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Explorez tous les épisodes du podcast BeewellwithMS podcast by Dr Agne Straukiene
Plongez dans la liste complète des épisodes de BeewellwithMS podcast by Dr Agne Straukiene. Chaque épisode est catalogué accompagné de descriptions détaillées, ce qui facilite la recherche et l'exploration de sujets spécifiques. Suivez tous les épisodes de votre podcast préféré et ne manquez aucun contenu pertinent.
| Titre | Date | Durée | |
|---|---|---|---|
| What Your MRI Isn’t Telling You About MS | Prof. Daniel Ontaneda | 23 sept. 2026 | 00:51:33 | |
What It Reveals | Professor Daniel Ontaneda“My MRI is stable—but I don’t feel stable.”It’s a sentence we hear in clinic, and it deserves a thoughtful answer.In this BeeWellwithMS episode, I’m joined by Professor Daniel Ontaneda, neurologist and MS researcher at Cleveland Clinic, to explore what MRI can reveal—and why it doesn’t always explain everything you feel.We unpack the language of MRI reports, from lesions and “black holes” to brain atrophy. We discuss silent lesions, chronic inflammation, paramagnetic rim lesions and the central vein sign, alongside emerging imaging techniques that could help bring the scan and the lived experience of MS closer together.Daniel also shares his approach to monitoring scans, when contrast can be useful, and what excites him about 7T MRI and better spinal cord imaging.Your scan matters. So does your story. ⏱️ CHAPTERS00:00 Welcome: 02:33 What actually is an MS lesion? 04:36 Understanding T2 lesions, contrast and “black holes” 09:02 Do black holes predict more severe MS? 10:28 Why can new lesions appear without symptoms? 13:23 “My MRI is stable, but I don’t feel stable” 18:14 The biology routine MRI can miss 19:30 Chronic inflammation and changes beyond lesions 22:35 New imaging markers: looking deeper into MS 24:22 Paramagnetic rim lesions and chronic activity 26:53 The central vein sign: identifying MS lesions 30:29 Brain atrophy: what does it really mean? 33:17 How hydration and time of day affect brain measurements 35:46 Brain health, lifestyle and interpreting your report 37:52 Monitoring MRI: rebaseline scans and contrast 40:00 How often should you have an MRI? 42:28 Personalising monitoring and spinal cord scans 43:28 The future: 7T MRI and sharper spinal cord imaging 47:00 What Daniel wishes everyone understood about MRI 48:46 Bringing your scan and your experience together 50:54 Closing thoughts: stay curious and ask questions🎙️ Hosted by Dr Agne Straukiene 🎙️ Guest: Professor Daniel Ontaneda, Cleveland Clinic💬 Have you ever felt that your MRI report didn’t reflect how you were feeling? Share your experience or a question below.Subscribe to BeeWellwithMS for more conversations about MS science, care and everyday life.🌐 https://www.beewellwithms.comThis conversation is for general education. MRI findings and monitoring schedules need to be interpreted with your own clinical team, taking your individual circumstances into account.#MultipleSclerosis #MRI #BeeWellwithMS Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Assistive Technology for MS: Everyday Heroes, Wow-Tech & 7 Questions to Ask Before You Buy | 23 août 2026 | 00:26:39 | |
This episode of the BeeWellwithMS Podcast opens the “assistive technology toolbox” for people with MS, from everyday tools to specialist equipment and emerging tech, using catalog labels (established, specialist assessment, emerging/research, limited access) and emphasizing function-first choices over shopping. It highlights smartphones as a major assistive device (dictation, screen reading, magnification, captions, reminders, routines, and travel/toilet planning), mobility options like AFOs, FES, walking aids, wheelchairs and power-assist (with proper assessment and environmental adaptations), and low-tech adaptations for hands plus workplace support via Access to Work. It covers brain fog, fatigue planning, heat sensitivity and cooling, bladder diaries and planning, smart home control, and communication/AAC including voice banking. “Wow shelf” examples include the Cionic Neural Sleeve, grasp gloves, stair-climbing wheelchairs, rehab robotics/exoskeletons, eye-gaze communication, and camera-enabled glasses, ending with seven practical questions before trials or purchases. 00:00 Assistive Tech Teaser 01:22 Ground Rules and Labels 03:03 Your Phone as Assistive Tech 05:44 Mobility and Gait Support 09:17 Hands and Work Setup 10:43 Brain Fog and Fatigue Tools 13:57 Heat and Bladder Planning 15:50 Smart Home and Communication 17:31 The Wow Shelf Tech 21:37 Seven Questions Before Buying 23:58 Wrap Up and Takeaways Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Unpredictable MS Symptoms: Finding an Inner Anchor | 09 août 2026 | 00:15:29 | |
In this BeeWellWithMS podcast episode, the host reflects on an animated infographic listing many possible MS symptoms and the responses it sparked, including the feeling that “everyone thinks I’m okay” and the idea that an unpredictable body can reveal steady inner strength. The episode focuses on how one of the hardest parts of MS can be not knowing what version of your body you’ll wake up with, especially when changes aren’t visible to others. Rather than trying to “fix” the body, the host introduces mindfulness as a way to distinguish between symptoms and the struggle built around them, meeting what is present without fighting yourself. A short guided practice invites noticing the body, approaching sensations with curiosity and kindness, choosing where attention goes, and asking, “What do you need from me today?” 00:00 Welcome and the viral image 01:20 The hidden reality of MS 02:41 Mindfulness vs the struggle 04:21 Settle in for a short practice 07:25 Curiosity toward sensations 08:30 Kindness and shifting attention 10:05 Widen the lens beyond symptoms 11:20 Ask what you need today 13:03 Reflecting on fear vs curiosity 14:28 Closing thanks and invitation Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Fampridine is NOW Available on the NHS in England | What People with MS Need to Know | 05 août 2026 | 00:07:15 | |
This is a landmark moment for people living with multiple sclerosis (MS) in England. After many years of campaigning, fampridine (prolonged-release 4-aminopyridine) is now routinely available on the NHS for eligible people with MS-related walking difficulties. In this video I explain: ✅ Why this NHS decision is so important ✅ How fampridine actually works inside damaged nerves ✅ Why only some people respond to treatment ✅ What to expect during the NHS 2–4 week treatment trial ✅ Who can and cannot take fampridine ✅ Common side effects and important safety information ✅ What happens if you stop taking it ✅ The latest research on real-world benefits beyond walking Fampridine is not a disease-modifying treatment and it is not a cure for MS, but for some people it can make a meaningful difference to walking speed, confidence and day-to-day mobility. Because there is currently no test that predicts who will respond, the only way to know is through a carefully monitored treatment trial with your MS team. If you or someone you know has MS and walking has become more difficult, this video explains everything you need to know before discussing fampridine with your neurologist or MS nurse. Chapters 00:00 A long-awaited NHS change 01:10 What is fampridine? 02:25 How MS disrupts nerve signals 04:15 How fampridine works 06:05 Why some people respond—and others don't 08:45 The latest real-world evidence 10:40 NHS eligibility and treatment trial 13:00 Safety, contraindications and side effects 16:30 Taking fampridine correctly 18:15 What happens if treatment stops? 19:30 A realistic message of hope Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| How MS Treatments Work: The Immune System “Train” Explained + Why Monitoring Matters | 05 juil. 2026 | 00:01:43 | |
The episode explains MS treatments using a “train” analogy: immune cells travel toward the brain and spinal cord, and in multiple sclerosis some mistakenly attack myelin. Different therapies stop the process at different points by slowing new immune cell production, trapping cells in lymph nodes, blocking entry into the brain, or resetting parts of the immune system. It highlights that today’s treatments are highly effective at reducing relapses, preventing new MRI lesions, and slowing disability progression, but notes MS can still gradually progress even when relapses stop and scans look stable. The script emphasizes the need for new therapies targeting smouldering processes inside the brain and explains that regular blood monitoring helps ensure treatment remains safe, effective, and appropriate, encouraging viewers to subscribe to the Be Well with MS Podcast. 00:00 MS Treatments Explained 00:21 Stopping the Immune Train 00:36 How Effective Are DMTs 00:47 Progression Beyond Relapses 00:58 New Targets and Monitoring 01:14 Protecting the Brain Ahead 01:30 Subscribe and Goodbye Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. This episode includes AI-generated content. | |||
| World MS Day: Letting Go of Guilt, Social Media Myths, and Practicing Self-Compassion | 30 mai 2026 | 00:39:32 | |
World MS Day: Letting Go of Guilt, Social Media Myths, and Practicing Self-Compassion On World MS Day, Dr. Agne Straukiene hosts BeeWellwithMS and speaks with Helena, host of the MS Trust podcast, about the often-invisible burden of guilt and self-blame in multiple sclerosis. They discuss how people with MS may blame stress, lifestyle, diet, or effort for relapses and new lesions despite not knowing what causes MS, and how social media “cures,” restrictive wellness trends, and misinformation can worsen anxiety and costs. Helena shares her experience of stable years followed by new lesions, how documenting patterns, running, and seasonal awareness helped her manage MS symptoms, and how CBT tools (like addressing catastrophizing and the “worry tree”) improved sleep and self-talk. They emphasize balancing evidence-based MS treatment and disease modifying treatment with quality of life, using community support wisely, and remembering that healthy MS diet and exercises support wellbeing but don’t prevent every relapse or smoldering MS change. 00:00 World MS Day Intro 00:55 The Hidden Burden Guilt 01:47 Meet Helena and Set the Tone 02:47 Diagnosis and Searching for Causes 06:32 When New Lesions Trigger Blame 11:31 Tracking Patterns and Running 16:29 Lifestyle Helps Not Perfect Control 19:29 Optimization Culture and Food Guilt 21:27 Misinformation and Miracle Cures 26:03 CBT Tools for Anxiety 30:39 Community Connection and Reality Checks 37:05 Final Message Compassion Over Blame Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Mindful Park Walk- Nature’s Healing Moments | 14 mars 2026 | 00:06:21 | |
Dr Agne Straukiene films a mindful walk in Cockington Village park in Torquay, dedicating the video to people who struggle to get out due to mobility difficulties, such as wheelchair users without ramps. Agne invites viewers to spend a few minutes listening to birds, noticing spring, and appreciating nature’s beauty despite background sounds like toddlers. The walk includes stopping by a small cafe to enjoy water and ice cream while resting and regaining energy, reflecting on nature’s therapeutic power and the idea that life is beautiful but often overcomplicated. They point out a “princess tree,” observe bees working in the new season, share that pine trees are her favorite due to growing up by the Baltic Sea in Lithuania, and end with simple wellbeing tips: focus on breathing with two or three deep breaths and, if possible, go outside to explore nature. Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| But you look well- When MS Is Invisible | 25 janv. 2026 | 00:29:01 | |
In this episode of the BeewellwithMS Podcast, Dr. Agne Straukiene, a neurologist, discusses the concept of 'invisible illness' in Multiple Sclerosis (MS) with Amy Thompson, founder of the MS Together charity. Amy shares her daily struggles with symptoms like fatigue, pain, and brain fog, which are often invisible to others. They also explore the importance of communication, self-advocacy, and the need for empathetic understanding from society. The episode dives into the challenges of living with an invisible disability, the necessity of realistic goal-setting, and leveraging technology for support. Finally, the discussion highlights the value of creating safe, inclusive spaces for young people with MS to connect and share their experiences. 00:00 Introduction to BeewellwithMS 00:48 Understanding Invisible Symptoms 04:42 Communicating Needs and Building Empathy 11:04 Managing Ambitions and Productivity 14:31 The Role of Technology and Flexible Goals 17:12 MS Together: Creating Safe Spaces 23:56 Final Thoughts and Reflections Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Stranger things in MS | 11 janv. 2026 | 00:18:50 | |
In this episode, MS Neurologist Agne Straukiene explores the complex nature of Multiple Sclerosis (MS) using metaphors from the popular TV series Stranger Things. She explains the different 'worlds' of MS: the visible symptoms and medical findings, the subtle day-to-day changes often not captured by scans, and the deep biological processes driving the disease. The video emphasizes the importance of early diagnosis, ongoing treatment, and a multidisciplinary approach including lifestyle changes for better brain health. Dr. Straukiene also discusses the role of advanced technologies in understanding and managing MS. 00:00 Introduction and Stranger Things Connection 00:27 Understanding MS Through Different Worlds 02:27 The Visible World of MS 04:17 The Quiet World of MS 07:38 The Deep Drivers of MS Progression 10:35 The Wormhole: Connecting All Worlds 13:28 Conclusion and Final Thoughts Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Beauty, Style, and MS: Practical Tools for Everyday Confidence | 07 déc. 2025 | 00:41:15 | |
In this episode of 'BeeWellwithMS,' host Dr. Agne Straukiene, a neurologist, welcomes Roxy Murray – a keynote speaker, patient advocate, and champion for diversity, inclusivity, and true health equity. Living with multiple sclerosis (MS) herself, Roxy discusses her journey of balancing fashion and health, detailing how adaptive fashion can empower those with disabilities. The conversation delves into practical styling tips, adaptive methods, and the necessity of an evolved fashion industry that includes and celebrates disabled bodies. Listeners will gain insights into how functional and fashionable clothing can meet the unique needs of MS patients, covering topics like the impact of MS symptoms, adaptive beauty routines, and more. 00:00 Introduction and Guest Welcome 03:11 Roxy's Journey with MS and Fashion 05:54 Adaptive Fashion and Practical Tips 15:44 Footwear Challenges and Solutions 22:23 Hairstyles and Nail Care 30:27 The Future of Inclusive Fashion 38:39 Conclusion and Final Thoughts Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Advancements in MS Treatments 2025 ECTRIMS | 12 nov. 2025 | 00:09:24 | |
Join Dr. Agne Straukiene, a neurologist specialising in Multiple Sclerosis, as she unveils groundbreaking treatments discussed at the ECTRIMS 2025 conference. Discover how BTK inhibitors like #Tolebrutinib, #Evobrutinib, #Orelabrutinib, #Remibrutinib, and #Fenebrutinib could revolutionize MS care by targeting both B cells and brain cells to reduce inflammation and progression. Learn about #Frexalimab's novel mechanism and promising trial results, the potential of combining #Clemastine and #Metformin for myelin repair, and remarkable long-term outcomes of autologous haematopoietic stem cell transplantation. Explore the exciting advent of #CART cell therapy poised to change the future of MS treatment. 00:00 Introduction to MS and ECTRIMS 2025 00:24 Understanding BTK Inhibitors 01:05 Key BTK Inhibitors Discussed 04:00 Frexalimab: A New Approach 05:09 Combination Therapies: Clemastine and Metformin 06:05 Stem Cell Therapy: Long-term Outcomes 07:43 CAR T Cell Therapy: Cutting-edge Treatment 08:57 Conclusion and Future Outlook Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. This episode includes AI-generated content. | |||
| Botox in MS for Aesthetics | 25 oct. 2025 | 00:03:05 | |
In this episode, we delve into the use of Botox for individuals with Multiple Sclerosis (MS), focusing on its benefits for both therapeutic and aesthetic purposes. We discuss how Botox can help manage MS symptoms like muscle spasticity and facial muscle issues while also considering its cosmetic applications to improve appearance and self-confidence. Key points include the importance of coordinating Botox with existing MS treatments, selecting appropriate injection sites, and closely monitoring potential side effects. Ethical considerations and the psychological impact of aesthetic treatments in MS patients are also examined. This episode provides valuable insights for anyone interested in understanding the intersection of Botox with MS therapy and aesthetics. 00:00 Introduction to Botox in Multiple Sclerosis 00:11 Understanding Multiple Sclerosis and Its Symptoms 00:27 Botox for Aesthetic Purposes in MS Patients 00:43 Considerations for Botox Treatment in MS 01:12 Risks and Side Effects of Botox in MS 01:42 Psychological and Ethical Aspects of Aesthetic Treatments 02:35 Conclusion: A Thoughtful Approach to Botox in MS Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Guided Meditation for MS: Climbing the Mountain Within | 17 oct. 2025 | 00:06:58 | |
Guided Meditation for MS: Climbing the Mountain Within Join us in this calming guided meditation designed for individuals managing Multiple Sclerosis (MS). Find a comfortable position and allow yourself to relax and center your mind as we take you through a journey of inner strength and balance. Enhance your mental well-being through visualizations that incorporate breath awareness, physical relaxation, and positive affirmations. This session is perfect for those looking to alleviate MS symptoms, complement their disease modifying treatment, and incorporate mindfulness practices into their MS diet and exercise routine. 00:00 Introduction: Preparing for the Journey 00:26 Setting Your Intention 00:50 Body Awareness and Relaxation 02:26 Visualizing the Climb 04:04 Reaching the Summit 05:38 Returning to the Present 06:39 Conclusion: Embracing Inner Strength Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Kayaking Meditation for Inner Peace | Guided Mindfulness Journey | 14 oct. 2025 | 00:04:52 | |
Join us on a peaceful kayaking meditation journey designed to help you relax and find inner stillness. In this guided session, you'll be gently led through visualization and mindful breathing techniques, ideal for reducing stress and promoting wellness. This meditation can be beneficial for those managing Multiple Sclerosis (MS) symptoms and seeking holistic treatments, such as relaxation exercises, to complement disease-modifying treatments and a balanced MS diet. Set your intention, let go of tension, and immerse yourself in the calming, natural rhythm of a river journey. 00:00 Introduction to the Kayaking Meditation Journey 00:06 Preparing Your Mind and Body 00:31 Body Awareness and Relaxation 01:12 Connecting Breath with Movement 01:43 Visualizing the Kayak Experience 02:43 Setting Your Intention 03:30 Drifting and Deep Relaxation 04:07 Returning to Awareness Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Key Updates and Clinical Implications for Multiple sclerosis Diagnosis: 2024 Revisions to McDonald Criteria | 08 oct. 2025 | 00:04:49 | |
Welcome to the BeewellwithMS Research Paper of the October Month! In this video, we delve into the 2024 Revisions of the McDonald Criteria for the diagnosis of Multiple Sclerosis (MS). We'll provide a concise, up-to-date summary of the key changes, including new diagnostic criteria, the importance of dissemination in space and time, advanced MRI markers like the central vein sign (CVS) and paramagnetic rim lesions (PRL), and the role of CSF biomarkers such as Oligoclonal bands (OCB) and kappa free light chain (kFLC) index. This detailed review aims to help clinicians, patients, and anyone interested in MS to better understand the updated diagnostic process, improve early detection, and ensure timely and appropriate treatment. Stay tuned for more insights into MS symptoms, MS treatment, disease modifying treatments, MS diet, exercises, and smoldering MS. 00:00 Introduction to the 2024 McDonald Criteria for MS Diagnosis 00:27 Understanding Multiple Sclerosis and the Importance of Early Diagnosis 00:40 Key Updates in the 2024 McDonald Criteria 01:35 Advanced MRI Markers in MS Diagnosis 02:21 Role of CSF Biomarkers in MS Diagnosis 03:05 Diagnostic Workflow and Differential Diagnosis 03:56 Clinical and Patient Implications of the 2024 McDonald Criteria 04:19 Conclusion and Future Outlook Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Key Highlights from ECTRIMS 2025: Advances in Multiple Sclerosis Research | 03 oct. 2025 | 00:03:05 | |
Welcome to BeeWellWithMS! Dr. Agne, MS Neurologist, shares key insights from ECTRIMS 2025, held in Barcelona. The event marks a new era of precision in MS care with advancements in MRI, AI tools, and lifestyle research. Discover how new lesion types can signal brain inflammation earlier, understand the impact of aging on MS, and explore the latest in treatment options including stem cell therapy and high-dose vitamin D3. Learn how personalised care and lifestyle adjustments, like diet changes, can support brain health and MS symptom management. Stay informed and proactive in your MS journey—Bee Well! 00:00 Introduction to ECTRIMS 2025 Highlights 00:28 Advancements in MRI for MS Detection 01:06 AI and Early Diagnosis in MS 01:14 Aging and MS: New Challenges 02:13 Emerging Treatments and Lifestyle Factors 02:48 Personalized MS Care and Final Thoughts Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Identify and prevent #Burnout: 4 steps "PREP" framework | 16 sept. 2025 | 00:57:28 | |
In this episode of #BeewellwithMS Podcast, host Dr. Agne Straukiene, a neurologist, discusses the critical topic of burnout with Dr. Sunil Kumar, an anesthesiologist and lifestyle medicine physician. They explore how burnout impacts individuals living with MS, their caregivers, and healthcare professionals. Dr. Kumar introduces the PREP framework for building resilience and preventing burnout, emphasizing the pillars of lifestyle medicine including nutrition, physical activity, sleep, stress management, and social connections. This conversation sheds light on practical, evidence-based strategies for improving wellbeing and thriving, even in the face of chronic illness like multiple sclerosis. If you're dealing with multiplesclerosis symptoms, seeking MS treatment, curious about disease-modifying treatments, or looking for dietary and exercise tips related to MS, this episode is a must-watch. 00:00 Introduction to Burnout 00:48 Meet Dr. Sunil Kumar 03:30 Understanding Burnout 05:49 Signs and Symptoms of Burnout 06:49 Stages of Burnout 09:57 The Impact of Burnout 18:47 The PREP Framework: Prevent 22:23 The PREP Framework: Rewire 25:45 The PREP Framework: Elevate 28:51 The PREP Framework: Perform 29:40 Embracing Chaos and Finding Calm 30:00 Optimizing Performance with Biology 32:22 Work-Life Passion and Purpose Balance 34:54 Lifestyle Medicine for Chronic Conditions 37:33 The Power of Simple Daily Practices 43:11 Systemic Changes in Healthcare 47:54 Inspiring Stories of Overcoming Burnout 52:16 Final Thoughts and Practical Tips Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Biomarkers in MS (NfL, GFAP, Kappa Light Chains): when they actually change decisions? | 25 août 2025 | 00:49:46 | |
Welcome to another episode of the BeeWellwithMS Podcast, hosted by Dr. Agne Straukiene. This special episode delves into the world of biomarkers in multiple sclerosis (MS). Learn about the silent signals inside our bodies that help understand inflammation, disease progression, and responses to treatment even before symptoms occur. Dr. Sharmilee Gnanapavan, a renowned neurologist and expert in biomarker science, joins us to discuss key biomarkers like neurofilament, kappa light chain, GFAP, and more. Whether you are living with MS, a caregiver, or a healthcare provider, this episode offers valuable insights into how these biomarkers can facilitate a more personalised, predictive, and preventative approach to MS care. Stay informed about the latest in MS symptoms, treatment, diet, exercise, and smoldering MS. Don't miss this conversation that's shaping the future of MS care. 00:00 Introduction to the Podcast and Today's Topic 00:46 Meet Dr. Sharmilee Gnanapavan 02:48 Understanding Biomarkers in MS 10:24 Kappa Light Chain Free Index Explained 16:33 Neurofilament: A Key Biomarker 24:42 GFAP and Progressive MS 33:26 Emerging Biomarkers: Chitinase-3-like Protein 35:31 CXCL13 and B-Cell Activity 38:38 Matrix Metalloproteinase-9 (MMP-9) 41:28 The Future of Biomarkers in MS 47:30 Conclusion and Final Thoughts Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Understanding Aggressive & Highly Active MS: Insights from Experts | 13 juil. 2025 | 00:43:10 | |
In this episode of 'BeeWellWithMS,' Dr. Agne Straukiene sits down with Dr. Antonio Scalfari both MS Neurologists to explore the nuances of aggressive and highly active Multiple Sclerosis (MS). They discuss key diagnostic markers, biological factors, and effective treatment strategies for managing these severe forms of MS. Learn about the importance of early intervention, the role of B cells, neurofilament levels, and emerging treatments like hematopoietic stem cell transplantation. Packed with expert insights and practical advice, this episode aims to provide hope and knowledge for those navigating the complexities of MS. 00:00 Introduction to BeeWellWithMS Podcast 00:28 Meet Dr. Antonio Scalfari: Expert in MS 01:56 Understanding Aggressive and Highly Active MS 03:44 Defining Highly Active MS 07:05 Biological Markers and MRI Indicators 11:21 Exploring Aggressive MS 15:13 Treatment Strategies for Aggressive MS 23:51 Metaphors to Explain MS 30:59 The Importance of Early Intervention 38:21 Case Study: Successful HSCT Treatment 41:53 Conclusion and Final Thoughts Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Managing Progressive MS: Navigating Life Beyond Disease-Modifying Therapies | 08 juin 2025 | 00:35:33 | |
Welcome to 'BeeWellwithMS Podcast' with Dr. Agne Straukiene, where we explore managing life with progressive multiple sclerosis (MS) as you transition beyond disease-modifying therapies. Dr. Straukiene shares strategies on shifting focus from inflammation to resilience, symptom management, and building a new care model. She discusses the importance of regular symptom reviews, neurorehabilitation, occupational therapy, mental health support, and practical tips on coping with fatigue, pain, and emotional challenges. The episode includes a guided meditation session and emphasizes maintaining a healthy lifestyle through diet, exercise, and peer support. 00:00 Welcome to Be Well with MS Podcast 02:26 Understanding Progressive MS 03:40 Symptom Management and Support Systems 08:09 Practical Tools for Managing Fatigue 14:15 Addressing Pain in MS 18:57 Mental Health and Emotional Wellbeing 25:23 Guided Meditation for MS 33:35 Final Thoughts and Resources Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Secrets to Living Longer and Well with MS | 25 avr. 2025 | 00:55:02 | |
In this episode of the 'Be Well with MS Podcast,' Dr. Agne Straukiene welcomes Frank Licari, an Emmy-nominated actor and producer renowned for his work with the Blue Man Group and PBS's 'Living Longer, Living Well.' Frank shares his inspiring journey from theater to producing health documentaries, and how his personal experiences, including his brother's battle with cancer, fueled his passion for promoting wellness. The conversation dives deep into the Mediterranean lifestyle, emphasizing diet, community, and lifestyle habits beneficial for mental and physical health, especially for those living with MS. Frank also reveals surprising insights about olive oil quality and the significant role of music and movement in enhancing neurological health and overall well-being. 00:00 Introduction to the Podcast and Guest 01:54 Frank Licari's Journey to Health Documentaries 05:17 Lessons from the Mediterranean Lifestyle 12:59 The Power of Storytelling in Health 19:06 Challenges and Solutions in Promoting Healthy Living 29:35 The Truth About Olive Oil 30:53 The Benefits of High-Quality Olive Oil 32:37 Incorporating Olive Oil into Your Diet 36:03 The Olive Oil Industry and Misconceptions 39:08 The Power of Music and Movement 50:25 Final Thoughts and Advice Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Sustainable Weight Management for Women with Chronic Conditions | 13 avr. 2025 | 01:07:31 | |
Join Dr. Agnes Straukiene and her guest, Dr. Doriana, a family physician and founder of SmplyFit Wellness, as they dive deep into sustainable weight management specifically for women living with multiple sclerosis (MS) or other chronic conditions. Explore why traditional dieting often fails and learn how to work with your body instead of against it. Discover the importance of protein, fiber, and even the role of mindset in achieving your weight loss goals. This episode provides practical tips on developing a positive relationship with food, setting realistic goals, and managing MS symptoms through a balanced diet and consistent exercise. Perfect for those looking to take control of their health journey. 00:00 Welcome to BeewellwithMS Podcast 00:33 Introducing Dr. Doriana: Expert in Sustainable Weight Management 03:39 The Psychology of Weight Management 08:06 Challenges of Weight Management with Chronic Conditions 12:09 The Importance of Protein and Metabolism 16:35 Setting Goals and Finding Motivation 23:18 Non-Restrictive Eating and Intuitive Eating 31:17 Essential Nutrients for Better Energy Levels 36:42 Debunking Exercise Myths 37:36 Importance of Strength Training 39:32 Diet and Chronic Conditions 40:44 GLP-1 Medications: Pros and Cons 46:37 Intermittent Fasting Insights 54:15 Mindset and Weight Management 01:02:24 Final Thoughts and Encouragement Contact dr Doriana: Homepage | Smply Fit Wellness, contact her via instagram: Dr. Doriana MD, AOMP, Calibre Certified (@drdoriana) • Instagram photos and videoshttps://smplyfitwellness.teachable.com/p/home Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Celebrating 5 years of BeewellwithMS 🐝💥 | 26 mars 2025 | 00:03:43 | |
🎉 Wait… how did that happen? 🐝 5 years ago I became a podcaster—accidentally. It started during COVID, when misinformation spread faster than the virus. I had to speak up. So I did. Loudly. Into a mic. And just like that, BeeWellWithMS was born. 🧠🎙️ Fast forward 5 years: ✅ Incredible guests ✅ Listeners around the globe ✅ And a voice that refuses to be quiet Thank you for buzzing along with me. Here’s to 5 years of making noise that matters. 💛 Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Brain Health Awareness Week 2025: Voices of Lived experiences Living Well with Multiple Sclerosis 🎗️🧠 | 10 mars 2025 | 00:36:13 | |
Join us for a special episode of the BeeWellWithMS Podcast as we celebrate Brain Health Awareness Week! 🧠💡 Host Dr. Agne Straukiene sits down with MS warriors to share powerful stories of resilience, expert insights on brain health, and practical strategies to manage Multiple Sclerosis (MS). 🔬 What You'll Learn: ✔️ Messages of hope & encouragement from the MS community 💙 ✔️ Understanding brain health in MS: Primary & secondary prevention 🧠 ✔️ Lifestyle changes that support brain function & slow MS progression 🏃♀️🥦 ✔️ How diet, supplements & neuroplasticity impact MS symptoms 🍎💊 ✔️ The role of disease-modifying treatments (DMTs) in protecting brain health 💉 🔖 Episode Chapters: 00:00 - Introduction to Brain Health Awareness Week 00:38 - Messages of Hope and Encouragement 02:54 - Understanding Brain Health and MS 03:55 - Lifestyle Changes for Brain Health 04:50 - Diet and Supplements for MS 11:12 - Exercise and Mental Well-being 15:11 - Real Stories from the MS Community 32:48 - Final Thoughts and Gratitude 🔔 Subscribe & Stay Empowered: Get expert insights on MS management, brain health, and lifestyle medicine every week! Hit SUBSCRIBE and turn on notifications 🔔 so you never miss an episode! 🌍 Join the Conversation: 💬 How do you support your brain health while living with MS? Drop a comment below! 📌 Learn More: www.beewellwithms.com Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| What is multiple sclerosis Fatigue & How Can You Manage It? | 05 mars 2025 | 00:03:32 | |
MS fatigue is more than just tiredness—it’s a crushing, invisible exhaustion that affects millions living with Multiple Sclerosis (MS). In this powerful episode of BeeWellWithMS Podcast, Dr. Agne Straukiene shares a fictional yet realistic story of Dolores, a lawyer navigating life with MS fatigue. 💡 What You'll Learn: ✅ What is MS Fatigue? Why it happens & how it differs from normal tiredness ✅ Real-Life Challenges: The impact of fatigue on daily life, work, and mental health ✅ Expert Insights: How neurologists explain MS-related fatigue ✅ Fatigue Management Strategies: Energy conservation, medication, exercise & lifestyle changes ✅ How to Raise MS Awareness & Take Action 🎥 Watch now & step into the life of someone living with MS! ⏰ Episode Chapters: 00:00 - Introduction to MS Awareness 00:42 - Dolores' Story Begins 00:54 - The Onset of Symptoms 01:21 - Living with MS Fatigue 01:42 - Expert Insights from Dr. Agne 02:04 - Management Strategies for MS Fatigue 02:29 - Encouragement and Advocacy 02:52 - Conclusion: Keep Going 🔔 Subscribe for more expert insights on MS & brain health! 🌐 Learn More: www.beewellwithms.com Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| The Power of Fasting Mimicking Diets in Multiple Sclerosis and other Chronic diseases | 28 févr. 2025 | 00:49:12 | |
Transforming MS Management with Diet: The Power of Fasting Mimicking Diets in Multiple SclerosisCan nutrition play a key role in managing Multiple Sclerosis (MS)? In this episode of BeeWellWithMS Podcast, Dr. Agne Straukiene speaks with Dr. Ellen Fallows, a GP and lifestyle medicine expert, about how diet and lifestyle changes can help manage chronic diseases like MS.🧠 Topics Covered: ✅ How lifestyle medicine is transforming healthcare for chronic conditions ✅ The role of nutrition in MS management and autoimmune diseases ✅ The fasting mimicking diet (FMD) – science-backed benefits for MS and inflammation ✅ How dietary interventions can impact neurodegeneration and brain health ✅ Practical strategies to implement a fasting mimicking diet for MS💡 Can Fasting Help People with MS? Dr. Fallows breaks down the scientific research behind fasting mimicking diets, their impact on the immune system, and how they may promote nerve protection (neuroprotection) and reduce MS progression. Learn real-world examples of how dietary changes are making a difference in autoimmune disease management.🔔 Subscribe to BeeWellWithMS for more insights on MS, nutrition, and holistic health!📌 Episode Chapters:00:00 - Introduction to BeeWellWithMS Podcast 01:18 - Meet Dr. Ellen Fallows: A Journey into Lifestyle Medicine 01:34 - The Role of GPs in Chronic Disease Management 02:21 - How Lifestyle Medicine is Transforming Healthcare 05:37 - Whole Person Health: A Holistic Approach to MS 10:21 - Practical Steps for Managing Chronic Diseases 24:14 - Fasting Mimicking Diets & Autoimmune Conditions 27:14 - The Science Behind Fasting Mimicking Diets & MS 43:35 - How to Implement Fasting Mimicking Diets in MS Management 47:19 - Final Thoughts & Key Takeaways 🌐 Learn More: www.beewellwithms.com Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Join Us for Brain Health Awareness Week: Share Your MS Story! | 19 févr. 2025 | 00:03:32 | |
Join Us for Brain Health Awareness Week: Share Your MS Story! In this heartfelt episode, neurologist Dr. Agne Straukiene invites the BeeWellWithMS community to participate in Brain Health Awareness Week by sharing video messages for newly diagnosed Multiple Sclerosis patients. She encourages viewers to send clips containing their names, locations, and motivational strategies to help those navigating this chronic condition. These contributions will be featured in a special BeeWellWithMS podcast episode, aimed at providing support and transforming lives. Join us in creating a supportive and uplifting community! Message your video to me on Linkedin or Instagram, or Facebook or Twitter ( X). 00:00 Introduction and Purpose 00:07 The Impact of MS Diagnosis 00:32 Brain Health Awareness Week Initiative 00:42 Call for Video Messages 01:32 Creating a Supportive Community 02:13 Final Thoughts and Call to Action Video Submission Disclaimer: By submitting your video to BeeWellWithMS, you confirm that: 1. You are voluntarily sharing your message for publication on BeeWellWithMS platforms, including podcasts, social media, and other digital channels. 2. You grant BeeWellWithMS permission to store, share, and distribute your video for awareness and outreach purposes. 3. You own the rights to your submitted content and have not included any copyrighted material without permission. 4. You understand that once published, your video may not be fully retractable from all platforms, though you may request its removal from future use. 5. You waive any claims related to the use of your video, including privacy, publicity, and copyright claims. If you are under 18, you must have a parent or guardian’s consent before submitting. By submitting your video, you acknowledge and agree to these terms. Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Uncovering the Hidden Patterns in Multiple Sclerosis | 09 févr. 2025 | 00:09:52 | |
Uncovering the Hidden Patterns in Multiple Sclerosis Join Dr. Agne Straukiene in this BeeWellWithMS episode as she explores the fascinating patterns in multiple sclerosis (MS). Learn how recognizing these patterns, from brain structure impacts to different MS types, can help in managing the disease more effectively. Discover how MS affects the brain's cortical columns, the difference between relapses and smouldering progression, and how lifestyle choices like diet, exercise, sleep, and stress management play a crucial role in health. Understand how monitoring symptoms and signals proactively can guide better treatment decisions. Stay informed, proactive, and resilient in your MS journey. 00:00 Introduction to Hidden Patterns in MS 01:00 Understanding Brain Patterns 02:37 Impact of MS on Brain Structure 03:53 Storms and Smouldering Fires in MS 05:16 MS as a Railway System 06:20 Tending to Your Health Garden 07:32 Echoes of Past Damage and Future Predictions 08:32 Key Takeaways and Conclusion Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Exploring Smouldering MS: Insights and Innovations with Prof. Gavin Giovannoni and Prof. Jeremy Hobart | 01 janv. 2025 | 00:57:28 | |
Exploring Smouldering MS: Insights and Innovations with Prof. Gavin Giovannoni and Prof. Jeremy Hobart This episode of 'BeeWellwithMS' features an exclusive session from a webinar in the Southwest of England, hosted by dr Agne Straukiene with guest speakers: Professor Gavin Giovannoni and Professor Jeremy Hobart. They delve into groundbreaking concepts like smouldering MS, brain neuroplasticity, and innovative approaches to MS care and treatment. The discussion highlights how smouldering MS impacts disability progression, explores gaps in MS services, and considers future advancements including new drugs and potential vaccines. Emphasising the importance of lifestyle changes, combined treatment approaches, and early diagnosis, this webinar offers in-depth insights into improving outcomes for those living with MS. 00:00 Introduction and Overview 01:29 Meet the Experts: Professor Gavin Giovannoni and Professor Jeremy Hobart 03:19 Understanding Smoldering MS 05:07 Mechanisms and Detection of Smoldering MS 08:53 Innovative Approaches to MS Care 20:41 Neuroplasticity and Brain Resilience 24:01 New Drug Developments for Smoldering MS 34:31 Addressing Gaps in MS Care 41:02 Future Directions in MS Research 46:06 Audience Q&A and Closing Remarks 55:02 Final Thoughts and Call to Action If you would like to participate in Saw Index clinical study and share your knowledge living with Smouldering MS contact the Research team: saw@transformms.org www.transformms.org/saw-research Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Living Above and Below the Threshold: Brain Reserve and MS with Prof Stephen Krieger | 06 déc. 2024 | 01:12:44 | |
Enhancing Brain Health and Reserve in MS with Dr. Stephen Krieger In this episode of 'BeeWellwithMS,' host Dr. Agnes Straukiene discusses the importance of brain reserve in multiple sclerosis (MS) with special guest Prof. Stephen Krieger, a neurologist and professor at the Icahn School of Medicine at Mount Sinai. Topics include the innovative topographical model of MS, the concept of brain reserve, and how lifestyle choices like diet, exercise, and sleep can help protect and enhance brain health. Dr. Krieger also emphasises the importance of disease-modifying therapies, self-advocacy during medical consultations, and the ongoing advancements in MS care and research. The episode aims to empower listeners to take charge of their brain health and utilise practical strategies to manage MS effectively. 00:00 Introduction and Special Guest Announcement 01:14 Meeting Professor Krieger 02:20 Understanding Brain Reserve 05:34 Analogies to Explain Brain Reserve 10:16 Scientific Insights on Brain Reserve 20:57 The Topographical Model of MS 28:21 Evaluating Brain Reserve in Clinical Settings 34:07 Impact of Disease Modifying Therapies 38:13 Holistic Approach to Disease Management 39:02 The Role of Diet in Brain Health 40:50 Exercise and Neuroplasticity 45:41 The Importance of Sleep 52:03 Smoking Cessation and Brain Health 01:04:06 Aging, Cognitive Function, and MS 01:08:27 Future of MS Care and Research Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| The Vital Role of MS Nurses: An In-Depth Discussion with Amy Harbour MS specialist nurse | 11 nov. 2024 | 00:57:05 | |
In this episode of BeeWellwithMS, Dr. Agne Straukiene interviews Amy Harbour, an experienced MS nurse from the UK who leads a team and manages 1k MS patients. Amy shares her daily responsibilities, including conducting clinics, home visits, triaging patient inquiries, and blood monitoring. She also highlights the importance of emotional support, patient education, and managing expectations, especially during MS flare-ups and progression. The discussion delves into challenges faced by MS nurses, the evolving role of MS nursing, and the critical need for adequate funding and support. Amy emphasises the significance of holistic care, patient education, and kind communication between healthcare providers and patients. The episode aims to bring awareness to the essential work of MS nurses and encourages a compassionate approach to patient care. 00:00 Introduction to the Episode 00:20 Meet Amy Harper: An Experienced MS Nurse 01:58 A Day in the Life of an MS Nurse 05:15 Challenges and Support in MS Nursing 10:11 Coordination of Care in MS 16:08 Managing MS Symptoms and Flare-Ups 24:06 Building Trust and Emotional Support 29:05 The Importance of Reassurance and Communication 31:35 Managing Patient Expectations with MS 32:46 Holistic Approaches and Lifestyle Changes 36:55 Challenges Faced by MS Nurses 45:05 Future of MS Nursing and Digital Advancements 49:17 Advice for Newly Diagnosed MS Patients 50:55 Addressing Misconceptions and Final Thoughts Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| New ABN MS Guidelines: Early DMTs, AHSCT, Pregnancy and Lifestyle Management | 22 oct. 2024 | 00:50:52 | |
In this episode of the BeeWellwithMS Podcast, host Dr. Agnes Straukiene MS Neurologist interviews Associate Prof. Tarunia Arun, an MS neurologist, to explore the updated Association of Bristish Neurologists (ABN) guidelines in 2024 for multiple sclerosis treatment. Key themes include early intervention with high-efficacy disease-modifying therapies (DMTs), ensuring equitable access to MS treatments, family planning, and managing comorbidities. They discuss the role of autologous hematopoietic stem cell transplantation (AHSCT) and emphasise lifestyle management. This episode offers valuable insights for clinicians, patients, and caregivers on optimising MS care with the latest ABN guidelines. Download full version of ABN guidelines here: https://drive.google.com/file/d/13Ib2JrX9sW68w_pXoKFwvl2w8ovbRH4S/view Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| ECTRIMS 2024 Insights: Emerging MS Treatments, Diagnosis Updates, and Innovations in Multiple Sclerosis Care | 02 oct. 2024 | 00:17:11 | |
In this episode of the BeeWellWithMS podcast, hosted by Dr. Agne Straukiene, an MS neurologist, key insights and reflections from the ECTRIMS 2024 conference in Copenhagen are shared. The event, featuring over 8,000 attendees, spotlighted emerging MS treatments, including high-dose vitamin D3, BTK inhibitor from the Hercules and Gemini two trials, and the updated McDonald criteria for MS diagnosis. Various interviews with MS experts and MS patients provide further discussion on topics such as MS fatigue, MS sleep disorders, cognitive function in MS, and the potential role of digital technology in MS treatment and holistic patient care. Despite some disappointing findings regarding statins for MS progression, the conference emphasized the importance of ongoing MS research, early MS diagnosis, and new approaches to measuring success in MS treatments. Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| What, how and when to measure in Multiple sclerosis? | 12 sept. 2024 | 00:54:00 | |
In this episode of 'BeeWellwithMS', Dr. Agne Straukiene MS Neurologist is joined by Professor Jeremy Hobart for a discussion on advancements in measuring health outcomes for multiple sclerosis (MS). Professor Hobart, a renowned clinician and advisor, elaborates on the evolution of measurement tools, their impact on current practices, and the increasing focus on patient-centered outcomes. The conversation highlights the extended history of instruments like the Expanded Disability Status Scale (EDSS) and the need for innovations to enhance personalised medicine. They discuss the limitations of these historical tools, ethical considerations in MS research, and the importance of structured and sensitive measurement processes. Despite challenges, there are promising developments in utilising real-time data and patient-based assessments to improve clinical outcomes and treatment efficacy in MS, emphasising a call for coordinated global efforts and advancements in clinical trial designs. Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| How to get ready for autumn living with MS ? | 01 sept. 2024 | 00:14:18 | |
In this episode of BeeWellwithMS, Neurologist provides valuable advice for managing multiple sclerosis during the transition from summer to autumn. The discussion covers handling anxieties related to the new school year, the importance of seasonal vaccinations such as flu and HPV, and creating a cozy home environment for the colder months. The host emphasises the importance of batch cooking, adjusting wardrobes for the changing temperatures, and ensuring home safety with tools like non-slip mats. Managing fatigue, maintaining skin care, staying hydrated, and continuing physical exercise are also highlighted as essential practices. The episode concludes with tips on holiday preparation, the use of assistive technologies, and ensuring pets' comfort during the colder season. Additionally, a reminder is given to take daily Vitamin D3 supplements. Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Enhancing MS Patient Quality of Life with Digital Self-Management | 01 août 2024 | 00:47:11 | |
In this enlightening episode of "BeeWellwith MS," Dr. Agne Straukiene explores the transformative role of digital platforms in the self-management of multiple sclerosis (MS). Joined by Finn Moxson, an experienced MS coordinator, the discussion delves into the integration of technology into patient care, emphasizing the importance of self-management and the significant impact of digital health tools.Key Topics Covered:
Call to Action: Listeners are encouraged to engage with digital health tools, participate in surveys and questionnaires, and contribute to the ongoing improvement of MS management. Agne and Finn invite listeners to share their experiences and join the conversation on social media and the podcast’s website. Closing Note: Self-management is a vital aspect of living well with MS, and digital tools offer empowering support. By incorporating these tools into daily routines, patients can take a proactive role in managing their health and improving their quality of life. Contact Information: Listeners can reach out with questions, comments, and suggestions for future episodes through social media channels or the podcast’s website at www.beewellwithms.com Prisms Toxonomy article: The PRISMS taxonomy of self-management support: derivation of a novel taxonomy and initial testing of its utility - PubMed (nih.gov) Our Connect plus app: CONNECTPlus App: MS Case Study | Health and Care Innovations (hci.digital) Stay Connected: Follow "BeeWellwithMS" on social media for more resources and updates. Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Finding Peace and Compassion: A Guided Meditation for Chronic Conditions | 22 juil. 2024 | 00:09:16 | |
Agne, a neurologist, leads a guided meditation focused on giving and receiving to help individuals with chronic conditions. The meditation aims to cultivate inner strength, acceptance, and compassion. Participants are encouraged to create a comfortable and safe space for a relaxing experience. Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Summer Survival Guide: Keeping Your Cool with MS | 26 juin 2024 | 00:07:17 | |
In this episode of 'BeeWellwithMS' podcast, host Dr. Agne Straukiene Neurologist discusses the impact of heat waves on individuals with multiple sclerosis (MS), particularly focusing on the Uthoff's phenomenon and pseudorelapse. She explains that increasing body temperature can temporarily worsen MS symptoms and provides strategies to manage overheating, including using various cooling gear like vests, scarves, hats, portable fans, and cooling towels. Additionally, Dr. Straukiene offers practical advice on staying cool, such as seeking air-conditioned environments, staying hydrated, taking breaks, and consulting healthcare providers for persistent symptoms. Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Revolutionising MS Care: Bringing Augmented Reality (AR) into MS Patients' Homes for Assessment | 15 juin 2024 | 00:42:35 | |
In this engaging episode of BeeWellwithMS, Dr. Agne Straukiene hosts and guest speaker Associate Professor Will Young from the University of Exeter dive deep into the transformative potential of augmented reality (AR) and motion and cognitive tracking technologies in multiple sclerosis (MS) care. They explore the exciting MS PARAMS Phase One Study, which aims to validate these innovative tools for assessing motor and cognitive functions in MS patients. Professor Young shares his fascinating journey through research in rehabilitation psychology and sensory cueing, shedding light on the profound impact AR could have on enhancing patient care. They discuss the study's goals, the technical challenges to anticipate, and the promise these technologies hold in making MS assessments more accurate and personalized. Listeners are invited to get involved in this groundbreaking research, with detailed information on how to participate in the study. This episode is not just informative; it’s a call to action for anyone eager to contribute to the future of MS care. Join us, as we envision a future where cutting-edge technology empowers both clinicians and MS patients, ensuring better management and improved outcomes. Your involvement could be the key to unlocking a revolutionary approach to MS care. Don't miss out! If you are interested in learning more about the PARAMS phase one study, contact Prof Young at W.Young@exeter.ac.uk. Episode Breakdown:
Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Breaking Barriers: MS Awareness Day Interviews | 25 mai 2024 | 00:10:43 | |
A series of interviews and discussions highlighting the importance of raising awareness for multiple sclerosis (MS) at Torbay and South Devon NHS Foundation Trust. 00:00 Introduction 01:47 Interview with Finn Moxon - Importance of Raising Awareness 03:30 Interview with Suzanne ( MS Society) - Spreading Awareness 05:08 MS Admin Team Insights 04:56 Importance of Early Identification - Sarah Hughes MS nurse 06:00 Engagement with the coleagues experts 07:08 Encouraging Lifestyle Management 09:50 Closing Remarks Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Navigating the Intersection: Functional neurological disorder (FND) in the World of MS | 23 mai 2024 | 00:52:11 | |
In this episode of 'BeeWellwithMS' podcast, Dr. Leo Russell, a principal clinical psychologist at the Devon Partnership in Exeter, shares his expertise on functional neurological disorder (FND) and its interplay with multiple sclerosis (MS). Dr. Russell discusses the nature of functional symptoms, their psychological roots, and the implications for patients. He emphasizes the importance of a multidisciplinary approach in treatment, including psychotherapy. The conversation delves into Intensive Short-Term Dynamic Psychotherapy (ISTDP) as an effective therapy for FND and other conditions, highlighting the importance of recognizing and processing emotions. The episode underscores the interconnectedness of physical and psychological health and provides practical guidance for managing chronic conditions. 00:00 Introduction to Dr. Leo Russell 01:33 Overview of Functional Neurological Disorder (FND) 02:19 Understanding Functional Symptoms 11:05 The Connection Between Emotions and Physical Symptoms 12:52 Exploring the Psychological Aspects of FND 23:47 The Impact of Chronic Conditions on Mental Health 24:35 Strategies for Managing Life with MS 34:46 Therapeutic Approaches and Psychotherapy 30:21 Finding Support and Resources 51:07 Conclusion and Closing Thoughts Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| The Future of Ageing: Exploring Longevity Medicine with Dr Marco Quarta | 24 avr. 2024 | 01:07:58 | |
Embark on an enlightening journey with Dr. Marco Quarta through the innovative realm of longevity medicine and aging research. Delve into groundbreaking research on combating age-related diseases, rejuvenating senescent cells with RNA-based therapies, and the quest to revolutionize our approach to health and longevity. Gain insights into measuring biological age, the challenges of eternal life, and the promising advancements in anti-aging therapies. This podcast explores the future of longevity medicine, offering hope and understanding for future medical breakthroughs for long term conditions such as Multiple sclerosis. 00:00 Welcome to BeeWellWithMS: Exploring Longevity Medicine 00:20 Dr. Marco Quarta: A Pioneer in Aging and Regenerative Medicine 03:08 The Personal Mission Behind Dr. Quarta's Research 07:42 Understanding Longevity Medicine: A Deep Dive 14:25 The Intersection of Aging and Multiple Sclerosis 17:36 The Promising Future of Senolytics in Treating Aging 24:55 Navigating the World of Supplements and Personalized Care 33:03 Challenges and Opportunities in Longevity Medicine Research 35:40 Exploring Predictive Health Tools and Challenges 36:27 The Importance of Supplement Quality and Brand 37:38 Senolytics: The Zombie Cell Hunters 39:20 Revolutionizing Medicine with Cellular Rejuvenation 44:35 The Potential for Human Longevity and Ethical Considerations 51:59 Understanding Biological Clocks and Aging 59:04 The Future of Anti-Aging Therapies and Longevity Medicine 01:03:05 Navigating Resources for Longevity Medicine Useful resources on longevity medicine: www.phaedon.institue Website of Rubedo: www.rubedolife.com Website of Turn is www.turn.bio Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Shaping the Future of MS Treatment: The Role of Generics and Biosimilars with high cost drugs pharmacist Lucy Wessels | 10 avr. 2024 | 00:34:49 | |
In this episode we delve into the evolving landscape of multiple sclerosis treatment, focusing on generics and biosimilars. It features a conversation with pharmacist Lucy Wessels, highlighting the safety, effectiveness, and cost benefits of generics and biosimilars in managing MS. The discussion emphasizes the importance of patient education, collaborative decision-making with healthcare providers, and dispelling misconceptions like the 'nocebo' effect around these treatment option. 00:00 Welcome and Introduction to the Episode 01:06 Understanding Generics and Biosimilars in MS Treatment 03:42 Diving Deeper: The Difference Between Generics and Biosimilars 11:58 Addressing Concerns: Side Effects and Tolerability 14:34 Enhancing Patient Understanding and Acceptance 20:22 The Nocebo Effect and Its Impact on Treatment Perception 24:34 Future of MS Treatment: Embracing Generics and Biosimilars 31:52 Concluding Thoughts and Key Takeaways Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Spring Awakening: A Blissful Mind Journey for MS Warriors | 20 mars 2024 | 00:05:45 | |
Join Agne for a special episode of the BeewellwithMS podcast titled "Spring Awakening: A Blissful Mind Journey for MS Warriors." This episode is dedicated to everyone navigating the challenges of Multiple Sclerosis. We offer a gentle, 5-minute guided meditation designed to transport you to a serene spring garden of renewal and possibility. Through soothing imagery and the principles of yoga nidra, we aim to melt away tension, promote emotional soothing, and foster mental clarity. Allow yourself to be embraced by the warmth of spring’s renewal, finding peace and resilience within. Whether you're seeking a moment of tranquillity or a spark of renewal, this meditation is crafted with compassion and understanding of the MS journey. Embrace this blissful mind journey and carry its sense of calm and renewal with you through your day. Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Celebrating Womanhood: Understanding and Navigating Menopause and beyond | 08 mars 2024 | 00:42:55 | |
Celebrating Womanhood: Understanding and Navigating Menopause and beyond This special episode of 'BeeWellwithMS Podcast' celebrates International Women's Day, focusing on The Women's Journey, Navigating Menopause and Beyond. Hosted by Dr. Agne Straukiene, the episode explores the complexity and strength of womanhood and the distinct phase of menopause. Guests Dr. Katie Lambert and Dr. Kirsty Gillies, both GPs with expertise in women's health and menopause, discuss the biological and emotional changes women experience during menopause, the common misconceptions surrounding it, and the importance of hormone replacement therapy (HRT). They highlight the need for lifestyle changes, mindfulness, cognitive behavior therapies and regular health checks for mood and mental health, heart health, and prevention of osteoporosis. The discussion also emphasizes the importance of opening dialogues about vaginal health, and the health concerns faced by women with MS during menopause. 00:02 Introduction to the Episode: Celebrating Womanhood 00:35 Understanding Menopause: A Deep Dive 01:26 Introducing the Experts: Dr. Katie Lambert and Dr. Kirsty Gillies 02:28 The Biological Process of Menopause Explained 04:41 Common Symptoms of Menopause 06:32 The Overlap of Menopause and Multiple Sclerosis Symptoms 07:34 Factors Influencing the Onset of Menopause 10:57 The Role of Hormone Replacement Therapy (HRT), Androgen therapy in Menopause 21:34 Lifestyle Strategies for Managing Menopause 28:17 The Importance of Regular Health Checks and Screenings 39:20 Final Words of Encouragement and Advice Dr Kirsty Gillies is happy to engage with you in her private women' health clinics, here is how to contact her: St Erme Medical. https://stermemedical.uk/ . Dr Gillies sees patients face to face at Exeter Nuffield, remotely on video link or by phone call. Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| MS Care article review: Balancing Medical Treatments and Lifestyle Strategies | 25 févr. 2024 | 00:11:54 | |
MS Care: Balancing Medical Treatments and Lifestyle Strategies In the BeeWellwithMS podcast, Dr. Agne Straukiene explores the insights of a landmark publication she led, together with a team of experts on multiple sclerosis (MS). The article, published in Frontiers in Neurology, emphasizes the importance of early diagnosis, aggressive treatment with disease modifying therapies, and the adoption of a brain healthy lifestyle. A combined approach of pharmacological treatment and lifestyle interventions is highlighted as an essential component of MS care for preserving brain tissue and minimizing patients' decline. Major factors discussed include regular physical activity, a nutritious diet, mental well-being practices, and community support. The podcast stresses that managing MS is about finding a balance between medical treatments and maintaining a healthy lifestyle tailored to individual needs. 00:00 Introduction to the Podcast and the Landmark Publication 01:27 The Importance of Early Intervention in MS Care 03:07 The Role of a Brain Healthy Lifestyle in MS Management 04:18 Setting the Stage for a Detailed Discussion on MS Management 06:06 Exploring the Impact of Physical Activity on MS 06:49 Nutritional Strategies for Brain Health in MS 07:26 Emotional Well-being and Community Support in MS 08:21 Wrapping Up: Balancing Medical Treatments and a Healthy Lifestyle 08:52 Reflecting on Key Points and the Importance of Tailored Care 10:50 Closing Remarks and Encouragement for the MS Journey Access full article:MS care: integrating advanced therapies and holistic management. Gavin Giovannoni Helen L. Ford Klaus Schmierer Rod Middleton Andrea M. Stennett Ian Pomeroy Leonora FisnikuAntonio Scalfari Colin Bannon Ruth Stross Sarah Hughes Adam Williams Samantha Josephs Charlie PeelAgne Straukiene https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2023.1286122/full Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Transforming MS Pathways: PIFU and role of AI - A Journey of Discovery | 19 févr. 2024 | 01:12:42 | |
In this riveting episode of our podcast, join host Dr. Agne Straukiene and esteemed guest Dr. Omar Almasri, both renowned neurologists, as they embark on a deep exploration of the revolutionary role of Artificial Intelligence (AI) in the dynamic field of Multiple Sclerosis (MS) management and treatment. Delving into the burgeoning possibilities, they unravel how AI is poised to transform the landscape of early detection and personalized treatment strategies. The conversation takes an intriguing turn into the world of Patient-Initiated Follow-Ups (PIFU), examining its growing significance in patient care.Dr. Almasri, with his rich experience and insights from implementing PIFU at his hospital, offers a compelling perspective on how AI integration is not just a technological leap but a paradigm shift towards more nuanced and effective MS care. They discuss the critical role of sophisticated systems like AI and machine learning in crafting a more personalized and efficient care model, tailor-made for individual patient needs.The episode reaches its zenith as they contemplate the future: envisioning AI as the cornerstone of a patient-centric healthcare approach. Dr. Straukiene illustrates how an AI-enriched clinical analysis can be a game-changer, leading to dynamic and responsive treatment decisions. Tune in for an enlightening discussion that not only sheds light on the current state of AI in MS care but also paints a vision of an AI-driven future in healthcare, where patient needs and technology stride hand in hand towards excellence in care. 00:04 Introduction to the Podcast and Guest 00:50 The Importance of Patient Initiated Follow Ups 02:20 The Role of Technology in Healthcare 04:01 The Impact of AI in Cancer Treatment 05:55 Understanding the MS Patient Pathway 06:24 The Need for Modernization in the NHS 06:33 The Challenges of Patient Referral and Review 10:03 The Importance of Early Diagnosis 10:27 Innovative Approaches to MS Diagnosis 13:30 The Role of AI in Identifying MS Patients 16:41 The Importance of Patient Education 24:52 The Challenges of MS Diagnosis 29:32 The Role of Communication in MS Diagnosis 36:42 The Role of AI in Early Diagnosis 38:25 Challenges and Potential Pitfalls of AI Implementation 40:14 The Power of AI in Understanding Human Behavior 40:49 The Importance of Early Treatment in MS 41:31 The Concept of Gut Instinct in Medical Diagnosis 44:17 The Future of Patient Follow-ups 58:00 The Role of AI in Oncology and its Potential in MS 01:04:43 The Vision for AI in MS Care 01:09:25 The Future of MS Care and the Role of AI 01:12:17 Closing Remarks and Future Directions Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| New Treatment Horizons in MS -Regenerative Neuroimmunology with Cambridge Prof Stefano Pluchino | 22 janv. 2024 | 00:58:46 | |
In this 58th episode of the 'BeeWellwithMS podcast', host Dr. Agne Straukiene and guest Professor Stefano Pluchino discuss complex topics surrounding multiple sclerosis. They delve into the advancement of treatments, role of aging in MS, and the revolutionary potential of regenerative neuroimmunology. They discuss various research and trials form the past to the present, including the use of stem cells and extracellular vesicles for repair and communication between cells. The exciting future of MS research is explored with an emphasis on the importance of understanding the interconnectedness of the body's systems for the overall well-being of individuals with MS. 00:02 Introduction and Guest Introduction 01:18 Professor Pluchino's Journey and Work at Cambridge University 03:16 The Aging Process and its Impact on MS 15:35 Discussion on Regenerative Neuroimmunology 16:02 Neuro Regenerative Research and Trials 52:46 Final Thoughts and Wrap Up References: Human cell atlas https://data.humancellatlas.org/ Octopus clinical trial for progressive MS in the UK: https://www.mssociety.org.uk/research/explore-our-research/research-we-fund/search-our-research-projects/octopus Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Understanding and Managing MS-Related Headaches with Dr. Kathryn Medcalf | 04 janv. 2024 | 00:47:07 | |
Understanding and Managing MS-Related Headaches with Dr. Kathryn Medcalf is an insightful episode where Dr. Kathryn Medcalf, a headache expert, offers a comprehensive overview of headache types prevalent among Multiple Sclerosis (MS) patients and the varied strategies for effective management. The treatment spectrum discussed ranges from lifestyle modifications and vitamin supplements to more advanced preventive measures like Botox injections, greater occipital nerve injections, and monoclonal antibody therapies. The episode also explores the impact of hormonal changes on migraines, particularly in relation to the menstrual cycle in women. A key focus is on the importance of individualized care plans for managing MS-associated headaches and migraines. The episode is structured with specific segments, including an introduction to vitamins and supplements for migraine relief, guidance on proper dosage and purchasing of vitamins, the interplay between migraines and menstrual cycles, preventative treatments for migraines, issues like medication overuse and rebound headaches, advanced migraine treatments, and concludes with a segment on personalized migraine treatment strategies. 01:05 Understanding MS and headaches 08:35 Lifestyle changes for managing headaches 19:54 The role of vitamins in headache management 23:16 Managing hormonal migraines 32:46 Exploring advanced treatments 26:42 Cautioning on medication overuse 41:28 Treatment innovation and future direction 43:36 Conclusion Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
| Brave Felix and the Journey to Brain land- audiobook | 22 déc. 2023 | 00:15:48 | |
Brave Felix and the Journey to Brain land" is a heartwarming tale that invites readers of all ages to embark on a magical adventure through the enchanting snowy forests of Brain land. In this delightful story, Felix the Fox teaches us that even in the face of challenges like Multiple Sclerosis, a positive mindset, resilience, and the support of friends can light the way to happiness and well-being.As Felix meets charming woodland creatures and explores the mysteries of the brain, he uncovers valuable life lessons about empathy, understanding, and the joy of learning. The book's enchanting illustrations and easy-to-grasp concepts about brain health make it a perfect read for the holiday season, offering a captivating blend of imagination and education."Brave Felix and the Journey to Brain land" is not just a story; it's a heartwarming voyage into a world where friendship and positivity triumph. Join Felix as he dons his warmest jumper and leads us on an inspiring journey, reminding us that with an open heart and a curious spirit, we can find magic in every moment and create a life filled with health, happiness, and wonder. Copyright © 2023 by dr Agne Straukiene. All rights reserved. No part of this publication may be reproduced, distributed, or transmitted in any form or by any means, including photocopying, recording, or other electronic or mechanical methods, without the prior written permission of the publisher, except in the case of brief quotations embodied in critical reviews and certain other noncommercial uses permitted by copyright law. Music: Enchanted Journey by Kevin MacLeod is licensed under a Creative Commons Attribution 4.0 licence. https://creativecommons.org/licenses/by/4.0/ Source: http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1100799 Artist: http://incompetech.com/ Become a supporter of this podcast: https://www.spreaker.com/podcast/beewellwithms-podcast-by-dr-agne-straukiene--5762905/support. | |||
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