HAE Speaks – Détails, épisodes et analyse
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🇺🇸 États-Unis - nonProfit
27/10/2025#42🇩🇪 Allemagne - nonProfit
21/05/2025#84🇺🇸 États-Unis - nonProfit
15/05/2025#52🇺🇸 États-Unis - nonProfit
07/11/2024#89🇺🇸 États-Unis - nonProfit
19/09/2024#89🇺🇸 États-Unis - nonProfit
05/09/2024#78
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See all- https://www.biocryst.com/
68 partages
- https://www.takeda.com/
65 partages
- https://haea.org/
36 partages
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Episode 49: Ahead of the Swell: Uncovering the Target That Could Stop Attacks
mardi 20 août 2024 • Durée 28:09
As a rare condition, understanding the root cause of Hereditary Angioedema (HAE) is crucial for improving patient management and care. On this episode of the HAE Speaks podcast, doctors Raffi Tachdjian, MD, MPH and Jay Kashkin, MD, dive deep into the critical role of factor XIIa on the HAE pathway.
For more information, please visit www.haea.org.
We would like to thank CSL Behring for sponsoring this episode!
Episode 48: Spotlight on HAEA Grassroots Advocacy Network Regional Leaders
lundi 5 août 2024 • Durée 20:40
In this month's episode of the HAE Speaks podcast, we shine a spotlight on some of the most passionate and dedicated advocates within the Hereditary Angioedema Association (HAEA) community – our regional leaders. These individuals play a crucial role in advancing our advocacy efforts, ensuring that every voice is heard and that access to care remains a top priority.
Join us for this inspiring episode as we highlight the remarkable work of our regional leaders, Cedrick, Pamela, and Kate, and the profound impact of advocacy within the HAEA community!
For more information, please visit www.haea.org.
A special thanks to CSL Behring and Takeda for sponsoring the 2024 HAE Speaks Podcast Series!
Episode 40: College preparedness & HAE
Saison 4 · Épisode 40
mardi 1 août 2023 • Durée 20:17
HAE Speaks Podcast - Episode 40: In this episode of HAE Speaks podcast Missy and Karissa discuss what it is like going away to college while living with HAE. Karissa shares some important lessons learned as well as tips and tricks to help you be more prepared for a great college experience.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
Episode 39: The importance of mindfulness
Saison 5 · Épisode 39
mercredi 5 juillet 2023 • Durée 17:25
Episode 39: Adina Mauk:HAEA Health Advocate, shares the importance of mindfulness along with tips and tricks.
Looking for ideas and methods for self-care? Adina has just the information you are looking for. In this episode of the HAE Speaks podcast Adina talks about her journey to self-care.
Living with HAE can be stressful both for someone living with HAE as well as for caregivers. Mindfulness can help you focus on what you are sensing and feeling in the moment and be used as a tool for effectively managing this stress.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
Episode 38: Hosting an HAE DIY event
Saison 4 · Épisode 38
jeudi 1 juin 2023 • Durée 22:12
Episode 38: In this episode of HAE Speaks podcast learn more about hosting an HAE DIY event. Missy speaks with Mike about DIY events and many of the resources available from the HAEA to assist you with your event. Also, listen in as Missy sits down with Lora and participants at the Lyndon Memorial Walk, a DIY HAE awareness event.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
Episode 37: Transitioning to Caregiver
Saison 4 · Épisode 37
lundi 15 mai 2023 • Durée 15:32
Episode 37: In this episode of the HAE Speaks podcast Missy talks with Bobbi and Mike about their journey of living with HAE and also the transition of becoming caregivers for their children diagnosed with HAE.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
Episode 36: Dr. Riedl discusses the HAEA shared decision making tool.
Saison 4 · Épisode 36
jeudi 6 avril 2023 • Durée 15:15
Episode 36: Dr. Riedl discusses the HAEA shared decision making tool. A free tool available at HAEA.org to help individuals living with HAE prepare for their physician appointments.
Dr. Riedl:
Allergist/Immunologist
Clinical Director of UC San Diego Health's U.S. HAEA Angioedema Center
Professor of Medicine
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
Episode 34: Lora's HAE Journey
Saison 4 · Épisode 35
lundi 13 mars 2023 • Durée 16:13
Episode 35: Lora shares her HAE journey as well as how she spreads HAE awareness nationwide.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
Episode 32: Navigating college with HAE
Saison 4 · Épisode 33
jeudi 9 mars 2023 • Durée 21:53
In this episode, Kelsie talks about her HAE journey and navigating college with HAE.
For more information about Hereditary Angioedema please visit HAEA.org
Thank you to our sponsors:
Gene Therapy in HAE: A look into BioMarin’s Investigational Study
Saison 3
lundi 6 février 2023 • Durée 16:31
In this episode, BioMarin’s Clinical Science Lead, Jack Brownrigg, and HAE physician, Dr. Timothy Craig, discuss AAV Gene Therapy and BioMarin’s investigational clinical trial for HAE.
For more information about Hereditary Angioedema please visit HAEA.org
This episode is brought to you by our sponsor: BioMarin Pharmaceutical Inc.
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