a natural ability to connect with others and share her story in an impactful way. Facing the challenges of having a premature baby during the global Covid-19 pandemic, she has become a resilient advocate for parental involvement in the NICU. Kimberly's firsthand experience of fighting for her child's care and advocating for her family has made her story both relatable and inspiring for other NICU parents. The key moments in this episode are: 00:00:02 - Introduction, 00:02:42 - Pregnancy Journey, 00:06:55 - NICU Journey, 00:10:43 - Advocating for Yourself and Your Child, 00:14:46 - Conclusion, 00:16:17 - The Importance of Humanity in Medical Care, 00:21:23 - Recognizing Grief in Medical Settings, 00:25:00 - Finding Community and Support in Medical Settings, 00:29:32 - The All the Unexpected Hub, 00:33:23 - Importance of Advocacy, 00:33:53 - Changing World Views, 00:34:07 - Gratitude Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
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| [Child Life 101] Empowering Parents: How Child Life Specialists Teach Effective Advocacy | 03 Jul 2023 | 00:10:50 | |
Do you want to feel empowered and confident in advocating for your child's healthcare needs? Are you searching for a solution that will help you effectively speak up for your child in healthcare settings? In this episode, I will be sharing the key to unlocking your advocacy potential, enabling you to achieve the outcome you desire - ensuring the best possible care for your child. By exploring the role of child life specialists, together we will explore how child life provides you with the knowledge and tools necessary to become a formidable advocate. Say goodbye to feeling overwhelmed and uncertain, and hello to being a strong and effective voice for your child's healthcare needs. They show you how to understand your child's needs and empower you to advocate for their wellbeing. In this episode, you will be able to:
The key moments in this episode are:
Every family deserves a child life specialist. ________________________________________ Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform revolutionizing pediatric healthcare by putting parents at the center of the medical journey. With over 13 years of experience as a certified child life specialist, Katie has made significant contributions to the field. She is an accomplished author, an engaging speaker on child life and entrepreneurship, and the host of the Child Life On Call Podcast. Katie's work emphasizes the vital role of child life services in supporting caregivers and enhancing children's medical journeys.
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| Supporting Deaf and Hard of Hearing Children: Expert Guidance | 28 Jun 2023 | 00:33:31 | |
Today's guest on the podcast is Dr. Barbara Hecht, National Director of Strategic Initiatives and Partnerships at Clarke Schools for Hearing and Speech. She shares with us how to support Deaf, Deaf +, and Hard of Hearing students. Dr. Hecht shares about early intervention, brings awareness to CMV (cytomegalovirus), and how telehealth has positively impacted students. Katie and Dr. Hecht have such an important conversation you will not want to miss on today's episode of the podcast! [2:20] Dr. Hecht introduces herself [3:40] Being involved with the IDEA law [5:42] How she became involved with Clarke Schools [10:00] Diagnosing hearing loss in infancy [12:40] Two major causes of hearing loss [13:16] Cytomegaolvirus (CMV) during pregnancy [15:12] Importance of early intervention [17:50] Early Intervention is available in every state [18:39] Pleasantly persistent parent [20:00] Acess to Clarke Schools [21:36] Efficiency of teleservices [24:33] How Clarke Schools support families [26:45] Explaining Deaf + [28:40] Integrating a tool for everyone [31:00} Normalization n the atypical Connect with Clarke Schools
When parents feel empowered, everyone wins – kids thrive and the care team excels!
Learn more here. Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
The Child Life On Call Podcast is for informational and educational purposes only. The content shared in each episode, including stories, discussions, and interviews, is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you heard on this podcast. The views and opinions expressed by guests on the Child Life On Call Podcast are their own and do not necessarily reflect those of Child Life On Call. Child Life On Call does not endorse any specific medical treatments, procedures, or opinions shared in the podcast. If you or your child are experiencing a medical emergency, call 911 or seek immediate medical attention. By listening to this podcast, you acknowledge that Child Life On Call and its affiliates are not responsible for any decisions made based on the information provided.
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| Tube Feeding Awareness: Lived Experience, Real Talk, and Hope for the Future | 11 Feb 2026 | 00:45:37 | |
When tube feeding enters your life—whether at birth, in childhood, or adulthood—it can feel overwhelming, isolating, and misunderstood. In this special live episode of Inside the Children's Hospital, we center the voices of those with lived experience to explore what tube feeding really looks like beyond the diagnosis and discharge instructions. Host Katie Taylor is joined by parent advocates, a young adult patient, and a pediatric dietitian to share honest, unfiltered perspectives on NG tubes, G-tubes, GJ tubes, and blended feeds. Together, they discuss early fears and misconceptions, navigating medical systems and insurance, advocating for better options, and how tube feeding can ultimately bring relief, stability, and freedom. This conversation highlights the power of community, the importance of being believed, and what compassionate, family-centered support truly looks like—for patients, parents, and professionals alike. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings.
Resources from today's episode:
Connect with Guests from Today's Episode:
Connect & Support from Child Life On Call:
Keywords: Medical information provided is not a substitute for professional advice—please consult your care team. | |||
| Episode 175 | Child Life in the Emergency Room (ER) | 21 Jun 2023 | 00:30:27 | |
Going to the emergency room with your child for any reason is never an occasion you plan on. Today, Sam Kraewic and Jessica Baird, Child Life Specialists working in the Emergency Room empower and equip us on how to be the best advocates when it comes to the Emergency Room. From medical play to normalizing the hospital at home there are many ways parents can plan for the unexpcted. Katie, Jessic and Sam have great conversation surrounding Child LIfe in the Emergency Room. [3:30] Introductions [3:46] Meet, Jessica [4:40] Meet, Sam [6:25] Swabs in the emergency room [8:15] Medical play for swabs [10:00] Letting parents know they have a voice [12:00] Comfort items in the waiting room [13:34] Triage can be stressful [14:50] Talking to your child about what you might see [15:19] Don't make promises they can't keep [18:17] Familiarizing home and hospital [20:20] Children feed off our emotions [22:22] Stepping away is ok [23:10] Mental Health in the Emergency Room [25:50] Therapeutic games addressing emotions [27:00] First trusted contact Connect with Jessica and Sam Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. | |||
| [Child Life 101] Supporting the Siblings in Pediatrics | 19 Jun 2023 | 00:11:47 | |
"What we can do as parents and professionals is look past the behavior." Helping Hands: Resources for Parents Supporting Siblings in Healthcare SituationsI remember the first time I saw the impact of a sibling's illness on a family. It was heart-wrenching to watch as the older sibling hesitantly chose a toy to play with in the hospital playroom. As a Child Life On Call specialist, I've learned valuable strategies to support siblings in healthcare situations. But what surprised me was the positive transformation that happened when we involved siblings every step of the way. By providing age-appropriate information and emotional support, we strengthened bonds and alleviated misunderstandings. The unexpected twist? Seeing the siblings become stronger together. Now, as I continue to support families, I'm reminded of the remarkable resilience of siblings. And I can't wait to see where their journey takes them next. In this episode, you will be able to:
The key moments in this episode are: Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
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| Episode 174 | Finding out your Child has Cancer During your Pediatric Residency with Dr. Maureen Michele | 14 Jun 2023 | 00:31:45 | |
Dr. Maureen Michele brings such a valuable perspective to the podcast with her experience being a pediatrician and mother to a medically complex child. Maureen shares with us how to become an advocate and what inspired her to write a book called, 'Reclaiming your Life.' Her book is meant to guide parents who have a child with a medical diagnosis. Maureen shares a snapshot of her book through a thoughtful conversation with Katie. [4:00] Introductions [6;00] Motherhood and Medical School [7:02] Learning her daughter had neuroblastoma as an infant [8:00] Her daughter shared concerns about frequent urination [8:42] Learning she had type 1 Diabetes [10:00] How it changed her as a physician [12:21] Realizing what was unhealthy [14:50] Losing herself in the process and worry [16:00] Doctors are human too [17:30] Trust but verify [18:16] Collaboration between parents and doctors [19:30] Approaching the situation with a spirit of collaboration [24:16] Reflecting on her daughter's care [25:30] Wanting to be a mom, not a doctor [28:52] '"Reclaiming Life" book Connect with Maureen Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. | |||
| [Child Life 101] How to Have Difficult Conversations with Kids | 12 Jun 2023 | 00:02:31 | |
So happy to share this "child life insight" with parents and professionals, but first let's answer the question: What are child life specialists?Child life specialists are trained professionals who provide emotional support and guidance to children and families facing challenging life experiences. They are experts in helping children cope with difficult topics and ensure that children's development is as smooth as possible while going through challenging times. In this episode, we talk about how caregivers navigate difficult conversations:Here's a break down of what we cover:
Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
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| Episode 173 | Dr. Korie Leigh - What Does Grief Feel Like? | 07 Jun 2023 | 00:19:36 | |
Dr. Korie Leigh is our guest today on the podcast, sharing with our listeners what grief feels like. Dr. Leigh is a Child Life Specialist, Thanatologist, Associate Professor, and most recently a Children's Book Author. Katie and Dr. Leigh have an essential conversation surrounding grief and what it feels like and how her new book, "What does grief feel like?" can guide parents and professionals to navigate the questions that come with talking about grief with children. [3:55] Dr. Leigh introduces herself [5:00] Sharing her why [6:24] Growth in grief [7:49] Dr. Leigh's new book launched [9:33] Helping children navigating grief [11:02] Reflecting on the grief process [12:47] Conversations about grief take place over time [13:42] How grief is felt in the body [15:51] Asking for feedback and input to expose pre-teens and teens [17:43] Dr. Leigh's new book Connect with KorieBookshop link: https://bookshop.org/a/85078/9781631987069 Publisher link -the 20% off code is A23LEIGH https://www.teachercreatedmaterials.com/free-spirit-publishing/p/what-does-grief-feel-like/899857/ Amazon link https://www.amazon.com/What-Does-Grief-Feel-Like/dp/1631987062 My website: www.korieleighphd.com Instagram: https://www.instagram.com/drkorieleigh/ Tiktok: https://www.tiktok.com/@drkorieleigh Twitter: https://twitter.com/drkorieleigh Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. | |||
| Episode 172 | Rylee's Story - A child life specialist with Tetralogy of Fallot | 31 May 2023 | 00:36:25 | |
On today's episode of the podcast, Katie interviews Rylee Neal who decided to become a Child Life Specialist from her past experiences being hospitalized with a heart condition called tetralogy of fallot. An experience with a Child Life Specialist during one of her hospital stays lead her to pursue the field of Child Life. Katie and Rylee have some great conversation about scars, our feelings and how as Child Life Specialists or parents we constantly are looking to better ourselves. You will leave this episode with a heartfelt perspective from Rylee as she shares pieces of her journey as patient and clinician. [3:23] Rylee introduces herself [4:41] First memory of her diagnosis [5:45] Realizing her diagnosis was serious at age 13 [6:45] Aversion to medical care [8:01] Reading consent forms at a young age [10:00] How preparing ahead would have helped Rylee [12:07] Wanting to know more the Child Life Specialist who helped her [14:30] How she fell in love with the Child Life field [16:50] How her parents get sappy hearing about her work [19:00] Rylee shares about her scars [21:18] Kids say what they feel [22:26] Being able to relate with the children [24:07] Not letting worse case scenarios creep into personal thoughts [26:33] Feeling your feelings and decompressing [28:42] Continual betterment [30:35] Creating a virtual diversion wall [33:01] Getting patients out of bed Connect with Rylee by sending her a message here! Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. | |||
| Episode 171 | Dr. Kate Lund - Growing up with Hydrocephalus | 24 May 2023 | 00:43:03 | |
Katie along with co-host Mijha from Jambo books interview Dr. Kate Lund, TedEx speaker, clinical psychologist and hydrocephalus warrior. She brings an incredibly important perspective as provider, patient and parent. Dr. Lund shares with us how the support she received throughout her childhood had a positive impact on her life and journey with hydrocephalus. From her wise words and experiences, you will leave this episode feeling empowered with actionable things you can do today. This message is so inspiring. [4:00] Mihja shares about her daughter [5:44] Dr. Kate introduces her self [8:05] Wally, the Facility Dog [9:36] Discussing support she received as a child [11:24] Working hard put her ahead of the game [13:00] Focusing on what you can do [14:19] Diagnosed with hydrocephalus when she was 4 [15:53] Finding out she had 2 different kinds of tumors [17:15] A Child Life Specialist became her friend during a hospitalization [20:50] Katie shares how it is a choice who is in your room [23:12] Modeling interactions for our children [25:54] Understanding and appreciating differences [27:46] The stakes are high with parenting [29:19] Be open to connecting with your child's experiences [31:25] Watching your child's passions emerge [34:30] Helping your children find their happy place [35:50] Communicating your child's needs [38:24] Finding her voice [40:00] Sitting with you reality Connect with Dr. Lund Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here.
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| [Child Life 101] How to Support Kids in Pain | 22 May 2023 | 00:11:15 | |
[Child Life 101] How to Support Kids in Pain As a child life specialist, I know that pain can significantly impact children. It can affect them physically, emotionally, socially, and cognitively. Research has shown that uncontrolled pain can lead to long-term effects such as stress, anxiety, and depression, as well as changes in brain function and delayed recovery. Helping children cope with pain can be particularly challenging as they may not be able to articulate what they're feeling or understand what's happening to them. That's where child life specialists come in. What we cover in this episode:
By the way, my favorite resources for anything pain related are over at Meg Foundation for Pain. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside.
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| Episode 170 | Courtney's Story - A daughter with Trisomy 21, AVSD and Pulmonary Hypertension | 17 May 2023 | 00:54:48 | |
On today's episode of the podcast, Katie interviews Courtney Morey, Mother to Annie who was diagnosed with Trisomy 21, AVSD and Pulmonary Hypertension. Katie and Courtney have such great dialogue and raw conversation in this episode. Courtney shares the positive impacts on her marriage and the questions that arise when receiving a life altering diagnosis. Sharing about her journey of self discovery along the way and how it has changed her view on life, this episode will leave you feeling validated and inspired by Courtney's strength. [4:00] Introducing her family [6:00] Receiving a life changing phone call [8:24] Misconceptions about Trisomy 21 [8:59] Spencer having experience working with children who had Trisomy 21 [10:20] Learning Annie had AVSD [12:00] Being asked if you are a medical professional [12:50] Coping by learning about Annie's diagnosis's [15:25] Learning how to ask the right questions [16:55] Annie's birth [18:40] Annie's first heart surgery at 4 months old [20:40] Refusing to google and reaching out to other parents [22:04] Friendships carried her through difficult times [23:03] Annie coded post surgery [23:35] Starting ECMO [26:20] Caring for Annie while on ECMO [28:42] Pulling them closer together [30:30] Sharing updates about Annie's health helped her have a better grasp on the situation [30:04] How Annie's story impacted other people's lives through social media [32:49] Self care in the hard moments [35:34] Speaking up about the language we use [37:41] Giving feedback that is humbling and gracious [40:08] Receiving feedback from parents [42:00] Wrestling with the why [45:40] Meaning in being Annie's Mother [47:12] Starting a foundation Annie's honor [48:20] Resource hub to help families [50:10] Singing more alike than different [52:31] Annie's perspective keeps things real Connect with Courtney Shop for Spoonie Threads here! Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here
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| [Child Life 101] What is Child Life? | 15 May 2023 | 00:23:34 | |
Today in [Child Life 101] we are answering the question we get ALL THE TIME: WHAT IS CHILD LIFE?! You've asked and now we're answering. Did you know that SO many of the parents on our podcast haven't ever even met a child life specialist before our interview?! Our goal during this series is to help people understand what child life is all about by getting rid of any misunderstandings or roadblocks.
Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect Meet the host: Katie Taylor is the co-founder and CEO of Child Life On Call, a digital platform designed to provide parents, kids, and the care team with access to child life services tools and resources. She is a certified child life specialist with over 13 years of experience working in various pediatric healthcare settings. Katie is the author of the children's book, and has presented on the topics of child life and entrepreneurship, psychosocial care in the hospital, and supporting caregivers in the NICU setting both nationally and internationally. She is also the host of the Child Life On Call Podcast which features interviews with parents discussing their experiences throughout their child's medical journey. The podcast emphasizes the crucial role of child life services in enabling caregivers both at and beyond the bedside. | |||
| How Camp Supports Healing, Play, and Belonging for Medically Complex Kids | 04 Feb 2026 | 00:41:18 | |
When your child's life is shaped by medical complexity, childhood can quickly become defined by hospital stays, procedures, and limitations. In today's episode, we explore how medically supported camps transform that narrative—creating space for joy, belonging, and healing for children, families, and even healthcare providers themselves. Katie Taylor is joined by Dr. Laura Blaisdell, Chief Medical Officer of SeriousFun Children's Network, and Jamie Gentille, Child Life Specialist Leader and former camper, to share the life-changing impact of camp for children with serious illnesses. From zip-lining with oxygen tubing to late-night cabin chats that build confidence and identity, this conversation highlights how thoughtfully designed camp experiences allow kids to be kids—without compromising medical safety. This episode explores the power of positive childhood experiences, how camps seamlessly integrate complex medical care behind the scenes, the role of child life specialists and medical volunteers in creating safe spaces for play, and why camp is just as healing for providers as it is for children. You'll also hear Jamie's personal journey from camper to child life specialist and why camp will always feel like home. Explore Child Life On Call's directory of medical and disability-friendly summer camps for kids! This resource helps families find inclusive summer camp options that support children with medical needs and disabilities, making it easier to plan fun, safe, and engaging summer experiences. Today's Episode is sponsored by Moog Medical. Moog Medical is a trusted leader in infusion and enteral feeding technology, designing reliable, easy-to-use pumps that support safe, precise care for patients with complex medical needs—at home and in healthcare settings. Resources from today's episode: Medical & Camp Support: Connect & Support from Child Life On Call
Medical information provided is not a substitute for professional advice—please consult your care team
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| Episode 169 | Dr. Kelly Fradin - Building Trusted Relationships with your child's Pediatrician | 10 May 2023 | 00:42:20 | |
On this week's episode, Katie and Co-Host Serheen Noor Ali from Hello Sleuth interview Dr. Kelly Fradin about building trusted relationships with your child's pediatrician. Dr. Fradin shines a light on parent and patient experiences through being a physician in public health and in private practice. She touches on ways to have productive conversations with your child's pediatrician to create a lasting and effective relationship. [4:00] Introductions [6:45] Barriers her patients were experiencing [9:00] Information to create independence and confidence [9:24] Reading your audience as a Pediatrician [11:00] Dr. Fradin's book on Advanced Parenting [13:00] Choosing a Pediatrician [14:54] Finding a new Pediatrician first [16:41] Who to share feedback with [18:36] Finding different Pediatricians for different age groups [20:04] Listening to your adolescent about doctor preferences [22:30] Atria Institue [25:30] The power parents have [27:30] Developmental screenings from the pediatrician's office [31:06] Judgement free zone [32:00] Preparation tools [34:32] Preparing for lab draws [37:38] The positive difference that Child Life makes [39:10] Making a plan Connect with Dr. Kelly FradinOrder Dr. Fradin's book HERE Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here | |||
| [Child Life 101] Series Preview | 08 May 2023 | 00:06:59 | |
I'm SO excited to share a new podcast series we are starting at Child Life On Call! [You can watch this via a screencast on YouTube here] Child Life 101 is a new 10-week podcast series dedicated to all things related to all things child life specialists and the important role they play in the lives of children and families. This series was born from some of the questions I've gotten over the past 6 (almost 7!) years that we've been producing Child Life On Call. Each week we will cover a new topic:
I promise to keep it awkward (like always) and fumble over my words in the most Katie-way possible. Join us as we explore topics such as pain management, coping strategies, therapeutic play, and much more. Whether you're a parent, healthcare professional, or simply interested in learning more about child life, this podcast is for you. Learn 6 Positions to Help Kids Feel Comfortable and Safe Here are some of our favorite affiliates that help promote positive coping for kids: 10% off Coping Kits and other select merchandise at Present Over Perfect
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| Episode 168 | Olivier's Story - A Film Inspired by A son with Down Syndrome | 03 May 2023 | 00:29:22 | |
Today we have another Dad on the podcast. Katie interviews Oliver Bernier, father of Emilio and filmmaker, about his son's unexpected diagnosis of down syndrome. You will learn what inspired Oliver to create a film to educate and empower parents of children with Down syndrome how to navigate the school system and be the best advocate for their child. Oliver's passion to educate parents about the importance of inclusivity will shine through as he shares an inspiring message. [3:45] Introductions [5:10] Forever connection to New York [6:22] Filming the moments [7:12] Misconceptions about Down syndrome [9:28] Giving Emilio the world [10:22] Building the bridge to understanding living with disabilities [12:17] An atmosphere of acceptance [15:01] Putting a dent the world to raise awareness [17:20] Sharing other families stories on the film, giving him hope [19:28] Living in the moment [21:34] Universal design for learning [23:18] Empathy taught by practice [24:53] All parents advocating to be in classes with differently abled child [26:45] NICU is a mirror of an inclusive classroom Connect with Oliver Whether you are a parent or professional, we want you to join our community. Sign up for our newsletter here.Parents, download our free parent starter kit. When you download our starter kit, you'll learn how to:
The first sign of sniffles, or worse, shouldn't send you into a tailspin. Feel confident in your role as a parent and advocate, no matter what medical situation you're facing. Child life specialists, get affordable PDUs on-demand here. Shop for your CLOC gear here. | |||