Explorez tous les épisodes du podcast A Hero for Epileptics

AHFE has been offline for a bit on our podcast and we are back to share info with our listeners and where we are with our Founders condition. Learn more at www.aheroforepileptics.org #Epilepsy #Seizures

Seizures, Covid, work and the new year. Let’s go!

Catching up on where we are and How Bruno is doing with new seizure meds and the RNS device

The CEO asks his partner/caregiver to describe a seizure from start to finish.

Another month into the COVID pandemic and we discuss where we are, new tests for Bruno’s epilepsy and other safety tips to keep you well in your own home if a seizure occurs.

Happy New Year to all our followers and we hope you are all well and staying strong. It’s been a long year and we look forward to a more positive one health wise this year.

Where are we with AHFE and what does this month mean to us.

We are again back after a lot of craziness happening this past few months. We are all surviving right now and have to stay positive.

We have been moving and taking care of our health, but we are ready to get back to business and raise awareness about epilepsy.

Informative live health hour from MedicAlert Foundation focusing on COVID-19 with special guest , Dr. David Shulkin answering questions. Access the compiled resource center here - https://www.medicalert.org/covid19resourcecenter

Today is Purple Day and we are joined by our founder and CEO, Bruno Fiacco as well as special guest MedicAlert Foundation. You can learn more about them at www.MedicAlert.org and www.MedicAlert.org/living-with-epilepsy Use code PROTECT25 to save 25% on a new medical ID.

Where are we during this time and why it’s important to remember those with neurological conditions while facing Covid-19.

Who are the doctors that focus on the brain and nervous system and why is proper medicine taking important.

Second half of where we are with Bruno’s healing and AHFE.

Where we are as a an .org, personal growth and AHFE happenings. Also an update on the Founder as he recovers from RNS implantation.

Happy New Year and what AHFE has been up to in the way of surgery, investing and work.

We are a non profit organization raising much needed awareness about epilepsy. The founder had epilepsy and his wife works with him as both a caregiver and business partner. Their mission is to get more research to find a cure and also make sure that all those with epilepsy or other brain disorders keep fighting everyday to have a better tomorrow.

Its the time of year for fundraising as well as a decision to purchase our first property. We also discuss what’s next for the CEO as we are speaking to a surgeon this week about a neuro procedure.

Where AHFE is? potential surgery for our CEO and keeping sage hobbies.

In case of an epilepsy emergency keep a written response plan with you.

Running around, seeing family and where Bruno’s health is.

Michelle Fiacco, CMO of AHFE talks about epilepsy in the US and how it compares to other neurological conditions.

Over 65 million people have epilepsy worldwide and close to 4 million in the US. Bruno Fiacco, our CEO wants to raise awareness all November long.

Plans for holiday pre travel that also keeps someone with epilepsy safe. Why it’s important to work together in a marriage.

Where are we with medical and non profit work. Also our condolences to the Cervantes family.

Worldwide as well as domestic US stats.

Life gets in the way and you have to remind yourself that sometimes you will get upset or be tired or not in the mood to deal with certain aspects of your day. Don’t give up no matter the condition you are facing or if you are a caregiver. We are all human. Support AHFE today at www.aheroforepileptics.org/donate

What is happening with the cat? How were Bruno’s seizures this week?

We remember 9/11, How can you enjoy movies with bright lights and flashing?

Seizures can be placed in many categories based on the parts of the brain in which they occur. There are over 40 types of seizures.

Taking a break is always important and sometimes leaving your home is healthy.

This is a tool that helps doctors diagnose epilepsy by finding irregular electrical activity in the brain.

Bruno Fiacco, CEO of AHFE has started a new diet, is seeing his eligibility for a medical procedure and has been having some dizziness in the am.

What are the differences between devices to control seizures?

Doctors appointments, summer and staying busy in an epilepsy world.

Cameron had a seizure in his sleep and although it may not have been from epilepsy, it is still important to raise awareness around why seizures occur and how they affect all our lives. We also discuss 4th of July and the weekend.

There are many factors that can cause a seizure that may not make it epilepsy. You will get an overview of what those are.

Its been very busy in and out of the organization. Always good to get re grounded and continue to work hard.

Whether it’s a new cat or new a new person or a new job, make sure you learn about every facet of what you are doing so that it’s comfortable and happy all around.

Where are we with the cat, the company and life?

So per the neurologist recommendation we got a cat to see if he will help with Bruno’s seizures, give him companionship and comfort him.

From the conference on Sunday to Bruno having some seizures that have left him a little bruised to what we have planned for the long holiday weekend.

No matter what someone is facing they are not their illness or disorder or issues. They are a person and should be treated as such. Also as a caretaker you have to take care of yourself.

We discuss tonight with our CEO Bruno Fiacco, 2 upcoming ideas that may lead to some big things.

We have a lot going on at AHFE including an upcoming trip. What do you do to get prepared?

Its a holiday weekend for everyone celebrating Easter and/or Passover. We just want to give some brief insight as to where we are as a non profit and what we will be doing to keep raising awareness for epilepsy.

Holidays, health and what we are up to.

Do meds help all epileptics and those with seizures? What else are we looking to do to control seizures? Where is AHFE right now?