Ask the Expert – Détails, épisodes et analyse

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Ask the Expert

Ask the Expert

Siegel Rare Neuroimmune Association (SRNA)

Business & Entrepreneuriat

Fréquence : 1 épisode/29j. Total Éps: 148

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The goal of our “Ask the Expert” podcast series is to share the latest research and information on rare neuroimmune disorders and provide an avenue for individuals diagnosed with these disorders and their family members to ask questions to experts who specialize in these disorders. The podcasts are moderated based on questions submitted by our community. We would like to hear from you. If there are topics that you would like us to address in our podcasts, you can share your thoughts by sending an email to info@wearesrna.org and please use SRNA Podcast in the subject.
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1213. Operant Conditioning Rehabilitation Studies

Saison 12 · Épisode 13

vendredi 6 septembre 2024Durée 15:51

In this episode titled, "Operant Conditioning Rehabilitation Studies," part of the "Ask the Expert: Research Edition" series, Krissy Dilger of SRNA was joined by Dr. Aiko Thompson. Dr. Thompson explained the fundamental principles of operant conditioning and its application in enhancing motor function and sensory pathways in individuals with spinal cord damage due to neuroimmune disorders [00:01:02]. They delved into specific trials aimed at improving spasticity, foot drop, and neuropathic pain, highlighting current studies and ongoing trials [00:02:28]. Dr. Thompson shared details on how eligible participants can take part in these studies and the promising potential outcomes [00:13:39].


Aiko Thompson, PhD is a neuroscientist and an associate professor in the College of Health Professions, Medical University of South Carolina, Charleston, SC. She did her PhD with Dr. Richard Stein at the University of Alberta, Canada, and then did a postdoc training with Dr. Jonathan Wolpaw at the Wadsworth Center in Albany, NY. During her PhD, she was engaged in non-invasive human neurophysiology / plasticity research related to the use of FES (functional electrical stimulation) foot drop simulator. She also started investigating normal and abnormal spinal reflex modulation during walking and other dynamic movements in people with and without chronic CNS disorders. Then, during her postdoc, she developed the human H-reflex operant conditioning protocol.


In 2007, Dr. Thompson established her own lab. Since then, she has been working on understanding CNS plasticity in human sensorimotor control and how to guide the plasticity to help restore useful function in people after CNS damage. Her current research focuses on investigating functional roles of spinal reflexes and evaluating the CNS plasticity associated with operant conditioning of EMG evoked responses (e.g., spinal reflexes and motor evoked potential to transcranial magnetic stimulation) in people with SCI and other neuromuscular disorders. Her ongoing research is funded by NIH, DoD, South Carolina funds, and private endorsements.


00:00 Introduction to the Podcast and Guest

01:02 Understanding Operant Conditioning

02:28 Background and Development of Operant Conditioning Trials

05:33 Current Research and Clinical Trials

09:43 Setup and Participation in Studies

11:50 Study Results and Future Directions

13:39 How to Get Involved

14:29 Acknowledgements and Sponsor Information

1212. The Role of Physicians and Patients in Legislative Advocacy

Saison 12 · Épisode 12

mercredi 7 août 2024Durée 36:03

In this episode of "Ask the Expert," hosted by Krissy Dilger of SRNA, Dr. Shuvro Roy talked about the importance of legislative advocacy in healthcare [00:01:10]. Dr. Roy discussed how physicians can engage in legislative advocacy by sharing their practice stories and providing technical expertise [00:05:05]. He emphasized the crucial role of patients in advocacy, highlighting that their personal stories carry significant weight with legislators [00:07:45]. Dr. Roy also shared examples of successful advocacy efforts, such as telemedicine policy changes and Medicare reforms, contributing to better patient outcomes [00:15:10].


Shuvro Roy, MD is an assistant professor of Neurology at the University of Washington, specializing in Neuroimmunology. He completed his neuroimmunology and neuroinfectious disease fellowship at Johns Hopkins University. He graduated from Medical School at Ohio State University and completed his neurology residency at University of California, Los Angeles. Dr. Roy is actively engaged with a number of projects to improve access to care, healthcare inequality, and patient safety for people with MS and related conditions, with a special interest in neuromyelitis optica and MOG antibody disease. His primary research focus examines how to better leverage health systems to understand and treat neuroimmunologic disorders. He chose to work with people who have MS and rare neuroimmunologic conditions because of the opportunity to build longstanding patient-provider relationships and to help his patients thrive in the face of challenging lifelong conditions.

1203. Community Spotlight - Rick Telander

vendredi 15 mars 2024Durée 42:58

The “Community Spotlight” edition of the “Ask the Expert” podcast series shares the stories of our community members. For this episode, Rick Telander joined Dr. GG deFiebre of SRNA to talk about his journey with transverse myelitis (TM). Rick shared about his diagnostic process [00:08:05], the testing that took place, and the treatment and rehabilitation that he received [00:09:25]. He emphasized the importance of early diagnosis, research for better treatments, and support from organizations like SRNA [00:25:02]. Rick also discussed ongoing symptoms, his experience of living with TM, and the children’s book of poetry that he published [00:26:11].


Rick Telander is the Senior Sports Columnist for the Chicago Sun-Times. He is the author of ten books and was previously a senior writer for Sports Illustrated and ESPN, the Magazine. An original member of “The Sportswriters on TV” television show, Rick has been named Illinois Sportswriter of the Year nine times, and his work has been collected in over a dozen anthologies. He has been awarded the Sigma Delta Chi Award by the Society of Professional Journalists and the Dan Jenkins Lifetime Medal for Excellence in Sportswriting from the University of Texas. In 2021 he was inducted into the National Sportswriters Hall of Fame in Winston-Salem, North Carolina. Rick’s book, Sweet Dreams: Poems and Paintings for the Child Abed is available online:

https://www.skyhorsepublishing.com/9781510778337/sweet-dreams/

508. Gaining Functional Recovery through Occupational Therapy

Saison 5 · Épisode 8

mardi 22 août 2017Durée 58:47

Gaining Functional Recovery through Occupational Therapy

507. Open Forum on Acute Disseminated Encephalomyelitis

Saison 5 · Épisode 7

jeudi 13 juillet 2017Durée 59:18

Open Forum on Acute Disseminated Encephalomyelitis

506. Open Forum on Neuromyelitis Optica Spectrum Disorder

Saison 5 · Épisode 6

mercredi 21 juin 2017Durée 55:28

Open Forum on Neuromyelitis Optica Spectrum Disorder

505. Open Forum on Transverse Myelitis, including Acute Flaccid Myelitis

Saison 5 · Épisode 5

jeudi 25 mai 2017Durée 57:42

Open Forum on Transverse Myelitis, including Acute Flaccid Myelitis

504. The Role of Nutrition in Managing Your Health

Saison 5 · Épisode 4

mardi 18 avril 2017Durée 51:05

The Role of Nutrition in Managing Your Health

503. Managing your health after a rare neuroimmune diagnosis

Saison 5 · Épisode 3

mardi 21 mars 2017Durée 57:37

Managing your health after a rare neuroimmune diagnosis

502. Vaccinations and rare neuroimmune disorders

Saison 5 · Épisode 2

mercredi 22 février 2017Durée 57:03

Vaccinations and rare neuroimmune disorders


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