When infections or other factors trigger autoimmune responses that attack your child's brain, families find themselves navigating an invisible storm. They seek out care, but often even clinicians wanting to help may not know how. Flying Through Fog brings clarity to the complex world of PANS/PANDAS through real stories, expert insights, and practical guidance.
Tune in weekly for conversations with families who've walked this path, medical professionals who understand the science, and advocates fighting for better awareness and treatment access. You'll hear from parents sharing their diagnostic journeys, experts helping families overcome insurance coverage denials, and clinicians who are in the trenches advancing our understanding of these neuroimmune conditions.
Whether you're seeking answers for sudden behavioral changes in your child, looking for treatment options, or you're a clinician looking for guidance, this podcast offers hope, community and education. We tackle the hard questions about symptoms, therapies, school accommodations, and family dynamics while celebrating the resilience of children and families affected by PANS/PANDAS.
Because when you're flying through fog, you don't have to fly alone.
New episodes drop weekly. Join our community of families, advocates, and professionals working together to raise awareness and improve outcomes for children with PANS/PANDAS.
Flying Through Fog is produced and mixed by Tommie Lee. It is published by News/Talk 95.3 Michiana's News Channel and News/Talk 1190 WOWO 92.3 FM. A member of the Podcasts by Federated Media network.
Site
RSS
Apple
Classements récents
Dernières positions dans les classements Apple Podcasts et Spotify.
Liens partagés entre épisodes et podcasts
Liens présents dans les descriptions d'épisodes et autres podcasts les utilisant également.
A Light in the Fog: Parents Share Their PANS/PANDAS Stories of Hope
Saison 1 · Épisode 7
mardi 18 novembre 2025 • Durée 41:57
When you're in the darkest moments of your PANS/PANDAS journey—when your child is a shell of themselves, when every day feels like surviving an impossible storm—it's hard to imagine that things will ever get better. But they can. And they do.
For the final episode of Season 1, hosts Krystal Vivian and Lindsey Forsyth are joined by Angela Henry to share powerful stories of hope from real PANS/PANDAS families. From the mom whose daughter went from a watermelon "cake" due to severe food restrictions to eating real birthday cake a year later, to the child who missed a year and a half of school and is now getting straight A's, to the 19-year-old thriving in pre-med who wants to become the doctor that helps other PANDAS kids—these stories prove that healing is possible.
This episode is a reminder that you're not flying through the fog alone. Other families have walked this path, fought these battles, and come out the other side. Whether your child was just diagnosed or you've been in the trenches for years, these stories offer something every PANS/PANDAS parent desperately needs: hope. Sometimes the most powerful medicine is knowing that recovery is possible—and it's happening for families just like yours.
Thank you for joining us for Season 1 of Flying Through Fog. We'll be back in 2026 with Season 2.
RESOURCES: Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts
School Refusal and Doctor Refusal: Understanding PANS/PANDAS Behaviors
Saison 1 · Épisode 6
mardi 11 novembre 2025 • Durée 01:01:10
Your child is screaming in the car, refusing to go to school. Or they're hiding under their bed, terrified of another doctor's appointment. You know something is deeply wrong, but from the outside, it just looks like defiance. Welcome to one of the most misunderstood aspects of PANS/PANDAS: refusal behaviors.
In this episode, licensed clinical social worker Angela Henry joins hosts Krystal Vivian and Lindsey Forsyth to unpack why so many children with PANS/PANDAS struggle with school and medical appointments—and what parents can actually do about it. From understanding the difference between "not willing" and "not able" to exploring options like IEPs, homeschooling, and unschooling, this conversation offers both validation and practical strategies.
Whether your child is currently refusing to get out of the car or you're worried about what happens when refusal turns physical, this episode tackles the hard questions with honesty and compassion. Because sometimes the most important thing parents need to hear is: you're not alone, this is real, and there are people who understand.
RESOURCES: Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Caregivers — Available wherever you listen to podcasts
Siblings, Schools, and Friends: Navigating PANS/PANDAS Conversations With Kids
Saison 1 · Épisode 5
mardi 4 novembre 2025 • Durée 47:06
One of the hardest parts of a PANS/PANDAS diagnosis isn't just getting the diagnosis—it's figuring out how to talk about it. How do you explain to your child that their brain is under attack by their own immune system? What do you tell siblings who've been walking on eggshells for months? And how much should teachers, friends, and extended family really know?
In this episode, licensed clinical social worker Angela Henry joins hosts Krystal Vivian and Lindsey Forsyth for an essential conversation about communication. They break down how to have age-appropriate discussions with children about their diagnosis, why naming the disease can actually be liberating, and how to navigate the delicate balance between privacy and advocacy. From the child who presents about PANDAS to their entire fifth-grade class to the teenager who only confides in one parent, they explore how different families approach these conversations in ways that work for them.
Whether you're preparing to tell your child they have PANS/PANDAS, trying to help siblings understand why things feel so unfair, or wondering what to share with your child's school, this episode offers practical guidance rooted in compassion. Because the right conversations, approached with curiosity instead of judgment, can transform a diagnosis from a source of shame into an opportunity for connection, self-awareness, and hope.
How Mold Testing Changed Everything for One PANS/PANDAS Family
Saison 1 · Épisode 4
mardi 28 octobre 2025 • Durée 53:17
What do you do when you've tried everything—antibiotics, therapy, multiple specialists—and your children are still struggling? For Tricia, the answer came from an unexpected place: her own home.
In this episode, we sit down with Tricia, a teacher and mom of two kids with PANDAS, whose five-year diagnostic journey took her from Tourette's and ADHD diagnoses to discovering PANS/PANDAS—and ultimately uncovering mold as a hidden trigger keeping her children sick. Tricia shares the gut-wrenching moment when both her son and daughter began showing symptoms, her battle through insurance denials for IVIG treatment, and the surprising discovery that changed everything for her family's healing journey.
Whether you're just beginning to suspect PANDAS, fighting for treatment approval, or wondering why your child isn't improving despite doing "all the right things," this episode offers validation and practical insights. Tricia's story reminds us that healing isn't always a straight line, and sometimes the answers we need are hiding in places we'd never think to look. Because when you're a parent fighting for your child's health, you learn to question everything—and trust your instincts above all else.
Understanding Flares: Stanford Study Research Reveals Four PANS/PANDAS Course Patterns
Saison 1 · Épisode 3
mardi 21 octobre 2025 • Durée 46:24
For years, parents have been told their observations about their child's PANS/PANDAS symptoms don't match the "typical" pattern—leaving them confused, doubting themselves, and struggling to get proper treatment. But what if there isn't just one typical pattern? What if your child's unique journey is actually completely normal?
In this episode, we break down a groundbreaking Stanford University study that finally gives scientific validation to what parents have been experiencing all along. Licensed clinical social worker Angela Henry joins hosts Krystal Vivian and Lindsey Forsyth to translate the complex research into practical insights families can use today. Discover why having a common language for flares changes everything—from getting doctors to take you seriously to knowing what to expect in the months and years ahead.
Whether your child just had their first flare or you've been navigating this journey for years, this episode offers both validation and hope. Because when the research finally catches up to what parents have been saying, everything changes.
Navigating Insurance Denials: How Claimable is Helping PANS/PANDAS Families Win Appeals
Saison 1 · Épisode 2
mardi 7 octobre 2025 • Durée 01:12:23
Getting a PANS/PANDAS diagnosis is only half the battle—the other half is fighting insurance companies for treatment coverage.
In this episode, Krystal and Lindsey sit down with Dr. Warris Bokhari, co-founder of Claimable, an AI-powered platform that's helping families overturn insurance denials for IVIG therapy with an 80% success rate.
Dr. Bokhari shares his journey from emergency medicine in London to taking on the US healthcare system, and reveals why insurance companies routinely deny legitimate claims—often using unqualified reviewers and cherry-picked evidence.
Learn the critical mistakes families make when appealing denials, discover the hidden rights you have under federal and state law, and find out why copying your CEO on your appeal letter could be a game-changer.
Whether you're facing your first denial or your tenth, this episode gives you the roadmap and resources to fight back and win.
When Strep Hijacks Your Child's Brain: One Family's PANDAS Journey
Saison 1 · Épisode 1
lundi 29 septembre 2025 • Durée 51:20
What happens when a simple strep infection transforms your child into someone you don't recognize?
Flying Through Fog dives deep into the hidden world of PANS/PANDAS — a condition where common infections trigger autoimmune responses that attack the brain, causing sudden personality changes, severe anxiety, and behavioral issues that leave families desperate for answers.
In our first episode, meet our hosts Krystal Vivian and Lindsey Forsyth. Lindsey shares the story of how her son, age 7 at the time, went from being an "even-keel" kid to experiencing daily meltdowns, irrational fears, and emotional breakdowns. She had no idea what to do — but then a conversation with a school nurse changed everything.
Découvrez des podcasts liées à Flying Through Fog: A Podcast for PANS/PANDAS Caregivers. Explorez des podcasts avec des thèmes, sujets, et formats similaires. Ces similarités sont calculées grâce à des données tangibles, pas d'extrapolations !
