Explorez tous les épisodes du podcast GOALS: An ALS United Podcast

Candice Ray is the Founder and Chief Executive Officer at Helping Hands Warming Hearts LLC. She is one of the newest members of the ALS United Mid-Atlantic board. In this discussion, Candice shares her personal experience with ALS, the skills she brings to the board, and her drive to expand advocacy and programs to help families impacted by ALS.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Robert Bowser, PhD, is Chief Scientific Officer and the John P. and Betty Van Denburgh Chair for Neuromuscular Disease, and professor and Chair of the Department of Translational Neuroscience at Barrow Neurological Institute. He joins the ALS United Mid-Atlantic GOALS Podcast to discuss his 30 years of experience in ALS research, advances in understanding of biomarkers, the value of brain and tissue donation, and empowerment through science. To learn more about his work, visit: https://www.barrowneuro.org/person/robert-bowser-phd/

Thank you to  ⁨@ALSArizona⁩  for making this connection and thank you to  ⁨@BarrowNeuro⁩  for their continued work to understand ALS and get us closer to new treatments.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Jess and Jeff from Samuel Adams Brewery join the ALS United Mid-Atlantic GOALS Podcast to talk about their efforts to raise money and awareness for the ALS cause. Join them to support the Lehigh Valley ALS United Walk at www.lehighvalleyalsunitedwalk.org  or find an ALS United Walk near you at www.alsunitedwalk.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. T

o learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Kim Eppeheimer is one of the most recent additions to the ALS United Mid-Atlantic Board. In this episode of our GOALS Podcast, Kim shares her family's ALS story, the experience she learned as her mother and siblings came together as caregivers, and her hopes for the future of ALS United Mid-Atlantic. Kim is a non-profit leader in Delaware and she is excited to support the Delaware ALS United Walk. Learn more at www.alsunitedwalk.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Kate Adamek, LCSW, joins the ALS United Mid-Atlantic GOALS Podcast to talk about her work as a social worker serving the ALS community in Delaware. In this episode, Kate discusses support for caregivers, addressing family dynamics, and the importance of taking a break for your own mental health.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Shelly Lewis PT, DPT, EdD, has assisted thousands of people with ALS with compassionate and expert physical therapy work since 1999. She has been connected with the care team at ALS United Mid-Atlantic for over 25 years and is currently the Co-Director of Clinical Education, Department of Physical Therapy and Associate Professor at Jefferson College of Rehabilitation Sciences. In this GOALS Podcast, Shelly talks about her experience providing care for the ALS community, what to know about strength and exercise, tips for caregivers, and why PT is an essential part of a multidisciplinary team.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Maria Malfi lost her mother to ALS. Through her experience and her personal research, Maria has focused her attention on issues of stress and mental health and how they impact an ALS diagnosis and affect caregivers as well. In this GOALS Podcast, Maria talks about her family's experience with ALS, touring the research lab at Penn State Health Hershey Medical Center, and how to have better conversations about mental health.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Taryn Norley, President and CEO of ALS Arizona, joins the ALS United Mid-Atlantic GOALS Podcast to discuss the work of serving the ALS community in Arizona and how it compares to other ALS United partners. Topics include delivering on care services, partners with clinics and researchers, serving rural communities, and inspiring events. To learn more about ALS Arizona, visit www.alsaz.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Brianna Lisi, MS, is a PhD candidate doing her work at the Jefferson Weinberg ALS Center in Philadelphia. In this Podcast, Brianna talks about what inspired her to go into ALS research, what a typical day is like for a researcher, motor neurons, astrocytes, and what tests can prove useful for ALS science.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Josi Shimkus, MA, CCC-SLP, Hackensack Meridian Health Jersey Shore University Medical Center, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her expertise and work assisting people with ALS with communication therapy and technology. Topics include swallowing issues, tracking speaking strength, coordinating with the clinic team, and the ALS United Walk.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Cassy Adams from  @ALSNorthwest  joins the ALS United Mid-Atlantic GOALS Podcast to discuss ALS care, research, and advocacy and how our partner organizations can collaborate to best serve the ALS community. Learn more about ALS Northwest at www.alsnorthwest.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Jeff Oppenheimer understands the needs and challenges of ALS. His wife Shelbie was diagnosed with ALS in 1996 and together Jeff and Shelbie raised awareness and successfully advocated for millions of dollars for ALS research.

Since then, Jeff has served on the board of ALS United Mid-Atlantic and he has worked to improve the lives of people with ALS and their caregivers. Recently, Jeff helped launch ALS.Community. This new resource provides information and social connection for people with ALS from across the country and the world. Jeff joins the ALS United Mid-Atlantic GOALS Podcast to explain the benefits of ALS.Community and to encourage others to join and be part of this growing platform.

Learn more at https://als.community/

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Nadia Sethi joins the ALS United Mid-Atlantic GOALS Podcast to discuss her experience caring for a loved one with ALS and how everyone can be empowered through ALS awareness, education, and research. In this episode, Nadia discusses some of the challenges of navigating hope and caution, as well as how everyone can participate in scientific advancement. Nadia has been involved with ALS TDI and I AM ALS and she is now working with North Star ALS at https://www.northstarals.org/

Our ALS mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Frederick "Eric" Arnold, PhD, joins the ALS United Mid-Atlantic GOALS Podcast to discuss major advances in ALS research, genetics, and the importance of understanding TDP-43. Dr. Arnold talks about his education and inspiration through Haverford College and Thomas Jefferson University and his ongoing research work at Washington University. On April 9th, 2026, Dr. Arnold spoke about these topics at the ALS United Mid-Atlantic Help and Hope Symposium. To learn more about Dr. Arnold's work, visit https://genetics.wustl.edu/people/frederick-arnold-phd/

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Jean Swidler, Executive Director with End the Legacy joins the ALS United Mid-Atlantic GOALS Podcast to talk about advocating for families with genetic ALS, advances in research, and addressing the needs of those at risk of developing ALS due to family history. Learn about End the Legacy at www.endthelegacy.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Carol Hamilton joins the ALS United Mid-Atlantic GOALS Podcast to talk about the latest progress in ALS research and her work at ALS TDI. In this podcast video, Carol talks about the ARC study, making ALS research approachable for anyone, collaboration between ALS organizations and scientists, how Artemis II provides hope for science, and why 2026 is a big year for ALS research. Learn more about the work at ALS TDI and how you can participate at www.als.net

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Alisa Brownlee recently marked 30 years of supporting the ALS community at ALS United Mid-Atlantic. In this GOALS Podcast, she highlights the many changes in assistive technology over the years and how this technology has grown and evolved to meet the communication needs of people with ALS.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Pennsylvania State Representative Kyle Mullins joins the ALS United Mid-Atlantic GOALS Podcast to discuss his family's personal ALS story, advocacy wins for ALS care and research, connecting with other ALS families, and the power of using your personal story.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Jerry Dawson, President and CEO of ALS United, joins the ALS United Mid-Atlantic GOALS Podcast to discuss collaboration within the ALS community, the growth and mission of ALS United, and the hope and promise in new research and technologies. Learn more about ALS United nationally at www.alsunited.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Yentli Soto Albrecht, PhD,  @searchforaselfcure  joins the ALS United Mid-Atlantic GOALS Podcast to talk about her family's genetic history with ALS and her personal mission to end the disease through research. In this episode, Yentli talks about what motivates her, what she's learned, and how research can bring hope and motivation to all.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Alair Altiero, PhD, LPC, provides mental health support for people with ALS and caregivers as part of the multidisciplinary team at Penn State Health Hershey Medical Center. In this GOALS Podcast, Alair discusses the man aspects of mental health, when and how she offers her guidance, handling burnout, and how stress impacts caregiving.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Piera Pasinelli, PhD, Director, Weinberg ALS Center, and Gemma Krautzel, B.S., Clinical Research Coordinator, join the ALS United Mid-Atlantic GOALS Podcast to discuss the BioBank at the Jefferson Weinberg ALS Center in Philadelphia. In this podcast, they also talk about the process of post-mortem tissue donation, developing trust with ALS patients and families, multidisciplinary care, and collaboration with the ALS United Mid-Atlantic care team.

To learn more about their research, visit: https://www.jeffersonhealth.org/clinical-specialties/amyotrophic-lateral-sclerosis-care.html

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org 

RJ Adler with Wheelpad joins the ALS United Mid-Atlantic GOALS Podcast to discuss accessible living solutions for people with ALS. In this episode, Alisa and RJ discuss how new technologies can help people by offering dignity and independence.

Learn more about our programs and mission at www.alsmidatlantic.org 

Director of Care Services Steve Spaulding, MA, joins the ALS United Mid-Atlantic GOALS Podcast to talk about the structure of our Care Services Department, the recent International ALS/MND Symposium, patient and family events, and more.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Bryan Rosica is a teacher and father living with ALS. He now uses assistive technology to speak. In this ALS United Mid-Atlantic GOALS Podcast, Bryan and his wife Lisa discuss their ALS journey from diagnosis to today, including support from ALS United Mid-Atlantic care professionals, speaking at events like the Annual Celebration, and connecting with students to explain ALS.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Regina Shuster joins the ALS United Mid-Atlantic GOALS Podcast to discuss her family's history with ALS and her work at events such as the ALS United Walk.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Daniel Kelly joins Alisa Brownlee to discuss the important topic of Swallowing and ALS to address concerns, safety, and best practices.

Daniel Kelly, MA, CCC-SLP, AT, is a speech-language pathologist and assistive technologist at the Jefferson Weinberg ALS Center in Philadelphia. With nearly two decades of experience in medical speech pathology, he’s focused on swallowing assessment, communication technology, and clinical training across hospital and academic settings. Daniel has taught nationally on fiberoptic endoscopic swallowing evaluation, contributed to multiple clinical trials, and co-authored research on dysphagia and neurodegenerative disease.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Zachary Simmons, MD and Kathleen Twomey, MD join the ALS United Mid-Atlantic GOALS Podcast to share their work at Penn State Health Hershey Medical Center and their new innovations around respiratory care and ALS. Dr. Simmons has led the ALS Treatment Center at Penn State Health Hershey Medical Center for 30 years and Dr. Twomey is adding her expertise as a pulmonologist for ALS patients. O

ur mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Mark VandeBraak, PhD, FT, MT-BC joins the ALS United Mid-Atlantic GOALS Podcast to discuss issues about processing grief for those impacted by ALS. Dr. Mark talks about the various forms of grief, expressing compassion and empathy, opening up about our concerns, and what help is available for everyone.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Tim Kurkjian and his son Jeff Kurkjian are hosts of the baseball podcast "Is This a Great Game or What?" They also share a strong support for the ALS cause after their family's loss of Tim's brother Matt to ALS.

Tim is the proud recipient of the 2022 BBWAA Career Excellence Award for his work as a baseball writer and journalist. In this episode of the ALS United Mid-Atlantic GOALS Podcast, Tim and Jeff talk about their family's history with ALS, their love of baseball, the support from the Philadelphia Phillies, and their experience at ALS United events.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

In this podcast episode, Alisa Brownlee and Amanda Cuth discuss the challenges and strategies related to speech therapy for individuals with ALS. They explore the impact of ALS on communication, the importance of voice preservation techniques such as voice banking and cloning, and the role of technology in enhancing communication. The conversation also covers compensatory strategies for speech therapy, emergency communication needs, and the emotional aspects of dealing with communication changes. Amanda emphasizes the need for professional guidance in navigating these challenges and highlights the advancements in communication devices and techniques.

Alisa Brownlee and Amanda Cuth each have many years of experience addressing communication needs for people with ALS.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Gale Ferranto and Buona Foods are uniting to match your donations for #GivingTuesday to ALS United Mid-Atlantic. In this GOALS Podcast, Gale discusses her mother's battle with ALS and her support for ALS care and research.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Charles Poeppelman joins the ALS United Mid-Atlantic GOALS Podcast to discuss how Synchron is developing Brain Computer Interface technology to improve the lives of people with ALS. In this podcast, we discuss how AI can enhance the power of BCI, how BCI can improve safety, and how this technology can address accessibility and communication.

Learn more about the January 21st educational webinar at learnaboutbci.com Additional information at www.synchronbci.com

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Alisa Brownlee hosts this special ALS United Mid-Atlantic GOALS Podcast with guest Jamie Pace from  ⁨@amRAMP⁩  about the benefits of stair glides for people with ALS. In this episode, Alisa and Jamie talk about the process of installing a stair glide and how it can be used to improve access in the home.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Bill O'Sullivan is a veteran living with ALS. He joins the ALS United Mid-Atlantic GOALS Podcast to talk about his family's history with ALS, his family's proud history of military service, his participation in ALS research, and his years of support for the ALS United Walk. Listen to his story and join our efforts today.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

https://youtu.be/e6ZGF4NMgf8

Dr. Irene Rombel is the CEO, President, & Co-Founder of BioCurie. In this ALS United Mid-Atlantic GOALS Podcast, she talks about how AI can be a tool to advance research into diseases like ALS. Dr. Rombel also talks about how AI can reduce costs of research so more companies can invest in rare diseases, what therapies are working now, and what gives her hope in the future of medicine. Learn more about her work at www.biocurie.ai

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Jamie from AMRAMP joins Alisa Brownlee on the ALS United Mid-Atlantic GOALS Podcast to discuss our ramping program and how it benefits people with ALS.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Courtney Fitch, MS, CGC, is a Certified/Licensed Genetic Counselor at the ALS Treatment Center at Lehigh Valley Health Network. In this ALS United Mid-Atlantic GOALS Podcast, Courtney explains the role of a Genetic Counselor, how she works with the clinic team, advances in genetic understanding and science, and offering support to ALS patients and families.

The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Chloe LaBella, SLP-CCC and Arianna Jarosinski, M.S. SLP-CCC join the ALS United Mid-Atlantic GOALS Podcast to discuss their work Hackensack Meridian Health Jersey Shore University Medical Center on Augmentative and Alternative Communication for people with ALS.

In this podcast discussion, Chloe and Arianna share their expertise on AAC, how they introduce the concept of communication devices to a person diagnosed with ALS, advances in technology, and their collaboration with Dr. Mary Sedarous and with the resources at ALS United Mid-Atlantic.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org Learn more about ALS care at Hackensack Meridian Health at: https://www.hackensackmeridianhealth.org/en/services/neurosciences/amyotrophic-lateral-sclerosis-als

Mary Grams is the new Executive Director at ALS United North Carolina. In this GOALS Podcast, Mary discusses her family's ALS story, progress in ALS care, the extensive research programs in North Carolina, and how the ALS United network collaborates to advance the ALS cause. To learn more about her work, visit www.alsnc.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Stephanie Dobak, MS, RD, LDN, CNSC, is a clinical dietitian at the Jefferson Weinberg ALS Center in Philadelphia, Pennsylvania. In this podcast episode, Stephanie talks with Alisa Brownlee about important questions for people with ALS and their caregivers regarding nutrition and diet.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Gary Goldstein joins our ALS United Mid-Atlantic GOALS Podcast to discuss his role in ALS advocacy. In this episode, Gary talks about his wife Paula's battle with ALS, successes through advocacy, his Named Fund for Paula, and being a Visiting Volunteer.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

ALS United Mid-Atlantic nurse Annette Miller, RN, joins the GOALS Podcast to discuss her work and experience caring for people with ALS. In this episode, Annette talks about how her role as a nurse has evolved, how she guides people through the challenges of ALS, the services offered through ALS United Mid-Atlantic, and the growing reputation of the ALS Treatment Center at Penn State Health Hershey Medical Center.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Vincent Cella is a 22-year retired Gulf War veteran from Sewell, N.J., with 18 years spent in the Navy and four with the Army. After years of health issues, Cella was diagnosed with ALS in August of 2024. He joins the ALS United Mid-Atlantic GOALS Podcast to share his story to bring more attention to the issue of veterans and ALS.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Director of Development Donna Cleary talks about her work at ALS United Mid-Atlantic, how to leave a lasting legacy, and her personal connections to the ALS cause.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Michele Yelland was diagnosed with ALS in 2024. When she saw that many people did not understand her symptoms and experience with ALS, she decided to write and publish her own book about it. In this podcast, Michele talks about what inspired her to write her book, her travels with ALS, and what gives her hope.

Order her book now at: https://www.amazon.com/ART-LIVING-JOY-FIGHTING-ALS/dp/B0FJFJRZDN/

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Jessie Meier, MSW, LSW, joins the ALS United Mid-Atlantic GOALS Podcast to discuss her role as a social worker with ALS United Mid-Atlantic, her connection with ALS patients and families, what it means to be a caregiver and to live with purpose, and the upcoming Lehigh Valley ALS United Walk. To join the Walk, register or donate at www.alsunitedwalk.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Larry Gifford is living with Parkinson's Disease. He formed PD Avengers to raise awareness of Parkinson's Disease and advocate for more research to find new treatments. In this ALS United Mid-Atlantic GOALS Podcast, Larry talks about his efforts and collaboration and education with groups like ALS United. Learn more about his work at: https://www.pdavengers.com/

The mission of ALS United Mid-Atlantic is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.

ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware. To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Chris Albright joins the ALS United Mid-Atlantic GOALS Podcast to discuss the ALS United Walk program and upcoming ALS United Walk events. The ALS United Walk is the signature event for ALS United Mid-Atlantic. Register now at www.alsunitedwalk.org

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org

Ashley Lee joins the ALS United Mid-Atlantic GOALS Podcast to discuss her family's ALS story and what has inspired her to be an ALS advocate. In this episode, Ashley talks about advances in advocacy and research and the connection between ALS and military veterans.

Our mission is to unite and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS. ALS United Mid-Atlantic serves people with ALS in Pennsylvania, New Jersey, and Delaware.

To learn more about our programs and research and how to support our initiatives, visit www.alsmidatlantic.org