Explorez tous les épisodes du podcast Bowel Moments
| Titre | Date | Durée | |
|---|---|---|---|
| Meet Dr. Charlie Lees! | 26 févr. 2025 | 00:59:20 | |
Discover the cutting-edge world of inflammatory bowel disease (IBD) research and management with Dr. Charlie Lees, a leading gastroenterologist and professor at the University of Edinburgh. In this episode, Dr. Lees guides us through his groundbreaking initiatives, including the Atomic IBD series and the insightful PREDICT study. Learn how innovative predictive health tools, such as sweat sensors, are shaping the future of IBD care and how the series has become a beacon of hope and knowledge for both patients and professionals. Links:
Let's get social!! | |||
| Meet Tish, the Creator of Luminous Wounds! | 12 févr. 2025 | 00:48:49 | |
Imagine navigating a life filled with complex medical diagnoses while juggling the everyday challenges of parenthood. That's the reality for our guest, Tish, the insightful creator of Luminous Wounds. Her journey with Crohn's disease, endometriosis, and other autoimmune conditions is not just a story of survival but a testament to resilience and advocacy. Tish shares her experiences of battling medical gaslighting and the importance of finding compassionate healthcare providers willing to listen. Links:
Let's get social!! | |||
| Meet Dr. Marla Dubinsky! | 29 janv. 2025 | 01:02:21 | |
Join us for a fascinating conversation with Dr. Marla Dubinsky, a trailblazer in pediatric gastroenterology and a fierce advocate for people living with inflammatory bowel disease. She shares her journey from pediatric residency to becoming a leading voice in IBD care, shaping the future of treatment and advocacy. Through her work at Mount Sinai and as co-founder of Trellus Health, she’s revolutionizing patient care by integrating resilience and digital health solutions. We dive into the intersection of medicine and entrepreneurship as Dr. Dubinsky reflects on the mentors who shaped her path and how she’s working to make innovative healthcare solutions both impactful and commercially viable. She also highlights the importance of a holistic approach, bridging physical and mental health to empower patients in their care journey. Plus, we explore her work in women's health, particularly in IBD management during preconception and pregnancy. Through initiatives like We Care in IBD, she’s helping to create tailored programs that support women at every stage of life. Don’t miss this deep dive into precision medicine, prevention clinics, and the future of IBD . Links:
Let's get social!! | |||
| Re-Meet Robin & Alicia- What's New and What's Next for BMs! | 15 janv. 2025 | 00:43:09 | |
This week we reflect on the journey since launching Bowel Moments in August 2021, sharing our personal updates and the lessons we've learned along the way. We reminisce about the podcast's beginnings as a concept born out of a love of podcasts and how it evolved into a heartfelt platform for the IBD community, featuring memorable interactions with guests. We open up about our own journeys, revealing more than just the polished elevator pitches we've rehearsed over the years.
Let's get social!! | |||
| Surviving the Holidays and End of Year Tips with Stacey Collins, RD | 18 déc. 2024 | 00:54:49 | |
Could your holiday season be a little less stressful and a lot more joyful? Our latest episode of Bowel Moments provides you with the tools to do just that, especially if you're navigating the festive chaos with Inflammatory Bowel Disease (IBD). We have the pleasure of welcoming back Stacey Collins, a registered dietitian and IBD specialist, who not only shares valuable professional insights but also her personal experiences in managing dietary restrictions. Together, we offer practical tips and heartfelt advice on how to enjoy holiday gatherings while keeping your health a priority. From thoughtful strategies like bringing your own dishes to gatherings to understanding the importance of choosing safe snacks, we discuss how to make this time of year not only survivable but enjoyable.
Let's get social!! | |||
| Meet Dr. Colm Collins! | 04 déc. 2024 | 00:54:40 | |
This week we spoke to Dr. Colm Collins! Dr. Collins is an Associate Professor at the Conway Institute of Biomolecular and Biomedical Research at University College Dublin. He shares his journey from the world of pharmacology to pioneering research in inflammatory bowel disease (IBD). You'll learn about the innovative approaches his team is exploring to revolutionize treatment options for IBD patients. With a blend of humor and expertise, Dr. Collins offers a rare glimpse into the challenges and triumphs of translating scientific breakthroughs into real-world health solutions.
Let's get social!! | |||
| Meet Kaitlyn N! | 13 nov. 2024 | 00:47:57 | |
Ever wondered how someone turns a challenging health diagnosis into a source of artistic inspiration? This week we chat with Kaitlyn Niznik about her microscopic lymphocytic colitis and how is influenced her life and her art! Kaitlyn offers a unique perspective, sharing her journey from diagnosis to becoming an empowered advocate through her art. As an art teacher, Kaitlyn navigates the daily balancing act of managing her classroom and her health, all while creating meaningful art that she shares on Instagram. Discover how her experiences with colitis have ignited a passion for medical illustration and inspired her creative process.
Let's get social!! | |||
| Enteral and Parenteral nutrition with Neha Shah, RD! | 30 oct. 2024 | 00:53:30 | |
This week we welcomed back Registered Dietitian, Neha Shah! Neha joined us back in episode 42 where she was interviewed by friend of the show and IBD RD Stacey Collins. Neha specializes in IBD and other GI disorders and has both a private practice and is also part of the Colitis & Crohn's Disease Center at UCSF. We spent this episode shedding light on the distinctive roles of enteral and parenteral nutrition in combating IBD-related malnutrition. This episode is your gateway to understanding how enteral nutrition (EN) and parenteral nutrition (PN) can transform treatment strategies.
Let's get social!! | |||
| Meet About IBD Podcast Host- Amber Tresca! | 16 oct. 2024 | 00:51:04 | |
This week we were so excited to have a crossover episode with the host of the About IBD Podcast- Amber Tresca! We turned the tables on Amber and interviewed her about her IBD story! Amber has been living with UC for several years and underwent a 2-step J-Pouch surgery. We talked about her story thus far and how that plus her background in medical writing led her to a career of educating and advocating for the IBD community and how that prompted her to create the About IBD podcast! We discussed her medical writing career, the many projects that she's been involved like IBD Social Circle, Verywell Health and more, her work attending and writing about GI conferences, and the importance and care with which she writes about and educates the IBD community. We also discussed her advocacy work for the IBD community including being invited to share the vital patient voice during the American Gastroenterological Associations annual "Fly In" in Washington, D.C. We also talked about her podcast called About IBD! We explored why she started it, how she selects and prepares her guests, the process she uses to create the episodes, and how she prioritizes her topics. You'll also get a chance to hear us geek out about hosting podcasts and even so insider info about the process.
Let's get social!! | |||
| Meet Alicia A.! | 05 oct. 2024 | 00:48:38 | |
This week Alicia was joined by guest host and former guest, Hannah Cramer and they interviewed Alicia Aiello! Alicia A. is the President of Girls With Guts which is a nonprofit organization supporting and empowering women living with IBD and with ostomies. We talked to her all about her IBD journey and how that lead her to Girls With Guts. We discussed how her background in videography and visual arts helped her to bring some awareness to their work and how she eventually transitioned to become their President. We discussed some of their work including their "Butt Baskets" and their Lover Your Guts program and we spent a lot of time talking about their retreats. They host 2 retreats per year including a New Attendee or "Newbie" Retreat as well as an annual retreat that brings in come of those first-timers as well as alumnae.
Let's get social!! | |||
| Meet Belinda Brown of Crohn's & Colitis New Zealand! | 18 sept. 2024 | 00:56:25 | |
**Trigger warning: This episode discusses suicidal ideation.**
Let's get social!! | |||
| Meet Registered Dietitian, Yi Min Teo! | 04 sept. 2024 | 00:57:45 | |
This week Robin was joined by guest host, friend of the show, and IBD Dietitian, Stacey Collins! They spoke to Yi Min Teo! Yi Min is Registered Dietitian Nutritionist and owner of Herbs and Food – a virtual private practice specializing in digestive health and culturally-sensitive nutrition counseling. They talked about Yi Min growing up in Singapore and some of the cultural differences that she noted when she moved to the US and also some of the similarities. They discussed working with clients who have comorbid diagnoses with their IBD and the importance of personalizing a plan that works for all aspects of their health and circumstances. This lead to a really interesting conversation about incorporating cultural foods and traditions into diet plans and also to food accessibility and disparities. They also talked about advocacy and expanding dietitian services to even more people as well as meeting each patient where they're at to learn how to incorporate effective diet changes to each person's life circumstances. It was a really impactful discussion about food accessibility and how to make diet therapies more available to everyone living with IBD. Listen and learn along with me with this fun and important conversation!
Let's get social!! | |||
| Meet Dr. Alan Moss! | 21 août 2024 | 00:50:22 | |
This week we spoke to Dr. Alan Moss! Dr. Moss is the Chief Scientific Officer at the Crohn's & Colitis Foundation in the US. Previously he was the Director of the Crohn’s & Colitis Program at Boston Medical Center (BMC) and Professor of Medicine at Boston University (BU). He is a clinician-scientist who is a passionate patient advocate. We talked to him about moving from Ireland to the US to pursue training in IBD. We talked to him about why he decided to switch from direct patient care to leading the scientific efforts at the Foundation. We talked to him about what plans he has for the future of research at the Foundation including shepherding in new technology such at AI. We talked to him about how they are ensuring patient data protections and equity in how technology may shape research. We discussed how the research agenda has changed from focusing solely on remission to prevention, remission and on to repair and healing past damage. Finally we discussed the new 5 year strategic plan that the Foundation has undertaken in guiding their research agenda and the process by which healthcare providers, researchers and patients helped to build this new plan.
Let's get social!! | |||
| Meet Dr. Erica Barnell from Geneoscopy! | 07 août 2024 | 00:52:17 | |
This week we had such an interesting conversation with Dr. Erica Barnell. Dr. Barnell is the Co-Founder and Chief Medical and Science officer for Geneoscopy, Inc! Geneoscopy is a life-sciences start-up company that leverages eukaryotic biomarkers to non-invasively diagnose, monitor, and treat gastrointestinal disease. The idea for Geneoscopy was conceived during Dr. Barnell’s first clinical rotation while earning her MD/Ph.D. at Washington University School of Medicine in St. Louis. Specifically, Erica encountered a woman with Stage IV colorectal cancer (CRC) who had never undergone a colonoscopy, citing the inconvenience and burden of attending a traditional colonoscopy as key barriers. Dr. Barnell developed an easy non-invasive stool test to screen for colon cancer and she is now expanding it to the IBD space. She and her team are working to be able to use this RNA screening tool to allow for better prediction of treatment outcomes, disease monitoring and more. We talked to her about developing her initial test, going through the FDA approval process, and then developing a company while still finishing her MD/PhD. We also talked to her about starting a company with her brother and all of the many life changes she went through during it's initial stage as well. We discussed RNA technology and she gave us a quick lesson on it, and finally we discussed her participation in the Crohn's & Colitis Foundation's IBD Innovate Conference earlier this year and how it helped her premier her product to the IBD space and to explore possible partnerships and funding opportunities.
Let's get social!! | |||
| Meet Nicole K.! | 24 juil. 2024 | 00:51:56 | |
This week we talked to Nicole Kittleson! Nicole's daughter Addy was diagnosed with Crohn's disease when she was 8 years old but that diagnosis wasn't easy to get to. Addy wasn't growing or gaining weight, her eyes became dull and her hair started falling out. Nicole brought her concerns to her daughter's pediatrician but they just encouraged her to feed her more calories but Nicole knew something more was going on. When her daughter started experiencing skin inflammation and complaining about blood in her stool and Nicole finally demanded that her daughter get the tests she needed to get a definitive diagnosis of Crohn's. We talked to her about Addy's unusual and severe symptoms of a flare and their decision to use the Specific Carbohydrate diet to treat her disease for several years. We talked about the ramifications of using this diet including the cost, the time, and the impact that it had on family traditions and culture. We talked about how Nicole, Addy, and the rest of the family incorporated the SCD and these changes and needs into their daily routine and how they coped as a family. Finally we talked about how parents can also experience medical trauma as part of the process of their child having a chronic illness and about how parents can care of themselves while also caring for their child with IBD. In Nicole's case her own diagnosis of an autoimmune condition- Lupus- forced her to understand her need to care for herself as well as her family.
Let's get social!! | |||
| Meet Victorien M! | 10 juil. 2024 | 00:46:32 | |
This week we met Victorien Madsen! Victorien lives in The Netherlands and was diagnosed with UC after the birth of her 2nd child. We talked to her about navigating this new disease while parenting young children. Trying to find the right treatment option and finally finding the Specific Carbohydrate Diet before the internet was really even a thing. We talked to her about how she incorporated that diets into her life and her family's routine. We talked to her about modifying recipes and how she learned to create delicious foods for herself. We discussed how she started volunteering to run a support group for people with IBD who are interested in using diet to complement their treatment and finally how all of that led her to start volunteering with Nutritional Therapy for IBD.
Let's get social!! | |||
| Meet Kate Scarlata, MPH, RD | 26 juin 2024 | 00:45:45 | |
This week we had such a great conversation with Kate Scarlata, MPH, RD! Kate is a Boston-based registered dietitian and New York Times best selling author with 30+ years of digestive health experience. Kate is a world-renowned low FODMAP diet expert and invited speaker on the role of food intolerance in GI disorders at numerous international and national gastrointestinal health conferences from Harvard Medical School to Monash University. She specializes in digestive health including treatment for: IBS, celiac disease, inflammatory bowel disease, mast cell activation syndrome and small intestinal bacterial overgrowth (SIBO).
Let's get social!! | |||
| Meet Rocio- the @VoiceForIBD! | 12 juin 2024 | 00:54:24 | |
This week we spoke to Rocio Castrillon- better known for her popular Instagram account @VoiceforIBD! She shared her story of being diagnosed with Crohn's disease and how a lack of information caused her to suffer in silence with fistulizing disease. We talked to her about finally getting involved with Team Challenge with the Crohn's & Colitis Foundation in the USA and how that helped her find a large community of other people living with IBD. The opened up other volunteer opportunities and so we talked to her about the many ways that she's gotten involved with the community including advocacy work, leading a Spanish-speaking support group, educational initiatives, and more. We especially discussed her support group that includes people from many parts of the world and what are some commonalities she's observed and the people she helps. Finally we talked about how all of her advocacy work and involvement led her to being nominated for the National Board of Trustees for the Crohn's & Colitis Foundation here in the US. We discussed how she's using this seat at the table and this platform to raise even more awareness of the needs of the Hispanic/Latino IBD community and so much more.
Let's get social!! | |||
| Meet Mason M.! | 29 mai 2024 | 00:48:09 | |
This week we had a great conversation with Mason Milne! Mason is the host of the Crohn's and Autism Awareness Advocate podcast! We talked to him about being diagnosed with Crohn's when he was 17 years old and a bit about the health system in the UK where he lives. We talked about what it's been like navigating the healthcare system with autism and advocating for his needs. Mason gave some advice for other people living with autism that may also need to communicate their specific needs or preferences to their healthcare team. We talked a lot about his podcast, the unique series that he does, and how he recruits guests- including some famous ones! And finally we discussed his love of the show Dr. Who and how attending conventions has lead to him recruiting some very cool guests to his show!
Let's get social!! | |||
| Meet Dr. Kim Beall! | 15 mai 2024 | 00:52:52 | |
This week we had a great time getting to know Dr. Kim S. Beall! Kim is a Doctor of Pharmacy whose son was diagnosed with Crohn's disease when he was 13 years old. After she and her son discussed his treatment options with his healthcare team and they did some research he decided to try Exclusive Enteral Nutrition (EEN) to get his Crohn's in remission. We discussed how Kim and her family supported him during this time and how he coped with being on this very restrictive diet. Nutrition has been central to Kim's son’s management of Crohn’s disease since his diagnosis in 2013 at age thirteen. Nutritional therapy has been an essential part of providing optimal care and has afforded him the best opportunity to manage life with Crohn’s disease successfully.
Let's get social!! | |||
| Meet Dr. Megan Riehl! | 01 mai 2024 | 00:50:37 | |
This week we had such a great conversation with Dr. Megan Riehl! Dr. Riehl is a GI Psychologist, Assistant Professor of Medicine and the Director of GI Behavioral Health at the University of Michigan. We talked to her about all things IBD and mental health and how she helped to establish and incorporate GI behavioral health into the IBD center at the University of Michigan. We also talked to her about her interest in innovations in digital therapeutics, how she's worked with some developers to ensure the efficacy and quality of their products, and what apps that she recommends to patients as well as providers. We talked to her about her new book! It's called "Mind Your Gut: The Science-Backed Whole-Body Guide to Living Well with IBS." While this book is geared for people living with IBS, there is some really great information in there for people living with IBD as well and we discussed this with Dr. Riehl as well. Finally we went over some additional virtual resources that she finds helpful for patients. We really enjoyed talking with Dr. Riehl and we know you'll learn so much from her as well.
Let's get social!! | |||
| Meet Abigail Marie- The Chef with IBD! | 17 avr. 2024 | 00:48:34 | |
This week we talked to Abigail VanHoose- otherwise known as Abigail Marie the Check with IBD! Abigail was diagnosed with UC after a bad car accident and after she finished culinary school. Her disease journey was definitely rocky and very impacted by substandard medical care. Like may people living with IBD, she was told that "diet doesn't matter" but after dealing with multiple flares, she found the book "Breaking the Vicious Cycle that outlines the Specific Carbohydrate Diet and how it can be helpful for people with IBD. She decided to give it a try but found the recipes to be....less than exciting. She decided to put her culinary talents to work and started coming up with new recipes that followed the diet and than led her to decide to share her knowledge in her blog. We talked to her about following the SCD, how she creates the recipes, what she includes on her blog, and her favorite recipes. We also talked to her about her work with the nonprofit Nutrition Therapy for IBD and how she's been able to help them grown their recipe database, expand their social media, and much more. Finally we go on a rant about the medical system, steroids, and medical education. If you've listened to previous episodes, you know this is unsurprising. We had a great time hearing from Abigail, we know you will too and we're all set to try some of her yummy-sounding recipes. Cheers!
Let's get social!! | |||
| Meet Kim Braly, RD! | 03 avr. 2024 | 00:47:59 | |
This week we talk to Kim Braly, RD! Kim is a Registered Dietitian that specializes in IBD, consults on nutrition and IBD-related research studies, has expertise on IBD nutrition program development and educates practitioners on nutrition therapies for IBD. She is currently in private practice seeing adults and kids living with IBD virtually across the country. Previous to this she was part of the IBD Center at Seattle Children's Hospital where she saw patients as well as developed and participated in research studies on nutrition therapies for IBD. We talked to her about what it was like to develop these studies and how challenging it is to control for all the potential changes that can happen when participants are cooking their own foods. We talked about the Specific Carbohydrate Diet and how she talked to patients about the expectations and prepared them to take it on. We also talked about the efficacy of several diet therapies. We also discussed health and economic disparities and how these might affect the ability of some families to consider dietary therapies and the lack of insurance coverage to help. Finally we talked about the website that she developed with a woman living with Crohn's disease who was her patient at Seattle Children's called Eats for IBD. This website provides much-needed nutrition support and practical resources to those with IBD including educational sessions, support options, and delicious recipes that are friendly to dietary therapies. We had a lot of fun talking with Kim and we learned so much too! Cheers!
Let's get social!! | |||
| Meet Courtney W.! | 20 mars 2024 | 00:50:33 | |
This week we had such a great conversation with Courtney Walls! Like several of our guests, Courtney had a pretty dramatic introduction to the IBD community including needing urgent surgeries, C-diff infections, fistulizing disease, and she's now living with an ostomy (happily). We talked to her about going through all of that while also living with anxiety and how she's processing it using mental health therapies like CBT and internal family systems and going through the Employee Assistance Program through her work. Courtney also started a very successful Instagram account about her Crohn's journey called courts_crohns_corner. We talked to her about what it was like putting her story out so publicly, how different it is to be talking about her disease and her treatment decisions in real time versus sharing past history, and about how she's using her account to give support to others while also getting some herself. Finally we discussed her love to Charles Barkley and Arizona.
Let's get social!! | |||
| Meet Stephanie Brenner, LCSW! | 06 mars 2024 | 00:54:21 | |
This week we had a great conversation with Stephanie Brenner! Stephanie is a Licensed Clinical Social Worker at Chronic Illness Psychotherapy in Evanston, IL who has 13 years of experience working with clients with chronic illnesses. Through her journey as an IBD patient and clinician, she has developed a passion for helping people with health challenges live their lives to the fullest. We talked to her about how living with her IBD helped her develop a passion for being a therapist for kids and adults with chronic illnesses. We also discussed doing therapy with kids, medical hypnotherapy, medical gaslighting and how she works with people as they take on a new identity as they cope with a new diagnosis. We also discuss the guide for parents of kids with Crohn's that she wrote in coordination with Tina Aswani-Omprakash (Own Your Crohn's, SAIA, etc!). We spent a while talking about how she works with patients who may need to address challenges with healthcare providers who they need to remain connected to. We discussed so many aspects of mental health and tapped into Steph's professional experience and brain that we'll have to bring her back to talk more about her IBD and living with an ostomy!
Let's get social!! | |||
| Meet Dr. Jordan Shapiro! | 21 févr. 2024 | 00:54:30 | |
***Warning that this episode discusses eating disorders, disordered eating, and medical trauma.*** This week we spoke with Dr. Jordan Shapiro! Dr. Shapiro is a GI Hospitalist at Peak Gastroenterology Associates in Colorado as well as a private practice GI at Gentle GI in Houston, TX (starting April 1, 2024). Dr. Shapiro also is a yoga instructor and enthusiastic practitioner and so we spend quite a bit of time learning about the practice of yoga that goes beyond the body movements we're probably all familiar with and how adding yoga to your care may be beneficial. He also has expertise in working with patients with eating disorders or disordered eating as well as in trauma-informed care. We talk to him about how he approaches patient care in a empathetic way and how he works with patients who have identified trauma experiences that may impact their care. We also talk to him about how he uses this knowledge and experience to help other providers learn how to create a safe environment for people who may be struggling with trauma responses. We really enjoyed this conversation with Dr. Shapiro and think you'll learn a lot from him as well.
Let's get social!! | |||
| Meet Jordan M.! | 07 févr. 2024 | 00:58:51 | |
This week Alicia was joined by guest host and past guest, Derek Dodson! They interviewed Jordan B. McConnell! Jordan is a Air Force veteran, IT professional, father and husband who also lives with Crohn's disease! We talked to him about being diagnosed as a young teen and how his disease was presented to his family and how he was able to join the military and how that affected his ability to continue in his military career. Jordan is also the creator and one of the hosts of the Crohn's Veteran podcast and lifestyle brand. We talked to him about creating the show, recruiting his co-hosts, and all of the amazing guests that they were able to interview as well as the community they created around the show. We also discussed coping with IBD as a male and how that may create situations where one may feel stifled in expressing needs and so much more. We had such a great conversation with Jordan and we can't wait for you to get to know him as well.
Let's get social!! | |||
| Meet Dr. David Binion! | 24 janv. 2024 | 00:57:49 | |
This week we had the absolute pleasure to talk to Dr. David Binion! Dr. Binion is a physician-scientist who is also living with Crohn's disease. He is Co-Director of the IBD Center at the University of Pittsburgh School of Medicine. He was diagnosed with Crohn's when he was a teenager- before the information age and also before there were many treatment for IBD. He has devoted his career to analyzing "Big Data" to figure out how to predict disease outcomes, prognosis and flares. We talked to him about his longitudinal research, what he's learned, and how that's given him hope as an IBD patient. We talked to him about what he's seeing in reclassifying IBD into more subcategories and what that will mean for more effective treatment and also what he sees on the horizon for IBD research. Let's get social!! | |||
| Meet Amalia Karlin, RD! | 10 janv. 2024 | 00:50:59 | |
This week we talked to Registered Dietitian, Amalia Karlin! Amalia experienced symptoms very similar to UC but she struggled to get a diagnosis. Eventually her symptoms got to be so severe she had to have a colectomy and now lives with an ostomy. After that she decided that she as going to devote her career to helping other people living with ostomies to maximize their nutrition and live their best lives. We also talked to her about life with an ostomy, the healthcare system in Canada, and experiencing pregnancy with an ostomy. She has a very dramatic story but we think you'll love meeting her as much as we did
Let's get social!! | |||
| Meet Dr. David T. Rubin! - EPISODE 100! | 20 déc. 2023 | 01:22:53 | |
Welcome to our 100th episode! This week we talked to the renowned Dr. David T. Rubin! Dr. Rubin is the Joseph B. Kirsner Professor of Medicine and a Professor of Pathology, Chief of the Section of Gastroenterology, Hepatology & Nutrition and the Co-Director of the Digestive Diseases Center at The University of Chicago Medicine. He also currently serves as an associate faculty member at the MacLean Center for Clinical Medical Ethics, an associate investigator at the University of Chicago Comprehensive Cancer Center and is a member of the University of Chicago Committee on Clinical Pharmacology and Pharmacogenomics. He is the chair of the National Scientific Advisory Committee of the Crohn’s & Colitis Foundation, where he also serves as a Board of Trustees member. He is the deputy chair of the Executive Committee of the International Organization for the Study of Inflammatory Bowel Disease. In 2018, Dr. Rubin completed the Harvard T.H. Chan School of Public Health Leadership Development Course for Physicians. Dr. Rubin is a Fellow of the American Gastroenterological Association (AGA), the American College of Gastroenterology (ACG), the American Society for Gastrointestinal Endoscopy (ASGE), the American College of Physicians (ACP), and the Royal College of Physicians (Edinburgh). He is on the Board of Trustees for the ACG. Among numerous awards and honors, Dr. Rubin was chosen by his peers as a member of Best Doctors (recognized for superior clinical ability) and America’s Top Physicians (gastroenterology). Additionally, he twice received the ACG’s Governor’s Award of Excellence in Clinical Research (2003 and 2013), and the UChicago Postgraduate Teaching Award in recognition of significant contributions for fellowship education (2006). In 2012, he received the Crohn’s & Colitis Foundation’s Rosenthal Award, a national leadership award bestowed upon a volunteer who has contributed in an indisputable way to the quality of life of patients and families. He is an Associate Editor of the journal Gastroenterology and Editor-in-Chief of the ACG On-Line Education Universe. In 2020, Dr. Rubin received the Sherman Prize for Excellence in Crohn’s and Colitis. Dr. Rubin is an editor of a best-selling book Curbside Consultation in IBD which is now in its 3rd edition and an author or coauthor of over 500 articles on treatment and management of IBD, cancer in IBD and novel paradigms, as well as the first author of the 2019 ACG Guidelines for ulcerative colitis. His current research is in the area of novel approaches to monitoring of IBD (wearables and point of care intestinal ultrasound), prevention of progressive complications from uncontrolled inflammation, and a variety of collaborative and translational studies related to the causes of IBD and its complications. Episodes from some of Dr. Rubin's UChicago's team:
Please keep in mind that the views and opinions expressed in this program are those of the speakers and should not be considered medical or legal advice. Please consult with your healthc Let's get social!! | |||
| Meet Liam R.! | 13 déc. 2023 | 00:58:14 | |
This week we spoke to Liam Robertson! Liam was diagnosed with UC when he was a young adult but the process was lengthy and filled with times when he was not believed. We talked about what that was like to navigate the health system and his feelings on it. We discussed how he got so involved in social media, how that's helped him cope with flares and complications, and the importance of having a community around you. We also talked about the books that he's written including "More Than Meets the Eye: Living with Ulcerative Colitis" and the kids book series about Jack Jupiter who is a child living with IBD. We talked about what prompted him to write the books and the response he's gotten from people all over the world. We also discussed his job on an oil rig and what that's been like for him to be so far away from medical care with UC. And finally we spoke about him training in muay thai- what got him interested and more. Liam was so much fun to talk to! Go check out his books.
Let's get social!! | |||
| Meet Michele Rubin, APN! | 06 déc. 2023 | 00:53:18 | |
This week we spoke to Michele Rubin! Michele is an advanced practice nurse and is the Associate APN Director of the IBD Center at the University of Chicago Medicine. She specializes in surgery for IBD and has helped to create a J-Pouch specific clinic. We talked to her about surgery part of the treatment options, J-Pouches and what to expect in recovery, and how she works with patients to ensure they have the best outcomes. We also discussed the research that she's done related to IBD surgery and their efforts to try to predict a patient's response to their J-Pouch and how to treat complications. Finally we talked about how and why a surgeon may choose to hand sew instead of use surgical staples. Michele has been in the IBD space for a long time and has so much knowledge to share and she was such a joy and a light. We could have talked to her for hours. Let's get social!! | |||
| Meet Ashley M.! | 29 nov. 2023 | 00:41:41 | |
This week we talked to Ashley Mann! Ashley was diagnosed with Crohn's disease when she was 20 years old but she had been experiencing symptoms when she was in high school. We talked to her about what it was like being a competitive cheerleader with active disease. We talked to hear about what she describes as trying "every medication on the market" and navigating countless surgeries. We discussed her decision to move to a permanent ileostomy and how close she is to living with short-gut syndrome. We talked about how she's had to learn to manage her healthcare and advocate for herself while moving frequently because of her husband's career in the military. We also talked about what it was like to get her care in the military healthcare system and her experience with friend-of-the-show, Dr. Anish Patel. Finally we talked about the importance of making healthcare decisions that you feel are right for you even in the face of differing opinions from the people most important to you.
Let's get social!! | |||
| Meet Bianca H.! | 22 nov. 2023 | 00:45:46 | |
This week we had the pleasure of talking with Bianca Hernandez! Bianca was diagnosed with Crohn's disease in 2015 and she almost immediately parlayed her diagnosis into advocacy for her community. She worked with her school system to get better access to the private bathroom at her school and rallied and inspired other students affected by IBD to advocate for this in their schools. She was selected to join the National Council of College Leaders program at the Crohn's & Colitis Foundation- USA which allowed her to lead in many other advocacy initiatives including step-therapy reform and Ally's law and to work on ensuring that educational materials developed were properly translated into Spanish. This program also introduced her to life-long friends and other inspiring young people in the IBD Community. We talked about her advocacy work and how her efforts to ask for what she needed lead her to becoming a fierce advocate for the whole IBD community. We discussed the perils of comparing your healthcare decisions and disease with other people's journeys and how to destigmatize medical decisions and to not compare yourself to others. We discussed how IBD impacts the Latinx community and ideas on how to raise awareness about IBD and colon cancer screening within these communities. Bianca was so much fun to talk to and is so inspiring. I know you'll find her passion as infectious as we did.
Let's get social!! | |||
| Meet Dr. David Schwartzberg- Colorectal Surgeon! | 15 nov. 2023 | 00:53:49 | |
This week we had such a great conversation with Dr. David Schwartzberg! Dr. Schwartzberg is a double-board certified colorectal surgeon at Mather Hospital and Columbia specializing in IBD, pelvic floor conditions, re-operative colorectal surgeries, J-Pouch disorders, and minimally invasive surgical techniques. We talked to him about his passion for colorectal surgery and how he spends any free time he has that's not with his family researching and learning more about it. We talked to him about his drive to find a career that helped people and had a true impact on the world. We discussed his interest in J-Pouches and improving complications that may come with previous surgeries. We explored how some folks that had been diagnosed with UC to start may now have a Crohn's diagnosis post J-Pouch and also upper GI Crohn's disease. We also talked about his love of music and how he and his wife have fostered that love in his 3 boys. We also talked about many other things including the improved technology in buckets but I cut that part out. Needless to say we laughed, we cried, we went off the rails but I promise you're getting the best part. We don't think Dr. Schwartzberg could be more more passionate about caring for people living with IBD and their families and we can't wait for you to hear that in this conversation too.
Let's get social!! | |||
| Meet Alex B.! | 08 nov. 2023 | 00:51:04 | |
This week we had the pleasure of getting to know Alex Boyd! Alex was diagnosed with UC when she was 26 years old when she thought she had caught a stomach bug that had gotten very aggressive. It was only 2 weeks after her diagnosis that she was advised to have her colon removed and to start her J-Pouch surgery process. We talked to her about the dramatic way that she was introduced to our community and how she worked with her medical team to make this decision. We talk to her about the issues that she's experienced with her J-Pouch and how she's coping with that. We talked to her about how she's focused on her mental health to help with her coping skills and also how she's worked with her employer to get the accommodations that she needs to be the best employee she can be. We also spoke about how living with an illness like this can lead you to examine your life and your relationships and how that can lead you to making some big, and at times scary choices to allow you to grow and lead the life you deserve. We really enjoyed hearing Alex's perspective and all that she's learned and we know you will too. Let's get social!! | |||
| Meet Adam F. - Author of "Up & Adam: A Patient's Experience on Winning with IBD" | 01 nov. 2023 | 00:39:03 | |
This week we spoke to Adam Finkelstein! Adam was diagnosed with UC when he was just 2 years old. We talk to him about what it was like growing up with UC and dealing with it as a child. We spoke about how his experiences with the medical system prompted his interest in writing a children's book for other kids with IBD called "Up and Adam: A Patient's Experience on Winning with IBD." Also how it sparked his interest in becoming a physician and especially a surgeon. Finally we talked about Adam's experience as a Camp Oasis counselor, how he was able to share his book with all of the kids this summer, and what their reactions were and the conversations it started. Adam was a joy and we think he'll make an extremely empathetic doctor some day soon!
Let's get social!! | |||
| Meet Dr. Alyse Bedell! | 25 oct. 2023 | 00:56:35 | |
*** Warning: This episode discusses sexuality, sexual health and sexual trauma and may not be appropriate for all audiences.*** This week we spoke to Dr. Alyse Bedell! Dr. Bedell specializes in psychogastroenterology and is a sexual health counselor at the University of Chicago IBD Center. She has specialized training and knowledge in how stress, anxiety and depression can affect digestive health. Dr. Bedell works with patients struggling with a range of gastrointestinal conditions, such as inflammatory bowel disease. and using her expertise to help her patients cope with their condition and improve their gastrointestinal symptoms. Dr. Bedell is able to assist patients in better understanding and managing their symptoms through a holistic approach that addresses both physical and emotional components.
Let's get social!! | |||
| Meet Derek D.! | 18 oct. 2023 | 00:56:35 | |
***This episode includes discussions about suicide and suicidal ideation and may not be appropriate for some people.**** This week we had a really deep conversation with our friend Derek Dodson! Derek has been living with Crohn's disease for 40 years and so we talk to him about what it was like to live with Crohn's before there were any good treatment options, what it was like being a teenager on steroids, and what is has been like to see so much scientific and treatment advances. We discussed his family history with IBD including his grandfather's "ileitis" and his daughter Maurie Jhaveri's diagnosis and how her diagnosis compelled him to get more involved in the IBD community. We talk about his strong Christian faith and how it has been a source of comfort and solace during his hardest times but also how it has changed his faith, how he prays, and how it helped him come up with his life motto of "make it count." We also talked about how living with Crohn's for so long, multiple surgeries, and all his treatments have had lasting impacts on his health in other ways including some vitamin deficiencies. Finally we discuss how Derek's IBD has affected his mental health including his coping with suicidal thoughts and some very significant hopelessness. And how his faith, his family, his community, and working with a therapist has helped him cope and reframe living with his disease.
Let's get social!! | |||
| Meet Dr. Edward Barnes! | 11 oct. 2023 | 00:52:34 | |
This week we spoke to Dr. Edward L. Barnes! Dr. Barnes is a gastroenterologist and clinical investigator dedicated to improving the care of patients with inflammatory bowel disease at the University of North Carolina School of Medicine. Dr. Barnes is also the 2021 Sherman Emerging Leader Prize Recipient. He has a particular interest in improving outcomes for patients with inflammatory bowel disease who require a colectomy and an ileal pouch-anal anastomosis. Patients with an ileal pouch-anal anastomosis may experience significant complications after surgery, including the development of new inflammatory conditions of the pouch. Dr. Barnes has developed multiple new research strategies to identify risk profiles for those patients at greatest risk for adverse outcomes and strategies to improve the effectiveness of available therapies for pouch-related disorders.
Let's get social!! | |||
| Meet Myisha! | 04 oct. 2023 | 00:56:40 | |
This week we talked to Myisha Malone-King! Myisha is the brains and moderator behind the Facebook group Game of Crohn's n Chronic Illness! The goal of this group is to offer support and knowledgeable information about inflammatory bowel disease and to inspire others to not be afraid or hide because of a chronic illness. We talk to her about what discussions happen on the page and how it's helped her to support and educate other people living with IBD. We discuss her diagnosis process and how her Crohn's affected her pregnancies and how that led to her considering an abortion. We talked to her about everything that she considered as she made that decision and how difficult it was knowing that her health and her life could be so incredibly impacted by it. We talked to her about the pain she experiences with her Crohn's and how difficult it was to find a doctor that would believe her and help find the right treatment plan. We talked to her about grief and the grief that goes along with living with a chronic illness. Finally, we talk about journaling and writing poetry as a way to process living with a chronic illness. We discuss Myisha's new book of poetry called "Footprints of the Soul", where you can find your copy, and she reads us one of her beautiful poems.
Let's get social!! | |||
| Meet Marita Kametas, MSN, APN, FNP-BC, CMSRN, COCN! | 27 sept. 2023 | 00:47:53 | |
This week we spoke to Marita Kametas, MSN, APN, FNP-BC, CMSRN, COCN! Marita is an Advanced Practice Provider Leader, IBD APN, and Ostomy Specialist in the IBD Center at the University of Chicago. We talked to her about all things ostomy! We discussed how providers can speak to patients about all of their treatment options including surgery and ostomies and how that language can really help to make patients feel more comfortable and in control. We talked about how she helps patients prepare for surgery and to deal with ostomies after surgery. We discussed the research she's doing into new ostomy technology and what she'd love to see advance in this area. We also talked about pregnancies with ostomies, complications one can have with an ostomy and so much more. It was super interesting and I think you'll learn just as much as we did.
Let's get social!! | |||
| Meet Julia G-P! | 20 sept. 2023 | 00:55:15 | |
***Warning that this episode includes an open discussion about sexuality and may not be suitable for all audiences.***
Let's get social!! | |||
| Meet Aaron B.! | 13 sept. 2023 | 00:41:27 | |
This week we spoke to IBD and Rare Disease advocate, Aaron Blocker! Aaron lives with Crohn's disease as well as an ultra-rare disease called Hypophosphatasia. We talked to him about managing both illnesses and coordinating his care. We talked to him about how he set up his very popular and informative Facebook community called Support for Crohn's & Ulcerative Colitis and how he monitors this page to keep the conversations informative, supportive, and as accurate as possible. We also talked to him about his degree in biomedical research and how he uses it to help translate complicated scientific information for the patient population and to help educate our community. Additionally this has helped him engage with the pharmaceutical and scientific community professionally to help with patient education, marketing and much more. Finally we talked to him about parenting his three very small children, including twin babies (!), while living with two chronic illnesses.
Let's get social!! | |||
| Meet Dr. Meredith Craven! | 06 sept. 2023 | 00:56:28 | |
This week we had such an interesting and fun conversation with Dr. Meredith Craven! Dr. Craven is a licensed health psychologist and she's the Director of GI Health Psychology in the Division of Gastroenterology and Hepatology at Stanford Health. We spent quite a bit of time talking about gut directed hypnotherapy and other brain-gut behavioral health techniques. We also had a really interesting discussion about Dr. Craven's research and work on health disparities and diversity, equity, inclusion, and justice. We also talked about her interest in and practice of yoga and how she's helped her patients use it as well as diaphragmatic breathing and mindfulness to manage their IBD.
Let's get social!! | |||
| What's EMDR Like As a Patient with Hannah C. | 30 août 2023 | 00:52:20 | |
This week we brought back friend of the show and former guest, Hannah Cramer! Hannah and Robin have both been using Eye Movement Desensitization and Reprocessing (EMDR) to help them with their medical trauma. EMDR is a psychotherapeutic technique used to help people process and recover from trauma and problematic traumatic memories that may interfere with life. They've found EMDR to be incredibly helpful and very quick to alleviate some really significant anxiety and trauma associated with their disease and with their experiences with the medical system. We discussed how the process has worked for them, what to expect if you're considering this, pros and cons to this technique, and how they've talked to others about it. It was super interesting to hear their different experiences but also so encouraging to hear how it helped them.
Let's get social!! | |||
| Meet Dr. David Choi! | 23 août 2023 | 00:55:06 | |
This week we had such an informative conversation with Dr. David Choi! Dr. Choi is a Specialty Clinical Pharmacist and the Associate Director of the IBD Center at UChicago. We talked to him about his role as part of the IBD care team and how he plays an important part in patient advocacy and in getting the patient the treatment they and their provider think is best. We discussed his research in pharmacist-initiated interventions and prior authorizations and in other insurance issues in patient care and what they learned from this work. We talked a lot about biologic medications and biosimilars and what patients should know about these options and about switching to one. We also discussed supplements and how your pharmacist can help you figure out what is safe for you to use or what might have medication interactions. Finally we talked to him about training new or more pharmacists to do specialty IBD care and about networking with other IBD Pharmacists through the IBD Pharmacist Network. This was such an interesting conversation and I think you'll learn as much as we did.
Let's get social!! | |||
| Meet Nicole and Luke! | 16 août 2023 | 00:56:15 | |
This week we spoke to Nicole and Luke Pavlin! Nicole is living with Crohn's disease and Luke is her husband and care partner. We talked about the process for her to get diagnosed and the unusual birth defect she has that complicated her case. We talked about her ongoing struggles with food anxiety and medical trauma and how the GRITT- IBD program and staff have helped her cope. We talked to her about how her Dietitian and her mental health team have worked together to help her. We talked about her participation in a couple of research studies being put on by Mount Sinai including one with wearable devices. Nicole talked about why participating in these types of studies was especially important to her as a science educator and to help her feel like she was helping others. We also talked about her volunteer role with the nonprofit Nutrition Therapy for IBD.
Let's get social!! | |||
| Meet Nir S.! | 09 août 2023 | 00:44:41 | |
This week we talked to Nir Salomon! Nir is the Founder and Director of the Integrative Gastroenterology unit at Sheba Medical Center in Israel. He's also the Co-Founder and Head of R&D at Evinature. Nir has done research for more than a decade on neutraceuticals for the treatment of IBD. We talked to him about his training in this area, what neutraceuticals are and how they and other types of integrative medicines are used in IBD care. We talked to him about how he chose the items that he decided to research and how he developed Evinature's CurQD protocol. We discussed the clinical trials that he went through and how this protocol can be helpful to the treatment regime of IBD. Finally we talked about research in Israel and why they may be able to research things that are not as readily studied in the United State. It was a really interesting conversation! Enjoy! Let's get social!! | |||
| Meet Dr. Mike Dolinger! | 02 août 2023 | 00:54:54 | |
This week we talked to Dr. Michael Dolinger! Dr. Dolinger is an Assistance Professor of Pediatric Gastroenterology at the Icahn School of Medicine and Mount Sinai Kravis Children's Hospital. Dr. Dolinger leads the Henry and Elaine Kaufman intestinal ultrasound program at the Susan and Leonard Feinstein Inflammatory Bowel Disease Center, the first of its kind in the United States. We talked to him all about intestinal ultrasound and how revolutionary it is as a noninvasive tool to monitor disease activity and treatment response. It's seriously super cool and we had such an interesting conversation with Dr. Dolinger! We also talked to him about his very personal reason for going into pediatrics and focusing on Inflammatory Bowel Disease. Dr. Doling is a joy and we loved speaking to him more than eating a pint of ice cream.
Let's get social!! | |||